A solution on paper only

This is a real-life tale of the fall-out from the FDA restricting the use of hydrocodone, better known by the brand names Vicodin, Lortab and Norco. Notices like this hang from cabinets in every doctor’s office I have visited. IMG_3782

I am not a junkie. I  am not an abuser of painkillers. prescription or otherwise. I have no desire to self-medicate with painkillers. That’s what wine is for. Duh.

Millions of people do self-medicate with Vicodin, though, and last Fall the U.S. government stepped in to try to dethrone Vicodin from its perch as most prescribed medication in the entire country. Vicodin is the Miss America of painkillers. In 2010, doctors in the United States wrote 131 million prescriptions for Vicodin. First runner-up in the Miss America of Prescription drugs was Zocor, a statin that trailed Vicodin by 36 million sripts.

So, too many people asked for Vicodin, too many doctors complied, and an epidemic of misuse occurred in which drug-overdose deaths claimed more lives than car crashes. In drug-overdose deaths, an estimated three-fourths involve painkillers, according to federal statistics. So the government stepped in and reclassified hydrocodone as a Schedule II drug, alongside the most powerful drugs, like morphine and oxycodone. With that reclassification, it became damn near impossible to get a prescription for Vicodin. No longer could a doctor call in a prescription for Vicodin. No longer can a physician’s assistant prescribe Vicodin. No longer can Vicodin just sit on the shelf next to all the other drugs; now it must be locked up in a vault.

The sticky wicket with drugs like hydrocodone is that it is one of the most effective drugs against pain, but it is also has the potential to be the most addictive of the prescription drugs. No doubt the misuse of painkillers like Vicodin is a problem and can ruin lives. However, pain has that same potential. Whether chronic or situational after a surgery, pain can ruin your life.

I know, because I live it.

I have chronic pain, from a misaligned and thrice-operated-upon knee as well as from carpal tunnel syndrome. Every single day I have pain. Not just a little bit, either. And not the kind that is alleviated by OTC meds or Tylenol 3. But the kind that not only affects my everyday life but has also changed who I am. Studies show distinct links between pain and anxiety, and that chronic pain destroys our physiological ability to experience joy. This I know to be true. I am at war with my body, and I am losing.

When the pain from my carpal tunnel became so bad that I could hardly use my hands and fingers, especially first thing in the morning, and when the pain awakened me more than one time every night, I knew I had to schedule surgery. I’ve been putting off the CTS surgery for a while because, quite frankly, I am so done with surgeries. I am so over surgeries. I can’t even. Yet I must.

I got several recommendations for hand surgeons and chose Dr P, who did CTS surgery on one of my fellow gym-rat friends. She was back in the gym, albeit at a reduced pace, less than a week after surgery. That reassured me and got me into the exam room for my consultation with Dr P.

Along with  my consult, I got a nasty surprise: not only do I have carpal tunnel syndrome, I also have cubital tunnel syndrome, and it too requires surgery.

Yeah, I’m an overachiever that way.

I’d never even heard of this ghastly cubital tunnel syndrome before, and am guessing you haven’t either (it is the second-most common nerve entrapment in the entire human body, but is very often misdiagnosed). It’s basically nerve entrapment of the ulnar nerve, which runs from the side of the neck to the fingertips. The ulnar nerve passes through the cubital tunnel behind the inside of the elbow and runs all the way down the forearm and into the hand. This nerve provides feeling to the pinky and ring fingers as well as working the muscle that allows us to pull our thumb into the palm of our hand.

There are two ways to fix cubital tunnel syndrome, and they both suck. In medial epicondyltetomy, the bony bump of the inner elbow is removed to allow the ulnar nerve to slide through the cubital tunnel (translation: the surgeon shaves part of your elbow off in order to re-route the ulnar nerve). That seemed pretty horrifying to me, yet the other method is even worse. In ulnar nerve transposition, the surgeon creates a brand-new tunnel for the ulnar nerve by carving a trench in the flexor muscles of the forearm and relocating the ulnar nerve from the cubital tunnel into the newly carved tunnel.

In my case, Dr P won’t know which procedure he will need to do until he gets in there. His plan is to make a 6-inch incision along the inner part of my arm between my shoulder and elbow. Then he’ll have a little look-see and decide which form of torture best suits my jacked-up body.

So, just to recap: I’ll be having not one but two surgical procedures: one to correct the carpal tunnel syndrome, and the other to reroute my errant ulnar nerve. Both surgeries involve the usual cutting, splaying, digging in, and stitching up flesh (and perhaps bone, too). Both surgeries involve jacking with nerves (ouch). The cubital tunnel surgery involves cutting through muscle when the ulnar nerve transposition is called upon to solve the problem. Both methods of correcting the cubital tunnel issue involve physical therapy (in the case of ulnar nerve transposition, PT can last upwards of four months).

My experience with surgeries that involve nerves, bones, and muscle is that the result is pain. Lots of pain. Which brings us back to the government reclassifying hydrocodone.

In the course of discussing the two surgical procedures with Dr P, I asked about pain management. I was reeling from the cubital tunnel diagnosis and the nasty surgery it entails, as well as the hard recovery involved and was totally unprepared to hear him say that his standard of care for pain control — after cutting nerves and potentially shaving off bone and carving through muscles — is Tylenol 3.

Let me repeat: cutting nerves, shaving bone, carving through muscle. A 6-inch incision. Tylenol 3.

Oh, hell no.

I gave him a brief synopsis of all my previous surgeries, which have involved cutting nerves, shaving bone, and carving through muscle, and informed him that Tylenol 3 doesn’t do shit for that kind of pain. He countered with an offer of a nerve block during surgery, to provide short-term pain relief. I shook my head in disbelief at the idea of a nerve block making more sense than a prescription for a small number of pills to be used at my discretion. We had reached an impasse.

He suggested I consult a pain-management doctor to discuss a stronger form of pain-killer. Again, I shook my head at the idea that involving another doctor — and adding another layer of expense, to me and my insurance company — made more sense than writing a prescription for a handful of pills.

Guess what? I happen to have a pain-management doctor, because that’s how we roll when we have chronic pain. You might think that a pain-management doctor could help a patient manage pain. But when I called my pain-management doctor’s office to request a stronger form of post-surgery pain-killer, his receptionist’s response was, and I quote, “I can tell you that’s not going to happen.”

I suspect what she meant was that because I has not seen him recently I needed a referral in order to make an appointment. I have learned the hard way how to read between such lines. So I called Dr P’s assistant and reported back. She called the pain-management doc with a referral and was told that I could come see the pain-management doc on March 16 — which is 10 days after my surgery.

I’m still wondering how that would help me.

Going in for surgery is stressful, on many levels. Worrying about pain control afterward should not be a part of that mix.

Here’s the bottom line about the lock-down on hydrocodone: there is no longer any difference between a patient who seeks a prescription for a short-term course after surgery/injury and those looking for a fix to get high. The new policy is reductive and buys into the punishing adage of a few bad apples spoiling the bunch. For patients like me, who want the peace of mind that comes with knowing adequate pain relief is available, the lock-down creates shame.

Having to beg for effective, short-term pain relief after a legitimately painful surgery creates shame.

As if that’s not bad enough, many pharmacy groups, pain consultants, palliative care specialists, and oncology specialists believe that the lock-down on hydrocodone won’t work. These guys realize that the lock-down will likely lead to different, possibly more devastating, problems. Those who seek hydrocodone for recreational use or escapism are going to find it, regardless of the reclassification. But those who need it situationally are shit out of luck. And that’s really shameful.



10 Comments on “A solution on paper only”

  1. Renn says:

    Wow. So sorry you need this (ouch!) surgery. And you’re right — there is no longer any difference at all between patients in need of these drugs and the people who abuse them.

    The pharmacies are also more restricted now. Since my BC diagnosis, I have an Rx for an anxiety-reducing drug I’ll call ‘Vitamin X.’ I no longer pay in cash for Vitamin X. at the pharmacy because doing so triggers a flurry of questions by the person behind the counter. (I guess abusers don’t use credit cards.) It makes me feel like I’m doing something wrong just by refilling a drug prescribed for me by my doctor to take when I need it. I get what you’re talking about: the word “shame” sums up the experience perfectly.

    I hope you can get someone in your doctor’s office to listen to you. I have a hard time believing that Tylenol 3 is the only drug your surgeon prescribes for the invasive procedures he does on people daily.

  2. Trevor Hicks says:

    Given a single-use “change the government” magic wand, I think I would abolish the DEA and dramatically scale back the FDA. Other than some antibiotics, there’s no reason for the government to tell people what drugs they can take.

  3. David Benbow says:

    Next time you see Dr P, try breaking a few of his toes with the heel of your shoe and see if Tylenol 3 will meet his needs. Good luck.

  4. Goodness, how complex is your medical system. It seems to be set up specifically, to involve as many expensive health care professionals as possible. I seem to remember you had a lovely complimentary therapist ( a birthday party?), could they help with the anxiety management..

  5. billgncs says:

    When my mother had terminal lung cancer, she stopped treatment of a Friday and declared for hospice. The hospice would enroll her Monday, and that friday night she ran out of pain meds. We called her Dr, and he said she wasn’t a patient anymore and he could not perscribe anything. The only thing they told us was to take her to the emergency room, a hard thing for a very sick woman, and very costly.

    When I had my hip replaced, I had pain meds, and had only taken 1 pill out of the bottle. I ended up driving home to Chicago ( 6 hours, and then back six hours ) to get the pills out of
    my medical cabinet at home. She used those pills until we got her enrolled at hospice.

  6. Tamara Kay says:

    Nancy, good luck on your surgery tomorrow. I hope everything is successful. You deserve an easy recovery. So sorry to hear about the Norco problem. Gosh, I had a tummy tuck three months ago, and I can’t imagine life without that level of pain relief. I hope you get whatever you need

  7. mmr says:

    My thoughts are with you, Nancy. And I have to say that a part of me cringes on so many fronts–not just the PTSD of more surgery, of facing nerve pain and regeneration (or the awful hollowness of not feeling anything at all anymore if the nerves are severed for good), of anti-infection protocol–I’m sure you still keep the bleach and Lysol and Hibiclens at hand to help “anxiety” that memories of a wound vac or debriding can cause– or just the pain in the butt of taking downtime once AGAIN. I have to say that the thought of any surgery on my arm would cause extreme anxiety thinking about the lymphedema potential. Probably not something that most others have to worry about. I’m going to be thinking of the words my friend Polly gave as she was in chemo putting up her last battle: “Hope for the best, prepare for the worst”. I now know exactly what she meant and I know you do too. But I’m truly hoping that all the good thoughts of everyone who reads your blog will be sent your way and skew things toward that best end. Either way, I owe you a glass of champagne. That might help the pain.

  8. Mandi says:

    With mets in my spine pain and I are dear friends these days. I have also been through some odd ringers with my insurance company reacting to my prescriptions (apparently they don’t keep a file of my diagnosis, just lovely threatening letters to make you feel like a junkie). It is a shame that the people who need medication have to fight the world of people that abuse the medication. I wish I had the answers.

  9. The Accidental Amazon says:

    Oh, Nancy, this is so awful, isn’t it? I see post-op patients every day, to start post-op homecare physical therapy with them, and it’s been a real nightmare for some of them to recover. How the heck are you doing? For goodness’ sake, though! It’s not like it’s bloody illegal to still prescribe vicodin or percocet or oxycodone, etc., etc. Not every patient is a ‘drug-seeker’ — oh, how I hate that phrase — and, depsite the alarming statistics, most patients who have a legitimate need for chronic or post-op pain control do NOT become drug addicts or sell their prescriptions on the street. These docs need to get a clue and stop over-reacting. Pain assessment and management in this country is deplorable. I hope you are okay & not suffering too much. Gentle hugs. Kathi

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