Susan, science, and stagnationPosted: June 14, 2012
I’m not sure “stagnation” is an actual word, but I like the alliteration so it stays. It’s my blog, after all, and I can make up words if I want to (but I’m still not comfortable ending a sentence with a preposition, hence the parenthetical aside).
Ok, with that out of the way…on to the news.
Susan Love announced that she’s been diagnosed with leukemia.
My immediate response to this news: Dammit.
Dr Susan Love is someone I respect and admire, and she’s done more for the breast cancer cause than a room full of Komens, IMHO. Her book, Dr Susan Love’s Breast Book, is considered the bible for those with breast cancer. Her focus is on research, not ribbons. The mission statement for her organization is this: “The Dr. Susan Love Research Foundation works to eradicate breast cancer and improve the quality of women’s health through innovative research, education, and advocacy.” She mobilized the Army of Women to get women of all ages, races, and stages involved in research. I’ve participated in several AOW studies, from simple online surveys to blood tests, and believe wholeheartedly in what she’s doing. Love says, “The key to ending breast cancer is to learn how to stop it before it starts.” YES! She also says,
“I have spent my whole life working in the field of breast cancer. At this point I am frustrated that we are still doing the same treatments with about the same results as when I started thirty years ago. Now that we can get to where breast cancer starts we have the opportunity to eradicate it. I am excited and impatient. The road is clear. We can go slowly or quickly, but everyday that we delay another 592 women will be diagnosed and 110 will die. The cost is too high to hesitate. This is our job not our daughters’, granddaughters’, nieces’ or nephews’. We can do it and we have to do it!”
When Love announced her diagnosis yesterday, she was resolute in facing the bad news, saying “As many of you know, I have never shrunk from a challenge. I plan to bring my indomitable drive and energy to overcoming this and will be back to work as soon as possible.” Go get ’em, Susan!
Next, the science news. A 45-year-old Bay Area man has been cured of HIV and the cause of his cure is a bone marrow stem cell transplant. My friend Katie at Uneasy Pink sums up the science of this breakthrough much better than I; check it out. Long story short is that the guy, who tested positive for HIV in 1995, also battled leukemia and underwent a bone marrow stem cell transplant in Berlin in 2007. The donor was immune to HIV, and as those cells were transplanted, so was the immunity.
Famed AIDS researcher Dr. Jay Levy, who co-discovered the HIV virus, said this case opens the door to the field of “cure research,” which is now gaining more attention. “If you’re able to take the white cells from someone and manipulate them so they’re no longer infected, or infectable, no longer infectable by HIV, and those white cells become the whole immune system of that individual, you’ve got essentially a functional cure.”
I am all kinds of fired up about this incredible news.
There is great potential, and the idea of cure research is exciting. I would love to see if spill over into breast cancer. As Katie puts it, “I understand that HIV/AIDS and cancer are very different diseases. But look at the progress that has been made over several decades. In 1983, the idea that we would be deciding whether someone was cured or not of AIDS, that we would be debating how few cells mean cure, was unthinkable. Back then, virtually everyone who contracted AIDS died of it, and in about 9 months from diagnosis. Now the average survival time after diagnosis is 24 years.”
Survival time of 24 years. Remember when AIDS first hit the scene in the early 1980s, and a diagnosis was the same as a death sentence? Now, 30 years later, AIDS experts are talking about cure research? Amazing.
Why isn’t this kind of thinking being applied to breast cancer research?
I’m guessing the reasons are many, but can’t help but think that one reason is because we’ve made breast cancer so pretty. It’s one of the most heavily funded cancers in terms of research, yet as Dr Love points out, treatments and results are the same now as they were 30 years ago. I know, I know — cancer is incredibly complex and varied, not just in terms of the different types (breast, colon, etc) but within each type, there are immense differences. Then there are the differences in each person who’s diagnosed, as well as the differences in each cell. I don’t expect a panacea, but I do expect cure research.
It’s funny — not ha ha funny but peculiar — that in trying to de-stigmatize breast cancer, we’ve ended up trivializing it. The glamor disease is marketed as rosy, fun, and celebratory, when in fact, it’s deadly. And in the cases in which it doesn’t kill its victims, it nonetheless maims them and messes them up in untold ways. Even the “lucky ones” who “caught it early” and “enjoyed the best possible outcome” are scarred, physically and emotionally.
Do we really need ads like this?
What does this accomplish, exactly? As a woman, this makes me mad. As a woman diagnosed with breast cancer, it infuriates me. And as a woman who has undergone reconstruction and is facing the hard truth that no amount of surgery will ever restore what I once had, it makes me want to strangle someone with my bare hands. Maybe I’ll start with those models then move on to the jackass behind the ad campaign.
If you zoom in on this dumb ad, it’s not entirely clear what’s going on here besides lots of skin, perky breasts, and a hand. This is what passes for breast cancer “awareness?”
Did the ad execs behind this think the hint of lesbianism would sell? Did they consider that the woman of color in the middle would be completely shafted should she be diagnosed, because black women die from breast cancer far more often than white women?
Then there’s the text of the ad: Connect, communicate, and conquer? Could this be any more vague and vapid? What the hell are they even selling? I had to look closely and read the fine print to see who put this ad out there. It’s on the very bottom of the ad — the Breast Cancer Awareness Campaign, which is run by Estee Lauder. Again, what the hell are they selling? Remove the pink-ribbon bracelet and this could easily be an ad for a plastic surgeon hawking breast augmentation.
I’ve had it with this side of the “awareness” campaign. Can anyone tell me what this kind of marketing does to actually help our cause? I know the research dollars have to come from somewhere, but surely we don’t need naked breasts to plead our case.
These last two are my favorite. The boxing girl, who I’ve written about before, because the idea of being a fighter when it comes to breast cancer is so pervasive, and the flip side to that idea being the ones who die from this wretched disease somehow didn’t fight quite hard enough and “lost the battle.” The “Expose the Truth” ad, from the Breast Cancer Research Foundation, because the “truth” has nothing at all to do with the model they chose to represent their message. The truth is, ads like these perpetuate the idea that breast cancer is a sexy, pretty disease.