A tale of 2 notes

As I was going through photos yesterday to make the Macy retrospective, I found 2 notes that she has written me. One from several years ago, the other from last night or this morning, sneakily taped to my computer where she knew I would find it.

But before I get to that, I must share this:

At our house, we have always made a big deal out of birthdays, and after coming head-to-head with the cancer beast, they’re even more of a big deal.

It starts with frantic prep on my part, and while I’m not a procrastinator, I seem to be leaving more and more to the latter minutes these days. I’ve never been a “seat of my pants” kind of girl, and this existence troubles me. But time marches on, birthdays don’t wait, and expectations are high.

The kids get a special breakfast on their special day, eaten on their special plates. As the Church Lady from vintage Saturday Night Live would say, “Isn’t that special?”

Don’t barf yet, it’s not all Martha Stewart here. The muffins were from a mix (although I did add fresh blueberries and a dusting of cinnamon sugar on top. Take that, Martha!)

Along with the special breakfast, the birthday boy/girl gets to choose dinner. As much as I complain about my kids not eating my home cooking (what in tarnation is wrong with them??? There’s never been a plate of liver & onions in front of them, so I don’t know why they balk), I  must be doing something right because Macy wanted dinner at home.

I was really hoping for Benihana.

But no, she wanted a home-cooked meal of…potatoes. All potatoes, all the time.

We had mashed (yukon golds), twice baked (russets with sour cream, cheddar & chives), and potato salad (more yukon golds). And roasted broccoli. 

Yes, she loves potatoes. And yes, she would be perfect for the potato commissioner job they’re trying to fill in Idaho. But for now, she’s at my kitchen table, eating her fill in potatoes. Bless her carby little heart.

(And yes, that is her gum on the plate. Gross, but so Macy.)

Here’s the reigning potato queen, and yes that’s a can of Coke at her side. My mother is spitting nails right now, if they have nails and one can still spit in Heaven. That was never allowed at her table, but times have changed, and we weren’t having birthday cake, by order of the birthday girl. I guess no one has figured out how to bake a cake from potatoes yet, or else we would have had that. Maybe two. With potato frosting.

So this brings us to the notes. I found this one when I was looking at all the vintage Macy stuff and am kicking myself for not recording the date and her age. Based on the writing and spelling, I suspect preschool (I need to learn how the archaeologists figure out hieroglyphics; that would help).  

Allow me to translate: Dear Mom, I hope your life is good. Love, Macy

If that doesn’t warm your heart, there’s no hope for you and you’re completely on your own here.

For the second note, I don’t think I need to translate. Her handwriting is marginally better, and Dan Quayle would approve her spelling.


Macy! A retrospective

Nine years ago today, Macy Carlisle Hicks exploded into this world.

Big brother Payton had no idea how much his world would change. Not just having to share his parents & toys, but being bowled over by this little force of nature. Nine years later, he’s still trying to figure her out.

From the very beginning, this little girl was going places. And she would get there with accessories — she always had a purse on her arm, and in general liked shoes more than clothes. I won’t embarrass her by publishing, but we have lots of photos of her in a diaper & shoes — nothing else!

Don’t let that sweet face fool you — there’s a holy terror inside that teeny little body.

She’s a master of disguises. One minute she looks like a sweet, innocent, quiet and tidy little girl.

The next minute, she’s doing this…

From a very early age, Macy was wild & crazy and very, very adept at expressing herself. (Notice the look on my face here: exhaustion mixed with helpless with a little bit of terror thrown in for fun.) She was not even two years old and had mastered the art of the crazy face.

By age 3, Macy had enlisted accomplices and trained them well in her arts. She will likely shoot me in the head for publishing a photo of her in a Dora nightgown; despite her young age there she currently has her fashionista rep to uphold.

This was a common sight at our house in her early years. In this particular instance, she decorated herself while I was talking to a workman in our new house about some warranty repair issues. The guy was in his 20s, unmarried without kids, and he about had a heart attack when she appeared on the scene like this. I asked him to wait a sec while I got my camera. After I took the photo he said, I can’t believe you stopped to photograph her; I thought you would spank her or something. I shook my head and said, spanking a true artist is futile and only makes your hands hurt.

There seemed to be no end to her uses for markers. Thank heavens they’re washable. The blue beard is one of my favorites. I especially like how it complements the blue writing on her Red Sox shirt (and yes, we brainwashed her, too, but it didn’t take, and she can be spotted in Yankee apparel. YUCK.)

She’s not looking too happy in this photo; maybe I caught her and subjected her to a picture before she was done creating her look.

Eventually, she moved on from markers and discovered make-up.

In case you are wondering, it was not Halloween. Just an ordinary day in Macy’s life.

You know how those creative geniuses can be.

At least she looks happy in this photo. I’m just glad she wasn’t blinded by all the sparkly gunk in and around her eyes.

At some point, she roped Payton into the madness.

She wasn’t any  neater when it came to meals, either.

We used to joke (and still do, actually) that Payton rarely had a crumb or speck of food on his face or clothes, but Macy wore more than she ate.

I’m pretty sure she needed to be hosed down after this meal. Spaghetti in our kitchen in Durham. Good times.

She liked to drink with gusto, too.

I love how she has her sippy cup in one hand, and a water jug in the other. If she’s a double-fisted drinker in college, we’ll say, remember when… This too was in the kitchen in Durham; I will never forget that laminate floor. 

This is one of my all-time favorite shots of Miss M.

She had just turned 3 and we were visiting my parents’ friends, Keith & Nancy Davis, at their beach house in Galveston. It was February, so cold and windy but we still got out on the beach. Macy found this shell and was convinced she could hear the ocean.

A beach baby was born. This girl loves the beach: the sand, the surf, the seagulls…all of it.

In the picture below, she’s 2 and at Salisbury Beach in Massachusetts with her buddy Amanee.

Look how tiny she was. But never without her shades, even at age 2. That seems like 100 years ago.

She looks way too comfortable in that beach chair, enjoying the good life.

When she wasn’t at the beach, she was in the pool. Swimming has always been basic to Macy’s existence. Even as a tiny baby, she loved to be in the bath, whether in the sink, the portable baby tub, or eventually in the real bathtub. To this day, she can stay in forever.

Swim team was fun. She especially liked winning a blue ribbon.

And if winning one blue ribbon was fun and made her proud, look what happened when she won two blue ribbons: 

When Macy was still in preschool, we decided to build a pool. Well, we decided to hire a pool-building company to build a pool. Macy was ecstatic, and couldn’t wait for that pool to be finished. 

She has always been a hard worker, and even at this young age she worked hard at hosing down the gunite stage of the pool.

It had to be done twice a day, and she took that job very seriously. In fact, she seemed offended if anyone else tried to do it.

I don’t recall for sure, but I’m guessing that the gunite wasn’t the only thing she squirted with the hose.

Come on, fill the pool already, people! Let’s go swimming.

And swim she does, year-round. Yes, it’s usually warm in Houston, but there are some days in the January-February range that are chilly. Those days do not stop Miss M from swimming. Once when she was 3 or 4 and insisted on swimming on a chilly day, Aunt Sophia asked her if it was “nice and cold” and Macy said, “no, it’s nice cold.”

Not long after the pool was finally finished, Macy found a little frog swimming in, but trying to get out of, the pool.

Her animal loving instincts kicked in and she raced to get the net and rescue that frog. This was just one example of her unconditional love of all critters.

Before our beloved dog Maddy died, Macy asked if our next dog could be named Harry. She had been reading the fabulous children’s book series Harry the Dirty Dog and got an idea.

Lo and behold, when we went to Houston Humane Society we found Harry, a not-so-dirty dog. He promptly became Macy’s dog.

She’s an equal-opportunity dog lover, though, which is a good thing for Ed’s dog Sugar, who is wicked and wily and full of energy. Sort of like Macy.

Then there’s Snoopy, and who wouldn’t love that sweet little face. Macy certainly does.

I thought we’d found the cutest dog ever when we adopted Pedey on Payton’s 8th birthday. He was tiny and soft and cuddly and seemed sane compared to the other dogs in our life.

He is indeed all of those things, although not so tiny anymore. But for some reason, Macy doesn’t like him. She says, I don’t know why everyone’s so crazy about Pedey; he’s ugly.  Ok, Macy, whatever.

The birds get in on the Macy love, too, not just frogs and dogs.

She loves to make bird treats for our fine feathered friends.

Take a pinecone, coat it in peanut butter (the messier the better, according to Macy), then roll it in birdseed. Tie a string in the middle of the pinecone.

Voila — tasty treats for all the birds in your life.

After the hurricane, our friend Amanda found a baby squirrel, appropriately named Ike.

Macy thought this was the best thing ever, and couldn’t wait to get her hands on that little guy.

I hope that the grown-up Ike is happy and healthy with fond memories of the sweet little girl who helped care for him when he lost his home in a tall tree in Spring, Texas.

And don’t forget about Jeffrey, the orphaned mockingbird rescued by the Hoover family.

The smile on Macy’s face says it all.

A bird on your shoulder and the sun on your face: does life get any better?

This was a big thrill: meeting Mo Willems, author of some of Macy’s favorite books.

If you’ve never read “The Pigeon Wants a Puppy” then I urge you to get to the bookstore today. You’ll thank me later.

We met Mo at Blue Willow Bookshop one Saturday and when it was Macy’s turn to go through the line and have him sign her books, she wanted to ask him a question. I figured it would be something about the characters or the creative process, or maybe the illustrations. Nope, she asked Mo, “What’s your phone number?”

Starting school was pretty cool. Macy especially liked her beautiful backpack. So much so that not long after school started, she wrote her name all over it, in messy kindergarten scrawl, with a giant black sharpie.

Kinda reminded me of the time she wrote all over our brand-new furniture, and herself, with a giant black sharpie.

I can’t find those photos. Probably burned them because of the painful memories they invoke. But she looked pretty proud of herself, wearing rainboots & a diaper, covered in black sharpie.

The 50th day of kindergarten was lots of fun, and Macy convinced me to get matching poodle skirts. She’s very persuasive.

We also enjoyed the kindergarten Thanksgiving celebration.

With Macy in our lives, we have a lot to be thankful for. And not just around the holidays.

The Dad’s Day Picnic with Papou was pretty cool, too. Especially because Macy got to have a picnic with one of her favorite guys.

She likes anyone who does her bidding, but she & Papou  have a special bond.

Birthdays are pretty special, and Macy loves every bit of the celebration — the gift cards from Gramma & Grampa are one of her favorites. Birthday dinners at Benihana are pretty great, too.

The chef’s hat stays at the restaurant, though, Macy. Sorry.

Make a wish!

Everyone loves the birthday hat, and Macy insists that each person in our family wears it on their birthday.

Whether they want to or not.

Just wear it — it’s easier than arguing with her!

You never know what will be on her birthday wish list. Some years it’s power tools.  At least she knows how to use them.

Safety first!

No matter what’s on the wish list, though, this birthday girl is always ready to party.

Costumes are not required, but Macy would highly recommend them.

Oh, if only every day were Crazy Hair Day!

May you always have crazy hair and lots of treats on your most special day, sweet girl.

Remember the pig pinata?

Could it have been any bigger?

I had to go back to the store — twice — to buy more candy to fill it.

Then we worried that none of the kids would be able to break it.

Never fear, your baseball-loving brother supplied his metal bat. Plastic bats are for sissies.

Flags of celebration always fly for Macy’s birthday!

This party girl knows how do a birthday up right.

And yes, she still loves pigs.

Has from day one and I suspect she always will.

I’m just waiting for her to discover that some people keep pigs as pets. Thanks a lot, George Clooney!

Macy went through a stage in which she loved to send mail.

She “wrote” or more likely scribbled letter and wanted to mail them to friends and relatives near and far.

One year for her birthday, she got a lot of stationery and stamps.

Maybe she’ll be a foreign correspondent someday.

Or maybe just keep in touch with the people she loves.

Wherever you go and whatever you become, it’ll be great. This I know for sure. Because our Macy girl is wild, silly, caring, imaginative, wacky, creative, sweet, inventive, thoughtful, resourceful, funny, engaging, sensitive, loving, and all-around amazing.

Cheers to Macy!


My guardian angels

One of the things I inherited from my mom was several Willow Tree angels. She wasn’t much of a collector, but friends had given these little angels to her over the course of her cancer battle.

You’re probably familiar with these little creatures. They look like they’re made of wood, but it’s probably some synthetic material instead (they are made in China, after all). They’re simple and heartfelt, and each one has a theme. Apparently you can get a Willow Tree angel for all manner of life events, from birthdays to anniversaries to new babies.

There are also symbolic Willow Tree angels, and people tend to give them based on this. For example, the ones my mom had received were Angel of the Heart, Angel of Hope, and Guardian Angel.

I’ve had them on one of the shelves in my kitchen over the desk, next to a stack of cookbooks. Several times I’ve almost knocked them over while reaching for a cookbook, and every time I remind myself to be careful and not go crashing around like a bull in a china shop, or like an overworked housewife around a bunch of fragile angel figurines. At least one of these angels has taken a tumble over the years and needed to go to Ed’s repair shop, where he has a vast assortment of glue and both the time and the patience to fix a broken wing.

Imagine my horror when I once again reached for a cookbook in a big hurry and knocked 3 of the 4 angels clean off the shelf. Before I could even react, there was a tumble of bodies and a heads, literally, were rolling across my kitchen desk. 

It looked like an angel crime scene.

I’m rather superstitious, although I don’t like to admit it but now it’s out there. There’s a black cat that I see in the parking lot of the club a lot, and twice I’ve reversed my route to avoid driving by it. The other day I spilled some salt while refilling the shaker and threw it over my left shoulder, instead of scooping it off the counter and throwing it in the sink. You will never, ever, ever catch me walking under a ladder. No way. Not even on a dare. A few weeks ago while driving down Austin Parkway, I saw about 10 vultures stretched across the street, feasting on something. The sight of all those ghastly birds freaked me out and made me wonder, if crossing a black cat is bad luck, what in the world would happen to the poor soul who crossed all those vultures? You’d have thought the Grim Reaper was sitting on my doorstep, awaiting my arrival. Thankfully those birds were on the other side of the divided road, so I didn’t have to turn around and find another route home.

So when the angles came tumbling off the shelf, I panicked. It took me a few minutes to find all the pieces, and sadly I still can’t find one head. I wouldn’t be surprised if one of my dogs found it and thought it was a tasty treat. Hope the paint is lead-free.

I can almost hear my mom tsk-tsking me from the Great Beyond, shaking her head and wondering why her wild-child daughter is always in such a hurry, or why that girl never learned to take better care of her things, or why she insisted on hopping on top of the desk to reach the cookbooks, instead of going to get the step-stool.

If I had used slowed down, been more careful and used the step-stool, I likely would have been able to avoid the gruesome angel carnage. But I probably wouldn’t have even taken notice of the little angels. I certainly wouldn’t have noticed that the one remaining angel, pictured at the top of this post, is named the Angel of Healing. But I will stop and savor the fact that out of my mom’s angels, that’s the one I need the most.


A weighty issue

I received a serious assignment from my doc. Now don’t laugh when I tell you this, because it’s not funny, and don’t say “lucky you” because I’m not so lucky. It’s serious.

He wants me to gain weight. A lot of it. So he can build my new boobs. 

We’ve had this conversation a couple of times and I’ve stuck my fingers in my ears and said “la la la, I can’t hear you” because I didn’t want to do this. I’ve spent most of my life beyond the age of about 15 trying not to gain weight. When you’re five-foot-nothing, there aren’t a lot of places to hide the extra pounds, and I personally don’t like the way my body feels with a lot of extra weight on my frame. I’ve never been a skinny chick and don’t aspire to be, but don’t want to be mistaken for a contestant on The Biggest Loser, either.

I worked hard to prep my body before and after my mastectomy, to gain as much muscle strength and cardio conditioning while fueling myself with a good diet. I also played as much tennis as humanly possible in the weeks leading up to surgery. It all paid off, too, with a shorter surgery, no need for Alloderm (cadaver tissue used to connect and close mastectomied chests), and a pretty easy recovery. Because I was in good shape, I was up and out of the hospital bed the day after surgery, trolling the halls. When I got home, I had a decent amount of independence because I didn’t need much physical assistance. That was, and is, important to me. So the idea of turning into a big blobby girl, even temporarily, scares me.

The first few times Dr S brought it up, he warned me that I didn’t have enough belly fat to build the new girls. At that point, reconstruction seemed so far away that I didn’t pay much attention. But the last 2 times I’ve seen him, he’s been more stern about it. I hate it when he gets stern with me.

When I saw him a couple of weeks before Christmas, I told him I’d been drinking a few beers for the first time in 15 years, and I wasn’t playing much tennis because of a recurring foot injury. That was about as much as I was willing to commit to his “living large” plan. I did the usual indulging over the holidays, but I also went to the gym.

So when I saw him the other day, instead of shrinking from his “examine the fat” game as I have in the past, I told him I’d been working on a big project — a BIG project — and showed him my newly rounded belly. I was sitting on the exam table so my belly even hung over a little bit. I thought it was quite impressive, as it’s the biggest it’s ever been without a fetus inside of it.

He was not impressed. Not even a little bit.

He told me to pull my jeans down a little and gave me the pinch test, then had me bend over to see how far it hangs. So much fun. I live for that game.

Then he made a very stern face and said it’s not enough. It’s still not enough. It’s enough for one side, but not both. And maybe not even enough for one. Since I have impossibly high standards and insist on a matched set, that’s a problem.

Dr Sternface says I’m not really even a candidate for the DIEP flap procedure, but since I have no other options, we have to try and make it work. I was thinking about this later and wondered, if I’m not a candidate but don’t have any other choices (i.e., tissue expanders to implants), what’s a girl to do?

Eat, girl, eat. And then eat some more. Then have a beer. Followed by a milkshake.

People make fun of me for being a healthy eater. I genuinely like oatmeal with blueberries. I love salad. Not being a carnivore eliminates a lot of the unhealthier options for me, and I like it that way. I’m not super picky but I don’t like drive-through food in general, and I don’t get the “all you can eat” places at all. I’m not a big junk-food junkie, and usually whatever I cook is way better than that stuff anyway. Not being conceited, just stating a fact.

I’m not doing a very good job with my assignment. Yesterday I had half a bagel with a piece of melted provolone and a handful of blueberries. It felt pretty indulgent to me. Lunch was two pieces of leftover pizza, with an orange. Cheese & crackers for a snack before we played tennis, then dinner after with the tennis gang at a BBQ place. I had pinto beans with pickles, coleslaw, green beans, some mac & cheese and a few fries. Oh, and a roll. Wish I’d thought to put butter on it. Melanie told me that I wasn’t going to get the job done eating all those vegetables and suggested I get a milkshake. Every day.

Today we played 3 sets of tennis and I was hungry. We splurged on brunch at the club, which for me meant mixed fruit, cheese & crackers, salad with lots of blue cheese dressing, and some tuna. Mimosas, of course. Then some pasta with artichoke hearts, mushrooms & sundried tomatoes. Then a few bites of seafood ettouffee. And a sliver of key lime pie and a chocolate-dipped strawberry.

I feel kinda sick.

My doc keeps saying he just hates the idea of me going through this giant surgery and hard recovery and not being satisfied with the results. I keep telling him that any change over the status quo will be an improvement, and I’m ok being average. At least in this one category. He doesn’t seem to believe me, even though we’ve had the same conversation repeatedly.

He wants me to go see the other surgeon who will help him with my case. I’ll have to see what she thinks about the bulk-up plan. Meanwhile, I need to think of a new t-shirt slogan. Something like the “baby” with an arrow pointing at the pregnant belly t-shirt, only a different kind of “under construction.” Any ideas?


Healer

The body is a miracle, the way it heals. A factory of survival and self-repair.  As soon as flesh is cut, cells spontaneously begin to divide and knit themselves into a protective scar. A million new organic bonds bridge the broken space, with no judgment passed on the method of injury.

Wow. That’s pretty prose.  I wish I had written it.

I’d love to claim it as my own, but that would be wrong, and Lord knows I need the great karma wheel to turn my way. I can’t afford to tempt the gods of fate, as they seem to like toying with me.

Carol Cassella wrote that prose. If you’re a fiction fan and don’t know her work, I encourage you to get her books sooner rather than later. Whether you run to the bookstore or download onto your e-reader, get on it. You won’t be sorry. She’s an anesthesiologist-turned-author whose first book, Oxygen, is one of my all-time favorites. Her second book, Healer, wasn’t quite as good but I gobbled it up in hopes that it would be.  I liked her right off the bat, because she’s a Texas native and a Duke graduate. A girl after my own heart. She’s also the mother of two sets of twins (!) and how she got anything done, much less wrote 2 bestsellers, is a mystery to me.

I read Healer this summer, while I was trying to heal. I was struck by the passage above, and loved how dramatically it introduces the book. From the very first sentence, I was hooked. While I certainly didn’t set out to turn this blog into a space for book reviews, sometimes things happen that way, and I’m an equal-opportunity blogger, so there we are.

As a physician, Cassella understands the intricacies and magic of the human body. As an author, she’s able to capture that and express it so that someone like me, an impatient patient, can read it and say, yeah, that’s right–the body is a miracle!

I needed that reminder. I was so focused on wanting my healing to occur faster, I didn’t realize that the fact that it was happening at all was amazing.

Equally amazing is the education this experience (e.g., the “cancer journey”) has provided. I’ve learned a bunch of lessons I never wanted to learn, such as how utterly unfair life can be. I’ve acquired skills I never thought I could and hope to never have to use again. Anything involving packing a wound or administering IV drugs at home falls into that category.

I’ve certainly learned a new vocabulary. Not just the new definition of “normal,” either. Things like nosocomial (originating in a hospital, as in a nosocomial infection). Like debridement (removal of foreign material or dead tissue from a wound in order to promote healing). Like aromatase inhibitors (drugs like Tamoxifen that lower estrogen levels in the body by blocking aromatase, an enzyme that converts other hormones into estrogen). Like oophorectomy (surgical removal of the ovaries).

I’ve learned how to get a good night’s sleep in a noisy hospital. I’ve learned the difference between DCIS (ductal carcinoma in situ) and invasive breast cancer, and that they’re both plenty scary.  I’ve learned that an injection can leave a bruise for close to 3 months. I’ve learned that the practice of medicine is both a science and an art. And I’ve completely forgotten what it feels like to wear a bra.


Homework

I’ve been reading up on and researching reconstruction. Oh, to return to the days in which the only context I had for reconstruction involved the South rising again.

Alas, that’s not to be, and the horse is out of the barn, the worms are out of the can, and we can’t unring that bell. So now reconstruction means something entirely different.

It was supposed to be a pretty simple affair: tissue expanders put in at the time of my mastectomy, which would be filled with saline slowly and gradually, over a period of a few months, to allow my skin to stretch and accommodate a set of perky but modest implants (male readers, go ahead and groan at the mention of modest implants.) Why does one need her skin stretched for implants, when millions of women get the orbs jammed into their chests in a single step? Because those millions of women haven’t had their flesh scooped out down to the ribs. (Hope you weren’t planning on eating BBQ anytime soon.)

Back to the implants: my simple affair turned in an epic fail when the right tissue expander exercised some really bad judgement in allowing a mycobacterium to share its space. Ah yes, the infection. That dadgum bug turned my world upside down, and fast-tracked me from post-surgery superstar to sick, sick, sick. My recovery was going so well. I was convinced I’d be back on the tennis court in a month. Sigh.

Moving along to option B: the TRAM flap. It’s a big surgery (8-12 hours average) with a week’s stay in the hospital and 3-to-6-month recovery. Youch. I didn’t really get how they accomplish this surgical feat, so in the course of my research I watched a youtube video of an actual TRAM flap procedure. “Ewww, gross” doesn’t even begin to cover it.

In laymen’s terms, the surgeon cuts a football-shaped piece from your tummy, with the incision going from hip to hip. He or she (for this purpose, we’ll say “he” since Dr S will be the surgeon, but y’all know I’m all about equal opportunity so I must digress) then cuts the rectus abdominal muscle, in its entirety or partially, and  uses that muscle as the blood supply (e.g., blood vessels and small arteries) in the newly created breasts. Then he tunnels his way from the tummy incision up to the breast area, shoving tummy fat upward to create the new breasts.

After recovering from the grossed-outed-ness of watching this, I marveled at the ingenuity of the technique. Pretty cool stuff. But I admit it unnerved me for a few days. You may recall from previous posts way back when this all started that I HATE hospitals. I detest the smell, the noise, the lack of privacy, the parade of people in & out of the room, the clanking of carts up & down the hall, the cafeteria-style food, the machines beeping, the cords snaking everywhere, and the omnipresence of needles and IVs. I do like the morphine, though.

In addition to my extreme and unconditional hatred of all things hospital, I now fear them greatly and mightily because of the infection. I’m really, really scared. Like “want yo mama scared.” The risk of infection in any surgical procedure is estimated to be 3 percent. That’s pretty low, right? When you think about all the different surgeries done in all the different hospitals in all the different cities every day, that’s pretty low. But leave it to me to be the one person who gets it. Sheesh.

And leave it to me to get a rare infection that is not only hard to classify but hard to kill. Hence the never-ending 12-hour cycle of oral antibiotics. A quick back-of-the-envelope calculation tells me I’ve been taking those two oral abx for about 140 days. And there’s no end in sight.

So you can see why I’m not exactly rushing back into the OR for my reconstruction.

However, the compelling reason to get in there and get ‘er done is the complications still arising from said infection. Dr Grimes, my infectious disease doc, thinks that undergoing the surgery sooner rather than later will help clear up some of those complications by way of cleaning out the unhealthy tissue and replacing it with fresh new tissue with a brand-new blood supply. Sort of like replacing your old, threadbare socks with a nice new pair.

That’s why I was doing my homework and scaring myself half to death, so that I can go into my appointment with Dr S armed with knowledge and ready to proceed. I took a lot of notes and tried to keep up with all the different kinds of flap procedures: pediculed vs non-pediculed vs perforated, etc. Then there are variations on the procedure called DIEP and SIEA flaps (Deep Inferior Epigastic Perforator and Superficial Inferior Epigastic Artery, respectively). Prior to my research, I had no idea what TRAM stood for but speculated, based on my limited knowledge, that it was “That’s Rough on your Abs, Ma’am.” Turns out it’s actually Transverse Rectus Abdominis Myocutaneius. Good to know.

I didn’t pay much attention to the DIEP and SIEA flaps, because the TRAM flap was the only procedure Dr S had ever mentioned. I assumed that’s what I’d be getting. We all know what happens when you assume…

Dr Dempsey pointed out, however, that the DIEP flap is the one for me because it spares the ab muscle, something I will want and need as I go forward in my long, active, tennis-filled life. The DIEP flap is a more complicated surgery (12-15 hours), though, and there’s not nearly as much info available on it as there is on the TRAM flap.

Here’s why: the DIEP involves a lot of microsurgery. Instead of transferring the ab muscle and its blood vessels to the breast area, Dr S will make that big incision on my tummy, but leave the muscle there, removing the blood vessels and arteries entirely and reconnecting them in the new breasts. Apparently he will have to cut a piece of a rib, too, to make this all come together. I choose to skip over that part and not even think about it. Yikes.

The DIEP is considered the gold standard of flaps. And the reason there’s not as much info available is that it is a more technically complicated surgery, and not many surgeons do it. But if you’ve read any of my posts about Dr S, you know that he is the gold standard of surgeons, so I’m in good hands.

Stay tuned.


Crazy lady on aisle 3

I went into Randalls yesterday, a grocery store at which I rarely shop, and came across the strangest, angriest, kookiest lady I’ve ever seen.  I’m still wondering if this really happened, or was a crazy-train dream.

Here’s how it went down: I was behind Ms. Crazy in the checkout line. Her roast or whatever cut of red meat had dripped bloody juice all over the floor where I needed to walk, and was also all over the conveyer belt of the checkout area. I didn’t say anything even though, as a non-meat-eater I was sicked out big time.

Ms. Crazy noticed it on the conveyer belt and griped at the sweet elderly cashier to clean it up. Hearing how she talked to this service provider was the first clue that Ms. Crazy is, well, crazy.

When Pat the sweet elderly cashier rang up Ms. Crazy’s assorted box of individually wrapped cookies, Ms. Crazy complained in a loud & ugly way that the store flyer advertises that product for $2.99 but it rang up for $3.99. Ok, mistakes happen, and I’m pretty sure sweet Pat isn’t the one responsible for programming the sale prices into the cash register, so back off Crazy Lady.

Pat consulted the flyer and found that yes, that product is on sale but Ms. Crazy got the wrong variety or wrong size or something. Ms. Crazy’s response was to bark at Thomas, the bag boy, to go get her the right kind of cookies.

Yes, ma’am.

He came back with what he thought was the right variety, but it wasn’t the assorted box, it was all Chips Ahoy, and Ms. Crazy and her family need the variety and excitement that only Chips Ahoy, Nutter Butter, AND Mini Oreos can bring. Did I say they need the variety? Pardon me, they deserve it. She didn’t say that, but I could totally tell that’s the kind of person she is.

So Ms. Crazy sent poor Thomas back to the cookie aisle to do her bidding. While he was gone, she looked at me, waiting ever so patiently behind her hot mess self. I was making an effort to be patient, for once, and didn’t huff or look at my watch or otherwise complain. But when Ms. Crazy rolled her eyes at me, as if to suggest the Randalls employees were disappointing her high expectation of — and God-given right to — exemplary service, my patience quickly evaporated.

That was when Ms. Crazy noticed the bloody juice all over the floor. She asked me, Is that blood? I said, I don’t think it’s blood but juice from the meat you’re buying. Again, I didn’t say one word about how disgusting that is, or what a potential health hazard it is, or inquire about her feelings toward the innocent cow that gave its life to appear in her shopping cart or lecture her in any way about all manner of evil represented by that styrofoam tray full of flesh & muscle.

Not one word.

Fat lot of good all my restraint did me.

When Thomas had yet to appear with the holy grail of cookies, I jokingly told Ms. Crazy that I would give her a dollar if it would help speed up her checkout. She didn’t think I was one bit funny, and told me to, and I quote, “Shut the F*%# up.”

Yes, you read that right. She told me to shut up AND used the F word. In the grocery store.

Wow.

That is some serious insanity.

I was stunned, for sure. I kept my cool and told her that she had no right to speak to me, or anyone else, like that. She replied in a nasty sneering way, “Oh  no! Did I offend you? I doubt it.”

Ok. Right. I’m not even sure how to respond to that, so I took a step back and said, ok, back off, I was just joking anyway. She yelled something about how Randalls needs to fix the computer and correct the price right because what’s going to happen when the next person comes along and has the same problem? I told her I’m not real concerned about the next person, because hopefully by then I’ll be home and have my groceries unloaded and be on to the next task.

Well, Ms. Crazy didn’t like my answer one bit. Not one bit. She screeched at me (yes, she really screeched), “You’re in your Sugar Land bubble and just want everyone to hurry up, get out of your way because you’re next.”

I’ve often joked about the Sugar Land bubble, where all the kids are above-average thinkers, the moms all have perfect figures and keep a perfect house, the dads all have high-paying jobs and coach Little League and everyone drives a gas-guzzling SUV. God Bless Sugar Land.

But I’ve never suggested that the “Sugar Land bubble” entitles me to preferential treatment.  So there, Crazy Lady.

After she screeched at me, I held up my hands as if to say, Ok, whatever, and to signal my official disengagement. Thomas had returned with the offending cookies by this time, and it was time for Ms. Crazy to pay for her cartload of processed, trans-fat-laden crap. And she didn’t even have her credit card out, ready to swipe.

I swear, some people. Sure lady, hold up the entire line so you can get your cookies and be unprepared to transact business. Egads.

But that’s not all — when Ms. Crazy finally got around to digging her credit card out of her wallet, she suggested my shopping cart was in her way. And she said, “Move your cart or I will move it for you.” Wow, again. I asked her if she was threatening me, and she said it sure sounded like it. So I decided to treat her like the child whose behavior she was modeling and said, “As soon as you ask nicely, I will happily move my cart.”

Ms. Crazy clearly doesn’t like people who establish boundaries. She told me to move my f-ing cart and then she shoved the cart a little bit. Pathetic.

I really wondered about the right parting shot. I chose to let it lie and didn’t say anything, but I kinda wish I would have told her how sad it must be to be her. Or that it’s not nice to talk to people that way. Or that there’s lots of good mental help available, even without comprehensive insurance.

After she left, Pat the cashier apologized to me, and Thomas said the Ms. Crazy comes in there all the time and is always like that. I joked to them both that if she was waiting for me in the parking lot, I was going to call the police. They took me seriously, though, and Pat made sure I had my cell phone and asked Thomas to walk me to my car!

And people say nothing exciting ever happens in the suburbs.


The power of a great book

I’m completely entranced by my latest book club book, a super fun story that has me itching to find out what happens next. Not in a suspenseful, dramatic sort of way, but more in the way of great character development that makes the characters seem like real people.

I thought I might get some reading time in while sitting with my aunt at the hospital today, but we chattered and blabbed the whole time instead. After running my errands and doing a few chores, I had about 20 minutes before Macy came home from school, so I raced to the car to fetch my Kindle and get to reading.

I was engrossed enough that when Macy barreled through the door it startled me a little. She wanted to run to the mailbox to see if her latest order from amazon.com had arrived. She too has been bitten by the reading bug and has devoured a new series of books. Her eager anticipation paid off and she was rewarded by the sight of a cardboard box in the mailbox.

Before long Payton was home, too, and barely got his backpack off his shoulder before announcing he was going straight to his room to stretch out on his bed and read. He started a new series just after Christmas, and I am thrilled that it’s something other than Diary of a Wimpy Kid. Nothing against the Wimpy Kid or author Jeff Kinney — I think he has a cute product — but I like to see Payton reading something a bit more substantial. 

Both of my kids are sucked into great books, and I couldn’t be happier. My mom, the former English teacher, would be equally tickled to see her progeny so captivated by literature.

My house is so quiet it’s a little unnerving — no thumping feet up and down the stairs, no phone ringing, no door slamming, no Nickelodeon laughtrack or video game sound effects. It’s pretty great.


Cheers to 2011

“The Old Year has gone.  Let the dead past bury its own dead.  The New Year has taken possession of the clock of time.  All hail the duties and possibilities of the coming twelve months!” ~Edward Payson Powell

I have to admit, I didn’t know who Mr. Powell is, but I sure like his sentiment. About the New Year. About the past being just that — the past. About the ripe possibilities contained in a brand new year.

(BTW, Powell was a journalist and author in the late 1800s and early 1900s who died at age 83 while on a fishing trip with his daughter.)

Every January, the dawn of a new year is exciting and full of potential. Many people make (and quickly break!) resolutions in an effort to shrug off bad habits and assume good ones. Personally, I abstain from resolutions. I’m more of list-maker and goal-setter year-round. Not that there aren’t things I’d like to improve upon, for schizzle. But I’m wise enough in my advancing age to know that a promise made at the tail-end of one year for sweeping change in the next is an unrealistic proposition.

January is one of my favorite months, as it signals the end of the hectic holiday season– which typically is not my favorite time of year– and it ushers in the celebration of the entrance of Macy into the world. (I feel the same way about May, and the celebration of all things Payton.) 

This year, this fresh new year, of all years, I’m not looking for sweeping change. The last 6 months notwithstanding, I have to say my life is pretty sweet. And even when I factor in the calamity that ensued since May, I would have to give myself an above-average grade in coping, managing, and reinventing.

Not to toot my own horn, but I think I handled it all just fine. There was a decent amount of bloodshed, but all of it was mine and I didn’t cause it to happen to anyone else (namely Dr S, who could have suffered at my hands more than once!), so that’s a good start. I made some new friends, always a good thing, and learned an entirely new vocabulary. I like to think I passed the “Eleanor Roosevelt test” in which a woman is like a tea bag: you never know how strong she is until she gets into hot water.

So I won’t make any resolutions for this newly minted year. I will resolve, however, to keep on keeping on. To not let the turkeys get me down. To keep on truckin’. To mind the gap. To live free or die. To do unto others. To keep calm and carry on.

And my new favorite platitude: 


Don’t let the door hit ya…

As we prepare to bid adieu to 2010, I took a stroll down memory lane in the months since I joined the club of which no one wants to be a member. There were some great moments in the first few months of 2010, or BC (before cancer), and I made it my mission to ensure that the months that followed had the same. Two weeks before I was diagnosed, life was grand, as evidenced by the happy girls in this photo of Yvonne’s birthday dinner at Stella Soli. So fun! Who knew that something wicked this way comes?

The day before my surgery, Macy and I had the great good fortune to meet Jeffrey, a baby mockingbird rescued and rehabilitated by our friends the Hoovers.  I’m sure I had a million things to do to get ready for the big day, but meeting Jeffrey was high on the list, and I wasn’t going to miss out on the chance to have this sweet little guy hang out with my favorite girl.

An awful lot of people did a whole lot of nice things for my family and me, following my surgery, including but certainly not limited to custom-made cupcakes,

an apropos coffee mug for my cup of Joe (the photo is small but the mug says “cancer” with the red circle & slash mark,

and home delivery of my all-time favorite coconut cream pie. You know you’re in the inner circle if you’re invited to share a slice of my cousin Tom’s homemade heaven. 

One of my first post-surgery outings was around the corner to dinner at the Cremers’ for Keith’s famous crab towers: lump crabmeat topped with a most delectable avocado-mango salsa atop a bed of greens with a citrus-y vinaigrette.

Dinner at their house is always good, because he and Jill are both fantastic cooks and there’s always plenty of bubbly on hand. 

Y’all know how much I love my bubbly.

Some may say I love it more than my kids, but that’s not fair.

We all know it would be a tie.

Two weeks after the surgery, but before the dreaded infection showed up, it was my birthday. Those who say it’s all downhill after 40 may not realize that to a cancer patient, each and every birthday is a gift, and I met birthday number 41 head-on with a welcome embrace: Mexican food, margaritas and the cutest cake ever with my girls. None better.      Who cares that I still couldn’t wash my own hair at this point? Not me! I was happy to be upright and out of the house.

A week after my birthday, the bottom fell out of the extraordinary recovery I was experiencing post-surgery. We were at a joint birthday party for 3 June girls (but there were no joints at the party; that’s how rumors get started!), and I didn’t feel good. After two weeks of slowly but surely making progress and feeling better, this was weird. What was really weird was waking up the next day to a huge red rash and blisters at the surgery site on my right side. You don’t have to be a doctor to know that is not good.

In the time that I was hospitalized the first time, Payton made the All-Star team 

and embarked on one of the most memorable summers ever, for baseball. Memorable because the team did so well (District champs, Sectional champs and on to the State championship in Tyler) and because the boys chose to show their support for me very publicly by wearing pink sweatbands all summer. These warriors in pink tore it up on the baseball field and made this mama so proud.

I only made it to a couple of games but got to follow along with all the action thanks to an iPhone app that allowed Trevor to “broadcast” the games to a website that I followed on my iPad from the hospital. I will never forget the look on the nurse’s face when she came into give me a shot of morphine and I told her I needed to wait (I never turn down the good drugs) because I wanted to keep my wits about me and follow the game. Also memorable was the wound-care specialist who had two sons go to State as All Stars who called me from home at 10:30 pm to see if Payton’s team won. They did.            

In between hospitalizations, I spent a couple of hours one day in my backyard in the sunshine, watching Harry frolic in the pool. After being cooped up in a dreary hospital room and feeling lousy, the fresh air, sunshine and unbridled canine joy were just what I needed.

One of the best days of all was in early July, in between hospital visits. I had been to see Dr Darcourt, my third oncologist, and learned that he agreed with all the research Trevor had done: no chemo! Celebration was in order, and when Amy & I ordered champagne at lunch, our sweet waiter at PF Chang’s asked if there was something special to celebrate. He had no idea but we filled him in! 

Another highlight was getting to spend the weekend in Galveston with Christy & Alexis, who were kind enough to teach Macy how to fish. And fish she did: that girl caught the biggest fish of the trip! Later that night, I caught a baby sting ray (not my intent, for sure). I still feel bad about that poor little guy happening by the tempting lure on my fishing pole. All’s well that ends well, though, and with some help from some more seasoned fishermen, the little guy was freed. More importantly, I had a fun weekend with great friends that approximated a return to what most people consider a normal life. 

Despite the idyllic setting, that weekend was just an approximation, though, of normal life, and the infection would puzzle and vex not one but two set of infectious disease doctors. After two more hospitalizations and a new team of ID docs, we got a handle on it, and although the last thing I wanted was to go back to the hospital, and to the Medical Center at 10:30 on a Sunday night no less, I wasn’t alone in the joint. 

Macy loaned me her beloved Froggy to keep me company, and he took his job seriously. He didn’t left my side until I was allowed to go home, and then he went straight from the suitcase into the washing machine lest he brought home any nasty germs from the hospital. We’d had quite enough of those in our life.

Early August was bittersweet: I was on the mend, literally, but still on IV antibiotics at home and not well enough to travel to Boston for our annual vacation. After already having missed my Duke girls’ trip to Lake Tahoe in early June and all of the State championship in Tyler, I was beyond sad to miss this trip, which is always the highlight of our summers. Leave it to Macy, though, to bring me a fantastic souvenir: Continental Airlines had unveiled a new drinks menu on her flight home from Boston, and she got me a pomegranate martini mix and, once home, brought two glassed full of ice, two lime wedges, and one shot of vodka. My favorite girl and I had a welcome-home drink together. Of all the bevvies I’ve consumed, that one may be my all-time favorite.

A few days after school started, and a week or so out of the hospital, Macy & I had tickets to see Jack Johnson play at the Woodlands pavillion. After a string of disappointments all summer, I was determined to make it to the show. It poured rain on us and traffic was horrendous, but we made it and had a great time. What would be an already-sweet occasion was all the better because I was there, upright and out of the house!

I got through the rest of August and September without incident, and was starting to think maybe, just maybe I would be able to actually make and keep some plans that didn’t involve a hospital.

October marked my first foray into Breast Cancer Awareness Month as a survivor. While always aware of the fact that every October is earmarked and punctuated with lots of pink ribbons, it’s a different experience on this side of a cancer diagnosis. I was tickled pink (sorry, couldn’t resist), when Payton’s baseball team played in this tournament. 

Next up was an event that was huge for me: the Witches’ Open tennis tournament at our club. I went into my double mastectomy in the middle of our tennis season, not knowing how the surgery would affect my game. Of course it never crossed my mind that I wouldn’t get my game back, the question was how much and how soon. So playing in the Witches’ Open was a stellar event. Not only did I play with my longtime running buddy, Staci, but we won! I’m pretty proud of our little trophy.

That same night, still basking in the sweet glow of victory from the Witches’ Open, I made a return trip to the Woodlands pavillion for the Maroon 5 concert. Talk about a perfect day: tennis then a road trip & dinner with super fun girls, then the show. That great day slid into a great night, and again I was beyond happy to be upright and out of the house. 

As if this month hadn’t been great enough, the last Friday night in October was the icing on the cake. I gathered by BFFs for the first annual Pink Party. Prepare to be seeing photos of this event every year for the rest of my life. It was that good. Many a nights laying in the hospital bed, I thought about what I was going to do once I finally got well enough to do something for my friends to show my appreciation for all the love and support they’d so freely given during the worst time of my life. The Pink Party was all I had envisioned it would be, and the fact that I was able to put on the dog for my girls was monumental for me. 

Next on the calendar was Thanksgiving, and at the risk of sounding totally hokey, I had an awful lot to be thankful for this year. At first, as we approached the holiday, I tried not to think too much about it, for fear that reflecting back on all that had happened would overwhelm me. Then I realized that’s whacked, and instead of avoiding it, I should be relishing it–every bit of it. Another major triumph for me was making my mom’s famous crescent rolls. I’ve made them before with limited success, but this year, they rocked. 

After Thanksgiving of course was Christmas, and the first ornament to go on our tree was this one: the cocktail shaker that says “Shake It Up.” I intend to do just that in the New Year.

And for the record, it was Macy who picked that ornament to go on first, in my honor. That girls knows me so well. Like most families, we have lots of cute and meaningful ornaments in our collection, but it makes me smile that she chose this one to kick off our Christmas season.

So as 2010 draws to a close, I can’t say that I’ll miss it. Unequivocally, it has been the hardest year ever. But amid the chaos and confusion and abject misery, there were a whole lot of bright spots. Those moments and memories outshine the yucky stuff.