The Morning Report
Posted: March 4, 2011 Filed under: breast cancer, Surgery | Tags: cancer battle, DIEP, hospital, Houston medical center, morphine, new boobs, norco, plastic surgery, post-mastectomy, reconstruction, recovery, Vancomycin 4 CommentsNancy had a restful night–as restful as being woken every hour can be. A shout-out to her nurse, Amira, who was extremely capable and attentive. Nancy did snooze very soundly when she was able. The combination of Norco and more Norco seemed to diminish her headache, although it’s not completely gone. The pain is still there and is being managed by the Norco also. This morning a bit of muscle tightness and tenderness in the stomach area reared its ugly head and has taken the forefront in the battle for attention. While Nancy hasn’t actually called it pain, I think that may be the best word for it, and she did say it was a new sensation that came up today. I bet the other stuff has diminished enough that this now gets to grab her attention. She has bruising around the hip to hip “free tummy tuck” incision and Jennifer, Dr. Spiegel’s PA, says that they did have to work hard with her muscle layer there as well as on her chest wall so this is to be expected. She has been given Flexeril (a muscle relaxer) to help with this and the added benefit is that it makes you VEEEERRRYYY sleepy. So, even though at 5:15 AM, Nancy was confident that she was up for the day and we did the teeth brushing and face washing that comes with a new day, she was within minutes back to sawing logs. Good Girl! She has been dreaming out loud and woke asking me, “Is that due tomorrow?” You can take the Mom out of the home but you can’t take the Home out of the Mom!
The fever is no longer an issue. Nancy did a great job with her breathing exercises and coughing so those nurses must have been right about the phlegm.
Today is a going to be a busy day. It started with a flurry of people in and out at shift change. Dr. Spiegel specifically trains the nursing staff that takes care of her patients so there is only a handful of nurses who are qualified to be Nancy’s caregivers. Her new nurse is Karina. There are promises of getting rid of her IV and a few other constant companions since she’s had the surgery. Once that is done, she will get a shower and be expected to walk the halls at least 3 times today. Nancy is looking forward to that since the compression stockings can be taken off during this time.
Mr. Morphine Pump has become just an extra appendage. Nancy last summoned his prowess on yesterday’s second and final “sitting trial.” She’s planning to shed him when she sheds the other hangers on.
It’s going to be a good day. The staff is quite certain that the shower and ambulation will bring strong feelings of rejuvenation. It has been mentioned twice already that she may be ready to be discharged tomorrow. We’ll see how she feels later today and as Laura mentioned when she popped in for a quick Hi this morning, “Knowing Nancy, it might be better for her to stay until Sunday, just to keep her from doing too much.” Yep, Laura, you are probably right about that!
We’ll keep you posted.
Utter Exhaustion
Posted: March 3, 2011 Filed under: breast cancer, Surgery | Tags: breast cancer, cancer battle, DIEP, hospital, Methodist Hospital, morphine, new boobs, plastic surgery, recovery 12 CommentsHi, It’s Amy again….
Nancy is utterly exhausted. The nurse for the start of our night, Le, said that is the worst part of this particular surgery for Dr. Speigel’s patients. The arterial blood flow HAS to be checked every hour….EVERY hour. Nancy is tired….tired.
Now there is a tiny bit of a fever coming on…..the nurses aren’t too concerned but listened to her chest and said she has some phlegm in her lungs….not that big of a deal but after such a major surgery and after so much inactivity, it could progress to more of a concern. Nancy has been tasked (see Daily Goal #3) with doing cough and deep breath exercises 10x per hour. Now this is important because it keeps her lungs expanded and allows better air flow. So now, instead of resting through the night and just having arterial checks to the new girls, she is also going to have to continue the breathing exercises every hour and not just when she’s awake. She’s a trooper, though, and we worked through the first session after having the “you need to pay attention to this” talk and she was able to meet and then exceed the milliliters of airflow per deep inhalation….probably the last 6 of the ten times, and do her coughs, too. She is working on this and knows it has to be done and is not complaining.
NOW….what she IS complaining about are 2 things. And, mind you, she is not really complaining too much. I’ve only had to charge her the $10 for “having to put up with your complaints fee” twice today. As much as Nancy would like you to think she’s a troublesome patient, she is not, at all. In fact, the staff enjoy her very much. Her easy going nature was complimented today when she had to make the effort to get in the chair to sit for another hour. Le, her nurse commented about how Nancy’s attitude really made her job easier.
Complaint number 1: This particular complaint is what brought on the $10 charge twice today. The ICU room was hot, very hot. In fact there were heaters brought in just for this purpose…two of them. Seems that the stomach tissue that they harvested for her new breasticles doesn’t realize that it has to get it’s heat source from her body instead of the outside air now so for the next few weeks Nancy needs to have a warmer than normal outside air temperature. I think Dr. Spiegel even mentioned not running the AC at her house but Nancy and I decided to let that one go over our heads. The hot temp in the room coupled with Nancy’s hot flashes brought on by her medically induced but necessary menopause do not make a good combination. She actually assessed herself the charge after I mentioned that I charge $10 at my house for being “grouchy, irritable, or just plain mean.” Then she said, “And you can charge me another $10 for this one…..” as she launched into her next complaint about the heat. We got icepacks for her neck and her legs and put cold washcloths on her feet. Plus we got her the med that prevents hot flashes that had been overlooked on her orders…
Complaint number 2: Headache. A bad one. She’s been dealing with this all day. The nurses say she had a pretty major dose of morphine in the ICU so that is a side effect of morphine and it should work itself out as she uses less and less morphine. Because of this, Nancy has decided that Mr. Morphine Pump may not be summoned for his duties at every thought of her becking and calling for him. She’s thinking about it before she presses the button. On one side there’s the headaches. On the other side there’s the pain. It’s a delicate seesaw to manage but she seems to have hit on a solution. Norco. That’s Tylenol laced with Codeine (or is it Codeine laced with Tylenol?). She tried just plain Tylenol, but it didn’t help. But the Norco seems to have hit the spot. Instead of alternating Tylenol and Norco as was originally planned for this night, she will be alternating Norco and more Norco, every 4 hours. Yay Norco!
She is resting comfortably now for the 55 minute catnap between arterial checks and breathing exercises. I just put her sleeping mask on her to aid in not fully waking her for the checks/exercises. She hasn’t called for the Ambien yet but it’s a matter of time.
Besides finding the Norco solution, the next bit of good news is that she managed to move from her bed to the recliner, sat for an hour, then ambulated back to the bed with only 1 morphine pump at the beginning of the whole scenario. The nurses are impressed with how tough our girl is! She really is doing remarkably well. Another upside is that she doesn’t seem to be plagued by the nausea that chased her after her mastectomy and subsequent infection surgery.
Just so everyone knows, Nancy’s phone is with her but on silent and on the bedside table. When she wakes up, we give it to her and she sees your texts, emails and Facebook posts. Trevor & I have been reading the blog and Facebook comments to her and they just make her smile. She is so appreciative of everyone’s support. It means the world to her. She is so exhausted that she just hasn’t been able to focus on responding, plus the drugs and the headache have her where she can’t really focus but just know that you are important to her and she is thankful.
On one last note. Dr. S. called to check on her. He called the room and I answered. “Who is this?” he asked. “Amy” I replied. “Oh, Hi Amy, How’s Nancy?” Dr. S. was glad to know she’s doing so well. We talked about how good the results look and how healthy the skin looks and what great blood flow it all appears to have and how the doppler ultrasound (the hourly check) sounds so strong. I asked Nancy if she wanted to talk to him and she silently shrugged. He must have heard the shrug because he asked incredulously, “Oh, she doesn’t want to talk to me??” so she talked to him for a moment. She complimented him on the symmetry of her new rack and said she figured he must have done the shaping, and she reiterated how happy she is with the results.
Here’s a snapshot of the board in Nancy’s room: So does there look like a winner in the turf wars?? Just askin’….
So Long ICU
Posted: March 3, 2011 Filed under: breast cancer, Surgery | Tags: breast cancer, cancer battle, DIEP, hospital, ICU, Methodist Hospital, microsurgery, new boobs, reconstruction, recovery 8 CommentsHi Everybody,
It’s Amy Hoover here. Nancy has been doing really well. She’s super tired. Come to find out her new breasticles have to have their arterial blood flow checked once an hour and it’s been that way since the surgery ended yesterday and will be through tomorrow…..so cat naps abound. They made her get up and have a “sitting trial” time for an hour and she did really well. To hear her tell the doctors about it, it was “hard” but as an observer she handled the “trial” with grit and humor–typical Nancy. I think she handled it better than her first trip off the bed post mastectomy!
The people working at Methodist are doing a great job responding to her needs and that morphine pump responds at the touch of the button. We just went over her “Daily goals/Patient needs” which are posted on her wall in her new room:
1. pain control
2. regular diet
3. cough and deep breath 10x/hour
5. SCD on legs
Yes, I know there’s no 4, but I call it like I see it! (and we are not sure what SCD stands for, but she does have compression stockings on her legs and some pump thing to keep blood clots at bay). So….number one goal is pain control and Mr. Morphine pump is at the ready. I reminded her that she’s not here to prove anything so not to try to wait it out but go ahead and push that button if she feels the pain. Pain control is the NUMBER ONE goal!
Dr. S. called in today to check on her and Nancy got tickled because he had to wait on hold for quite a while for Nurse Carol who was busy taking care of Nancy.
Dr. Spiegel came by and checked out the results and is really, really pleased. From my layman’s point of view, I agree.
She’s resting now and it is definitely quieter in this room, so hopefully it will be a good nap. She has requested an Ambien to help her sleep tonight. After her nap she will have to sit in the chair again.
Tomorrow’s plan is to do a little bit of walking and take a shower. We expect to see the doctor in the early morning.
Recovery
Posted: March 3, 2011 Filed under: breast cancer, Surgery | Tags: breast cancer, cancer battle, cancer diagnosis, DIEP, hospital, Houston, ICU, Methodist Hospital, microsurgery, new boobs, plastic surgery, recovery, surgery, Vancomycin 3 CommentsI arrived back at the ICU this morning with Amy Hoover who will be staying the night with Nancy tonight. Let me pause to thank Amy and Christy Burrmann for lunch yesterday and to Staci Martinez for sitting with me all day. That’s a lot to put up with.
Nancy is very alert today and in a very good mood. Her pain is under control and she is eating well. The nurses here have been terrific, Cindy and Carol have both been very attentive and helpful – they don’t mind applying chapstick. And David the PCA even fetched coffee for me and Amy. Overall this is the best care she has had during her hospital stays and it’s generally been pretty good.
They checked on her every hour last night so she didn’t get too much sleep though. They have ordered a room for her but they won’t let her out of ICU until she sits up in a chair for an hour. They just wheeled it in, this is gonna hurt.
Surgery is complete
Posted: March 2, 2011 Filed under: breast cancer | Tags: breast cancer, cancer battle, cancer diagnosis, DIEP, hospital, ICU, microsurgery, new boobs, plastic surgery, reconstruction, recovery, surgery 6 CommentsI just visited briefly with both Dr. S’s about Nancy’s surgery. They are done and she is having the surgery wounds dressed. I will get to see her in about an hour or two once she clears recovery and is moved to ICU. I will post another update once that happens.
Both doctors were all smiles and they expressed a lot of satisfaction with the outcome. I’m not going to post the details – do you really need to know how many grams each breast facsimile weighs? – but they seemed pretty proud of themselves about sculpting a nice new figure for Nancy. We shall see, Nancy has expressed that mostly she just doesn’t want to look like “ground under repair” anymore if I can borrow a golf term.
So it sounds like good news. Look for at least one more update tonight.
Update: I forgot to mention the surgeons did find some spots of active infection still after 200 days of antibiotics. Incredible. One benefit of this procedure should be to help by physically removing most or all of it. And it confirms the value of Nancy’s amazing persistence in never missing a dose. Unfortunately it also means the drug-taking will continue – and these aren’t the fun kind.
Can I get that overnighted, please?
Posted: February 19, 2011 Filed under: baseball, breast cancer | Tags: Alex Rodriguez, baseball, breast cancer, cancer battle, DIEP, funny t-shirts, Jacoby Ellsbury, JD Drew, needlepoint, NESN, new boobs, plastic surgery, recovery, Red Sox 9 CommentsI like funny t-shirts. I like snarky, funny t-shirts even better. Or is it redundant to say “snarky” and “funny?” Are there people who don’t think snarky is funny? If so, I have no use for them. Trevor’s grandma, Petie, had a cute little needlepoint pillow on her couch in the sitting room of her Salisbury, North Carolina, home that says “If you don’t have anything nice to say, come sit by me.” I’ve always ascribed to that point of view.
I don’t have a picture of Petie’s pillow, but found this one by using the Google. Now I’m wondering why in the world I don’t own one of these pillows? It would make me smile every time I spied it. It’s the little things, people.
While looking for an image of that cute little pillow, I found this: 
For those of you who are uninitiated into all things Red Sox, that foxy number 46 is my boy crush, Jacoby Ellsbury.
He now wears number 2 on his jersey, though looks no less foxy. That’s JD Drew crouched next to him, close enough to whisper in Ell’s ear (lucky bastard). I’m sure they were discussing some serious strategy, or maybe making fun of Dora (aka Alex Rodriguez) who is such a tool and deserves to be made fun of at every possible opportunity.
But I digress.
Here’s the real reason for today’s post (although it could easily become all about Ells. Last season was a long, dry boring one for me because Ells was hurt. Not just hurt, but rehabbing in Arizona, so not even in the dugout and available for close-ups or slow pans by the ever competent NESN camera guys. It was a long season indeed. But Ells is back and ready for action and hopefully lots of on-screen time.)
But seriously, back to the real reason for today’s post.
Look what I found.
Just what I’ve been looking for.
But wow, what bad luck to have found it so close to the Resurrection, instead of during the long months of walking around with a chest flat enough to play quarters on, with no explanation. Ok, that is some seriously bad sentence construction, but you get the drift. I’ve had a freakishly flat chest for a long time, and have longed for a shirt that tells the world that change is underfoot. Or, undershirt, as the case may be. I got that chance with my “cupcakes” shirt,
but I can’t very well wear that every day. I hate doing laundry, and wearing my cupcakes shirt every day would require a lot more of that chore.
So I probably need the “under construction” shirt, too. Although, can someone please explain to me why the shirt is modeled by a guy???
Now that is just weird.
But I still want the shirt. Wonder how fast I can get it?
I’ve succumbed
Posted: February 13, 2011 Filed under: food, tennis | Tags: breast cancer, family, recovery, soup 5 CommentsAfter dodging germs and avoiding family members like they had the plague (well, actually, they did), it’s happened.
I’ve succumbed to their onslaught of germs.
I hate being sick.
I really, really hate it.
I think I’ve mentioned before that I’m a terrible patient. Not in the
sense that I’m high-maintenance, needing fresh-squeezed juice and cold compresses, but in the sense that I’m horribly impatient and will do just about anything to get better faster–vaseline slathered on the bottom of my feet? I’ll try it. Drinking tea made from crushed twigs and eye of newt? Brew it up, I’ll choke it down.
The one thing I am loathe to do, however, is get in bed. In the daytime. While the sun is shining. Can’t explain it, but that just seems wrong to me. It goes against my grain. Yet here I am, on a perfectly sunny day–the first nice day we’ve had in a while–in bed. In the middle of the day. Still in my jammies from last night.
I got up long enough to drink a cup of coffee and eat some peanut butter toast, and to hopefully shake off the fiery ball of phlegm I felt forming in my chest when I went to bed last night. No such luck. That fiery ball invited its friends over, and the overcrowding is making me cough. The coughing reignites the fiery ball and it burns, baby.
This was not part of my plan.
Sunday is my day to get things done and to get a jump-start on the week. I know, that’s backwards; most people use Sundays as a day of rest, to recharge from the week that’s passed. Not me, I prefer to charge ahead and get the week off to an early start. I usually kick off my Sundays with tennis, then once fortified with 3 sets and a couple of beers, continue on making lists, doing laundry, running errands, and cooking for the week ahead. Lately it’s been all about soup. It’s been cold, really cold (ok, cold for Texas; those of you reading this while enveloped by real winter can laugh at me, but it has been cold here), and for me that means it’s time to make soup.
My soup kick has been good but repetitive of late. I’ve made several pots of vegetable soup. I was inspired by my friend Amy who brought me some yummy vegetable soup a few weeks ago, and it was so good that I tried to recreate it. Her version was inspired by her sister’s housekeeper’s recipe, and it was good. The first version I made to replicate it was the best. I need to stick to that one instead of trying to change it up.
The second time I made it, I added tomato sauce and substituted tiny star-shaped pasta for the diced potato, thinking my kids might eat it.
The stars were so cute and inviting, but the incredibly picky duo said nope, not intrigued nor even a little bit tempted.
The next time I made it, I used whole-grain gemelli pasta instead of stars. Oh, and I added okra, too, because I really like okra. I think it separates the men from the boys. After all this research, I’ve concluded that the potatoes are the best in this soup and the okra kinda gets lost among all the other veggies.
Sundays are usually bookended by tennis and soup, not sickness. Come on…I can’t make soup from bed.
Front-page news
Posted: February 9, 2011 Filed under: breast cancer, drugs, Uncategorized | Tags: breast cancer, breast surgery, cancer diagnosis, Houston Chronicle, infection, lymphedema, mastectomy, MD Anderson, New York Times, radiation, recovery 3 Comments
An article on the front page of the Houston Chronicle today says that big changes are in store for the breast surgery required for cancer treatment. A new study from our own local attraction, M.D. Anderson, found that women with early stage breast cancer don’t need to have their lymph nodes removed, even if the nodes are cancerous.
This is big news. Breast surgeons are calling it “practice-changing” and proof of the old adage that “less is more.” Dr Kelly Hunt, surgery professor at Anderson, says, “The study shows that we don’t have to take out huge swaths of tissue, that we can avoid aggressive surgery without any effect on outcome.” Personally, I’m a fan of anything that avoids removing huge swaths of tissue. Ick. Ugh. Yuck. Been there, done that. More than once.
This new study pokes holes in the century-old belief that a surgeon’s job was to cut out every bit of the cancer, and found that removing the lymph nodes didn’t give women any benefit over radiation and drug therapy alone. The prevailing science has been that removing lymph nodes helps prevent the cancer from spreading and/or recurring.
Removing the lymph nodes from the armpit area is a hot mess waiting to happen. You’ve got the cosmetic issue of ending up with a concaved surface. You’ve got the potential for infection (ahem). You’ve got the risk of lymphedema, which is painful swelling in the arm that cannot be cured. Anyone who has ever seen a photo of a limb swollen to multiple times its normal size because of lymphedema knows to fear this condition. I’ve met several breast cancer survivors on the tennis court since I returned to the game post-mastectomy and post-infection, and more than one of them played with a compression sleeve (a form-fitting garment that goes from wrist to shoulder) to stave off lymphedema. Tammy, my dear lymphedema specialist, made me take one of those bloody things home to keep in my drawer, “just in case,” because the really stinky thing about lymphedema — aside from the fact that there’s no cure — is that it can come on at any time. Women have gotten it years after a mastectomy, with no prior symptoms.
If you want all the nitty-gritty details of the study, you can read the New York Times article, which goes into a little more detail than the Chronicle’s story. The Chronicle does get credit for providing more info about Anderson’s role in the study. We like to root for the local team. Seems 100 of the 891 patients in this study were from Anderson, and the researchers originally planned to expand the study to include 1,900 women, but shut down the study before that happened because the results were so overwhelmingly conclusive.
I like overwhelmingly conclusive results. You don’t find a lot of them in medicine. I’ve learned that the hard way in my “cancer journey.” I’m a black & white, just-the-facts-ma’am kind of girl, and I found myself smacking my head against a wall more than once in pursuit of a concrete, yes-or-no type answer. In medicine, precious few of those exist. I suspect that’s why it’s referred to as “practicing” medicine.
In fact, Dr Grimes, my infectious disease doctor, has spoken of practicing the art of medicine as much as the science of medicine. I really like the way that sounds, as if it’s so very civilized and full of aesthetic value. In reality, it’s a balancing act of drug therapy vs side effects; of benefit vs cost; of how far can we push the body yet still maintain the integral strength necessary to fight the disease.
In other words, there is no overwhelmingly conclusive answer. And sometimes the doctors don’t know themselves what the right answer is. That’s why it’s so nice when a study comes along that says, yes, for sure this is the right thing to do.
I’m super happy about this big news. I hope it lives up to its potential to make life easier for the 200,000 women a year diagnosed with this breast cancer. And I really hope that it’s just a teaser of what big breakthroughs in breast cancer research are yet to come.
Update on my guardian angels
Posted: February 7, 2011 Filed under: breast cancer | Tags: breast cancer, cancer battle, DIEP, dogs, guardian angels, loss, reconstruction, recovery, repair, surgery, survivor, Willow Tree angels, workshop 2 Comments
Remember these three lovely ladies? If not, read this. I wrote about my guardian angels and their unfortunate accident in which they flew off the shelf and crashed onto the floor.
They’ve been repaired and restored to their shelf in the kitchen, where they can watch over my family and me. I think they’re recovered from their trauma, but are likely wary of another episode and probably watch over me with a worried eye, thinking, “There she goes, crashing around the kitchen again like a crazy person. It’s only a matter of time before she bustles over here to grab a cookbook off our shelf, and down we go, smashed into bits on the hard porcelain tile.”
Or something along those lines. I have no idea what Willow Tree angels’ conversations actually sound like, but that’s how I imagine this one. 
All three angels went to Ed’s magical workshop for repairs. They may want to ask about a frequent customer card, as they’ve been there before, and will probably end up there again. His rates are very reasonable, he does outstanding work, and he always manages to work in the casualties resulting from my carelessness.
This angel sustained the most extensive yet least noticeable damage. She pretty much snapped in half, suffering internal injuries but held it together cosmetically. You can see that she now has a long scar all the way across her middle, which is prescient as that’s what I too will have after reconstruction, since they’re gonna cut me hip-to-hip to harvest the skin & flesh to rebuild me up top. Ick. I wish I could manage as serene an expression as this Angel of the Heart in the face of my trauma, injuries, and recovery.
The Angel of Hope needed limb restoration, but thankfully she managed to escape the accident with her right arm intact, since it holds her lantern that she uses to watch over her careless charges. A single amputee is bad enough; a double would have been really tragic. She also lost part of her ponytail, but as we all know, hair loss is temporary, and hers did magically grow back at the workshop, and her scars are barely noticeable.
Sustaining the most overall damage was the Guardian Angel and her young companion.
The decapitation was especially devastating, and sadly his head was never found. I wouldn’t be a bit surprised if Harry the eating machine found it and devoured it before he realized it wasn’t actually food. She also lost her head, but I found it and it, along with her hand, were restored to their previous state.
Thanks to everyone who wrote, called, or emailed with concern and support about these lovely ladies. Let’s hope they stay in one piece for a while.



