Ice, ice baby
Posted: July 6, 2011 Filed under: breast cancer | Tags: A Charlie Brown Christmas, anemia, aquaphobia, cancer battle, claustrophobia, Ferrex, getting back to normal after cancer, Hoshizaka ice maker, ice chewing, iron supplement, Lucy Van Pelt, mycobacterium, pagophagia, pica, post-mastectomy, psychological effects of cancer, Sonic ice, South Padre Island, Tervis tumbler, vegetarians, vegetarians and anemia, young women with breast cancer 8 CommentsPagophagia sounds like one of those words Lucy spouted off in A Charlie Brown Christmas. You remember the scene, in which Charlie Brown pays a call to Lucy’s psychiatric booth (The Doctor Is Way In), and she confronts him about his prospective phobias. “Perhaps you have hycangeophobia; the fear of responsibility. Or maybe ailurophobia — the fear of cats. Or climocophobia — the fear of staircases. Or thalassophobia — the fear of the ocean.”
I remember those long, complicated names for the phobias because I played Lucy in my 5th grade production of A Charlie Brown Christmas. I remember the blue pinafore dress that was my costume, and I remember that it was kinda hard to pronounce and memorize the long words that marked the phobias from which Charlie Brown might well have suffered. Little did I know that as an adult, I myself would suffer from claustrophobia and aquaphobia. How ironic.
So the first time I heard the word agophagia I figured it must be a phobia. Nope, it’s a disorder. And I have it.
Agophagia is a form of the disorder pica, in which a person craves and is driven to ingest non-nutritious substances, usually because of a vitamin or mineral deficiency. People with pica tend to eat all kinds of weird things, from paint to dirt to chalk, and it can get really weird with people trying to eat things like batteries and feces. Gross. I must be pretty mild on the agophagia spectrum, because the idea of eating any of those things is not just weird but disgusting.
No, for me the agophagia manifests in a powerful addiction to ice.
Yes, that’s right, ice.
Not even ice that’s surrounded by a good cocktail, either, but ice. Just plain ice.
I am addicted to ice.
Hello, my name is Nancy and I’m an ice-a-holic. I’m an agophagiac.
I didn’t think much of it at first, but just chomped away happily at the ice that was left in the bottom of my water glass, or the cubes that collected once my iced tea was gone. Sonic ice left me positively swooning, but I didn’t realize I had a problem until I was going through the drive-thru just for a cup of ice. Route 44 size, please. Feeling a bit self-conscious about my addiction, I did a little research and learned I am not alone. Sonic ice has a Facebook page with more than 218,000 fans.
Excessive ice chewing is a symptom of an iron deficiency. Guess what I have? Yep, an iron deficiency. I am definitely anemic. I’ve been on a prescription iron supplement, but once I started feeling so puny from the long-term antibiotic I had to take, I stopped taking the iron pills. Not a good idea.
My cutie-pie oncologist likes to blame my iron deficiency on the fact that I don’t eat meat, but the fact of the matter is that it’s yet another fallout from the nasty-ass infection I contracted after my bilateral mastectomy. I was vegetarian long before cancer dive-bombed my house, and never had a problem with anemia. Once the mycobacterium set up shop, though, the anemia gained a foothold, and the ice obsession began for real. That dadgum myco caused a whole lot of problems, of which the anemia was the least of my worries. Once diagnosed with that wretched, wily infection, one of the many sites I consulted for research stopped me dead in my tracks with this: “Disease typically chronic, progressive; rare spontaneous resolution has been reported.”
Guess that means my ice-chewing obsession would be around a while.
Like most addicts, I was the last one to notice that I had a problem. My girlfriends would giggle at me when my input on where to go to lunch after tennis revolved exclusively on which places had the best ice. Yes, I have them categorized much as my dear friend Amy Hoover knows which places serve the best iced tea. Some places use the same filter for the flavored and unflavored tea, ya know.
We have an ice machine outside, in the outdoor kitchen. It makes these groovy mushroom-shaped ice cubes that I adore. Not as much as Sonic ice, of course, but they’re pretty darn good. In the height of my addiction, I would consume 3 or 4 rounds of a 24-oz Tervis tumbler full of ice. Sometimes I wondered if the chomp-chomp-chomping sound was disruptive to those around me. Most times, though, I chomp-chomp-chomped away anyway, blissful in my puffy little cloud of addiction.
I’m not one bit ashamed to admit that I’ve been known to dig through the Hoshizaka to find the choicest bits of ice. Some cubes are more delectable than others; it’s a fact. And those are the very cubes most desirable to an ice-chomping addict.
However, I did start to suspect I had a problem when the only thing I wanted to pack for a long evening at the baseball field in 98-degree heat was ice. No water, just ice. And when the only thing I purchased at the baseball field concession stands was ice. Again, no water, just ice.
The pivotal moment in my addiction came a couple of weeks ago, when I was on my girls’ trip with my Duke friends. When it came time for the beverage service on the plane en route to the beach, I requested ice. No water, just ice. And more than one cup, please. Once at the beach, I realized the ice-cube trays in the freezer of our condo would not suffice, so I had to run out and get a cup of ice. Every day. I got smart and ordered 2 cups so I could put one in the condo’s freezer (alongside the worthless ice) for later. Each night at dinner, I asked for a to-go cup of ice. In the past I’ve been known to request a to-go cup, but I can assure you it wasn’t just ice. These were unchartered waters I had entered.
After becoming seriously worried that I was going to crack my teeth on all the ice I was consuming, I decided it was time to start taking that prescription iron supplement again. Within days, my ice obsession had waned. Weird.
While I still covet really good ice and will still pick through my ice machine for the best cubes, I’m not driven to chomp cup after cup of it. In fact, I realized this week that I’d gone 2 whole days without chomping any ice. Today while watching Macy’s tennis lesson, I got a cup of iced tea (extra ice, natch) and actually left most of the ice in the cup.
I’d like to think that my waning obsession with ice is a harbinger of my return to normal life, after a protracted cancer battle. I’ve had my share of complications on this “cancer journey,” and the idea of things turning around for real is pretty sweet. I relish the thought of being able to put that “cancer journey” on ice and getting on with my life.
Life’s a beach!
Posted: June 24, 2011 Filed under: baseball, breast cancer | Tags: Beachside, cancer battle, girls' trip, Little League All Stars, recovery, South Padre Island, Zac Brown band 6 CommentsI’m on the 7th-floor balcony overlooking the beach at South Padre. The weather isn’t great, but the air is salty, the breeze is cool, the seagulls & pelicans are flying, and the sound of the ocean is magical. The most important part: I’M HERE! Cancer has no place on this balcony.
I’ve been here almost 24 hours and have yet to step on the beach, but no worries. Yesterday was consumed with airport transportation, procuring supplies, and waiting for the bridge to the island to re-open. While stuck in traffic, we noticed an older man riding a kitted-out scooter of sorts, bright yellow with “Granpa’s Hog” painted on the back. It has a lawnmower engine and he zips along pretty quickly. He had no traffic issues on the sidewalk. The best part: we saw him pull into the drive-through liquor store! Brilliant.
Editor’s update: Nancy texted me the pic and I’ve inserted above.
[I have a photo but can’t download it from my phone and upload it to my iPad. Advanced technology also has no place on this balcony; the photo can wait.]
Last night, Payton’s All Star team had another stunning win in game 2 of the District Tournament. The 18-3 game included a 3-run homer and some stellar plays by the boys in red. Next game, tomorrow night. I’ll be there in spirit, but like Zac Brown, I hope to have my toes in the water, ass in the sand, not a care in the world, a cold beer in my hand. Life is good today, indeed.
girls’ trip
Posted: June 22, 2011 Filed under: breast cancer | Tags: breast cancer, cancer battle, cancer diagnosis, Fuqua School of Business, hospital, Houston, infection, infectious disease, IV antibiotics, MBAs, mycobacterium, older grad students, post-mastectomy, PTSD, recovery, South Padre Island, survivor, top-10 business school 8 CommentsOnce upon a time, in a city far, far from Houston, there was a group of young-ish women. All had relocated from every corner of the country with young kids in tow to help fulfill their husbands’ dream of getting an MBA from a top-10 business school.
None of the women knew anyone in the new city, and all were a long way from home. For two long years, without paychecks and luxuries like babysitters, the women bonded while the hubs crammed their brains with all things MBA-related. Once the menfolk had diplomas in hand, the group of women dispersed, to new homes in new corners of the country.
One night before going separate ways, the women left the hubs and kids at home and went out for a nice dinner. There the plans were laid and a vow was made: let neither distance nor the rigors of child-rearing sever the bond created by hardship and the shared need for breaks from their preschoolers. The solution: come together for an annual girls’ trip, to reconnect and recharge. 
The first trip was to San Francisco, then Sanibel Island in Florida. Next came Captiva Island, then Scottsdale. Park City was next, followed by Lake Tahoe. Every year was a different locale, but the theme was the same: reconnecting.
The women had gone their separate ways, and a few left the domestic scene to pursue careers in law and medicine. The others continued to toil on the homefront, trading preschool and playdates for elementary school and homework. The kids grew up, and a few new babies joined the fold. One thing remained the same, however: the women’s commitment to the annual trip.
The End
Well, not really the end. Just the end of my little story.
It’s the eve of the 7th annual Duke girls’ trip, and my suitcase is packed. My boarding pass is printed. My Kindle is full of new books to be read uninterrupted by young children. My house is stocked for my peeps to exist in relative ease in my absence. I’m going, I’m really going.
After 7 years, you’d think that preparations for the trip would be somewhat by rote. Decide on the locale, find lodging, book flights, pack a bag, kiss the fam good-bye, and vamoose.
But not for me. See, last year I was ready for Tahoe. That trip was to have taken place 4 weeks post-mastectomy. As I described it this time last year, the trip was “my goal, a partial finish-line, and my sanity-saver since my diagnosis.” One of the first things I asked my superstar breast surgeon, Dr Dempsey, upon diagnosis, was if I’d still be able to take my girls’ trip. Tahoe with my Duke girls gave me something concrete to work toward in my recovery from surgery, from being diagnosed with cancer at age 40.
Instead of stocking the fridge and packing my bags this time last year, I was in the hospital, sick–really sick–with a nasty infection. I was admitted to the hospital unexpectedly when symptoms of the infection appeared out of nowhere. I literally had seen Dr S the day before the symptoms cropped up; fine one day, sick the next. The day I was hospitalized, I was still clinging to the hope that I’d be in & out of there quickly and still be able to go on my trip. Silly, silly girl. My mind was willing, but my body said “No can do.”
After countless IV bags full of different antibiotics, my fever kept spiking and I got worse instead of better. While the scarier bugs like anthrax were quickly ruled out, the specific infection remained elusive. My infectious disease doc told me that the cultures grow at their own pace, and the culturing is done old-school: in a Petrie dish in an incubator in the lab downstairs. I was confined to the hospital bed until the growth was complete, and no one knew when that would occur. The day before the Tahoe trip, I had to concede that I wasn’t going to make it. Rotten luck.
While it broke my heart and seriously injured my fighting spirit to tell my Duke girls I wouldn’t be joining them, untold hard times followed. Missing the trip was chump changed compared to what was to come. Looking back at my Caring Bridge journal entry for June 10th of last year yielded this:
“I should be on a plane right now, en route to Tahoe, but instead I’m in an ugly gown, sitting on scratchy sheets in an uncomfortable bed (most definitely not a Tempurpedic mattress). Looks like I’ll be here a while yet.”
I don’t recall this part, but it must have happened:
“They moved me across the hall last night to a new room. My new neighbor is an older Asian man who talks louder than anyone I know, and so do all of his relatives. In fact, I just got up my scratchy sheets & walked across the hall in my ugly gown to shut his door. Sheesh. This hospital has an entire floor for Asian patients, which is pretty cool and indicative of this huge city we live in, but I’m wondering why he’s not on that floor.”
Tonight, on the eve of the 7th annual Duke girls’ trip, there are no scratchy sheets and there is no ugly gown. There’s a not-so-youngish-anymore woman who’s had one helluva year, who’s ready to get on that plane and make up for lost time. SPI, here I come. Now that’s a happy ending!