One-upmanship
Posted: November 15, 2010 Filed under: breast cancer | Tags: bilateral mastectomy, breast cancer, cancer battle, cancer diagnosis, cat, cat fight, recovery, stitches, surgery, survivor 7 CommentsSo I was minding my own business at the pack & mail when a guy in the store started talking to the store owner about the stitches in his finger. He had been bitten by a cat and had 5 stitches. He wanted to show Monica, the owner, his stitches, and she was grossed out and didn’t want to look. She asked me if I was squeamish. I had one of those moments of wondering, does she want me to answer truthfully, or make nice and say something normal?
Y’all can probably guess where this is going. I said, I used to be squeamish but I’ve had to do some stuff lately that I never thought I’d be able to do.
The man asked if I wanted to see his stitches, or if I’d be grossed out. I didn’t hesitate to one-up him. I said, 5 stitches? Dude, I had a double mastectomy; 5 stitches is nothing.
I think I might have ruined his day. But, a little perspective is a beautiful thing.
Good ol’ Dr S
Posted: November 14, 2010 Filed under: Uncategorized | Tags: breast cancer, cancer battle, cancer diagnosis, check-up, Daylight Savings, infection, mastectomy, new boobs, plastic surgeon, plastic surgery, recovery, survivor 6 CommentsIt’s been too long since I’ve posted a good story about Dr S, my most-favorite and much-abused plastic surgeon who saw me through the worst of the infection(s) this past summer and with whom I have an ongoing love-hate relationship. I love to needle him, and he hates to see my name on his clinic schedule!
I saw him Friday for a check-up (I love the way “check-up” sounds so simple & innocent, and misleadingly free of scary stuff like tumors and fat necrosis and scar tissue and reconstruction). He’s usually pretty prompt, and out of the many, many office visits I’ve had with him, I really haven’t had to wait too long for him. The few times it has happened, though, it has made me mad and I let him know it. I understand that delays happen, and the doctor isn’t always in control of the schedule, but I’m just an impatient person and it annoys me. My bad.
Friday was no exception. After waiting nearly an hour in the waiting area (so aptly named, that place), I waited some more in the exam room. I’ve explained before that although I am “just” an at-home mom, my time is still valuable, and I prefer him to keep some other patient waiting and get to me first. Not that I want some other patient to have to wait longer than me, but really once you’ve been diagnosed and gone through a nasty surgery and then the whole infection scene and multiple hospitalizations, well, ok maybe I do want someone else to have to wait longer. Surely all of that mess garners some sort of street cred or extra credit or something that allows me to go to the front of the line. But no. Like so many things related to cancer and subsequent recovery, there’s no easy way, no priority boarding, no free ride.
So after an hour of waiting on Friday, Amy and I were joking, as we’ve done before, about the many ways we could get his attention. We can usually hear his voice through the exam room walls and can gauge if he’s wrapping things up with the previous patient (although sadly, we can’t make out all the words and so can’t really get a sense of what they’re discussing, and y’all know how nosey I am; being able to properly eavesdrop would pass the time quite nicely). We’ve considered texting him from the waiting area and the exam room (yes, I do have his cell number), or knocking on the walls and hollering, Hurry it up in there, we’ve got to get back to Sugar Land for carpool!
Well on Friday we hatched a new plan and decided to write him a note and slip it under the door. We ripped the paper covering from the exam table and scribbled, You’ve got 5 minutes. Then we stuck it under the door.
Ballsy? Perhaps. Rude? A little. Effective? Most definitely. He burst through the exam room door post haste, note in hand and grinning wildly. He needed a little shake-up to his day. He muttered something about how he’s never in all his years had a patient give him so much grief. I replied that I’ve never in all my years liked waiting, something I’ve been imminently clear about from day one with him. Y’all may recall from my previous blog on Caring Bridge that I told Dr S at our first consultation, shortly after my diagnosis, that I know full well and good that he has other patients; I’m not his only patient, but I expect to be his number-one priority. I was kidding then, but oh how eerily prescient that little wisecrack turned out to be. Six months later–and today is exactly six months since my mastectomy–that man is still not rid of me.
Here’s the really funny part, though — he actually tried to blame his lack of punctuality on Daylight Savings. He said his schedule has been messed up since the time change, and I guess what we’re supposed to infer from that is that it’s not his fault. Time change, huh? It must have been pretty clear by the look on my face that I wasn’t buying that, because he asked me why I was looking at him as if he were FOC. I wasn’t familiar with that acronym so he said what about FOS? That one I know, and told him that I did indeed think he was FOS. Totally FOS. Since we “fall back” with the time change, he should have been an hour early!
cancer fatigue
Posted: November 8, 2010 Filed under: cancer fatigue | Tags: breast cancer, cancer battle, cancer diagnosis, cancer fatigue, mastectomy, port, post-mastectomy, surgery, tennis 1 Comment
I got a new jacket for tennis, since it’s getting chilly around here in between hot flashes. I noticed this tag on the jacket and am a bit freaked out that my first thought was that this jacket had some kind of special feature for my port. So sad. Even after I read the “access for embroidery” words on the tag, my brain was still trying to figure out what this had to do with my port: is there a special pocket for my port, like how some workout clothes have a teeny pocket for an iPod? How cool is that? But weird, too, since I can’t exactly take my port off and zip it into a pocket — it’s sewn into a vein!
Uh, not cool. It’s sad. Way sad that my brain is so conditioned to think about all things cancer-related that this is where it goes. Boo! Upon further contemplation, I realized this pocket is a shortcut for an embroiderer, to make it easier for them to stitch a logo or something on the jacket. It has nothing to do with my port. Sheesh.
On a happier note, I experienced something pretty great today: I took my friend to her doctors’ appointments. It was not only nice to spend the day together but also fan-freakin-tastic to be just the driver and moral support and not the patient. I’ve spent a lot of time in doctors’ offices lately, and while I still have my share of appointments on the horizon, I’m ecstatic that I’ve reached the point of being able to give back to my friends, who have given so freely & generously their love, presents, support, presents, meals, presents, rides, presents, child care, and presents.
It’s just rice
Posted: November 6, 2010 Filed under: breast cancer, drugs, infection | Tags: breast cancer, cancer battle, cancer diagnosis, Daylight Savings, food groups, hospital, housekeeping, infection, infectious disease, the Medical Center 2 CommentsMost people probably spend the extra hour we gain in Daylight Savings by sleeping. I usually use that extra hour to clean, as something around here always needs cleaning. This time, however, I’m going to spend the extra hour reflecting on my good health.
It’s a tenuous state. And after my little scare this week, I’m planning to savor it even more. In case you missed the update, I had some fluid on my right side that Dr S wanted to drain so he made yet another hole in my chest wall on Tuesday. All week the gunk that drained out of the latest hole was pretty nasty looking, and infection was on everyone’s mind.
Friday I saw the newest member of my infectious disease team, Dr Samo. I wanted him to see the gunk and tell me unequivocally that I had nothing to worry about. As much as I try to live by the “don’t borrow trouble” mantra (thank you very much, Amy Hoover), this gunk was worrisome.
As I drove into the Medical Center Friday morning, I was mentally reviewing the all-too-familiar list of things to pack for a hospital stay, just in case. I even wondered if I should pack a bag, since I had no idea what to expect from this doctor visit. Imagine my relief when Dr Samo was universally unimpressed with my gunk. I’m really glad. He said he agrees with Dr S, that we’re not looking at infection but simply some unhealthy tissue that’s not getting enough blood supply and dying a slow, gunky death. That kinda creeps me out, to think of decaying stuff on the inside, but compared to infection it’s positively lovely. Big sigh of relief.
There was some great comic relief in the waiting room of Dr Samo’s office. An elderly lady was waiting with her daughter, and both were pure country. They talked r-e-a-l slowly and with a heavy twang. No idea what they were there for, but they had a hilarious conversation that was too funny to not overhear. Mama said to daughter (very s-l-o-w-l-y), Next time you go to the store, I want you to bring home an orange. After a very long pause, daughter asked why, and mama said, to eat of course. Daughter chose to dredge up some ancient history by mentioning the apples she brought home from the store that mama never ate. Mama knew she was busted, and deftly changed the subject to someone named Timothy, who apparently isn’t much into fruits & vegetables, but according to mama, eats more than you think. She went on to say that when you think about it, Timothy eats salad (r-e-a-l g-o-o-d), and will eat peas, corn, potatoes, baked beans and rice. Daughter let the baked beans go, but pointed out that rice isn’t a fruit or vegetable. Mama said, well sure it is; if not a fruit or a veg, what is it? Daughter said, It’s just rice.
So there you have it folks, at the end of the day, it’s just rice.
supplies
Posted: November 3, 2010 Filed under: breast cancer, cancer fatigue, drugs, infection | Tags: antimicrobial, blog, breast cancer, cancer battle, cancer diagnosis, curse words, good health, home health care, infection, medical supplies, stress, wound care, wound vacuum 5 CommentsI was just wondering what I could blog about, since it’s been a while since I’ve posted anything. Now that my life is more or less back to normal, there’s just not as much fodder for posts. This is a good thing, because it means my health isn’t full of breaking-news updates, but a bad thing because I really like writing and many of you kind souls have said you really like reading my posts. So I was pondering this while doing something seemingly insignificant but actually quite momentous over the weekend. I put away all my medical supplies.
There’s been quite a collection on my bathroom counter since August. Way back in late July & early August, while I had home health care for the IV antibiotics, I amassed a huge pile of supplies. Everything from wound vac stuff (remember Sucky?) to heparin flushes to alcohol wipes to gauze pads. And a bunch of other stuff in between. I hated every piece of medical paraphernalia from the moment it entered my home. I know I should be grateful for it all, and for the comprehensive health insurance that paid for everything. And I am. I truly am grateful, and think a lot about how much more stressful this whole mess would be without insurance. But I still hated all the supplies.
I hated the supplies because they reminded me, in a very tangible way, of how perilous my health was. No one ever talked out loud about how dangerous this infection business really is, but you’d have to be be pretty dense to not get it. I certainly didn’t need a reminder to know that my situation was serious — I lived it every second of every day. Even now, 2-plus months after all that mess, it still scares me, just a little bit. I still look over my shoulder and don’t entirely trust the good health I’ve been enjoying lately.
So this weekend I got cocky and decided it was time to pack away the supplies. I no longer needed the saline and gauze to clean a wound, or the antimicrobial silver dressing to put inside the wound, or the antibiotic cream and tape. My skin can finally breathe now that it’s not encased in plastic dressing and tape. I’ve been lax in taking my temperature every day, and only do it every other day. I still have the syringes and teeny little vials of B12 liquid that gets injected in my arm once a month. And I still have a stash of pain pills, which I don’t need but I like knowing they’re around, just in case. But for the last several weeks, I haven’t needed to get into those supplies.
Once that nasty wound finally healed, there was little need for the plethora of stuff, but I was so used to having it on my bathroom counter, it all really seemed to belong there. It became a fixture, I suppose. Until this weekend. When I got cocky, again. Last time I got cocky, I decided I didn’t need the probiotic anymore, even though I’m still on two antibiotics twice a day. That lasted exactly 2 days. But several weeks had passed without incident, so I guess I got bold and decided it was time for the supplies to go.
Silly, silly girl. When will I ever learn? I’d been feeling not quite right for the last several days. Nothing I can really pinpoint, but something seemed off. So when I saw Dr S today he immediately noticed a reddish-purpleish spot on my right side that seemed pretty puffy. I think his exact words were, What the hell is that??? Never a good sign. So he poked around for several tense minutes and sure enough that spot felt different than the surrounding tissue. He squished it pretty good and said there’s fluid in there.
I won’t repeat the litany of curse words that went through my head at that exact moment, but suffice to say it would make a former Marine or tattoo artist or school lunch lady proud. That was some professional cussing going on in my head. The quality of the cussing almost distracted me from the inevitable: Dr S moved away from the exam table (which is like a second home to me) and headed for his supplies. He never says much but we’ve been down this road before, or as Payton’s speech teacher Ms. Pointer would say, this is not our first rodeo.
No, sadly, Dr S and I have been rodeoing together long enough that I know that when he heads for the supplies, he is going to come back with a sharp object in his hand and a very determined set to his jaw. He did not disappoint me.
He sliced me right open, and sure enough the fluid came rushing out. Not as dramatic as the “black gold, Texas tea” segment on the opening scene of The Beverly Hillbillies but it did bring that little blast from the past to mind.
Long story short, we don’t know what’s going on. It’s probably nothing serious (repeat that phrase 1,000 times for good measure). He cultured it, so maybe we’ll know something by the end of this week. Or maybe not, because one thing I’ve learned in this long, rotten education is that you don’t always get an answer right away, and you don’t always get the answer you want. Fingers crossed that we’re not talking about an infection here. I shudder to think about the prospect of another infection, or a variation on the one I already had, especially since I’ve been on 2 oral antibiotics for something like 12 weeks. Yes, you read that right: 12 weeks. Nearly 100 days of twice-daily abx. If I’m not covered then I may just have to give up, tell the bacteria to come & get me. Have at it.
I’m not ready to start waving the white flag just yet. But I will get the supplies out of the bathroom closet and put them back on the counter, where they belong. At least for now.
A triumphant return
Posted: October 23, 2010 Filed under: breast cancer, tennis | Tags: backhand, breast cancer, cancer battle, champagne, champions, costumes, cross-court, doubles tennis, forehand, Halloween, passing shots, survivor, Sweetwater Country Club, tennis, tennis partner, tennis tournament, Texas, trophy, witch 5 Comments
If you missed the local news last night, you didn’t hear that Staci and I rocked the annual Witches’ Open, our club’s annual Halloween tennis tournament, yesterday.
I didn’t really think about the significance of it all because I was wrapped up in just getting there on time, but thanks to my bossy-pants partner and several others who’ve remarked upon this particular topic, I’ve now officially clued in.
It’s probably a good thing I didn’t have time to think about the significance of all of this, because I might not have enjoyed it as much. I would have over-thought it and put a bunch of undue pressure on myself and forgotten to savor the fact that I was there, upright & healthy and swinging my racquet. It seems like a long time ago that I went through everything I’ve been through, with the cancer and the surgery and the infection and blah blah blah. It seems like a long time ago but it really wasn’t.
It’s a good thing I was thinking more about the logistics: getting both kids off to school, having my costume ready, packing my tennis bag. If I had stopped at any point yesterday to think about the fact that just 2 months ago I was in the hospital, my mind might have been on something other than slamming that perfect volley at the net player’s feet. If I had remembered that 2 months ago, I was sporting a 5.5-cm-wide wound in my chest wall, I might have double-faulted every time I came up to serve. If I had pondered the fact that I had a raging infection, my passing shots may have lacked authority. If I had spent a moment recalling the 22 days I spent in the hospital this summer, that cross-court winner placed just inside the alley would have fizzled. If I wasn’t so captivated by the fun and spectacle of the event, I might have focused on the fact that everything that could have gone wrong after my surgery pretty much did, and that would have sent that lob sailing right over my opponents’ heads but just outside of the baseline.
So it’s a good thing I didn’t think about it, any of it, until after the fact.
Now that I have thought about it, (and thanks, partner, for reminding me of the very short timeline), I’m pretty well overcome with emotions, from thankfulness for my current good health to gratitude to my tennis friends for their incredibly warm welcome back and patience with me as I reacquainted myself with the game. It sounds so cheesy when people say to appreciate each day, each moment. But it’s really true, especially after you have some crazy medical drama in your life. Life is short, and it is precious. And we never know from one day to the next what’s ahead. So make the most of it. 
10 tips
Posted: October 16, 2010 Filed under: breast cancer | Tags: American Cancer society, bilateral mastectomy, breast cancer, breasts, cancer battle, cancer diagnosis, good health, grocery store, mammogram, margaritas, reconstruction 2 CommentsSo I’m getting groceries, minding my own business and trying to get on with my so-called normal life (as normal as life can be after breast cancer but before reconstruction), and I see a pamphlet titled “10 Tips for Getting a Mammogram.” This ought to be good.
Tip #1: “Yearly mammograms are recommended starting at age 40 and should be done every year for as long as a woman in in good health.” And if you’re not in good health? More often? Less often? That kind of construction bugs me.
Tip #5: “Try not to schedule a mammogram when your breasts are likely to be tender, as they may be just before or during your period. This will help lessen the discomfort.” Really? They think that’s going to help? I say try to schedule a mammogram after slamming 3 grande margaritas to help lessen the discomfort. But then I remember that I have neither breasts nor periods anymore, so I guess I can go straight to the margaritas.
Tip #8: “Only you and the technologist who positions your breasts will be present for the mammogram. Most technologists are women.” Most technologists are women? Now I’m really curious about the ones who are men. What percentage? Do women complain about having a male do their mammo? Is there a support group for male mammo techs? Are they cute?
Tip #9: “The entire procedure should take about 20 minutes. Your breasts will be compressed between 2 plastic plates. The compression may be painful, but should only last a few seconds.” I could make a smarty-pants comment about how long the pain of a mastectomy lasts but I’m not even going to go there. I will tell you it’s more than a few seconds.
A word about menopause
Posted: October 11, 2010 Filed under: menopause | Tags: age spots, breast cancer, cancer battle, ER postivie, estrogen, hormone suppression, hospital, hot flash, Lupron, meno, ovaries, Scrabble, SERM, surgery, tamoxifen, weight gain, world domination 10 CommentsIf you’re a guy, you might not want to read this because it’s, well, about menopause. If you’re a gal who’s not yet experienced the joys of menopause, you might not want to read this because it will scare you. A lot. If you’re brave enough to venture forth, don’t say I didn’t warn you.
Because my cancer was fed by estrogen, after we got rid of the cancer we also had to remove its fuel source, to discourage it from coming back. Hence the stoppage of estrogen. The most direct way to stop the estrogen is to remove one’s ovaries in a lovely procedure called oovectomy (which would also be a seriously high-scoring Scrabble word). If you’re still fighting a wily infection, like me, being cut open in a hospital of all places is a pretty risky move. Especially since the hospital seems the most likely culprit in the age-old question of “How the Hell Do You Even Get an Infection Like That?” While it’s unlikely that my infection would travel from the chest wall to the nether-regions, that’s a chance I don’t want to take, and frankly the idea of another hospital stay gives me the vapors.
Since I’m not ready for the oovectomy, I get the next-best option of hormone suppression, which is a shot of Lupron every 3 months, and a daily dose of Tamoxifen, which is a SERM (selective estrogen receptor modulator) drug. The latter half of that acronym makes me think of something coming out of the Johnson Space Center instead of a prescription bottle from Walgreens, and talk about some great Scrabble words. Build one of those on a triple word spot and you’re damn close to world domination.
So I’m going along in my cancer journey, minding my own business, doing all the things I’m supposed to do, no matter how unpleasant, and yes it’s really good news that the cancer is gone and the infection is on its last legs, too, but do I really have to deal with menopause, too? That just seems mean. You’re seriously going to tell me that battling both cancer and a nasty infection doesn’t exempt one from the hell of menopause? Mean.
I foolishly thought I’d have another decade before having to face the evil triumvirate of menopause: hot flashes, age spots, and weight gain. Even more foolish was the idea that, compared to cancer, menopause would be easy. Silly me.
Living in Houston, land of eternal summer, during hot-flash season, is a challenge. Come to think of it, neither Houston nor hot flashes have a season, so it’s game on, all the time. Local ladies, if you have any remedies for this please pass them on. I have yet to come across a mobile AC unit. I’d be waiting on the doorstep of Radio Shack to purchase said item and would wear it proudly, if only it existed.
So as I’m mopping my sweaty brow after one particularly potent hot flash, I notice some brown spots on my face. Little specs, bigger than freckles but not as big as liver spots. I tried to pick one off, wipe it away, flick it somewhere, anywhere, to no avail. These babies are staying. There’s a constellation near my left eye, and a nice fat one on the inside corner of my right eye. There’s a trio on my forehead, a few singles lingering on my jawline, and God knows where else that I’ve been too busy fighing cancer to really notice up close. Thank you to all my friends for not pointing them out to me. I know you’ve noticed, but were too charitable to tell me I was growing a connect-the-dot game on my face. And there’s a travel version of this game growing on my hands. I’m aging quite visibly as we speak. Thanks, cancer. You bastard.
While the hot flashes are unpleasant and age spots are depressing, the weight gain is really making me mad. I hope there is a special corner of Hell for whoever came up with the hair-brained idea that women will not only lose their breasts but also face scary treatments, complications and all manner of pain & suffering and then gain weight too? That is one messed up system.









