A double holiday

It’s Easter, a bittersweet holiday for me. Spring is hard. My parents’ wedding anniversary is in March, my mom’s birthday in April, followed a few days later by my first dog Maddy’s birthday, then Mother’s Day in May. Celebrating these milestones without my mom is hard, to say the least. The advertising blitz leading up to Mother’s Day depresses the hell out of me each year, and somehow the loss of my own mama always intrudes on the celebration with my kids. She made every holiday fun, and subsequent family gatherings are sorely incomplete without her and her cooking. We always did Easter Greek-style, with roast leg of lamb, roasted potatoes or minestra (Greek pasta), pastichio (Greek lasagna), a huge Greek salad, homemade Greek Easter bread, and of course, coconut cream pie and the annual bunny cake. This year we’ll be celebrating at my cousin Susie’s house, Greek-style, and I’ll drink a toast to my sweet mama. I think she’d approve of this year’s bunny cake.

The cake is a tradition dating back to when I was a kid (which was a long time ago). My mom saw the idea in a magazine and made it every year. I’ve started the tradition with my kids, and now Payton has outgrown it enough to only consult on whether the frosting tastes ok. He’s come a long way from the little guy in the striped t-shirt, trying so hard to balance as many eggs as his little mitts could gather. Macy is chief cake decorator now, and has had exclusive creative license over the bunny cake the last few years. The look of the cakes varies slightly over the years as Macy chooses the decorations. The 2009 version was a study in understatment and pastels.

Last year’s cake was a bit more candy-oriented, with Hershey’s kisses for eyes and a licorice nest for a nose. His bowtie was heavily crusted with assorted sprinkles and jimmies, and the creative genius behind this version clearly had to jump in the pool after her decorating was done.

This year’s bunny has a jaunty moustache and thick eyebrows. He’s decidedly less pastel-y and a bit more avante guard with nary a sprinkle to be found. He’s both stylish and delicious.

Today also marks 18 years of wedded bliss. On this day 18 years ago, I said “I do,” and Trevor said “I do, too” and luckily he agreed on the “in sickness and in health part,” because we’ve seen more than our fair share of the former. Hope to have nothing but the latter from here on out.

We marked the momentous occasion by waking to the sounds of the kids tearing apart the cellophane wrapping of their Easter baskets. The Easter Bunny had to break tradition and deliver a pre-pack instead of the usual carefully-chosen assortment of each child’s personal favorites tucked among the fake green stringy grass, along with a few trinkets and treasures. This year, the EB copped out, but I don’t think anyone but me noticed.

In typical form, Trevor had a gift and a card for me, and I had nothing for him to celebrate 18 years together. I’m not the most sentimental, and you wouldn’t have to look hard to find someone more romantic than me, which is a crying shame. Luckily, what I lack in mooshiness, I make up for in pluck and resourcefulness and always have a gift stashed somewhere. Like a rabbit out of a hat, I pulled a new Adidas tennis shirt & shorts out of the gift closet for him, and wrapped it up real quick like as if it was my intention all along. The card must be lost in the mail. Really. Sigh.

In honor of April 24th and 18 years together, here’s a little walk down memory lane. 

No, that’s not the hairstyle Trevor chose for his big day, but the gusty wind blowing his thick and luxurious mop. See, there was a tornado the day of our wedding, and no, Smarty Pants, it wasn’t a sign of things to come. Nice try. Sadly, 7 people were killed and 100 were injured by this storm, and no, it had nothing to do with our union. Strictly coincidence and having absolutely no significance for poor Trevor.

There was a Whataburger next to the church we were married in, and while the girls were primping in the bride’s suite, the boys snuck next door for a bite to eat. The photographer caught them in the act, and we have Trevor’s killer tornado hair on record. Sweet.

Here’s the title page of our wedding album, lovingly inscribed in by #1 neighbor and wedding coordinator Susan Postier. Notice the red and black scribbles? That would be Macy, as a toddler. She had an evil streak that incited her to leave her mark on everything from walls to brand-new furniture to wedding albums. Nothing was safe from the wrath of our pint-sized Pollock. Instead of being mad at her and thinking the album was ruined, I treasure it all the more because it has Macy’s signature on it. She wasn’t at the wedding, of course, and isn’t in any of the photos, but she made herself a part of it by stamping it with her signature scribble.

Here’s a much younger version of me with my parents. At the time, I was wondering how many more photos I had to endure, and was probably wondering when I could get to the reception and get my drink on. Now of course I would give my right arm to have a few more days with my mom here, my family intact. She was so excited about that pale pink dress, and had even taken a Jazzercise class to make sure she would fit into it, which was a big deal for her because my sweet mama didn’t like to sweat.

Trevor and his mom, Jody, who is amazingly artistic and designed and sewed her dress herself. The photo doesn’t do it justice, as the color was more teal-green and the intricate hand-beading (sewn on in the car as they drove to the wedding from Kentucky) was beautiful.

Trevor and his dad clowning around. How ironic that I’m looking at the photo of Preston giving Trevor “bunny ears” on Easter morning 18 years later. You can’t make this stuff up, people!

Trevor and his brothers. Marrying into a family of 4 boys was a bit of a shock for me, having just one sibling myself. I learned about “the Hicks pass” in which one empties the dish of whatever food item the other brother requests one passes at the dinner table, and that if you want more mashed potatoes, you better get ’em on the first go-round.  Trevor and I thought we might like to have 4 kids ourselves…until Macy came along, that is, and we decided 2 was plenty.

My brother and me. The next time we’d be formally dressed and in a pulpit together would be our mom’s funeral, 13 years later. He wanted to speak about her and asked if I’d stand with him. I agreed but said I didn’t think I would speak. He lovingly prepared a speech about what an incredible mom she was, and how he didn’t realize until he became a parent himself just how sacrificing and unconditionally loving she was. He cited examples of homemade treats in his lunchbox, endless rides for him and his teammates to baseball and football games, and the fact that his uniforms were always clean, no matter how many games a week were scheduled. A beautiful tribute to an amazing mother. Yet, he was overcome with emotion when it came time to read it, and I found my voice and pitched in to deliver his words. I think our sweet mama, a former speech & drama teacher, would have been proud of our presentation.

The last photo in the bride’s suite before the we got that show on the road. The photographer wanted to get an artsy shot of my reflection in the mirror as my mom adjusted my veil, and I nearly lost it just before walking down the aisle. If only I’d known then that my time with her would be short and all the more precious.

Anyone who knew my sweet mama can imagine her muttering under her breath as my brother led her down the aisle. She was probably telling him that he was walking too fast or too slow, or maybe she was talking to herself about what so-and-so was wearing, or wondering if she’d made enough baklava to go around at the reception. Her brain was always running full-speed, and it was usually focused on other people and their needs.

Jody had 2 escorts down the aisle, and those young boys did a fine job delivering their mama to her seat. They’re all grown up now, which I guess officially makes me old.

My dad looks mighty serious in this photo, and I vaguely recall him telling me it wasn’t too late to change my mind. I’m sure he was kidding. He led by example for all of my formative years, and when it came time to give his baby girl away, he threw a mighty fine party.

My cousin Susie and her baby, Melissa, who is now a senior in high school. It’s official–I’m old.

Happy Easter, everyone, and happy anniversary, Trevor. Now let’s go cut that bunny cake!


2 small heart attacks

The viewer mail is pouring in about this post and this one, in which I inadvertently gave y’all some reason to think you might be suffering a small heart attack. Many apologies. I didn’t mean to scare anyone or cause anyone to stroke out. I promise to be much more boring and much less dramatic in future.

Yeah, right.

I will get to coverage of Day 2 in Napa, really I will. It’s in the works. The trip was so fantastic, I want to do it justice, and sometimes that means ruminating, and you know I have very little patience.

thank you, AA Milne

As Winnie the Pooh referred to himself as “a bear of very little brain,” I am the blogger of very little patience. Working on it, people, working on it.

Thinking about Winnie the Pooh reminded me of how much I loved that bear as a little girl, and I’m sure somewhere in the deep recesses of my parents’ attic, there are photos of me surrounded by Winnie; my sweet mama never threw anything away. I had the Pooh treehouse with all the little figures: Pooh, Piglet, Rabbit, Christopher Robin, Kanga, and Roo. Oh, and Tigger. Don’t forget him. He’s c-razy! I had some Pooh pajamas that I wore nonstop, although not out in public like my little girl does in her jammies. I had a stuffed pooh, the original AA Milne version before Disney got its hands on him, and that bear went everywhere with me. I loved him so much I even gave him open heart surgery with my mom’s seam ripper from her sewing kit. I must have left the closing to my surgical assistant, because Pooh had a hole in his chest for the rest of time.

google images

Now that I’m all grown up, I appreciate Winnie the Pooh on a whole ‘nother level, and find the depth and meaning contained in his quotes so moving.

We’ve all seen this one, on a greeting card perhaps or a t-shirt: ““If you live to be 100, I hope I live to be 100 minus 1 day, so I never have to live without you.” So endearing when said by a cartoon bear, but if a human said that I’d want to barf. Those of you who know what a non-romantic I am will be shaking your heads right now. Go ahead, it’s all right.

This quote from Pooh’s endless wisdom does not make me want to barf, however:

AA Milne

This one is all right with me. Don’t know why, but I suspect it’s because it reminds me of my sweet mama, and how very much I miss her. It also reminds me of my favorite ee cummings poem “i carry your heart with me,” which I had planned to read at my mom’s funeral but I just couldn’t get the words out. The words are always in my head, though, and I especially like this part:

“i carry your heart with me (i carry it in my heart) i am never without it… you are whatever a moon has always meant and whatever a sun will always sing is you here is the deepest secret nobody knows (here is the root of the root and the bud of the bud and the sky of the sky of a tree called life; which grows higher than soul can hope or mind can hide)and this is the wonder that’s keeping the stars apart i carry your heart (i carry it in my heart)”

I’ve always loved ee cummings’s disregard for capitalization and punctuation. To me it means the words themselves and the ideas they express are way more important than conventions. It’s as if he was in such a hurry to get these thoughts out of his head and his heart and onto the page that he couldn’t be bothered stopping for things that typically  make it easier for the reader to understand what’s been written. None of that mattered. He liked to present new ways to look at reality.

His romantic transcendentalism was not popular, however, and although he was the son of a well-known Cambridge family (his dad taught at Harvard and later was minister of Boston’s Old South Church), he struggled to get his poems published. His mom, Rebecca, had encouraged his love of writing, and lucky for the rest of the world, he persevered. It’s shocking to think that for some 20 years, he had to pay someone to publish his poems.

His poem reminds me to carry my sweet mama in my heart, just like Pooh suggests. But the root of the root and the bud of the bud is that it’s not the same as having her here. And as sweet as the words of cummings and Pooh are, they also lead me to the uncomfortable thought process through which every young cancer patient goes, whether we want to or not. The one in which we wonder about our mortality, as rates of recurrence, treatment pros & cons, and survival statistics tumble through our heads. For every success story we hear, we know there is someone who lost their battle, and we’re acutely aware of the new diagnoses that crash into ordinary people’s well-ordered lives every single day.

Having cancer sucks, but having cancer while you still have young kids at home really sucks. There’s the day-to-day junk that still needs to be dealt with, despite the gravity of disease, treatment, hospital stays, and ongoing drug therapy. I guess it’s not surprising that I find myself not really caring about whether I sign Macy’s daily folder, or wanting to punch the teachers who think another parent-driven school project is in order. Simmer down, teachers; I won’t really punch you but when you assign projects that my child cannot reasonably complete on her own, I do think about it, briefly, because it’s hard to muster the emotional energy needed to guide my child in her education, and I sure don’t want to have to make a trip to Hobby Lobby for supplies.

There’s a never-ending juggling act that comes with the cancer territory when young kids are involved. Like the fact that most of my doctor’s appointments are with surgeons, who tend to do surgery in the mornings and see patients in the afternoon. Sometimes that means I’m cutting it close when seeing the doctor and taking care of business while still making it in time to pick up the kids from school.

Like the fact that I never know when this beast will rear its ugly head again and interfere with our daily life, plans, and schedules. Payton’s Little League season is halfway over, maybe more, and I’ve yet to make it to a single game. For the first time in his Little League “career,” he’s played games for which neither of his parents was in the stands. Not the end of the world, by any stretch, and he’s a pretty resilient kid, but it still bugs me.

Like the fact that sometimes when my kids are venting to me about whatever problem is foremost in their minds, and all I can think is, “It’s not so bad…at least you aren’t dealing with the aftermath of cancer.”

But then I smarten up and realize that yes, they are dealing with the aftermath of cancer. It’s there for them, too, even though they don’t talk about it much or worry about it like I do. It comes out sideways, sometimes, like in Macy’s “getting to know you” questionnaire from the first day of school this year, and her answer to the question “What scares you the most?” Her answer: That my mom will get another infection. Geez, what happened to monsters under the bed? We’ve eclipsed that childhood fear and have sped headlong into unchartered territory here. Like Payton asking us about the annual summer trip to Boston and Salisbury Beach, and wondering if all of us will be going this year. Since I missed it last year, I want to be there even more this year, but part of me hesitates in promising him that, because with this damn disease and this damn infection, I just don’t know. I’m operating under the assumption that the answer is yes, we’re all going this year. But I shy away from promising it.


P-P-P-Poker face

This is what Payton looked like getting off the bus yesterday after school. 

Yikes, right?

Isn’t it every parent’s nightmare to see their child hurt? And bleeding? And in pain? And knowing we weren’t there to prevent it from happening? And why do these things always seem to happen when I’m flying solo, with Trevor out of town?

He limped in the house and as I glanced up from my perch at the computer, I saw a big gash on his sweet face and blood dripping down the length of a giant wound. My first thought was WHAT HAPPENED??? Then I thought, man, that is so close to his eye. Luckily he has the longest eyelashes in the world, which practically wrap around his head and offer unparalleled protection from menacing things.

But the wrap-around eyelashes had met their match with this injury. Before I could get the words out to ask WHAT HAPPENED??? and WHO DO I NEED TO BEAT UP??? he came into my office and tried to tell me he got in a fight.

I say “tried to tell me” because that boy has absolutely no poker face. None. Not even a little bit. Like George Washington as a boy, he cannot tell a lie. It’s a great thing for a parent to have a kid so devoid of poker-faceing. We’ve told Pay from day one that he can’t lie to us without us knowing he’s lying. At first, he thought it had to do with some omniscient parenting skills, but later learned it’s his mug. He gives himself away every time. I love it. He literally can’t keep a straight face — the corners of his mouth move on their own and his eyes dart all over the place. If he’s ever under investigation for anything, he will crack like an egg.

So he was trying to tell me that he got into a fight, and while the words were indeed coming out of  his mouth, his mouth was also doing its jitterbug, giving him away before he could even get the story out into the ether.

The real story: his speech teacher used him as a model for stage make-up techniques. Ms Pointer at First Colony Middle School knows her stuff. He was the only one in his class who raised his hand as a volunteer, and she did it up right. If only his acting skills were as good as her make-up skills, he might have convinced me.

Never a dull moment around here.


Mr Yeats

I love me some William Butler Yeats, and what better day than St Paddy’s Day to read a little verse by Ireland’s best? If you’re not familiar with Mr Yeats, today is your lucky day. Keep reading; below are my two all-time favorite poems of his. I love, love, love them both. If you don’t have any Yeats in your collection, click here and order some today. I know, I’m bossy but really it’s for your own good and you will probably thank me later.

But first, a little background info: Yeats was born June 13, 1865 (a fellow Gemini, and likely half-crazy like the rest of us twins). His dad was a painter, and Yeats was schooled in art but much preferred poetry, and broke with family tradition to pursue his craft. I’m glad he did. He was quite a handsome guy, but wasn’t especially lucky in love. While hard to live that way, I suppose it provided much fodder for his written word. This is my favorite photo of him because of the messy hair and trendy glasses; he could totally pull that look off today, as we speak. I’m not so sure about the Colonel Sanders suit, though. That’s taking it a bit far.

I’m not much of a romantic, and am not very sentimental either (but not quite cold and heartless), but the sweetness of “When You Are Old” gets me every time. I suspect he wrote it about his true love, Maude Gonne (who, by the way, was not his wife; he asked several times but she refused, and they both married other people). The theme of unrequited love is there, among the deep shadows of her eyes and her “changing face.” Now that I too am an old lady with under-eye shadows and a changing (i.e., not so youthful) face, the message of this poem is even more powerful.

The first time I read “The Stolen Child,” I had to sit down and take it all in. It still has that effect on me. I’m already sitting, so I’m good now, but it does move me. I didn’t have kids at the time, was a carefree college girl, and motherhood seemed a very distant destination on that particular world tour. Now that motherhood is my permanent stop, the imagery of the child being lured away “to the waters and the wild, with a faery hand in hand” seems scary and cruel, yet still magical and tempting in its prose. It reminds me a bit of the children’s classic Where the Wild Things Are, by Maurice Sendak, whose brilliance is not something I can do justice to in this space, so I will defer (for now). Again, if you’re not familiar with Where the Wild Things Are, click here and order it today.  And so before I get sidetracked and start rambling about how much I love all things Sendak, “Let the wild rumpus start!”

WHEN YOU ARE OLD
When you are old and grey and full of sleep,
And nodding by the fire, take down this book,
And slowly read, and dream of the soft look
Your eyes had once, and of their shadows deep;

How many loved your moments of glad grace,
And loved your beauty with love false or true,
But one man loved the pilgrim soul in you,
And loved the sorrows of your changing face;

And bending down beside the glowing bars,
Murmur, a little sadly, how Love fled
And paced upon the mountains overhead
And hid his face amid a crowd of stars.

THE STOLEN CHILD
Where dips the rocky highland
Of Sleuth Wood in the lake,
There lies a leafy island
Where flapping herons wake
The drowsy water-rats;
There we’ve hid our faery vats,
Full of berries
And of reddest stolen cherries.
Come away, O human child!
To the waters and the wild
With a faery, hand in hand,
For the world’s more full of weeping than you
can understand.

Where the wave of moonlight glosses
The dim grey sands with light,
Far off by furthest Rosses
We foot it all the night,
Weaving olden dances,
Mingling hands and mingling glances
Till the moon has taken flight;
To and fro we leap
And chase the frothy bubbles,
While the world is full of troubles
And is anxious in its sleep.
Come away, O human child!
To the waters and the wild
With a faery, hand in hand,
For the world’s more full of weeping than you
can understand.

Where the wandering water gushes
From the hills above Glen-Car,.
In pools among the rushes
That scarce could bathe a star,
We seek for slumbering trout
And whispering in their ears
Give them unquiet dreams;
Leaning softly out
From ferns that drop their tears
Over the young streams.
Come away, O human child!
To to waters and the wild
With a faery, hand in hand,
For to world’s more full of weeping than you
can understand.

 

Away with us he’s going,
The solemn-eyed:
He’ll hear no more the lowing
Of the calves on the warm hillside
Or the kettle on the hob
Sing peace into his breast,
Or see the brown mice bob
Round and round the oatmeal-chest.
For be comes, the human child,
To the waters and the wild
With a faery, hand in hand,
from a world more full of weeping than you.


I’m over it

Yesterday was a bad day, but just for about half of the day. I was in a wicked bad mood, the cause of which remains unknown but the remedy of which is no surprise: a stiff drink in the company of good friends. I got some talking therapy from several sources, and with the assistance of some Stoli and tonic, all was right in my world once again.

It’s a good thing, because guest blogger and night nurse Amy H was going to charge me cash money for my bad mood. You may recall her referring to her $10 surcharge while sitting with me in the ICU last week. It was the day after my big surgery and she was subjected to my ranting about the extreme heat and pounding headache. I ran up a tab that day, and added to it yesterday. She kindly reminded me that it’s ok to crash around in a foul mood for a little while, but then get over it and get on with it, and she sent me a picture of her policy, in writing, that hangs in her kitchen.

Point taken.

Today is going to be a good day. It will, it will, it will.

It’s gloomy outside with thunder threatening, but the birds are still singing and congregating around Macy’s feeder in one of the trees in our front yard. It’s spring break in these parts, so my offspring are fanning out in search of entertainment and a respite from the rigors of 3rd and 6th grades. Macy, the little zookeeper, is going to day camp at the Lone Star Pet Lodge, which Trevor refers to as the Last Resort Pet Resort in a funny malapropism.

Macy will be tending to the animals whose owners checked them into the resort while they’re off on spring break adventures. We’re not sure exactly what her duties will be, but it sounds like an ingenious plan on the kennel owners’ part to both extort child labor and turn a profit. We pay them for our kid to do their work. How crazy is that? Crazier still is that I wouldn’t be a bit surprised if Macy came home a part-owner of that place. She was definitely in her element when we walked in; we were greeted by a miniature Yorkie at the reception desk, and for the first time ever, Macy didn’t hesitate when walking into a camp. She didn’t hesitate, and she didn’t look back to tell me good-bye. Yep, she’s in her element.

Payton’s spring break adventure is of the roadtrip variety. My firstborn has a taste for the great outdoors and a longing to see some of our fine national parks. Sadly, he missed the great cosmic birth-order assignment that might have landed him in a camping and hunting type family, and ended up with a less-rustic and more beach-oriented family. Lucky for him, there’s Ed, our nature-loving BFF. He’s a fan of the roadtrip and is well-versed in all things national park, so he and Payton hatched a plan to drive to Carlsbad Caverns in the neighboring state of New Mexico. Payton and Ed will be on the road all day today en route to their base camp in Van Horn, TX, which is about 10 hours from here but close enough to Carlsbad to visit the caves. Payton is looking forward to the “guy’s trip,” seeing the sites and splendor of West Texas, exploring Carlsbad’s 117 caves, and consuming more junk food than his mama allows. With him gone, I don’t know what I’ll do without my daily infusion of Sports Center, but I’ll try to muddle through. My prediction: since Macy has exclusive rights to the TV, there will be a Wizards of Waverly Place marathon going on when she’s not at camp.

It’s definitely going to be a good day.


Uplift

I received a wonderful book from a total stranger after my mastectomy called Uplift by Barbara Delinsky. Wow, how many different ideas can one girl cram into a single sentence? There’s 7 right there.

The book is a compilation of survivor stories from members of the pink ribbon club around the country. Delinksy, a BC survivor herself, wrote the book she wished she’d had while dealing with her mom’s death from BC and her own BC battle.

Her mom was diagnosed with BC in the late 1940s, when a diagnosis was the same as a death sentence. Barbara was 6 years old when her mom was diagnosed, and 8 when her mom died of this wretched disease. I was 36 when my mom died, and it was by far the worst thing that’s ever happened, the hardest thing I’ve ever endured. Fighting cancer is a piece of cake compared to missing my mom. That said, I can’t even imagine how devastating that loss would be to a young child. While I miss my mom every day and get royally ticked at the fact that she and my kids are both missing out on each other’s company, I’m grateful to have had her for 36 years instead of just 8.

The BC battle has changed significantly since Delinksy’s mother was diagnosed and perished. She says that although she was 8 when her mom died, she was in her teens before she learned that her mom had breast cancer, and it was years before her dad could say cancer, and even longer before he could say breast.

One of the women featured in Uplift, Elinor Farber, lost her mom to BC, too, and said when her mom was diagnosed 45 years ago, there were no mammograms, and mastectomies were just short of a butchering. Farber reports that her mom lived more than 30 years after her surgery, but never once spoke of her condition. “Mom endured everything without the support of friends and neighbors, who were not told. My sister and I were both told of my mom’s condition in hushed tones, and we were sworn to secrecy.”

We’ve come a long way.

I for one know with absolute certainty that this “cancer journey” would be hell without the support of friends & neighbors. I said it all summer and I’ll say it again: It truly does take a village, and I’ve got the best village around.

The 5th anniversary edition of Uplift, which is the one I received, features a foreward by Delinsky and some follow-up information on some of the survivors whose stories were featured in previous editions of the book.

Uplift is said to contain all the helpful advice that only the women who have already been there can give, and it’s true. The book is divided into chapters according to category, like radiation, so it’s easy to pick & choose, read a little on exactly what you’re looking for and skip what doesn’t apply to you. I especially liked that last part. I’m always in a hurry and have a lot to do every day, so I don’t want to waste time flipping through a book to find the information I’m looking for. I didn’t need to read the chapter on dealing with cancer and the workplace, for instance. My workplace is in my home, and there was no “boss” to tell the terrible news when I was diagnosed, because that boss is me. There were no co-workers to talk to and sucker into taking over my job while I was out on medical leave because, well, I run a one-woman shop here. No co-workers. And no suckering either because I have the kinds of friends who just show up to take over my “job.” These kick-ass friends stepped in and vacuumed my house, walked my dogs, brought food (delicious food), hauled my kids to school & activities, folded my laundry, dropped off & picked up prescriptions, and drove me to & from the doctor’s office. Sometimes margaritas and champagne were involved, but that was purely medicinal, of course.

Uplift shows the world how real women who’ve been diagnosed with breast cancer have faced their fears, survived their illness, and bravely gotten on with life and love, career and family. And because she’s filthy rich from all her best-sellers, she’s able to donate all of the proceeds of this wonderful book to BC research. So if you know a woman who’s been diagnosed, go buy her this book. If she already has it, buy it anyway for her to give to her doctor, to put in the waiting room.

I received my copy in the mail from one of Trevor’s dad’s colleagues, a woman I’ve never met but who was kind enough to think of me and pass along this super-useful book. I’ve since bought it for my friend who’s going through the “cancer journey” and passed the link on to a new friend, Paul, whose wife has just been diagnosed.

Paul writes a blog about Bonnie’s “cancer journey” and has mentioned Uplift in his blog a couple of times. He recently posted this about Delinsky. Seems he emailed her to tell her how much he and Bonnie are enjoying the book, and he was tickled when she emailed him back with a very nice note. Go read his blog; it’s good. Plenty of BC blogs written by the women in the trenches (me! me!), but I haven’t seen any written by the men who walk that “journey” alongside these women. I love that Paul writes so openly and eloquently about Bonnie’s “journey” while still seeming so calm and steady. No rants from his blog; ya gotta come back here for that. He pens some original poetry (short and topical), and writes often about wine. Two of my favorite subjects, poetry and wine.

Delinsky  must be pretty busy with her correspondence, because she responded to me, too. In the back of the book, she asks for survivor stories, and once I was able to haul my carcass to the computer after all the mess I was involved in this summer, I emailed her a few tidbits from my “cancer journey.” Then I promptly forgot all about it.

Imagine my surprise when I got this in the mail shortly after submitting my little stories:

A signed letter from Barbara Delinsky herself. Wow!

How cool is that?

I don’t remember exactly what I wrote to her, since I was probably in a vicodin-induced fog at that point, so I scrounged around on the ol’ hard drive to see if I could find the original document. I found it, but rather than bore y’all with it right now, I’m going to save it for the next edition of Uplift. When my name and story appears in print, I’ll let ya know.

Ok, that’s kind of mean, and I for one hate surprises and having to wait to get to the good stuff, so I’ll give you a sneak peek. Some of you may remember this story from my Caring Bridge page. I guarantee it will make you laugh. If it doesn’t, there is something seriously wrong with you.

For the “What was…what did…what is…?” category for which Delinsky solicited stories, I offered this:

The funniest thing that happened to me during all this was a conversation with my 8-year-old daughter, Macy, 2 weeks after my bilateral mastectomy. We were walking to my son’s baseball game and, while she knew I’d had surgery for breast cancer, I don’t think she ever connected breast cancer and mastectomy with losing my breasts. As we were walking she asked if something happened to my chi-chi’s. I said, “Yes, they cut them off. That’s what the surgery was for.” She said, “Well, are they going to fix them? Because they’re not looking so good!” I laughed about that for a week.

That was at the end of May, and I’m still laughing about it.



Away we go…

Of course I’m up early on my big surgery day…you didn’t think I would actually sleep until the alarm went off, throw on some clothes and jump in the car when I could post one last time, did you?

It’s 4:15 a.m. and we’re set to leave the house for the med center at 5:30 for my 6 a.m. arrival. I sure hope that when we pull up, Dr S and Dr Spiegel aren’t fighting it out about who gets to do which part of the surgery and who’s in charge of follow-up care. Of course they wouldn’t be, and I’m 100 percent sure that every aspect of this procedure has been planned, checked, and double-checked to ensure excellence will result.

The last few days have been a whirlwind, with last-minute preparations and socializing. Yesterday afternoon and evening, my phones both rang off the hook, with calls and texts full of good wishes and genuine love. Several people have asked if I can feel the love, and the answer is YES! And THANK YOU! A huge part of why I am going into this big ol’ surgery with such peace is knowing that my posse has got my back. I appreciate each and every one of you. If you happen to come to the hospital for a visit and see me wretching uncontrollably, don’t worry: I didn’t have too much champagne or margartitas. Coming out of the anesthesia tends to make me barfy. Don’t panic. It’ll pass. Last time around I puked in front of lots of visitors; the kids in the room thought it was neat.

Yesterday was another perfect day: my last tennis drill with my team was spectacular. Mid-seventies and sunny with just enough warmth to get a sweat going, and birds singing like crazy because it feels like springtime. I made some good shots and thoroughly enjoyed my teammates’ company. Love those girls.

Loved them extra hard after this: 

Surprise champagne in the back of Julie’s SUV after drill. We tailgated in high style. It was such a fun treat, and I adore you girls for having such a brilliant idea and for sending me off in the most perfect way. I will be counting down the days until I can get back on the court with you.  Meanwhile, Go Alley Cats! Beat Westheimer Indoors today. Hit it where they ain’t!

The rest of the day yesterday was fantastic. Busy, but fantastic. My dad arrived, and  he took Macy to the pet store to buy the daily allotment of crickets for Cincko. That little gecko is on a major growing tear and has been eating at least 12 crickets every day. My dad will be interrim assistant zookeeper while I’m out of commission, so Macy broke him in with on-the-job training right away.
We had our belated birthday dinner for Dad, after a bottle of Vueve Cliquot (yes, I know I had champagne twice yesterday; at the tennis courts and at dinner. Why do you think it was such a great day??). Our Tuesday night tradition of watching “The Biggest Loser” was fun, as always, and there’s something especially satisfying about watching that show after a most delicious dinner.

It was all going swimmingly until Macy‘s bedtime, when I went to tuck  her in and she started crying. The big, rolling tears that linger and pool in the eye before breaking free and trailing down her face. Her ginormous eyelashes were soaked and matted, and the look of utter desolation on her face made my heart crack right in two. She was trying to be brave, but that well of genuine emotion that makes her the astoundingly compassionate little girl she is came gushing out when it was time for her to tell me good-bye. She was trying to be brave, but struggling. We talked for a long time about how mommies always come back, and even when they’re away for a while, they carry their kiddos in their hearts. I told her about my favorite e.e. cummings poem, i carry your heart with me, and how the words can certainly apply to anyone you love, whether a pet or a friend or the most amazing little girl ever. We talked about how she wouldn’t get to talk to me today, but tomorrow I expected a phone call as soon as she got home from school, so she can tell me all about her day. She cheered up a little bit when I told her that I need her to be in charge around here, and help my dad find the jelly in the door of the refrigerator, stay on schedule when driving the carpool, etc. She is on the job. She sent me off with Baby Snoopy, one of her most prized stuffed animals, to take along with me for company. She’s thoughtful like that.

Payton was busy, busy ignoring a math project that’s due Thursday, so he didn’t have much to say in the way of good-bye. Not surprisingly, as he is a man of few words. He too has instructions to call me Thursday with a full report on his first Little League game of the season. I need to see how long it takes him to “lose” his Yankees hat and replace it with a Red Sox version. It’s hard enough on him to have his mom in the hospital, but to have to don the dreaded Yankees uniform too? Poor guy.

I’ll leave you with the “before” photos. Don’t worry, I won’t publish the “after” photos —  you may just have to see them in person.

This is one of my favorite tennis tops. I have it in at least 3 colors, maybe more. Wear it all the time, hence the funky tan lines. Every time I wear it, I notice how seriously flat my chest is. Maybe because of the “V” neck of the shirt, I don’t know. I’ve had this uber-flat chest since May 13 and am quite used to it. In fact, if not for the mess left by the post-mastectomy infection, I could have envisioned not doing reconstruction at all, or waiting a lot longer. But, the mess must be cleaned up, so away we go. And yes, my chest really is that flat in person…until tomorrow!


Leavin’ on a jet plane

I’m not really leaving on a plane and my bag isn’t packed yet, but as I ready myself, my home, my kids, & my life for the next round of surgery, I find the lyrics to that song running through my head. Peter, Paul & Mary; Janis Joplin; and John Denver all recorded versions of this sappy little love song, with its catchy yet insidious chorus that will get stuck in your head for half the day if you’re not careful. It’s meant to be an ode for lovers, and I’m usually immune to sappy stuff and odes, but with the big surgery rapidly approaching, I must be going soft because this goofy tune is reminding me how hard it is to leave my family, endure a nasty procedure, and be cooped up in a hospital room. I am a terrible patient. No truer words have been written.

I have written a lot about what a terrible patient I am. Not that I won’t do what needs to be done to get to where I need to be in this “cancer journey” but that I hate every minute of it. I’ve also written my fair amount of scathing posts lately about stupid things people say, so I won’t go there now, but suffice to say if you were planning on telling me that at least I’ll be getting some rest, or to enjoy being waited on, you can skip it. I don’t like to rest and I really don’t like having someone wait on me. As a determined two-year-old might say, “Me do it.”

As terrible as I am as a patient, though, I’m ready. I’m at the point in which I’ve prepared all I can, and whatever doesn’t get done will just have to wait. I’ve been a busy little bee lately, feathering my nest and gearing up for what I know will be a hideously gross surgery followed by a long recovery. This process is akin to getting ready for vacation: at first the list of things to do seems miles long, then time ticks on and the list is whittled, and then you become exhausted from and sick to death of all the prep and can’t wait to just get going. While I’m not exactly going on vacation (!), I am done with all the prep and ready to just get going.

I still haven’t watched the video consultation that explains and illustrates the surgery I’m having tomorrow. Maybe I’ll just use my imagination. You know it’s a big deal with you get 12 pages of pre-op instructions, followed by a 3-page alphabetized list of medicines to avoid.

One of my instructions is to shower with Hibiclens, an antimicrobial wash, for 3 days prior to surgery. No problem. You know what a germaphobe I am. Some of the other text from the informed consent section of the paperwork made me laugh out loud, especially the parts about who’s not really a good candidate for this surgery: women who require more complex breast reconstruction (what’s more complex than this surgery??). Women who are good candidates are those who have inadequate chest wall tissue (me); those who have concerns about breast implants or tissue expanders (I wasn’t too concerned but my body apparently is); and those who may have contracted a post-surgical infection. Yep, that’s me.

The literature then goes on to explain that infection is very unusual after surgery. Yeah, maybe for some people. And that patients must inform the doctor if she has any other infections, “such as ingrown toenail, insect bite or urinary infection.” A bug bite? Really??Oh, mercy, if only it were that simple. How I would love to say I have an ingrown toenail instead of a mycobacterium fortuitum.

There’s also a lot of scolding in the section on bleeding: “Increased activity too soon after surgery can lead to increased change of bleeding and additional surgery. It is important to follow all postoperative instructions and limit exercise and strenuous activity for the instructed time.” Yeah, yeah. Blah, blah, blah.

Yesterday was a near-perfect day: I had a few hours at home to get things in order, then on to Beauty Envy to get the hot new shellac manicure. It’s supposed to last a couple or three weeks without chipping; we shall see. I’m not going to be doing any manual labor anytime soon, so the prognosis is good. Got my toes done, too, which is always nice. Even though my toenails are short as can be, they still take a mighty beating from tennis, but they are pink and shiny now. After the nails extravaganza, it was off to lunch to enjoy the sunshine and margaritas in the company of some first-rate girlfriends–a trifecta for sure. You can have your acai berries and super elixirs; for me, there’s nothing more fortifying than the sun on my face and a drink in my hand with my friends.

Today will be equally good with my last tennis drill of the season, then lunch with whichever members of the team are game for a little noontime tippling. I also gotta make a quick belated birthday meal for my dad, who recently turned 75 but looks a decade younger, easily (I’m hoping it’s genetic, but not very optimistic). I’m whipping up pastichio (Greek lasagna) and a pineapple upside-down cake, two of his favorites. He’ll be ferrying the kids to and fro and keeping up with Macy’s near-constant stream of chatter, so he’ll need a good meal. 

Speaking of Macy, she’s at it again: leaving me a note to find when I least expect it but am most likely to need a little pick-me-up. She’s a little apprehensive about me going back for more surgery, but the long summer of me and revolving hospital door must have toughened her up because instead of being sad she’s curious (which hospital? how long will you be there? can we come visit?) and stoic.

She needs a little work on the spelling (I assume that “Your asomest chid” means “Your awesome-est child”) and “Hopefuley” she will keep writing without regard for menial details like spelling. Most important is the message: if Macy says this is my last surgery, then I can go into it with a clear mind and a happy heart.


Pedey, aka Weasel Dog

It’s been brought to my attention that I have written about Harry and Cinco the leopard gecko, but not Pedey, the other canine member of our household. Well, excuuuuuuse me.

Pedey, oh Pedey. I don’t even know where to start.

He’s a cutie, for sure. We weren’t planning on getting a puppy, not really. Not that day, anyway. IMHO, any day is a good day to bring home a new puppy, but not everyone subscribes to that point of view, so you gotta tread lightly.

Flashback to May 3, 2008. It was Payton’s 9th birthday. I went to Petsmart to pick up something for Harry and the Houston Humane Society was there with the mobile adoptions. I figured I’d scritch a few pups, get a dose of puppy breath, tickle a few fat bellies, and move on. Then I saw this: 

Oh. My. Gosh. I was smitten. That face! Those floppy ears! The speckled feet! The fat belly! The little white blaze down his nose! 

Did I mention that it was Payton’s actual birthday? 

And that I now really, really, really wanted a puppy?

And that I really, really, really wanted this puppy?

Long story short, Payton fell in love with Pedey (his mama taught him well), and we had to have him. Trevor, being the good sport that he always is, gave in, even though we already had one dog too many for him. Payton and I reasoned that Harry needed a dog, and since it was almost summer, the kids could help take care of this puppy.

Welcome to the family, little guy.

I think you’re going to like it here. We have a mentor for you named Harry. He’ll show you the ropes. He makes the mean face sometimes, especially when he has a chewie, but just ignore him.

We’ve got a best friend lined up already (Snoopy), a pool should you become a water dog, lots of toys & treats, and unlimited belly rubs.

It took us a while to come up with the right name for the new guy.

Since he was officially Payton’s dog, Payton got to have the final say. And he decided on Pedey, after his favorite Red Sox player, Dustin Pedroia. The dog is nothing like his namesake: he’s cowardly, lazy, and clumsy with a ball. But the name stuck.

He settled right into our life and weaseled his way into my heart. Let me state for the record that I’ve never had a small dog, and I’ll admit, I’ve never quite understood the appeal. Now before you carry-dog lovers out there go ballistic and send me death threats, let me be clear: I don’t dislike carry dogs or their owners. I’ve just never understood the benefits. 

Now I get it.

He was of course the cutest puppy ever. (I can say that because Maddy, the best dog in the universe, has gone on to her Great Reward, and because we adopted Harry at age 2 and never knew him as a puppy.)

He likes to snuggle more than rough-house. He would rather sleep than do just about anything else (preferably in my lap). 

We call him The King of Comfort, because he always manages to find the most comfy spot available. 

If he’s not fast asleep in a prime spot, he’s camped out under my desk chair. 

Sometimes his legs or tail peek out from underneath the chair, and sometimes he’s completely hidden and I forget he’s there until I scooch the chair back and accidentally scare him half to death.

Sometimes he gets in the chair, right behind me. When he was tiny, it worked out just fine. But now he’s a little too big for that, but he still tries it sometimes. 

He still manages to fit. Mostly.

He likes to make a nest when he finds a comfy spot for sleeping. He will either wedge himself tight in between pillows & cushions, or get himself wrapped up in blankets & comforters. He will also stay in bed until he’s good and ready to get up, instead of leaping up the instant my feet hit the floor, like Harry does.

We don’t know what kind of dog he is, besides lazy & shiftless. Beagle, maybe? He has short, coarse hair; very different from the labs’ hair I’m used to. He has a very wrinkly brow and often looks quite contemplative. It’s mostly for show, though, because he sure doesn’t seem very smart. 

He’s not all that well-trained, either, because he was so cute we were always holding him instead of schooling him to sit and stay. 

He never did learn to love to swim, like the other dogs do. He doesn’t really even like for his feet to get wet, hence the need to be in my lap as often as possible.

Dana Jennings, a wonderful writer for the New York Times said, “Good dogs – and most dogs are good dogs – are canine candles that briefly blaze and shine, illuminating our lives.” I’ve had 4 dogs in my adult life: Maddy, the best dog ever in the history of all dogs. So good, I still get teary when I think of her, several years after her death (and y’all know I’m not much of a crier). So good that the urn of her ashes is on a side table in my bedroom, her name engraved in a simple, beautiful script, the urn way too small to contain all the love and memories she provided. Then there was Lucy, who we got to keep Maddy company. Her canine candle was pretty dim, and there is no urn for her. Then came Harry, and now Pedey. A short but very full doggie history.

Pedey was so happy this past summer, when I was convalescing from surgery and multiple hospitalizations. I don’t usually lay around much, but I had to then. And he loved it. He was always right by my side or in my lap, sleeping away. We joked that we should have snuck him into the hospital, so he could have slept on my bed with me there.

Well, Pedey, rest up; in a few days, I’ll have some more down-time. Are you ready?


Can somebody please shut off my brain?

For the last several nights I’ve been waking up in the middle of the night with questions to ask Dr Spiegel today about my upcoming reconstruction. I like how “upcoming reconstruction” sounds so formal and important, and perhaps a teeny bit ostentatious. As opposed to the reality of a terrifying, bloody mess. But I didn’t have it together enough to put a pad & pen by the bed to actually write the questions down, and now I can’t think of them (anyone have any suggestions? Lemme know. I know there’s stuff I’m supposed to be asking her about but can’t for the life of me find that stuff).

My brain must be working overtime, especially at night, when it should be resting and refueling so it’s ready to assist me with my two most basic tasks: impressing Payton with my trivia knowledge while we watch “Cash Cab,” and helping me answer questions from Macy like, “If a banana is a fruit, where are its seeds?”

I hate those kinds of questions. I really should know the answer. It’s there somewhere, deep in the recesses of my brain, but it’s buried by all this cancer ca-ca. If my brain were being depicted by a pie chart, there would be normal-sized pieces of pie for the kids, the home front, our schedules, tennis, world peace, and such. Then there would be a gigantic piece for cancer ca-ca. 

I hate that the cancer ca-ca takes up such a big piece of the pie. I like pie. But I don’t like this pie.  If only the pie chart were about pie, instead of all that other stuff. That would be a really good pie chart.

My Uncle Wilford (my mom’s older brother) used to say he liked two kinds of pie: hot and cold. Me too. And I hope Uncle Wilford is having a piece of both right now, at a beautifully set table on a puffy white cloud with his two sisters, my mom and Aunt Margie, sitting beside him. All the pie they can eat. And no pizza. Uncle Wilford said he didn’t like pizza because he was older than it. Funny guy. Miss him.

But back to the cancer ca-ca. It fills my brain stealthily, easily, and constantly. I’m usually pretty organized, but it infiltrates. I tend to keep a good handle on the various comings & goings of the members of this family, and rarely do I drop any of the balls I juggle on any given day. Not bragging, just saying. I’m usually up to whatever this life of mine throws at me.  But I’ve been dropping balls lately, and I don’t like it.

Macy was invited to a birthday party recently, and I forgot to add it to the calendar, and she missed the party. Oops. Then I looked right at the calendar to assess the day’s tasks but still forgot to take Payton to his weekly hitting lesson. Drat. Then there was the test I forgot to make sure Macy studied for, and she got a bad grade. She typically doesn’t get bad grades, so it was upsetting for her. Her teacher sent home the study sheet for the re-take, which Macy dutifully put on the fridge with a magnet. I saw it there but it never even registered in my brain, so we didn’t work on it. At all. And then, the re-take was upon us. Macy remembered as we were walking out the door to go to school. Damn, damn, damn. I dropped another ball. I was tempted to advise her to just tell her teacher it’s my fault, and that I’m too busy with all this cancer ca-ca. But I didn’t. I hung my head for a minute, cursed myself out under my breath, kicked a stray tennis ball on the garage floor, then reminded myself that it’s one test in the 3rd grade. Well, technically two tests, since she failed the first one and had to re-take it, but again, let’s stay on point here and recognize that it’s no big deal. I wrote her teacher and note and fessed up, told her it was my fault and that she & I both know that if it were solely up to Macy, she would have aced that test. Her teacher wrote back and said pfffft, don’t even worry about it; as you can tell from the attached progress report, one test isn’t going to bog her down. She will survive, and so will I.

Thank you, Mrs. Motal.

From the time I wrapped my head around this wretched diagnosis, I’ve been determined to do all that I can to ensure that cancer doesn’t become me, doesn’t define me, doesn’t defeat me. Cancer may win a skirmish here and there and may make me feel really crummy; it may open the door for a nasty infection that brought on another epic battle; it may deposit more grey hairs and new wrinkles; and it may cause me to miss a thing or two on the master schedule. Cancer will most certainly cause me some sleepless nights. But cancer will not defeat me.