Breaking news
Posted: April 12, 2011 Filed under: breast cancer, pets, Surgery, tennis | Tags: cancer battle, exercise and breast cancer, family, golden retriever, kids, leopard gecko, post-mastectomy, reconstruction, recovery, riding bikes with kids, survivor, tennis, workout after surgery 6 Comments
We interrupt the “All Napa, All the Time” marathon with breaking news. Imagine the tornado sirens going off right now (or maybe that’s just in my head). If you’re looking for news of Day 2 of our recent Napa adventure, you’re gonna have to wait.
Yesterday I did something I haven’t been able to do since The Big Dig. I’m very excited about it. It’s been 5 weeks since the excavation that gutted me like a fish in an effort to restore my post-mastectomy sunken chest. 5 long weeks. There are lots of things I’ve been unable to do, and y’all know I’m a very impatient patient. I tend to rush things and push the envelope, and sometimes that results in a set-back, or at the very least, a lot of frustration for my handlers. I’ve been trying, really trying, to be patient, to not rush things, and to avoid any potential set-backs. I’m not much of a people-pleaser by nature, but I do try to keep my handlers happy. They make a lot of noise when they’re unhappy with me.
I rode my bike.
Yes, that’s the breaking news.
Hope you were sitting down, because it’s really big news.
See, I’m one of those weirdos who loves to exercise. I’m restless and have a strong “productivity” drive. Like how some dogs have a high food drive, or our crazy dog Harry has a high “must have something to carry in my mouth” drive, I have a high
“productivity” drive. I also like to eat. And drink. But don’t like when my clothes don’t fit, a wonky equation to say the least. Some people don’t care much about food, and I don’t understand them. I’m usually planning my next meal as I’m eating the current one. Different strokes, people.
I’ve mentioned before in this space that I’m not good at lying around, being lazy, and doing that thing called relaxing. What is this practice of which people speak? Apparently I missed the memo, because I’m no good at it.
All this to say that being grounded for the last 5 weeks has been hard for me. I’ve really missed my daily exercise. Whether it’s tennis, the gym, or riding my bike, I miss it. And yesterday, I rode my bike.
Glory be!
Macy and I have a routine of riding to the pet store every day after school to buy crickets for Cincko, her leopard gecko. He’s got a big appetite, and I’m always afraid he’ll start banging on the sides of his tank if he doesn’t get fed. He eyeballs Pedey, our little dog, and puffs himself up as if he’s going to attack that dog the way he pummels the crickets who are dropped into his tank. Thus, the need to procure crickets is a big one, and I haven’t been able to ride with her since my surgery.
Yesterday after dinner, she wanted to go for a ride. Not to the pet store, but just around the neighborhood. After proving to myself and my handlers that I could keep up in Napa last weekend, I felt good about giving it a try. I told Macy I’d do a lap down the driveway and see how it felt. A test run, of sorts. If it didn’t feel good, I’d concede. She reminded me not to push it, that we could wait until I was more healed. That child knows her mama well.
The test run down the driveway felt fine. Felt better than fine: it felt awesome. Other than a little tightness across my abdominal incision, it felt like old times. It’s true that you never forget how to ride a bike, and my muscles remembered how to fire their pistons to propel me forward. I wanted to get down on my knees right there in the driveway to thank the great gods of healing for bestowing their kindness upon my beleagured and battered body. But that would have caused Macy to roll her eyes at me and say that I’m embarrassing her, again, so I refrained.
Instead, we made a 2-mile circle around our neighborhood, dodging pedestrians, watching for bumps in the road, and intentionally riding through sprinklers. We enjoyed the drier-than-normal Houston air and rejoiced in the birdsong. We admired the neighbors’ yard work and noticed how lush and green everything is in our part of the world.
It was a very good ride.
Ok, this is the part that my handlers should skip over. Y’all don’t want to read this; I worry about your blood pressure.
As I reflected this morning on yesterday’s ride and conducted my mental inventory of how much my various hotspots hurt, I realized that they didn’t really hurt. Not any more than usual. Maybe I really am healing after all. Finally!
Satisfied, I ran through my workout options for today: I could ride my bike again, I could take Harry for a long walk, I could go to the gym for cardio or for strength training. Then I realized that it’s Tuesday. It’s tennis drill day. I haven’t drilled with my team in 5 weeks. I could go to drill! Yes, I could go to drill. I may have to dust off my racquet, but I could go to drill.
Ok, handlers, you can start reading again.
Then I realized that I’d better settle down. I’d better take it easy. I’d better ease into it and not go head-long, full-speed into resuming my normal life.
Maybe next Tuesday.
$82,996.75 later…
Posted: March 18, 2011 Filed under: breast cancer, Surgery | Tags: anesthesia, breast cancer, cancer battle, cancer diagnosis, hospital, ICU, morphine, pathology, plastic surgery, reconstruction 11 CommentsAccording to the latest hospital bill, that’s how much my reconstruction cost. Well, at least phase 1 of reconstruction. More phases to come, but let’s not even think about that now; I would hate to stroke out this close to happy hour on the last Friday of spring break.
Here’s the breakdown, in case you’re curious; please note the absence of any fees for the surgeons. I can’t even begin to imagine how massive those costs are, so let’s say for now that the Drs S did an amazing job and I couldn’t put a price on their services if I tried.
ICU Surgical: $9,312.00
Radiology (don’t recall any of that; must have been asleep): $359.00
Medical Surgical Supplies (nice & vague, huh?): $18,117.00
Laboratory: $12,785.00
Pharmacy: $4,306.50
OR Services: $22,550.50
Anesthesia: $9,220.25
Intermediate Care: $2,586.00
Respiratory Services: $147.50
Pathology Lab: $3,607.00
And finally, the most puzzling charge of all:
Patient Convenience: $5.50
WTH?? If anyone knows what “patient convenience” is, and why it costs $5.50, please do tell. I can assure you there were precious few things about that procedure that were actually convenient.
I would have expected my pharmacy fee to be much higher. Maybe as a repeat customer, I get a discount on morphine.
1 week ago today…
Posted: March 9, 2011 Filed under: breast cancer, drugs, food, infection, Surgery | Tags: breast cancer, cancer battle, DIEP, hospital, Houston, ICU, infection, margaritas, mastectomy, Methodist Hospital, microsurgery, morphine, new boobs, plastic surgery, reconstruction, recovery, surgery, Texas, Texas Medical Center, Vera Bradley 11 CommentsI was out cold in the OR, having unspeakably nasty things done to my body to restore the damage wreaked by the post-mastectomy infection. Whew!
The first couple of days of week 1 are pretty hazy, thanks to my BFF morphine. Love that stuff. But my BFF knows its proper place, and we have short but infrequent get-togethers. This time around, my BFF gave me a terrible headache, which was quite rude, so I bid adieu to the pain pump as fast as I could.
Let’s start from the beginning. Or as much of it as I can remember. Readers, feel free to chime in when you notice I’ve left something out. We got to the Medical Center on time (6 a.m.) and I got right into my pre-surgery room. My beautiful gown and compression stockings were waiting for me, but I waited until the very last minute to don them. After some precursory steps, like accessing my port for the administration of the really gooood drugs, a gaggle of white coats entered the room.
Dr Spiegel led the way, with her PA Jenn next, followed by their resident, Dr McNight, then my favorite plastic surgeon. He was the only guy in the room. Yahoo, girl power! He had a cool wooden box in his hand and when I asked if it was a present for me he gave me one of his looks. Someday he’ll appreciate my humor. Inside the box was not a present, but his loupes, which sadly he didn’t offer to model. I’d love to see him in a pair of goofy glasses.
Dr Spiegel and Jenn started marking my belly and I’m so mad I didn’t think to take a photo because it was cool. They used a blue sharpie for arteries, a red sharpie for blood vessels, and a black sharpie for incision lines. Lots of arrows and lines later, there was a roadmap of sorts. Very cool. At one point, Dr Spiegel wasn’t happy with an incision mark so she had Dr McNight scrub it off my belly with alcohol and re-do it with the black marker.
After that it was time to head to the OR, and they must have given me a cocktail in the pre-surgery room, because I don’t recall anything after the sharpie party. When I woke up, some 8 hours later, I felt pretty good…but it was because I was wrapped in the loving embrace of some big-time anesthesia. Dr Ashmore, my hand-picked anesthesiologist, did a fantastic job of putting me to sleep, and more importantly, waking me back up. It was good and restful.
I’m not too sure about whether I was in a recovery room or went straight to the ICU, but once I got to ICU I recall that it was HOT. And I’m a Texas girl, so I know about some heat. The docs had warned me that the room would be warm, to help my newly transplanted blood vessels learn to regulate themselves in their new northern home. But wow, was it hot. Between the high temp, the two heaters, and the squeezing of the compression hose, I was roasting. I tried to be nice about it, and I think I only lost it once, when I begged one of the ICU nurses, probably Carol, to please please please just crack the door and let some AC in. Just for a second. She declined my request.
I spent the night in ICU, but thankfully the flaps, aka former belly skin & fat that were magically transformed into breasts, behaved and there was no drama (other than me begging Carol to crack the door, turn down one heater, turn up the thermostat or bring me a gallon-sized frozen margarita). The flaps had to be checked every hour, yes every hour, with a hand-held doppler. There were (until yesterday) some wires stitched on top of my chest that somehow transmitted audible sound of the blood rushing through my newly transplanted blood vessels through the doppler. It sounded a lot like a fetal heart monitor. And we heard it a lot. My flaps were cooperative, and the nurses were able to hear the blood rushing almost instantly after putting the doppler onto my chest. One nurse told me that sometimes it took 20 minutes to find the sound. I started to panic after a few seconds of not hearing it, so can’t imagine the size margarita I would need if it took 20 minutes to register.
The ICU room had a wall of windows with mini blinds, and the nurse was right outside the door at a desk looking into my room if not attending to her one other patient. Some people might think that would make you feel very safe and catered to, but it made it hard to sneak anything by her because she was always watching. If she wasn’t watching, somebody else was walking by. It was a constant parade of doctors, residents, nurses, PCAs and other people peeping into my room.
I got released from ICU after some really delicious jello and a contraband peanut butter
& jelly sandwich (liquid diet…pffft) into a regular room on the 8th floor of Dunn Tower. Lovely view out the window of the heart of the Texas Medical Center, and more importantly, no heaters. It wasn’t exactly chilly in the new room, but so much better than the ICU room. Nevertheless, I did beg to have the tight, scratchy, hot compression stockings removed. Those nurses were not swayed by my shameless begging.
Apparently the docs were pretty pleased with their handiwork, and if you missed Trevor’s and Amy’s guest blogs while I was too loopy to post, go back and take a peek. Long story short, the flaps were cooperating, the morphine headache abated, some regular food arrived, and life rolled on. At some point they moved the flap checks to every two hours instead of hourly, which was mighty nice. It’s amazing how your perspective changes in a situation like that. After umpteen hours with no food, a simple PB&J was a delicacy. After being awake most of the night, a short cat-nap seemed a decadent luxury.
I’m sure I said some goofy stuff and probably offended someone at some point with my off-color humor. Apparently I channeled my mom, too, telling my friend Laura who works at Methodist and who visited me several times a day, “Thanks for dropping by.” Every time she came by. I was just being mannerly and didn’t realize I’d seen her a few hours previous.
There are conflicting reports on how the turf war between the Drs S played out. All parties are being quite cagey on the details of who did what part of the surgery, and like a good murder mystery, we may never know who real killer was. I have my suspicion, but even asking point-blank hasn’t garnered an answer, so we may have to label that information “permanently classified.”
I did get to skate out of the hospital a few days ahead of schedule, and even though I received impeccable care, I couldn’t wait to get out of there. Coming home is always sweet, but never as sweet as when I’m leaving a hospital room.
I have more mobility than I did after the mastectomy, but not as much as I’d like. The first few times I had to get up without using my arms but relying on my legs and abs, the hip-to-hip incision on my tummy protested mightily. But it got better every time, and now I do it almost without thinking about it. Almost. I still can’t walk completely upright because the incision is still very tight, but I’m not quite the Quasimodo I was in the hospital. I get a bit straighter every day.
I came home with 6 JP drains this time, and had to upgrade my VB sling bag to a bigger
VB bag that could accommodate the drain party. I knew from last time around that 4 drains fit nicely, with a little extra room for my Blistex, some folding money, and a teeny ziplock bag of pills, should they be necessary. Six drains would have burst my handy little bag right open. Wonder how many drains this lady is toting in her VB bags?
I had my first real shower today, not counting the seated variety the hospital offers. Again, it’s the little things we take for granted. I’m down to just 2 drains and back to my sling bag, thanks to Jenn removing the 4 drains up top yesterday. She gave me a good report; everything looks good and is healing nicely. 
While I feel a whole lot better and am ready to get back to normal, my handlers think one week post-op is a bit premature to jump right back into the day-in, day-out routine. I am trying to take it easy. I’m resigned to the fact that I’m back to one outing a day for a while, and sadly, a doctor’s appointment counts as an outing. Yesterday I had a small entourage escort me to see Jenn, and we had a bite of lunch (sans margaritas) beforehand.
The handlers insisted on snapping a photo of this maiden voyage, and there was some talk of me earning a margarita for every device I had removed at the subsequent appointment. Between the two doppler wires and the 4 JP drains, somebody owes me 6 margaritas. No salt.
Although I complain about going to the med center, there’s always something interesting to see along the way. Getting out of the suburbs is a good thing, and there’s a whole ‘nother way of life in this big city of ours. Last time I was at the med center for some testing, I saw this car and had to take a picture, to show Macy. I knew this car would appeal to her:
She loved the polka dots and said she’d like to have that car, then she saw the back and said forget it. Fickle.
Yesterday on the way home from the med center, I saw this:
and had to snap a picture. Yes, it is a zebra car, complete with a long tail. Gotta love the big city.
Seriously???
Posted: March 7, 2011 Filed under: breast cancer, Surgery | Tags: blog, breast cancer, cancer battle, cancer diagnosis, DIEP, Doogie Howser, hospital, Houston, mammogram, mastectomy, Methodist Hospital, new boobs, oncologist, pain pills, plastic surgery, post-mastectomy, reconstruction, recovery, Texas, well-woman exam 4 CommentsGot this letter in the mail while I was in the hospital for the Big Dig, aka reconstruction. I don’t even know what to say.
And that doesn’t happen very often.
As you lovely readers know, I usually have a lot to say, about a variety of topics, and one of my favorite things about blogging is being able to blab away about whatever tickles my fancy at the moment. Sometimes silly, sometimes ticked off royally, sometimes serious, but rarely speechless.
When I saw yet another envelope from the Methodist Hospital, I didn’t think much about it because I get a lot of mail from that fine place. Between the bilateral mastectomy and the post-mastectomy infection, I’ve spent a lot of time at Methodist, both in Sugar Land and at the Medical Center. Getting mail from Methodist is nothing unusual. (If you click on the Sugar Land link above, you’ll see a pic of several doctors on the Methodist SL home page. The dark-headed one on the far right is my oncologist, Doogie Howser. Yes, he is that young, and yes he is that cute in real life.)
But this letter is definitely unusual.
Now I’m not dogging Methodist. I’ve had most excellent care there on all of my visits, and I don’t for one second take for granted the supreme luxury of having such esteemed medical care right around the corner (Sugar Land) and a short hop down the toll road (Med Center). I know that people come from far and wide to seek care at the places that are easy drives for me. So let’s be clear that I’m not dogging Methodist.
One of my favorite things about Methodist SL is this:
Love that. Hell yes, I should get special parking, right up front, at the breast center. Even though until just a few days ago I had no breasts, I still liked the special treatment that Methodist SL affords its breast care patients. Wish the grocery stores and Target would follow suit.
But back to the letter.
I know, I know it’s a terrible picture. The iPhone camera stinks, but it’s convenient, and let’s remember, people, that I am 5 days post-op here, with 6 JP drains sprouting from my body, and today was my first day without any pain pills, so keep your comments about the shoddy photography to yourself. This is not a photography blog, after all. I probably shouldn’t even be typing yet, but I’m dedicated to bringing severe belly laughs to you, my lovely readers, so you’re welcome. 
Since it’s such a shoddy photograph, let me reiterate the juicy parts: The Methodist Sugar Land Hospital Breast Center’s records indicate that based on my US mammo f/U uni performed on March 22, 2010, it is time to schedule a routine screening mammogram.
Oh, you mean the mammogram last March that set off the chain of events, preceded by my annual well-woman exam, that led to me being diagnosed with breast cancer at age 40? That mammogram?
The letter goes on to tell me that I need to be aware that many breast cancers do not produce symptoms. That “early detection requires a combination of monthly breast self-exams, yearly physical exams, and periodic mammography according to your age and physician’s recommendations.”
And that I should contact Methodist Sugar Land Hospital Breast Center at 1-800-HOW-STUPID-IS-THIS to make an appointment, and they thank me for my cooperation.
Wow.
The irony is stifling.
On one hand, it’s nice that the MSLHBC is so on top of things as to remind its patients that it’s time to come in for the good old smoosh & squeeze. Lots of women need reminders, and the hospital certainly should not be tasked with knowing I don’t happen to be one of those women.
On the other hand, it’s pretty hilarious and utterly ridiculous. And scary, too; don’t forget scary: the idea of anyone touching my newly sculpted chest, much less putting it through the greatest flat iron ever, makes me very, very afraid.
Thank you, Methodist, for the reminder. I will get right on it.
Back in the saddle
Posted: March 6, 2011 Filed under: breast cancer, Surgery | Tags: breast cancer, cancer battle, DIEP, hospital, microsurgery, new boobs, plastic surgery, Quasimodo, recovery, surgery, tennis 7 CommentsWell, sort of. I’m sitting at my computer but feel pretty fuzzy-headed. At this time on a Sunday morning, I would normally be on the tennis court, earning my beers after 3 sets, but there’s a new normal nowadays, and tennis will have to wait.
I figured I’d better get back to blogging before my guest bloggers took over permanently, making me a redundancy. Big thanks to Trevor and Amy for filling in for me while I was unable to think straight or type coherently.
My handlers have established some boundaries for me, which I apparently need. Visiting hours today are 2 to 4 pm, and tomorrow from noon to 1 pm. Bring a brown bag and visit awhile, but don’t get your feelings hurt if you get kicked out. My handlers are determined to make sure I don’t overdo it; I have no idea why they think I need that.
It’s pretty great to be home, and while the nursing care at Methodist was the best I’ve ever had, nothing compares to home sweet home. No one woke me up last night to check the new skin or peek at the incisions or take my temp and blood pressure. I’m pretty mobile but still walk all hunched over. I think Amy compared me to Quasimodo. I’d agree with that characterization, but must note that I don’t have a hump on my back! 
Dr Spiegel said not to push myself to straighten up; the incision on my belly is pretty tight, and if I try to straighten up I run the risk of tearing the incision. I also need to be careful to limit my arm movement and not raise my arms above my head, because the microsurgery requires such tiny stitches that they’re easily ripped.
It sure would be nice to have a non-complicated recovery this time around. Fingers crossed.
Rejuvenated?? Notsomuch!
Posted: March 4, 2011 Filed under: breast cancer, Surgery | Tags: breast cancer, DIEP, IV, Methodist Hospital, morphine, new boobs, post-mastectomy, recovery, Vancomycin 7 Comments“It’s been a LOOOOONNNNNNGGGGGG day!” Those are Nancy’s words but this is Amy typing once again.
Nancy had a crazy morning….. Laura checked in; Dr. Spiegel’s resident, Dr McKnight checked in; Jennifer the PA checked in; then all three of the plastic surgery team (Dr. Spiegel, Jennifer and Dr. McKnight) popped in again. Trevor got here bearing gifts: peanut butter and toast–the only thing that has seemed appetizing and would you believe they don’t have that in the hospital cafeteria? Christie came by, too.
But wait, before she had her IV discontinued and got that “Take a Shower. Take a Hike” show on the road, she still had one last infusion of the IV antibiotic, Vancomycin. That took 2 hours so Nancy was able to sit in the chair and enjoy the smoothie that Christie brought. Mr. Morphine Pump and the rest of his crew are yet again dust in the wind. Nancy is free of anything that follows her on a pole. She does have 6 drains and 2 doppler wires, plus her central line access port, so she’s still got a little gear.
It was nearly 11 before there was serious movement to the shower. Well, all I have good to say about that shower is that Nancy is clean. One word I could use to describe how Nancy tolerated the event was that she was speechless. So, suffice it to say that the stomach pain reached out and grabbed hold of her with a lot of help from her shower assistant. It took a while but she was able to settle down from that episode (thank you, Ativan) and caught her breath. We then enticed her with a hummus sandwich from the cafeteria downstairs. She wolfed that sandwich down and then had a bit of a siesta. Thank Goodness! By that time she had recovered enough to find her voice and exclaim, “That’s not happening again! I’m clean enough!” Nancy had a little more to say about the shower, not so much the shower itself, but the way she felt manhandled by one of the helpers. Let’s just say it was rough going and it took a while for her to recover.
Nancy & I rested for some of the afternoon while Trevor took care of some work on his laptop.
Her infectious disease doctor also showed up and was happy to report that all her lab cultures have so far showed nothing…..but they will keep an eye on them for quite some time since it was such a slow growing bacterium.
So, Nancy has at this point taken 2 hikes and her one and ONLY shower and has had 2 sessions of chair time today. She is moving well, although a bit stiff and hunched over. The name Quasimodo does come to mind. She is sitting in the chair waiting on her dinner that Trevor is going downstairs to fetch. After she eats she will settle in for the night. She has commented that she can’t believe she’s napping so much, but GOOD NIGHT she hasn’t had a good night’s sleep in 3 days! She’ll end her evening with a dispensing of Norco, Ativan, Ambien and Flexeril. Not all at the same time, mind you–a staggered dispensing, but I think she’ll be able to sleep better tonight with this drug regimen and also since her “flap checks” (that’s what the hospital crew calls them) are now every 2 hours.
More updates in the morning.
Oh, the doctors will assess discharge in the morning with Nancy’s input and go from there. I think the thought is that she wants to see how she feels in the morning.
The Morning Report
Posted: March 4, 2011 Filed under: breast cancer, Surgery | Tags: cancer battle, DIEP, hospital, Houston medical center, morphine, new boobs, norco, plastic surgery, post-mastectomy, reconstruction, recovery, Vancomycin 4 CommentsNancy had a restful night–as restful as being woken every hour can be. A shout-out to her nurse, Amira, who was extremely capable and attentive. Nancy did snooze very soundly when she was able. The combination of Norco and more Norco seemed to diminish her headache, although it’s not completely gone. The pain is still there and is being managed by the Norco also. This morning a bit of muscle tightness and tenderness in the stomach area reared its ugly head and has taken the forefront in the battle for attention. While Nancy hasn’t actually called it pain, I think that may be the best word for it, and she did say it was a new sensation that came up today. I bet the other stuff has diminished enough that this now gets to grab her attention. She has bruising around the hip to hip “free tummy tuck” incision and Jennifer, Dr. Spiegel’s PA, says that they did have to work hard with her muscle layer there as well as on her chest wall so this is to be expected. She has been given Flexeril (a muscle relaxer) to help with this and the added benefit is that it makes you VEEEERRRYYY sleepy. So, even though at 5:15 AM, Nancy was confident that she was up for the day and we did the teeth brushing and face washing that comes with a new day, she was within minutes back to sawing logs. Good Girl! She has been dreaming out loud and woke asking me, “Is that due tomorrow?” You can take the Mom out of the home but you can’t take the Home out of the Mom!
The fever is no longer an issue. Nancy did a great job with her breathing exercises and coughing so those nurses must have been right about the phlegm.
Today is a going to be a busy day. It started with a flurry of people in and out at shift change. Dr. Spiegel specifically trains the nursing staff that takes care of her patients so there is only a handful of nurses who are qualified to be Nancy’s caregivers. Her new nurse is Karina. There are promises of getting rid of her IV and a few other constant companions since she’s had the surgery. Once that is done, she will get a shower and be expected to walk the halls at least 3 times today. Nancy is looking forward to that since the compression stockings can be taken off during this time.
Mr. Morphine Pump has become just an extra appendage. Nancy last summoned his prowess on yesterday’s second and final “sitting trial.” She’s planning to shed him when she sheds the other hangers on.
It’s going to be a good day. The staff is quite certain that the shower and ambulation will bring strong feelings of rejuvenation. It has been mentioned twice already that she may be ready to be discharged tomorrow. We’ll see how she feels later today and as Laura mentioned when she popped in for a quick Hi this morning, “Knowing Nancy, it might be better for her to stay until Sunday, just to keep her from doing too much.” Yep, Laura, you are probably right about that!
We’ll keep you posted.
Utter Exhaustion
Posted: March 3, 2011 Filed under: breast cancer, Surgery | Tags: breast cancer, cancer battle, DIEP, hospital, Methodist Hospital, morphine, new boobs, plastic surgery, recovery 12 CommentsHi, It’s Amy again….
Nancy is utterly exhausted. The nurse for the start of our night, Le, said that is the worst part of this particular surgery for Dr. Speigel’s patients. The arterial blood flow HAS to be checked every hour….EVERY hour. Nancy is tired….tired.
Now there is a tiny bit of a fever coming on…..the nurses aren’t too concerned but listened to her chest and said she has some phlegm in her lungs….not that big of a deal but after such a major surgery and after so much inactivity, it could progress to more of a concern. Nancy has been tasked (see Daily Goal #3) with doing cough and deep breath exercises 10x per hour. Now this is important because it keeps her lungs expanded and allows better air flow. So now, instead of resting through the night and just having arterial checks to the new girls, she is also going to have to continue the breathing exercises every hour and not just when she’s awake. She’s a trooper, though, and we worked through the first session after having the “you need to pay attention to this” talk and she was able to meet and then exceed the milliliters of airflow per deep inhalation….probably the last 6 of the ten times, and do her coughs, too. She is working on this and knows it has to be done and is not complaining.
NOW….what she IS complaining about are 2 things. And, mind you, she is not really complaining too much. I’ve only had to charge her the $10 for “having to put up with your complaints fee” twice today. As much as Nancy would like you to think she’s a troublesome patient, she is not, at all. In fact, the staff enjoy her very much. Her easy going nature was complimented today when she had to make the effort to get in the chair to sit for another hour. Le, her nurse commented about how Nancy’s attitude really made her job easier.
Complaint number 1: This particular complaint is what brought on the $10 charge twice today. The ICU room was hot, very hot. In fact there were heaters brought in just for this purpose…two of them. Seems that the stomach tissue that they harvested for her new breasticles doesn’t realize that it has to get it’s heat source from her body instead of the outside air now so for the next few weeks Nancy needs to have a warmer than normal outside air temperature. I think Dr. Spiegel even mentioned not running the AC at her house but Nancy and I decided to let that one go over our heads. The hot temp in the room coupled with Nancy’s hot flashes brought on by her medically induced but necessary menopause do not make a good combination. She actually assessed herself the charge after I mentioned that I charge $10 at my house for being “grouchy, irritable, or just plain mean.” Then she said, “And you can charge me another $10 for this one…..” as she launched into her next complaint about the heat. We got icepacks for her neck and her legs and put cold washcloths on her feet. Plus we got her the med that prevents hot flashes that had been overlooked on her orders…
Complaint number 2: Headache. A bad one. She’s been dealing with this all day. The nurses say she had a pretty major dose of morphine in the ICU so that is a side effect of morphine and it should work itself out as she uses less and less morphine. Because of this, Nancy has decided that Mr. Morphine Pump may not be summoned for his duties at every thought of her becking and calling for him. She’s thinking about it before she presses the button. On one side there’s the headaches. On the other side there’s the pain. It’s a delicate seesaw to manage but she seems to have hit on a solution. Norco. That’s Tylenol laced with Codeine (or is it Codeine laced with Tylenol?). She tried just plain Tylenol, but it didn’t help. But the Norco seems to have hit the spot. Instead of alternating Tylenol and Norco as was originally planned for this night, she will be alternating Norco and more Norco, every 4 hours. Yay Norco!
She is resting comfortably now for the 55 minute catnap between arterial checks and breathing exercises. I just put her sleeping mask on her to aid in not fully waking her for the checks/exercises. She hasn’t called for the Ambien yet but it’s a matter of time.
Besides finding the Norco solution, the next bit of good news is that she managed to move from her bed to the recliner, sat for an hour, then ambulated back to the bed with only 1 morphine pump at the beginning of the whole scenario. The nurses are impressed with how tough our girl is! She really is doing remarkably well. Another upside is that she doesn’t seem to be plagued by the nausea that chased her after her mastectomy and subsequent infection surgery.
Just so everyone knows, Nancy’s phone is with her but on silent and on the bedside table. When she wakes up, we give it to her and she sees your texts, emails and Facebook posts. Trevor & I have been reading the blog and Facebook comments to her and they just make her smile. She is so appreciative of everyone’s support. It means the world to her. She is so exhausted that she just hasn’t been able to focus on responding, plus the drugs and the headache have her where she can’t really focus but just know that you are important to her and she is thankful.
On one last note. Dr. S. called to check on her. He called the room and I answered. “Who is this?” he asked. “Amy” I replied. “Oh, Hi Amy, How’s Nancy?” Dr. S. was glad to know she’s doing so well. We talked about how good the results look and how healthy the skin looks and what great blood flow it all appears to have and how the doppler ultrasound (the hourly check) sounds so strong. I asked Nancy if she wanted to talk to him and she silently shrugged. He must have heard the shrug because he asked incredulously, “Oh, she doesn’t want to talk to me??” so she talked to him for a moment. She complimented him on the symmetry of her new rack and said she figured he must have done the shaping, and she reiterated how happy she is with the results.
Here’s a snapshot of the board in Nancy’s room: So does there look like a winner in the turf wars?? Just askin’….
So Long ICU
Posted: March 3, 2011 Filed under: breast cancer, Surgery | Tags: breast cancer, cancer battle, DIEP, hospital, ICU, Methodist Hospital, microsurgery, new boobs, reconstruction, recovery 8 CommentsHi Everybody,
It’s Amy Hoover here. Nancy has been doing really well. She’s super tired. Come to find out her new breasticles have to have their arterial blood flow checked once an hour and it’s been that way since the surgery ended yesterday and will be through tomorrow…..so cat naps abound. They made her get up and have a “sitting trial” time for an hour and she did really well. To hear her tell the doctors about it, it was “hard” but as an observer she handled the “trial” with grit and humor–typical Nancy. I think she handled it better than her first trip off the bed post mastectomy!
The people working at Methodist are doing a great job responding to her needs and that morphine pump responds at the touch of the button. We just went over her “Daily goals/Patient needs” which are posted on her wall in her new room:
1. pain control
2. regular diet
3. cough and deep breath 10x/hour
5. SCD on legs
Yes, I know there’s no 4, but I call it like I see it! (and we are not sure what SCD stands for, but she does have compression stockings on her legs and some pump thing to keep blood clots at bay). So….number one goal is pain control and Mr. Morphine pump is at the ready. I reminded her that she’s not here to prove anything so not to try to wait it out but go ahead and push that button if she feels the pain. Pain control is the NUMBER ONE goal!
Dr. S. called in today to check on her and Nancy got tickled because he had to wait on hold for quite a while for Nurse Carol who was busy taking care of Nancy.
Dr. Spiegel came by and checked out the results and is really, really pleased. From my layman’s point of view, I agree.
She’s resting now and it is definitely quieter in this room, so hopefully it will be a good nap. She has requested an Ambien to help her sleep tonight. After her nap she will have to sit in the chair again.
Tomorrow’s plan is to do a little bit of walking and take a shower. We expect to see the doctor in the early morning.
Out of ICU
Posted: March 3, 2011 Filed under: Surgery | Tags: breast cancer, cancer battle, cancer diagnosis, DIEP, hospital, ICU, Methodist Hospital, microsurgery, new boobs, plastic surgery, reconstruction 1 CommentNancy is out of ICU and in her private room now. It took forever to get out of there, there just seemed to be always one more thing. They had to take blood and couldn’t get enough from the line in her hand despite much digging and infliction of pain. They finally just opened up her chemo port and had it done in a snap. Of course they had already packed her up for transport so the morphine pump was temporarily disconnected. But Nancy is a bad ass and toughed it out.
Thanks also to Laura Lessard for spending time with us today and taking me for lunch.
Life goes on for everyone else, I’m at Macy’s tennis lesson now. Payton has his season opening baseball game tonight. She is probably ready to post something herself but I accidentally left with her iPad. Like I said – trying to keep things normal.



