Dear Me,
Posted: April 7, 2013 Filed under: breast cancer, cancer fatigue | Tags: HAWMC, WEGO, WEGO Health 11 CommentsDay 6 of the WEGO Health Activist Writer’s Month Challenge nearly made me give up on the daily task of blogging about my “condition.” I don’t like my “condition” and I don’t like the touchy-feely side of dealing with that “condition.” I like to keep my word, though, and I said I would take on this challenge, so here goes.
Today’s prompt: Write a letter to an older you. What lesson do you want to make sure you remember?
Well, with my dilapidated body, blown-out knee, and menopause-induced lunacy, the older version of me scares the hell out of the current version of me, so I’m going to write a letter to the younger version of me.
Dear Younger Me,
Listen up, missy: that college dream of yours to light Madison Avenue on fire with clever advertising campaigns isn’t gonna happen. You don’t like the Big City — too many people and way too many germs. That other dream of writing children’s books isn’t going to happen, either. You do end up reading a whole lot of good ones, though, to a couple of precious kids who look so much like your baby pictures it’s scary.
Your smart mouth will get you into a fair amount of trouble. I’d tell you to be careful, go easy, and use restraint, but we both know you’d flip me the bird and keep right on sassing. I can tell you that eventually you do learn the fine art of holding your tongue, but it will never come easy.
That sweet, loyal, smart, cunning and unmatched yellow dog who grips your college-aged heart will never let go. She will protect you, and then your children, for nearly 15 years. She will guard the entrance to the nursery and sleep under the crib. She will show you her back when you get out your suitcase, because she knows you’re leaving, if only for a few days. Her time on this Earth will grow short but she will stick it out longer than anyone expects because she will insist on seeing you through an even rougher patch: the death of your sweet mama.
Guess what, girlie? Your sweet mama keeps a tight grip on your heart, too. Not a day passes without you feeling the loss, in big ways and small ways. (Note to self: don’t give up on trying to make her pie crust. It won’t ever be like hers, but keep trying.)
Just about the time cancer steals your beloved mama, you’ll start getting an annual mammogram. You’re ahead of the schedule thanks to that mama-stealing cancer, and every year the mammogram will come back funky. Don’t settle for the “dense tissue” rationale. There’s a tumor growing, and it ends up taking up a lot of space, both in your body and in your life.
Look, I know you’re going to be busy living your life and raising those two little kids when the diagnosis comes, but please, brace yourself, because it’s going to get ugly fast. And say a little prayer to the environmental-services gods who control your operating room on the day of your mastectomy; maybe we can avoid that post-mastectomy infection that will reorder your life. And BTW, the bilateral mastectomy was totally the right choice. Good girl for following your gut. There will be no hint, not a single whiff, of cancer in your left breast, but it’s there.
Give up right now on thinking your cancer “journey” will be “one and done.” It will be more circuitous than you can ever imagine, and it will change you in ways you won’t discover until years later. Oh, and before you even begin that circuitous journey, you’re going to have to deal with melanoma on your right foot. I know, who puts sunscreen on their feet, right? Hate to tell ya, that even though you catch it early, the surgery to remove the melanoma will be the most painful thing you will experience. Yes, it’s worse than childbirth and a bilateral mastectomy. Oh yeah, about childbirth–when your water breaks, the baby is coming. Yes, he’s early. No, you haven’t finished the birthing class or packed your bag, but it doesn’t matter. And you’re going to get teased for decades for reading ahead in that “What to Expect” book on the toilet in the middle of the night when your water has broken and your much-better-prepared spouse sleeps peacefully, unaware of your foolishness.
It turns out fine, the baby is healthy (but hard-headed). Even the cancer thing is manageable. Not easy, but manageable. I think we both know you can handle it. You’re going to learn a lot, whether you want to or not. Your limits will be tested. You’re going to make some true and life-long friends along the way. You’re going to unload friends, too, in one of many hard-learned lessons. You see, there are people who are willing to give what they want to give, not what you need. This is a very important distinction. Trust me, you’re much happier without ’em. A couple more pieces of advice: first, don’t ignore that knee pain while you’re running. Stretch before and after you pound the pavement. Listen to your body. Pain is its way of saying something is wrong. Ice your knee after each run. I know it’s a hassle, but so is living with constant pain. Years down the road, you’re going to be embarrassed by how you hobble down the stairs like a woman twice your age. You’re going to be frustrated by the ways in which your body fails you. I don’t have an answer for how to deal with that, because I haven’t figured out how to deal with that. I do recommend drinking champagne as often as you can. I don’t have to tell you to never, ever pass up an opportunity to drink some bubbly. The lesson I want you to remember is that the sound of that popping cork will soothe your soul, every time.
Love,
Me
Cancer Vixen
Posted: April 5, 2013 Filed under: breast cancer, cancer fatigue | Tags: HAWMC, soursop, things not to say to cancer patients, WEGO, WEGO Health 5 CommentsDay 5 of the WEGO Health Activists Writer’s Month Challenge: “If I could do anything as a Health Activist…”
My first thought was to cure cancer. Today’s prompt said to dream big, so I am. 
Since it’s my dream, I’m claiming two superpowers. In addition to kicking cancer’s ass, I would eliminate all the stupid/inane/insensitive/uncaring/clumsy/offensive things people say to those of us in cancerland. Yeah, yeah; I know sometimes people mean well and just don’t know what to say, but that’s no excuse. No cancer patient needs to hear a comment like this, or certainly not this, no matter how well-intentioned the awkward speaker should be.
So if I could do anything as a health advocate, I would ensure that no one in cancerland ever had to hear anything like this. Ever. 
Care page, HAWMC day 4
Posted: April 4, 2013 Filed under: breast cancer | Tags: advice for new cancer diagnosis, Army of Women, breast cancer resources, Dr Susan Love, HAWMC, resources for those newly diagnosed with breast cancer, think before you pink, WEGO 7 CommentsToday’s mission in the Health Activist Writer’s Month Challenge: Create a “care page” – a list of your best resources that someone who is newly diagnosed could go to when starting to advocate for themselves or a loved one.
Consult the mainstays such as Breast Cancer Action, and Think Before You Pink, and Dr Susan Love Research Foundation, and breastcancer.org, and The Rose. Consulting “Dr Google” once a diagnosis has sunk in is something most people do.
Follow a blog that appeals to you. Whatever flavor you prefer — spiritual, snarky, research-oriented, or off-the-cuff like this little blog — there’s a blog out there to meet your needs. Among these blogs, you’ll find posts such as this and posts such as this with practical advice from those who’ve been there. Much of this information is rather like on-the-job training; you don’t know what you need to know until you need to know it. Take the hard-won wisdom from those who have walked this walk before you.
My best piece of advice, in a sea of good advice, though is this: Do what you believe in your heart of hearts is best for you. Whether a prophylactic bilateral mastectomy instead of a lumpectomy, whether undergoing reconstruction or flaunting the flat & fabulous look, or whether pursuing a second or a third or a fourth opinion. Follow your instincts and listen to your gut.
Wordless Wednesday, HAWMC
Posted: April 3, 2013 Filed under: breast cancer | Tags: breast cancer and young women, David Jay photography, HAWMC, psychological effects of breast cancer, The SCAR Project, WEGO Health 12 CommentsDay 3 of the Health Activist Writer’s Month Challenge:
“Wordless Wednesday. Post a picture that symbolizes your condition and your experiences.”
My first thought was of the many powerful images in David Jay’s The Scar Project. I’ve written about this amazing body of work here and here. The photographs are raw and real, just like cancer itself.
WEGO HAWMC
Posted: April 2, 2013 Filed under: breast cancer, menopause | Tags: breast cancer, breast cancer awareness, HAWMC, tamoxifen, Tamoxifen side effects, WEGO Health 5 Comments
The WEGO HAWMC is quite a mouthful! WEGO Health describes itself as “social media’s most active online health community — Health Activists. These influencers, organizers, connectors, leaders and contributors are passionate about helping others lead healthier lives.” WEGO Health Activists have thrown out a challenge: the HAWMC, or Health Activist Writer’s Month Challenge. It’s a post-a-day challenge taken on by several bloggers I greatly admire. One of them asked if I was planning to participate, so here we are.
I missed Day 1, so will start with Day 2, which is pretty scrambled logic for this Type-A girl, but part of the challenge is thinking — and blogging — outside of our comfort zones so I guess I’m in.
Today’s prompt:
Introduce your condition to other Health Activists. What are 5 things you want them to know about your condition/activism?
Invisible scars
Posted: March 27, 2013 Filed under: breast cancer, cancer fatigue | Tags: Dance Moms, late-effect side effects from cancer treatment, psychological effects of cancer, scars from cancer, Stupid Dumb Breast Cancer, Surviving Survivorship 16 CommentsIn Cindy’s words:
I wanted to post my thoughts on the topic of invisible scars, and the darkness of hovering clouds for the cancer survivor. Throughout this document the words “cancer survivor” are loosely used, as cancer survivors are not always quite as fortunate as the words imply. Yes, their cancer is in remission, and that is incredibly wonderful! However … the survivor continues to spin, fearful of what may come next.Our visible scars are reminders of each step and path along the way of disease or injury. The invisible scars run much deeper. Even when the physical scar starts to fade in color and blend in with surrounding skin, the invisible scar residing just below it continues to prevail.For me, going through major health events, resulted in a darkness like no other. The darkness hovers, and follows me around like Charlie Brown’s friend PigPen’s cloud of dirt. This pesky dark cloud of dirt doesn’t magically go away, or even diminish. It’s a lifetime event. Actually, it grows with each late-effect side-effect issue discovered. I may be tricked into thinking it has finally subsided, but its still there, poised and ready to strike at any moment in some new unknown way.I will say, the invisible scars can show themselves in unkind outward ways. They are indeed ugly and evil on their own. Holding inside the frustrations of the incredible physical changes I’ve encountered over the past 7 years takes a toll emotionally and messes with my psyche. Occasionally, the frustration pours out, like a burst of bad energy. It’s the darkness of the cloud that never gives my pea brain a rest.
We all definitely have our day to day issues to deal with. Work, the car, the kids, the spouse, the toilet overflowed, the dog ate the cat, etc. A cancer survivor has those plus these invisible scars weighing them down.
A good deed that’s not so good
Posted: March 25, 2013 Filed under: pets | Tags: dog vomit in my car, lost dog, returning a lost dog 14 CommentsOn my way home from carpool #1 this morning, I was driving down my street, minding my own business, when I saw a tiny white dog running full-speed down the sidewalk. With no humans in sight, I figured this little dog had escaped. I pulled over to get a better look at the dog and to see if he had a collar and tags. He had both, so I got out of the car and called him over. He came right away and was quite friendly, and his tiny body was shivering from the 43-degree morning chill.
He’s a friendly little guy, and was happy to drain the water bowl I set out for him. I tried his owner’s phone number a dozen more times, each time getting a busy signal. Just as Pedey the Weasel Dog was getting upset about our visitor, and just as our queen-bee piggie was considering whether this littler furball was edible, inspiration struck and I called the vet listed on Maxwell Chambers’s rabies tag.
The vet said that yes indeed Maxwell Chambers was a client of theirs, and she gave me another phone number to try for his owner. I told her that my animals were about to riot and rather than keep Maxwell Chambers while I tracked down his owner, I’d just bring him to the vet and let the owner pick him up there.
Maxwell Chambers was happy to play in my bathroom while I got ready to get out the door. 
Clearly he’s used to being indoors. He made himself quite comfortable on the bathroom rug and tunnelled under the wet towel a certain girl left on the bathroom floor this morning.
Maxwell Chambers enjoyed co-piloting carpool #2 and was a good passenger. 
Briefly.
He was a good passenger briefly.
After my #1 son got out of the car, Maxwell hopped into my lap, and before long, he barfed all down my shoulder, covering my seatbelt, spraying the inside of the door, and drenching the carpet in the backseat.
Gross. Really, really gross.
There wasn’t a good place to pull over for a while, so I could feel the undigested kibble he had for breakfast seeping through my sweater. The smell was less than pleasant. I scooped out as much as I could into the street as soon I pulled over, exhausting my glove-box supply of napkins and dousing myself in hand sanitizer.
When we got to the vet, I handed Maxwell Chambers over and big him adieu. I was tempted to tell the vet tech to have Mr Chambers’s owner call me to discuss the car-cleaning bill, but I did not.
I sped home and employed every cleaning technique I could: first sucking up the remaining chunks with the shop vac, then using the Shark hand-vac to get the gunk in the crevices where the driver’s seat moves back and forth on the little track. Who knew there were so many nooks & crannies in which bits of doggie barf could land? I sanitized the door, seatbelt, seat, and carpet as best I could with Lysol wipes, then finished it off with a coat of Meyers Clean Day lavender all-purpose spray to get the smell out. The final step was to Windex the windows and leave the car wide open in the garage to air out. 
Perhaps no good deed goes unpunished, but this is ridiculous.
48
Posted: March 20, 2013 Filed under: cancer fatigue | Tags: cancer sucks, losing a spouse to cancer, losing mom to cancer 20 Comments
Apologies if you receive this post twice; something went wonky and the post disappeared. Here it is again. 
On this day 48 years ago, an accomplished and driven schoolteacher from humble, rural beginnings married a confident, athletic Greek who was making his way in the petroleum engineering industry. The mother of the bride had passed away nearly 15 years before this wedding. The father of the groom, who had immigrated to the United States from Greece with limited funds and even less English in his vocabulary, died before being able to watch his son’s life unfold with his new bride.
That bride’s life was cut short, too. By cancer. Stupid cancer. While that bride lived to see her son and her daughter into adulthood and she welcomed and adored four grandchildren, her life–and her marriage–ended too soon. Stupid cancer.
That bride was my sweet mama, and I miss her dearly every single day. I’ve written about this topic in this space a lot. And I will continue to do so. I know my dad misses her every single day, too. He still refers to her as The Bride. In caps. I’m sure he’s missing her even more than usual today. Because today he should be celebrating with The Bride. They should be celebrating 48 years of marriage and a life full of happiness. She’d be laughing right now, recalling her simple wedding and her sweet pale yellow suit and pillbox hat. She’d be self-effacing about the number of years that have passed and the wrinkles etched in her face and the extra pounds settled around her middle. She’d be tempted to surrender the battle against the grey hair, but would continue seeking the ash-blonde color. And she’d be infusing our lives with her unique blend of meddling, hovering, and loving.
Scenes from the rodeo
Posted: March 14, 2013 Filed under: kids | Tags: animal husbandry, FFA, fried food on a stick, fried snickers, Houston Livestock Show & Rodeo, Houston rodeo, petting zoo, potbellied pigs, the rodeo 20 CommentsIt’s rodeo time again. The Houston Livestock Show & Rodeo is a big deal. It’s been going on since 1932, and in those years the rodeo has raised more than $330 million for agricultural scholarships, research, and educational programs. It’s the largest livestock show in the world, and my fair city is the epicenter for all things rodeo. For 3 weeks every spring, people come from all over this great state and from farther afield to compete in all kinds of events. From bareback riding to calf roping to showing prized animals to producing works of art, the rodeo has it all. Then there’s the carnival, with rides and the most inventive fried foods ever conceived.
The first year we went to the rodeo, my kids looked like this
and they rode carnival rides like this
Now they ride rides like this,
the highest set of swings in the world,
Read about our trip to the rodeo last year here, in which I feared for my life on one of these carnival rides.
While they’ve gotten bigger and more adventurous, one thing hasn’t changed: they still love to see the animals at the rodeo. 
From the show ring to the petting zoo, the animals are the main attraction. 
Some of the kids showing animals in the ring look so young, but they handle their animals with ease.
This little girl handled her 250-pound pig without a backward glance. 
We took special interest in the pigs, of course. This one has similar coloring to our little piggie, but thankfully is a different breed. If Piper ever got this big, we’d be in trouble. 
This black & white beauty grabbed a nap in the midst of the festivities, while this guy was wide awake and curious. 
How could we resist that snout??
Watching these giant pigs walking to and from the show ring was fascinating. Although they barely glanced at each other as they passed, I kept expecting them to turn and sniff each other, and maybe even scuffle, the way dogs might.
Their handlers kept them on the right path by tapping them with a thin stick. We must get one of those for our wayward piggie.
These rodeo volunteers use yardsticks to keep the crowd back when it’s time for the larger animals to make their way to the show ring. 
This pig needed to step on the scale before going to the show ring, but she wasn’t too happy about it. It took two guys to get her into the pen that holds the scale.
We stuck around to watch the battle, which the pig lost, and to see how much she weighed: 252 pounds!
Lots of babies are born at the rodeo each year. This little lamb made his entrance into the big wide world and was on display soon after.
This sweet Hereford was born just a few hours before we arrived. Mama looked proud, but tired. 
Two litters of piglets were on display, as well. The Little Rascals were born last month and were running and playing. Their next-door neighbors, the Baconators, were a couple of weeks behind them but catching up fast. 
There were more pigs in the petting zoo, including this little cutie. 
There’s a phenomenon in our house called The Pig Flop, in which Piper enjoys the petting so much that she literally flops on the floor all at once, in one smooth movement. My favorite girl attempted to get a Pig Flop from each piggie in the petting zoo.
Including the pregnant piggies.
Of course she succeeded. She is the Pig Whisperer, after all.
We wondered if our little piggie would smell her rodeo relatives on us when we got home. It’s perhaps more likely that she smelled the deep-fried Snickers on Macy’s breath!
This llama won top awards for best haircut at the rodeo. 
Not sure what that’s all about, but it was memorable.
And this little girl took the award for best t-shirt at the rodeo:
“If I can’t wear my boots, I ain’t goin” sums up the rodeo experience quite nicely. Lucky for her, boots are most welcome at the rodeo!










