Can I get that overnighted, please?

Posted: February 19, 2011 | Author: | Filed under: baseball, breast cancer | Tags: , , , , , , , , , , , , , | 9 Comments

I like funny t-shirts. I like snarky, funny t-shirts even better. Or is it redundant to say “snarky” and “funny?” Are there people who don’t think snarky is funny? If so, I have no use for them. Trevor’s grandma, Petie, had a cute little needlepoint pillow on her couch in the sitting room of her Salisbury, North Carolina, home that says “If you don’t have anything nice to say, come sit by me.” I’ve always ascribed to that point of view.

I don’t have a picture of Petie’s pillow, but found this one by using the Google. Now I’m wondering why in the world I don’t own one of these pillows? It would make me smile every time I spied it. It’s the little things, people.

While looking for an image of that cute little pillow, I found this: 

For those of you who are uninitiated into all things Red Sox, that foxy number 46 is my boy crush, Jacoby Ellsbury. He now wears number 2 on his jersey, though looks no less foxy. That’s JD Drew crouched next to him, close enough to whisper in Ell’s ear (lucky bastard). I’m sure they were discussing some serious strategy, or maybe making fun of Dora (aka Alex Rodriguez) who is such a tool and deserves to be made fun of at every possible opportunity.

But I digress.

Here’s the real reason for today’s post (although it could easily become all about Ells. Last season was a long, dry boring one for me because Ells was hurt. Not just hurt, but rehabbing in Arizona, so not even in the dugout and available for close-ups or slow pans by the ever competent NESN camera guys. It was a long season indeed. But Ells is back and ready for action and hopefully lots of on-screen time.)

But seriously, back to the real reason for today’s post.

Look what I found.

Just what I’ve been looking for.

But wow, what bad luck to have found it so close to the Resurrection, instead of during the long months of walking around with a chest flat enough to play quarters on, with no explanation. Ok, that is some seriously bad sentence construction, but you get the drift. I’ve had a freakishly flat chest for a long time, and have longed for a shirt that tells the world that change is underfoot. Or, undershirt, as the case may be. I got that chance with my “cupcakes” shirt, but I can’t very well wear that every day. I hate doing laundry, and wearing my cupcakes shirt every day would require a lot more of that chore.

So I probably need the “under construction” shirt, too. Although, can someone please explain to me why the shirt is modeled by a guy???

Now that is just weird.

But I still want the shirt. Wonder how fast I can get it?

Can somebody please shut off my brain?

Posted: February 17, 2011 | Author: | Filed under: breast cancer, kids | Tags: , , , , , , , , , , , , , | 8 Comments

For the last several nights I’ve been waking up in the middle of the night with questions to ask Dr Spiegel today about my upcoming reconstruction. I like how “upcoming reconstruction” sounds so formal and important, and perhaps a teeny bit ostentatious. As opposed to the reality of a terrifying, bloody mess. But I didn’t have it together enough to put a pad & pen by the bed to actually write the questions down, and now I can’t think of them (anyone have any suggestions? Lemme know. I know there’s stuff I’m supposed to be asking her about but can’t for the life of me find that stuff).

My brain must be working overtime, especially at night, when it should be resting and refueling so it’s ready to assist me with my two most basic tasks: impressing Payton with my trivia knowledge while we watch “Cash Cab,” and helping me answer questions from Macy like, “If a banana is a fruit, where are its seeds?”

I hate those kinds of questions. I really should know the answer. It’s there somewhere, deep in the recesses of my brain, but it’s buried by all this cancer ca-ca. If my brain were being depicted by a pie chart, there would be normal-sized pieces of pie for the kids, the home front, our schedules, tennis, world peace, and such. Then there would be a gigantic piece for cancer ca-ca. 

I hate that the cancer ca-ca takes up such a big piece of the pie. I like pie. But I don’t like this pie.  If only the pie chart were about pie, instead of all that other stuff. That would be a really good pie chart.

My Uncle Wilford (my mom’s older brother) used to say he liked two kinds of pie: hot and cold. Me too. And I hope Uncle Wilford is having a piece of both right now, at a beautifully set table on a puffy white cloud with his two sisters, my mom and Aunt Margie, sitting beside him. All the pie they can eat. And no pizza. Uncle Wilford said he didn’t like pizza because he was older than it. Funny guy. Miss him.

But back to the cancer ca-ca. It fills my brain stealthily, easily, and constantly. I’m usually pretty organized, but it infiltrates. I tend to keep a good handle on the various comings & goings of the members of this family, and rarely do I drop any of the balls I juggle on any given day. Not bragging, just saying. I’m usually up to whatever this life of mine throws at me.  But I’ve been dropping balls lately, and I don’t like it.

Macy was invited to a birthday party recently, and I forgot to add it to the calendar, and she missed the party. Oops. Then I looked right at the calendar to assess the day’s tasks but still forgot to take Payton to his weekly hitting lesson. Drat. Then there was the test I forgot to make sure Macy studied for, and she got a bad grade. She typically doesn’t get bad grades, so it was upsetting for her. Her teacher sent home the study sheet for the re-take, which Macy dutifully put on the fridge with a magnet. I saw it there but it never even registered in my brain, so we didn’t work on it. At all. And then, the re-take was upon us. Macy remembered as we were walking out the door to go to school. Damn, damn, damn. I dropped another ball. I was tempted to advise her to just tell her teacher it’s my fault, and that I’m too busy with all this cancer ca-ca. But I didn’t. I hung my head for a minute, cursed myself out under my breath, kicked a stray tennis ball on the garage floor, then reminded myself that it’s one test in the 3rd grade. Well, technically two tests, since she failed the first one and had to re-take it, but again, let’s stay on point here and recognize that it’s no big deal. I wrote her teacher and note and fessed up, told her it was my fault and that she & I both know that if it were solely up to Macy, she would have aced that test. Her teacher wrote back and said pfffft, don’t even worry about it; as you can tell from the attached progress report, one test isn’t going to bog her down. She will survive, and so will I.

Thank you, Mrs. Motal.

From the time I wrapped my head around this wretched diagnosis, I’ve been determined to do all that I can to ensure that cancer doesn’t become me, doesn’t define me, doesn’t defeat me. Cancer may win a skirmish here and there and may make me feel really crummy; it may open the door for a nasty infection that brought on another epic battle; it may deposit more grey hairs and new wrinkles; and it may cause me to miss a thing or two on the master schedule. Cancer will most certainly cause me some sleepless nights. But cancer will not defeat me. 

Another trip to the med center

Posted: February 10, 2011 | Author: | Filed under: breast cancer, tennis | Tags: , , , , , , | 8 Comments

It was supposed to be the first match of the new tennis season. I was paired up with my running buddy, we the defenders of the Witches’ Open 2010 title, were scheduled to play at Houston Racquet Club, a beautiful club that is heavily wooded and shrouded in tennis tradition. It’s one of my favorite places to play an away match.

When I re-signed with my Alley Cats team for the spring season, I knew I probably wouldn’t get to play the entire season, since I need to get this reconstruction done. But for me, a few matches is better than no matches, and after my post-mastectomy, post-infection absence and convelescence last season, I’m happy to be upright and on the court. You hear people say that a bad day on the court is better than a good day in the office. True, but that adage rings even truer for those of us who have stared an ugly disease in the face. The fact that my game is better than ever is icing on the cake. Or fuzz on the yellow ball. Or whatever.

But alas, the weather gods conspired against me. We got another blast of Old Man Winter, and as if the frigid temps and gusty winds weren’t enough, it rained and sleeted, and the season stalled before it even began. This South Texas girl is tired of winter. “south Texas” and “winter” do not go together. And my tennis days are numbered–again. Barring any weather delays, I’ll play three matches before going under the knife in a few weeks. I don’t even want to think about how long I’ll be out–of the game or under anesthesia during surgery!–but I’m realistic enough to know that the season will be over before I’m ready to play again. Sigh.

So instead of playing tennis, I was a dutiful patient and headed to the medical center for more pre-op testing.

I hate going to the med center, and I hate testing.

Ok, let me rephrase: I appreciate that one of the world’s best medical facilities is a 20-minute drive, down a toll road no less, from my house, and that I have a vehicle that gets me there, cash in my pocket to valet park, pro-active and organized doctors who have a plan for me, and health insurance to cover the frightful expenses. And an added bonus, one of my BFFs works at Methodist in the med center, so I get to see her in her white coat and definitely in her element. That is very cool to see.

So while I hate going there and hate everything about the testing, I am grateful. That counts for something, right?

Everything about hospitals and testing bugs me. I’ve ranted about it before so won’t rehash but let’s suffice to say that everything from the smell to the idleness of waiting my turn just bugs me.

Today was relatively easy in the grand scheme of medical testing, though: just 7 vials of blood for lab work, an EKG, and a chest x-ray. The new Outpatient Services facility at Methodist is beautiful: spacious, well-lit with banks of windows showcasing stellar views, comfy chairs, quiet rooms for those of us with sensory overload, knowledgeable staff and supremely trained nurses and technicians. The phlebotomist who stuck me got the needle into the vein on the first try, something I very much appreciate.

I still hate it, though.

I was happy that I remembered to take Dr Spiegel’s orders with me, since I’ve had them for a couple of weeks.  I would have been really mad if I’d gotten all the way down there in the cold rain to be told I had to go home and get the orders. Score one for me.

I checked in and chose a soft beige leather chair. I barely had time to settle in and fire up my kindle before a tour guide called my  name and asked me to follow her to the business office to once again show proof of ID and insurance. After a quick “skim this, sign this,” it was into another waiting area, this time closer to the procedures area. It’s akin to moving from the waiting area to the exam room at the doctor’s office. Even if you have to wait awhile in the exam room, you’ve at least progressed along in your journey.

After again firing up my kindle and peeping out the room-long windows at the grey, misty cityscape, I settled in for yet another indeterminate wait. After about half an hour, an older couple came in and sat behind me. I could see them out of the corner of my eye and could hear murmers of their conversation.  I did not, however, make eye contact. I’ve learned the hard way to treat my fellow patients the way I treat fellow travelers on a plane: don’t look right at them or give any indication of interest in their life story.

Mean? Maybe. But I’ve never claimed to be Miss Compassion, and while I’m sure there are sob stories that are sobbier than mine, I don’t want to hear them. I have no room in my life for the problems of strangers. Now, before you write me off as aloof and uncaring, let me state for the record that I will render aid if necessary. If an elderly woman walks off without her sweater or umbrella, I will chase her down and return her belongings. If the granny with a double knee replacement drops her pen while filling out yet another medical form, I’ll reach it for her. I’ll hold the elevator for young mothers with strollers and errant toddlers. But don’t ask me to take an interest in and listen to your sob story. Not gonna do it.

I was trying my best to tune out this couple behind me in holding pen #2 but despite my efforts, I noticed the man becoming more and more agitated about how long he was going to have to wait. I was tempted to advise him to pipe down and settle in, since he just arrived, and really it was only 9:15 a.m. He was upset about not knowing exactly how long this was going to take. Outpatient Services is first-come, first-served. Open from 8 a.m. until 6 p.m. Come early and be prepared to wait. Duh.

Does anyone ever know how long “this” is going to take, whatever “this” happens to be? If you’re at the med center for outpatient testing, you’d better plan on being there awhile. Looking around, I noticed that everyone else had a book, magazine, soduku puzzle, knitting, laptop, and even a portable DVD player to pass the time. Everyone but the man behind me, who coincidentally was the only one asking how long “this” would take.

His wife tried to shush him, and I tried to tune him out, but he got louder and more upset. He tried to talk his wife into leaving, telling her he didn’t think he could stay any longer for the procedure.

Then he started to cry.

Yes, a grown man started to cry about having to wait for a medical procedure. I don’t know what he was having done, but I do know that they don’t even do anything scary there: cardiology testing, x-ray, and lab work. I know for a fact that other floors contain other scary options, but the 17th floor is pretty tame.

His wife tried to shush him some more in a way that made me think of little kids being told to stop their crying before they were given something to really cry about. She told him to dry it up, he told her he couldn’t, and she told him that yes he certainly could. After they went back and forth a bit, she hollared at him: “James Langston, you stop that right now!” And he did. Tough love in action. Right on!

Mr. Langston coerced his wife into asking one of the tour guides who walked by how many people were ahead of him for testing. She took his name and went to check. He blubbered a bit more, then she came back to report that there were three people ahead of him (one of which was me, thank you very much). That set him off anew, and he was caterwaling pretty good by this point. The tour guide shuffled off to straighten the magazines or restock the pamphlets or something, anything, to get away from James Langston and his weeping.

I’ve spent more than my fair share in doctor’s offices, hospitals, and outpatient testing areas lately, and no matter which facility I happen to be in, I can’t help but notice that every other patient is a lot older than me. As in, there’s no way they still have small kids at home, and I’m almost certain they aren’t juggling the kinds of things I am. Packing lunches? Nope. Overseeing homework assignments’ completion? Don’t think so. Ferrying kids to and fro, from school to sports to lessons to playdates? Uh, no. Worrying about getting out of there in time to not be last in line for carpool pick-up? Not today. Rushing to the store to pick up juice boxes and Fruit by the Foot? Negative. I’m betting these geezers don’t even remember that they ever did such things. (Ok, that was harsh, but it felt good to get it out. I’m done.) It’s just one of the many things that sucks about being a resident of Cancerland, and being a young resident blows especially hard.

Still in holding pen #2, I read the same page of my book 15 times without comprehending a word. I wasn’t trying to be nosey but I couldn’t help but wonder what James Langston was so afraid of, and why no one had thought to give him a Xanax. James Langston could have used one, for sure. If I were a more compassionate person, I might have offered him one of mine. But I’m not, and I guard my stash very carefully.

Just as I was about to start to feel a wee bit sorry for him, though, he grabbed a nurse and begged her to take him next.

And she did.

Crybaby James Langston leapfrogged to the front of the line, leaving the rest of us in his dust. He’s either the biggest baby or the shrewdest patient. I have no idea which.



I heard the news today, oh boy

Posted: February 8, 2011 | Author: | Filed under: baseball, kids | Tags: , , , , , , , , , , , , , , , | 15 Comments

It started around age 2, I guess. The baseball obsession. From his earliest days, Payton was a baseball fanatic.

He’s probably not even 2 years old here, but he’s already at the plate, ready to swing for the fences. 

That original swing morphed into this —

and even in 2nd grade, it was game on.

The Red Sox obsession started when he was around 4 years old, maybe even earlier. He has a lot of Sox jerseys and t-shirts. He even had a shirt way back then that says “Yankees Stink” and when he wore it to Fenway Park one year, he was a rock star among Sox fans. He wore it to an Astros game and was featured on the Jumbo-Tron screens. Sweet.

He wears Sox shirts for all occasions, both important and everyday. And not just at the ballpark, either. He wears them pretty much every day, no matter where he’s going.

From playing in the driveway in our Durham house, where we lived for two years, to the first day of kindergarten, Payton wore Sox apparel. Always a Sox shirt, and usually a cap, too.

If they allowed ballcaps at school, he’d wear a Sox cap every day. At one point, we had to clean out the closet because there were so many Sox caps. Every color combination of red, white & blue, and a green one, too. Eventually he got a red one with black flames. There was a green camo one, too, but it disappeared before we had any photos of it. 

Here he is in a Sox cap at his Little League team party in 1st grade, I think. All the other boys on the team wore the team cap, but this die-hard Sox fan had other plans.

He’s wearing a Sox shirt and cap in this photo, taken in his room six months after we moved back to Houston from North Carolina. This kid is (and no doubt will be) a Sox fan no matter where he lives.

His blue Sox cap was with him at the rodeo. He’s not wearing a Sox shirt, though.

I probably made him wear a Longhorns shirt, since it was the most Western-y thing he had to wear to the rodeo. (And yes, I see the expression on Macy’s face. Classic.)

He’s probably still mad about it, too.

For a while, Macy was in on it, too. This is one of my all-time favorite pics of my kids. In New Orleans, on the way home from Fort Meyers, FL, at spring break for, what else? Red Sox spring training.

Of course he wore a Sox jersey for the first day of school in 1st grade, just like he had done on the first day of school in kindergarten. He’s got a Sox backpack, too.

We got a lot of wear from the original jersey, a Nomar Garciaparra #5 authentic MLB version. He wore that one for a couple of years, and I still have it. I keep thinking I’ll do something special with it, like put it in a shadowbox with other memorabilia to preserve the Sox legacy. For now, it’s hanging in the laundry room, and every time I see it, I smile at how tiny it is, and how the tiniest jersey was worn by the biggest fan.

Here he is at Fenway Park in jersey and rally cap, showing off his newly-toothless grin. He had just turned 6, and was already a veteran traveler to Boston and Fenway Park.

Guess what he wore to his 6th birthday party? Yep, a Sox shirt. He loved the shirt, but wasn’t too happy about having to pose for a photo.

He looks a little happier here, celebrating Ed’s birthday in, what else? a Sox jersey. 

Here he is before the birthday bash, in yet another Sox shirt. He and Ed are smiling so big because they love the Red Sox! In fact, it was Ed who first brainwashed Payton into becoming part of Red Sox Nation. Thanks, Ed! I’ve never been more proud than I was during a game at Fenway when Pay was little (4 or 5 years old at most) and quickly established himself among our seasoned seat-mates as a real fan. He knew who was next in the batting order, and who made the last out. It wasn’t long before the men around us were asking Pay questions about the roster, and he knew the answer every time.

Riding the T after a game at Fenway, happy with a Fenway Frank or two in his tummy and a pennant in his hand. This boy loves baseball, and to him, baseball means the Red Sox.

This was his face when he came home from school one day in the 1st grade to find his room contained new bunk beds. I love the look on his face almost as much as the fact that he’s wearing yet another Sox shirt.

He’s all dressed up here for Mother’s Day.

And for YaYa’s birthday. Well, as dressed up as Pay gets. Which is fine with me. If he’s not wearing a Sox shirt, something seems just the slightest bit off.

In 3rd grade, he wore Sox shirts on the first day of school: and the last day of school. He got an award at the end of the year from Mrs. Spearman, probably for being the biggest Sox fan.

It was more of the same for the first day of 4th grade.

Hanging out with Snoopy, in a jersey of course.

She’s a Sox fan, too.

After the Nomar jersey came the Veritek version. Then Youklis. Then Beckett. 

I’m sure there were more, but they all sorta run together after all these years.

We’re really lucky to be able to go to Boston every summer and stay with our dear friends-who-are-now-family. The trip is the highlight of the year for all of us, and getting to go to Fenway as well as hang out for a couple of weeks on the shore, is the best.

At the airport on one of those trips when the kids were really little, Pay was decked out in Sox championship apparel. People traveling from Houston to Boston on that flight with us knew where that kid was headed. First stop, Yawkey Way. 

Catching some z’s on the beach in Salisbury, north of Boston. Notice the cap?

Wearing one of my favorite Sox shirts at Markey’s Lobster Pound, one of the best places on Earth. This shirt says, “It’s obvious you wish you were part of Red Sox Nation.”

Indeed.

Another Sox ensemble while enjoying another delicacy at the shore: Blink’s Fried Doe. Payton prefers chocolate frosting and chocolate sprinkles. Only they call them jimmies at the shore.

One year we went back to the shore for Thanksgiving. It was cold on the beach, but we took a walk. Pay wore a Sox shirt, and no coat.

Back at home, we buy the MLB extended cable package so we can watch every Sox game. 

Payton always gets new Sox shirts for Christmas, which makes him smile. Santa knows what that kid wants most. 

Fuzzy dice to go with the new shirts. Good stuff.

I don’t remember what we were celebrating here, but I’m sure it was fun. And the Pedroia shirt means it was a special occasion. Or a Tuesday. Either one.

When Pay broke his wrist in the 5th grade and had to get a cast, he got a red one. While wearing a Sox shirt, natch. Then he tried to scratch inside the cast with a mechanical pencil, and the eraser got stuck and he had to get another red cast. Three days after the first one. I told him that if he did it again, the third cast would be pink.

There was no third cast.

This past summer, Pay had to go to Fenway without me. I was home recovering from the latest bout with the post-mastectomy infection and wasn’t fit to travel.

He brought me a get-well gift. Guess what it was: a new Sox shirt of my very own. My favorite player had changed his number, so I needed an updated shirt. Sweet boy.

Red Sox apparel is such a big part of Payton’s life, and his wardrobe. Our family has logged lots of hours at Fenway and spent even more time camped out in front of the TV watching games from home. We check the box scores in the morning paper, and on any given day during the MLB season Pay can tell you exactly how many games ahead or back the Sox are in the playoff pursuit. We’ve had fun seeing the Sox at our home ballpark, Minute Maid Park, during interleague play, and at Camden Yards while visiting friends in D.C. When the Sox were playing the Rockies in Colorado en route to the World Series, we were ready to pack up and drive there, but the quick sweep made it a moot point.

My baseball-loving son doesn’t have a lot to say; he’s a pretty quiet kid. But get him talking about the Sox, and you’d better settle in because it may take awhile. We’ve bonded over good games and bad, big hits and strike-outs, bad calls and triumphant victories, opportunities lost and capitalized upon. We are a Red Sox family.

And as another Little Season is upon us, Payton, the biggest Sox fan of all, just got drafted by the Yankees. Worst. Thing. Ever. (in his mind, anyway.) This happened once before, a few seasons back, and he was pretty upset. He handled it like a pro, though, saying he would wear the dreaded navy blue jersey, but with a Sox shirt underneath, close to his heart. And when he “lost” his Yankees hat a few days into the season and needed to wear a navy blue Sox hat, I didn’t question him. He decided he would play hard while on the field, because that’s part of being on a team, but would take off the Yankees jersey as soon as the games ended. I admit, it was pretty weird to see him in Yankees gear. Wonder if he can still fit into his shirt that says “Yankees Stink?”

Update on my guardian angels

Posted: February 7, 2011 | Author: | Filed under: breast cancer | Tags: , , , , , , , , , , , , | 2 Comments

Remember these three lovely ladies? If not, read this. I wrote about my guardian angels and their unfortunate accident in which they flew off the shelf and crashed onto the floor.

They’ve been repaired and restored to their shelf in the kitchen, where they can watch over my family and me. I think they’re recovered from their trauma, but are likely wary of another episode and probably watch over me with a worried eye, thinking, “There she goes, crashing around the kitchen again like a crazy person. It’s only a matter of time before she bustles over here to grab a cookbook off our shelf, and down we go, smashed into bits on the hard porcelain tile.”

Or something along those lines. I have no idea what Willow Tree angels’ conversations actually sound like, but that’s how I imagine this one. 

All three angels went to Ed’s magical workshop for repairs. They may want to ask about a frequent customer card, as they’ve been there before, and will probably end up there again. His rates are very reasonable, he does outstanding work, and he always manages to work in the casualties resulting from my carelessness.

This angel sustained the most extensive yet least noticeable damage. She pretty much snapped in half, suffering internal injuries but held it together cosmetically. You can see that she now has a long scar all the way across her middle, which is prescient as that’s what I too will have after reconstruction, since they’re gonna cut me hip-to-hip to harvest the skin & flesh to rebuild me up top. Ick. I wish I could manage as serene an expression as this Angel of the Heart in the face of my trauma, injuries, and recovery.

The Angel of Hope needed limb restoration, but thankfully she managed to escape the accident with her right arm intact, since it holds her lantern that she uses to watch over her careless charges. A single amputee is bad enough; a double would have been really tragic. She also lost part of her ponytail, but as we all know, hair loss is temporary, and hers did magically grow back at the workshop, and her scars are barely noticeable.

Sustaining the most overall damage was the Guardian Angel and her young companion. The decapitation was especially devastating, and sadly his head was never found. I wouldn’t be a bit surprised if Harry the eating machine found it and devoured it before he realized it wasn’t actually food. She also lost her head, but I found it and it, along with her hand, were restored to their previous state.

Thanks to everyone who wrote, called, or emailed with concern and support about these lovely ladies. Let’s hope they stay in one piece for a while.

Fun with t-shirts

Posted: February 3, 2011 | Author: | Filed under: breast cancer | Tags: , , , , , , , | 8 Comments

I’ve been wearing this shirt to the gym (thanks, Jodie!) and always get comments on it. Positive comments that is. At first I was self-conscious about wearing it, then I said to hell with that, I’ve been through a lot so I’m going to wear it proudly. Kinda the flat-chested girl’s version of  “If ya got it, flaunt it.” I’ve no longer got “it” or “them,” as the case may be, but I can certainly flaunt my survivor self.

It’s a good thing the shirt explains everything, though, because when I first started back at the gym after a long absence (thank you, mycobacterium, you SOB), one of the other regulars there asked our trainer what was wrong with me, because something looked different but she couldn’t put her finger on it.

Hmmmm, I wonder what it could be? Maybe the total absence of breasts? Maybe the evidence of rib cage poking through where normally there would be a little padding? Or my inability to extend my right arm fully (I miss you, lymph nodes)?

Well, thanks to the shirt, no one needs to wonder. It’s cleared up and we can move on…to the next shirt.

I can’t wait to wear this one (thanks, Kayte!), right after I get reconstructed. 

Wonder if they’ll let me wear this in the hospital, instead of a scratchy gown.

Now that I have a surgery date…

Posted: February 2, 2011 | Author: | Filed under: breast cancer, drugs, infection | Tags: , , , , , , , , , , , | 5 Comments

Now that I have a surgery date, if you feel compelled to join the Greek chorus that’s asking if I really want to have the surgery, don’t.

Just don’t.  

I don’t want to hear it.

I don’t need to hear it. 

Isn’t the fact that I have a surgery date evidence enough of my decision to go forward?

If I didn’t want to have the surgery, would I really have a date? Would I be putting myself through the mental anguish that accompanies such a decision and the days that stretch on between said date and today?

Sometimes I hate people. 

Mainly those who say stupid things, but Sarah Palin & “President” Mubarak are on my list too. If you like either of these idiots, you may want to unsubscribe from this blog, because I will most likely rip on them and their idiot-ness a lot, esp when I’m in a foul mood like I am now. And if ripping on dumbasses makes me feel better, then Katy bar the door because I’m gonna do it. 

So there.

And don’t tell me that people mean well, and sometimes they just don’t know what to say. They can suck it. If it’s that hard to come up with something not stupid to say, then perhaps they should zip it.

But back to the surgery. Reconstruction is a big step. It’s a scary step. It’s a horrifying assault on my already-beleaguered body. If things were different, I wouldn’t be in a hurry to do it. By “things” and “different” I mean the path of destruction left by the blasted mycobacterium.

I hate that myco almost as much as I hate Sarah Palin. Sheesh, just typing her name makes me mad.

Ok, reigning it in.

That darn mycobacterium wrecked things up good. If it was just a question of having a flat chest, I’d be in no hurry for reconstruction. I kinda like my flat chest. It’s simple. It’s low-maintenance. I never have to wonder if people are paying attention to what I’m saying, because they’re certainly not distracted by cleavage (there is none). But thanks to the infection and subsequent tissue excision (gross, I know), it’s a mess that’s gotta be fixed.

And thanks to the infection, I can’t just pop in the implants and go along my merry way. I remember being asked as a kid if I had to do everything the hard way (I was a little stubborn back then). The answer is yes. Yes, I do.

I do not like surgery. Or hospitals. Or hospital gowns. Or hospital linens (scratchy, so scratchy). Or hospital food. Or the hospital smell. Or needles. Or being an invalid. Or depending on other people. Or waiting on other people to show up and do what they need to do so I can get outta there.

I do like the drugs, though.

But not enough to rush into a big, long, complicated surgery. So while I don’t actually want to have this surgery, I need to, to clean up the leftover infection mess. It’s going to be hard, and the recovery will be long. I won’t see a tennis court for several months. I will once again be at the mercy of other people’s kindness. But I need to do it, so I will. And I will leave you with another mantra from my childhood: If you can’t say anything nice, don’t say anything at all. Thank you, Thumper. Preach it, little rabbit. 

And if you can’t follow Thumper’s advice, and still feel compelled to tell me how dangerous this surgery is, or how complicated, or ask me to think about how it might affect my kids, or any other stupid thing that flies out of people’s mouths, then consider this: 

Official diagnosis

Posted: February 1, 2011 | Author: | Filed under: breast cancer | Tags: , , , , , , , , | 4 Comments

While looking through my paperwork from Dr Spiegel and mapping out the next month of pre-op stuff I have to do, I found something that made me laugh out loud.

I hope you find it funny, too.

If you don’t, there’s something really wrong with you.

This is the orders for the EKG and labwork I have to get done before my reconstruction. 

The handwriting is kinda hard to read, and the picture is pretty fuzzy, but if you look closely you’ll see that for Diagnosis, it says “absence of breasts.”

Other than laughing hysterically, I don’t know how to respond to that.

One more thing to worry us

Posted: January 28, 2011 | Author: | Filed under: breast cancer | Tags: , , , , , , , , , , , , , , | 2 Comments

Because breast cancer survivors don’t have enough to worry about, now there’s this: the FDA reported that women with breast implants have a small but slightly increased risk of developing anaplastic large cell lymphoma (ALCL), a rare disease typically affecting 3 out of 100 million women.

While ALCL is rare, it seems that women with implants may have a “very small but increased risk of developing the disease in the scar capsule adjacent to the implant.” ALCL is a cancer involving cells of the immune system, which scars the fool out of me.  Scarier still is that this immune system cancer can appear anywhere in the body. ALCL is not breast cancer, but it can show up there, or anywhere else. Thankfully it is very rare: 1 in 500,000 women a year in the United States, and it’s even more rare to develop ALCL in the breast (3 in 100 million). Whew!

And while all women with implants could be at risk, whether their implants are for reconstruction or recreation, for the purpose of this post, I’m going to focus on breast cancer survivors who have implants.

WTH???

Really?? After surviving breast cancer, enduring reconstruction and getting on with life, we also have to worry about this? You’d like to think (at least I would) that as a cancer survivor, you’ve suffered enough (I know I have). But apparently there’s no end to the the amount of suffering spewed by the dreaded cancer.

I’m so sick of cancer.

One of my bookclub buddies, herself an 11-year breast cancer survivor, just had to make a quick run to Alabama to visit her “surrogate mom” at the lake who appears to be losing her cancer battle.

My beloved aunt is recovering from surgery last week to remove part of a stage IV glioblastoma. I don’t even need to tell y’all how bad a stage IV glio is. Get well soon, Thea Sophia.

I saw a story on the Today Show about a 3-year-old girl who had a mastectomy (yes, you read that right, she was t-h-r-e-e years old) for a rare but early-striking form of breast cancer.

My tennis teammate and dear friend who endured diagnosis and a double mastectomy and has completed 5 of her 6 chemo treatments is battling hard, and she is an admirable warrior. This stupid disease has changed her body and robbed her of tennis for all these months. It’s forced her to live way outside of her comfort zone and to learn lessons she’d rather remain ignorant of, all the while still driving carpool, making dinner, overseeing homework, and keeping the household running. The battle has taken a lot out of her, but she still has a lot of fight left in her. And she looks amazingly beautiful in her sassy headscarf. Chemo may have taken her hair and has tried to commandeer her brain, but it can’t take away her smile and her fortitude.

I miss my mom every single day, and every single day I curse the wretched disease that took her life, too young and too soon. I could write all day and all night and not run out of things I miss about her. Stupid cancer.

Then there’s my own cancer battle.

I’m not a candidate for implants myself, since the post-mastectomy infection that snaked through my chest wall took its pound of flesh from the right side. I thought I was getting the short end of the stick by having to endure a much more complicated surgery and recovery than that required for implants. Perhaps I was wrong. Although who knows what the FDA will find as risky for breast cancer survivors who opt for different reconstruction methods. We can’t win for trying.

The good news is that I do indeed have a surgery date (gulp). My impatience, which I blogged about on Monday, paid off, so all those naysayers out there who were going to tell me that good things come to those who wait can shut it. Thank you.

Sonia, Dr Spiegel’s nurse, called me Tuesday morning to tell me that Dr Spiegel and Dr S had a meeting of the minds and found a date that works for both of them. Gulp.

It’s March 2nd.

Texas Independence Day. My cousin Ross’s birthday (hey, cuz). Also celebrating birthdays on that day: Dr Seuss, Sam Houston, and Reggie Bush. Oh, and my new boobs.

No less than what she deserves

Posted: January 27, 2011 | Author: | Filed under: breast cancer, kids | Tags: , , , , , , , , | 4 Comments

While packing Macy’s lunch this morning, I was picking the seeds out of each cube of watermelon (because that’s what gives meaning and adds fulfillment to my life as a suburban at-home mom).

I told her that it’s ok to eat watermelon seeds; that you won’t grow a watermelon in your belly. She used to believe that, when she was really little. Sometimes I miss those days.

Besides, the seeds of a seedless watermelon are so tiny they’re barely noticable. Not like the hefty black watermelon seeds of my childhood. I’d like to see kids these days try to have a seed-spitting contest with the new generation of seeds.

But back to the conversation with Macy.

She didn’t pause for even one second to ponder the incredible gift of fortune that is hers, simply by being born into a family whose matriarch set such a high standard of child-rearing and lunch-packing that her descendant (that’s me) is seriously picking seeds out of watermelon cubes at 6:45 a.m. on a Thursday. Nor did she remark upon the bounty of produce that is available in Texas in January. She knows not of seasonal fruits & veg.

She did not bow her head momentarily in thanks for the numerous gifts that are hers, just by chance and birthright.

She wanted to know one thing: if you did grow a watermelon in your belly, would you poop it out or barf it out?

Because I’m so busy picking seeds out of watermelon cubes and endlessly matching orphaned socks warm & fluffy from the dryer, I didn’t have time to go to med school or get an advanced degree in child psychology or pursue a curriculum of horticulture. So I don’t know the answer to her question. I’d guess both.

In an effort to instill my daily dose of guilt into my kids’ life, I told her it must be really great to have someone make your lunch every day. Breakfast, too, for that matter. I could get used to that. (Except, let’s be honest: I’m pretty picky and would likely end up re-doing it anyway, while trying to avoid making eye contact with the gift horse.)

I asked her this: when I’m old and gray and have no teeth, will you pick the seeds out of my watermelon for me?

She said: If you don’t have any teeth, how are you going to chew? Will I have to do that for you, too? Why not just get dentures?

Why not indeed. 

← Older Entries
Newer Entries →