Cruel, cruel world

“Every death is a wakeup call to live more fully, more completely and more presently.” — Oprah

How ironic that I came across this quote today, the same day that I came across this on my patio (Julie A, stop reading now because here comes the icky part; Christy and all my tender-hearted animal-loving friends, I apologize in advance for the graphic nature of this post and the photos:

I consulted the Houston Audubon Society website and it appears to be American Crow. It’s smaller than a Grackle, which are very common around here, especially on the patios of Mexican restaurants where they beg for chips.

Payton and I came home from the gym but didn’t notice the crow on the ground. He went back into the garage to carry in the loot from Academy, and as he walked up to the back door I heard him say, “Ewwww, gross!” I asked what was gross and he said there’s a dead bird on the patio, and before I could get out there, Harry had the bird in his mouth (he is a retriever, after all).

I don’t think Harry killed the bird — he barks a good game, but when push came to shove, I think he’d be too squeamish. He prefers to do his hunting on the kitchen counters when he’s all alone, and no one can see him scarf down a loaf of bread. If Payton and I had happened upon a downed loaf of bread, I would convict Harry in a heartbeat. 

Is this face of a bird killer? I think not.

True, Harry has little patience for birds and barks his fool head off at them. He especially gets rattled by the ones that perch on the peak of our roof. They pause there to rest a minute or sing a little song, and he goes bonkers. If we say “bird” to Harry, he’ll start barking, lifting his two front paws off the ground for emphasis. However, I don’t think he’s a cold-blooded killer.

I think that unfortunate crow hit one of the plate-glass windows that line the family room and overlook the backyard. This has happened once before, and the bird was stunned and knocked for a loop, but eventually recovered enough to fly away and hopefully live a long, happy, song-filled life. That time, I heard the thump of bird body colliding with glass. This time, I did not.

Nevertheless, I left the crow when he was for a while, hoping the fluttering of his tail feathers meant he was coming to and rallying. Alas, it was not to be. There would be no rally for that crow.

Sad, sad, sad.

And also troubling, because with 2 dogs in residence and others who visit regularly, that dead bird could easily become a mess of feathers and innards if left too long. It might also scare the tar out of Pedey the Weasel Dog, who is regularly frightened by his own shadow. If left too long in the intense Houston heat, it would start to stink to high heaven sooner rather than later. And, last but not least, I did not want Macy to see that dead bird. My little zookeeper has a heart as big as Texas, and her love of animals is legendary. In fact, she is at this moment at the Houston Humane Society’s Companion Camp, where she is no doubt loving on every animal in the building.

So how to dispose of the dead bird on my patio? It seemed somehow wrong and not befitting to just pick it up in a plastic bag and dump it in the trash. Wrong and smelly, too, since the trashmen don’t come for another couple of days. I can imagine that a dead bird inside a black trash barrel in the 90+ degree heat would be plenty nasty come trash day. I think the trashmen would have to take the whole barrel.

Enter “The Scoop.”

Anyone who has a dog knows what “The Scoop” is for, and those of you unfortunate souls who don’t have a dog can probably figure it out quite easily. Our Scoop gets plenty of use in our yard, and I’m kinda nutsy about cleaning it real carefully after each use, so I figured this was the best option. 

Poor little crow. He fit quite nicely in “The Scoop” and as much as I tried to avoid looking right at him, I couldn’t help but notice how delicate yet sturdy his feet were. 

He looks like he’s just sleeping in “The Scoop,” right?

The Houston Audubon Society says the American Crow is “highly intelligent” and leads a “complex life.” They hang together, forming large communities, and don’t breed until they are 4 or 5 years old. They have strong family ties and tend to stay together.

Great, I can now picture a crow family worried sick about their relative who hasn’t returned to the nest. They may be doing a fly-over right now, fanning out across the neighborhood searching for their lost guy.

Now I’m really glad I didn’t just dump him in the trash barrel. I carried him, in “The Scoop,” across the street and laid him in the shady grassy area next to the lake. It’s under a big tree, so maybe the search party will spot him, and their worry can morph into sorrow.

Or maybe the vultures will get to him before then. Fish gotta swim, birds gotta fly, and vultures gotta eat. Circle of life, I suppose, but it still makes me sad. I won’t go so far as to say that this crow’s death is a wake-up call that makes me want to live more fully, more completely, and more presently, as Oprah advises. No, I have cancer to thank for that. But having been through the “cancer journey” myself and having watched my sweet mama go through it, my heart is just a little more tender. Just a teensy bit broken. While joyful about survival and proud of having triumphed, going through such an immense experience produces little fissures, tiny cracks.

Yet, as Harold Duante-Bernardt so poetically pointed out, “We are all broken and wounded in this world. Some choose to grow strong at the broken places.”

So while I keep peeking out the front windows to the shady spot across the street, under the big tree by the lake, watching for a crow family in mourning or a gaggle of hungry vultures, I will resolve to grow stronger at the broken places.

 


Dad’s Day

I write a lot in this space about my sweet mama, and how much I miss her since cancer snatched her away in October 2006. I don’t write as much about my dad, and today, on Father’s Day, it’s high time I remedied that inequity.

My dad and I are a lot alike: opinionated, confident, and possessing a strong sense of right & wrong. He was the originator of the “it’s just what you do” idea. He lived it and preached it. One of his many sayings is “Good things happen to people who get up and go to work every day.” He instilled a rock-solid work ethic in my brother and me, and that is one of the many things for which I’m grateful to him.

It all started, I guess, when my dad’s dad, Elias “Louis” Katapodis, was born on July 20, 1893 in the village of Haradiatika, on the island of Levkas, in western Greece off the Ionian Sea. Life was hard, and Louie wanted more.

At age 21, Louie emigrated from Greece to the United States in pursuit of a better life. He and his brother John (for whom my brother is named) departed the port of Patras, Greece, on the passenger ship Patris and arrived at Ellis Island April 5, 1914. I have copies of their ship’s passenger list as well as Louie’s Petition for U.S. Citizenship, dated January 19, 1925. After landing at Ellis Island, Louie and Uncle John traveled to Iowa to work on the railroad, and Louie ended up in Sapulpa, Oklahoma, where he met Mona Mae. He married her and they and had 3 boys. My dad, Leon, was the middle child, on the far right.Louie was immensely proud of his U.S. citizenship, and apparently hung the framed document in his bedroom. He had just enough formal education to read the newspaper and pass the citizenship test, but  he could never read cursive writing, and neither he nor Mona Mae ever learned to drive a car. Louie learned enough math to work a cash register, and worked hard. He had a reputation as a prankster and was always smiling.

Sadly, Louis died before I was born so I never met him but I’ve heard about what a great man he was. He came to the Unites States speaking little English and with very little money, but with hard work and determination–the typical immigrant story–he prospered. He raised his boys to love their family and their country, and he instilled the value of a good education. He taught my dad how important it is “to keep your nose clean” and he wasn’t talking about hygiene. My dad passed that lesson on to my brother and me, and I distinctly remember him talking about how his greatest fear as a child was that he would disappoint his dad. Me, too.

One of my great regrets is that circumstances never allowed me to meet Louie, my Papou, but I’ve been told my entire life that he would have loved me, and I’m sure the feeling would have been mutual.

My dad was a star athlete, excelling in both baseball and football. He passed that trait on to his grandkids, no doubt. In fact, my dad taught Payton to hit a pitched ball at age 2, and perhaps started Pay’s lifelong baseball love affair. Thanks to my dad’s genes and tutelage, Payton looked like this on the ball field, even at a young age. 

My dad not only passed on the baseball legacy but also loves watching Payton’s games. He thinks nothing of traveling 525 miles one way to be in the stands for Pay’s Little League games and for Pay’s year-round team’s many tournaments. Last year, Dad traveled to watch Pay’s All Star team in the State Championship in Tyler, TX, cheering them on while I was stuck in yet another hospital room.

Watching Payton play baseball is one of my dad’s favorite things, followed closely by hanging out with his grandkids. He’s been there from Day One in each of his 4 grandkids’ lives, and in fact, on the day that Payton was born, Dad was visiting my nephew Andrew in Kansas. When he got the word that Pay was making his appearance into this world a few weeks early, he jumped in the car and high-tailed it across 3 states to meet his second grandson. When Macy was born, he kept Payton for us and when the coast was clear and she was safely delivered into the world, Dad brought Pay up to the hospital. I will never forget watching him standing over her incubator with a tear of joy rolling down his cheek.  Wish I had a photo of that!

He never got tired of holding his grandbabies, and he’s logged a lot of hours chasing them around playgrounds, taking them to the zoo, and relishing their company.

I love how you can see Dad just over Andrew’s shoulder in the left corner of this photo. Three cousins having a snack while their Papou watches over them is pretty good stuff.

My parents loved their grandparent role immensely, and I know my dad is as sad as I am that YaYa didn’t get to see her grandkids grow up.

Dad has spent a lot of time hanging with my kids in the pool,

and he’s been around for the first day of school. 

He was proud to be a featured guest for kindergarten read-aloud, and Macy was so happy to have him there. 

Holidays are a special time for my dad, and he loves to have everyone gathered around a table laden with good food. That first Thanksgiving after my mom died was brutal, but even though it had only been a few weeks since he lost his beloved Bride, he insisted that the show must go on and he proudly presided from the head of the table. My mom would have liked that.

Every Christmas, the biggest and best gift comes from Papou, and he’s always there to gather up the trash, insert batteries into new toys, and open the wine and carve the roast beast. 

My dad has taught me a lot of things over the years, from looking both ways before crossing the street to the satisfaction of a job well done. He’s been a guiding influence for my brother and me in how we raise our families. He set the example we follow in parenting: love your kids, teach them well, call them out on their wrongdoings, and have lots of fun. He used to give me his chewed piece of Juicy Fruit gum every evening when he got home from work. The germ-o-phobe I grew up to become would never chew someone else’s already-chewed gum, but as a kid I didn’t think twice about it, and it seemed like a special ritual between the two of us, one of many special things we shared. He sang “You Are My Sunshine” to me every night before bed as he tucked me in.

When my mom was diagnosed with cancer, he was by her side every step of the way. When it became evident that her cancer battle was one she would not win, he faced that cruel truth head-on; a great and important lesson for me and one that I would employ just a handful of years after her death. If it freaked out my dad to learn that his little girl also had cancer, he never let on. He simply told me that he had every confidence that I would map out a plan to deal with it and execute that plan. He has supported and encouraged me, never missing an opportunity to tell me how proud he is of how I’ve waged my battle, and reminding me that my mama would be proud, too.

While I no longer need my nightly song and tuck-in, I still love my daddy and feel so grateful to have him in my life.

Happy Father’s Day to all the daddies out there.


My other life

One of the many blogs I read is a fine one published by a lovely woman named Marie in Ireland. It’s called Journeying Beyond Breast Cancer, and Marie’s goal via her blog is to provide some guidance on how to navigate the “post-treatment limbo” that cancer survivors find themselves in once “it” is all “over.” There’s plenty of information out there for those who’ve recently been diagnosed and for those who are actively in treatment, but not much out there for the “what next?” portion of the “cancer journey.” I was honored to be a guest blogger on Marie’s site in February, and I always come away from Marie’s blog feeling enlightened and empowered. (And really, I’m not just sucking up because she’s giving away a copy of Sheryl Crow’s new cookbook, which I really, really, really want. I mean it. Marie’s blog is fantastic.)

Marie posed a challenge to her blog community to write a post about our “other” lives, about who we are when we’re not fighting cancer. We cancer-chicks who blog tend to know a lot of intimate details about each other, as is the nature of the beast we all have in common, but we don’t always know a lot about each other besides the beast.

Never one to back away from a challenge, I ruminated on my B.C. (before cancer) life. It took me awhile to remember, so wrapped up have I been in the cancer-vixen lifestyle. I racked my brain to recall what it was that I used to do with myself absent multiple doctor’s visits, endless testing, countless trips to the pharmacy, and hours of feeling yucky.

It was a perfectly ordinary life. I’m not one for a lot of drama; I’ve been to high school, and don’t have any desire to replay it. I have no patience for grown-up “mean girls” and so have a tight circle of true friends. We live an ordinary suburban life, most of us at home during the day, having forgone careers to raise kids, although several of my besties do work outside the home and do amazing things like crude trading and nursing. Ok, I’d better clarify: one friend trades crude oil, and another is a nurse. Since this blog is usually about all things boob-related, I don’t want to give the impression that I’m talking about crude nursing, as in off-color breastfeeding.

So my life was pretty ordinary, pre-cancer.  Ordinary, but good.

I left my editing job 12 years ago, when Payton was born, to become a full-time mommy, and after Macy joined the herd my workload doubled but so did my heart. As my kids got older and started school, my life took on the pattern of theirs and I volunteered at their school a lot while also spending some time doing my own thing. I walked that fine line between being a full-time mom but still being my own person. Like millions of other moms at home raising young kids, I packed my kids’ lunches while doing laundry and tried in vain to keep up with the household chores. I stole some time from the domestic hustle & bustle every day to go to the gym or play tennis, and made my to-do list while waiting in the carpool line.

My pre-cancer schedule was pretty full of ordinary things: kids’ dentist appointments, play-dates, sports, lessons, and parties. I served on the PTA board, was a tenured room mom, and worked the school book fair every year. Shortly after my mom died I was at the book fair, surrounded by books and overcome with loss. I missed my mom so much; she was an avid reader and we always talked about the latest stack of books on our nightstands. I met another mom who was volunteering that day. Jenny was new to our school, having recently relocated to Sugar Land. We chatted about books, and she shared with me that her dad had recently died, and she was swamped by grief, too. I decided then and there to start a book club, and to invite her to join me. Instead of allowing my sadness to rule, I wanted to find a way to diffuse it.

I had no idea at that time that Jenny was a breast cancer survivor and would become my mentor and tour guide through the “cancer journey.”

Meeting Jenny was an extraordinary event in my ordinary, pre-cancer life. Along with my Runnin’ Buddy and our nurse practitioner friend Laura, Jenny and I comprise a quartet of book-lovers who meet once a month and discuss the book we’ve read. Five years later, we’re still going strong. We’ve read some amazing books as well as a few clunkers, and are constantly on the look-out for the next great read.

When I first started running the book club, I would research book group discussion questions and print out a list for each of us. Over time, I’ve gotten lazy and now just highlight an interesting passage, a particularly pivotal plot point, or a bit of prose that speaks to me for whatever reason. This is the basis for our book club’s discussions nowadays.

I’ve always loved books, for their ability to transport us to other worlds. The written word is precious to me, and I suppose it’s in my genes; my mom was an English teacher, after all. I chose my college major (journalism) based on the right ratio of the least amount of math & science and the maximum amount of literature. My career in publishing and editing surprised no one, and I continued to read copiously after leaving the industries for motherhood. True, most of what I read was written for the preschool crowd with a heavy emphasis on pictures, but I started building my kids’ libraries long before they could read. I suppose it was perfectly natural for me to start a book club.

Just in case you’re wondering if I sit around and read all day when I’m not fighting cancer, the answer is no. I spend as much time as humanly possible playing tennis, then I sit around and read for what’s left of the day.

Ha!


Art with attitude

I saw this artwork somewhere, don’t recall where, and its combative honesty spoke to me.

Big surprise.

As I prepared for Aunt Sophia’s funeral yesterday, thoughts of her sluiced through my brain, like the edge of the ocean lapping at my bare feet.

She would like this artwork. 

I know, I know, artwork like this isn’t everyone’s cup of tea. I like it, but don’t want it plastered all over my house. I do have this in my bathroom, though:

I find it helpful as I go about my daily ablutions, especially on days like yesterday as I made myself presentable for an event I dreaded attending.

No one likes going to funerals. Well, if there are people who do, I don’t get it. There probably are people who like it. If there are “extreme couponers” willing to spend hours preparing for and doing their grocery shopping, I guess it’s possible that there are people who like going to funerals. Yes, I can see how some people need closure, one of the most overused words in the English language. Ok, I can see how some people find comfort in the ritual that envelopes saying that final good-bye to a loved one. I also can see how some people enjoy the socializing that occurs before and after, in which people from near and far come together for a sad and solemn occasion.

But wouldn’t it be nice if we were spending time, good quality time, with our loved one, instead of saying good-bye to them?

I definitely needed an extra surge of power to prepare for Sophia’s funeral. And if that surge comes from a snarky piece of art in my bathroom, I’ll take it. In addition to facing my own demons of funeral-memory-overload from my mom’s event in October 2005, I also had the momentous task of getting my dress-clothes-hating son kitted out in appropriate funeral attire. Not that this task was on par with the Navy Seals taking down Osama bin Laden, by any means, but it was complicated and fraught with peril.

There were multiple-stage negotiations, some of which turned hostile; trial runs and practice fittings; surveillance to be done, and more than one recon mission to procure the necessary supplies to make this task a success.

With supplies gathered from multiple trips between our house and Amy’s house and two trips to Target and with fittings complete despite tricky buttons, we were good to go. My boy had the dress clothes he needed for two occasions. Back-to-back dressing up was torture for him, but like any good soldier, he dug deep and found the resources to stay strong and carry on.

He noted that Aunt Sophia was one of the few people on this Earth for whom he would subject himself to the torture that is dressing up. Not once, but twice, and not spaced out over the passage of time but one day right after the other.

He didn’t want to, but he did it. When I commented that while I know he hates it, he actually looked quite nice, his reply was “Your opinion.”

Ooooooo-k.

Back away slowly from the crazy boy.

As we saw our relatives gathered at the funeral home and then again at the church, I murmured, “Don’t comment on his outfit. Pretend everything is normal.” His smartened-up  look was duly noted but not commented upon, and peace was restored in our little kingdom.

The memorial service the night before the funeral was sad, very sad. But good. Lots of reminders from the priest to remember the good times, to not let our sadness override our happy memories. A whole lot of talk about Sophia being in a better place. While I can’t deny that her being free from the horrors of a brain tumor is a good thing, the “better place” idea is cold comfort to me.

I certainly don’t want her to still be here, suffering and unable to communicate, a prisoner in her uncooperative body. I most definitely don’t want her to be subjected to living a life devoid of independence, something so very important to her. I don’t even want her to have to live in a skilled nursing home instead of her own neat & tidy, cozy home that was so much a part of her.

What I want is for her to still be here, healthy and vibrant, with no trace of glioblastoma or any other disease. What I want is to be sitting at her kitchen table, watching her fold tiropitas as if it’s the easiest thing in the world (and knowing that I’ll be going home with some of those little yummies). What I want is to be in her pool, watching the delight on her face as she presents my kids with their own individual pool floats: a huge, inflated baseball glove for Payton and a hibiscus-flower decorated inner tube for Macy. What I want is to walk into her cool, dark garage, with the musty smell I remember from childhood, to grab a popsicle from the deep freeze. What I want is to be calling her on the phone to tell her we’re having a family party, after the kiddie party, for one of my kids’ birthdays, and to listen to hear volunteer to make the cake. What I want is to see her walk through my door and to hear her say, “Hi, Nance.”

What I want, I guess, is to stop time. To freeze our lively interaction. To halt the passage of time and the acquiring of diseases that rob us of our health, our independence, and our lifestyles.

And while I’m at it, I sure would like to have the same thing for my sweet mama. To have her sitting next to me at Sophia’s table, assuring me that folding the perfect tiropita is easy. Just pinch and seal and brush with melted butter, and the filling won’t leak out during baking. To have her in the pool with my kids and me, mediating their squabble over whose turn it is with the blue pool noodle. To be grabbing her a Diet Coke from the fridge in the musty garage. To hear her voice on the phone, even if it’s the 11th time she’s called me today. To know that she’ll be at the family after-party, scurrying around my  kitchen and telling me how to do a task I’ve done a thousand times, but which she thinks still requires her expertise.

Is that really asking so much?

Apparently so.


This little piggy…

I know I teased you yesterday by mentioning the new, custom logo for this little blog but not unveiling it until now. I’d say I’m sorry but it would be insincere. There are so few things over which I have control on this “cancer journey,” so when I can control something, like the timing of an unveiling, I will do it and do it unabashedly.

But now, without further ado, I give you the official logo of The Pink Underbelly. 

There’s a lot of meaning contained in this little piggy. It’s a visual representation of the long & winding road that is my “cancer journey.”

The pig carries weight because it’s pink, the international visual cue of breast cancer. But more importantly, because pigs are very popular and prevalent animals in our house. Macy has loved pigs since a very young age and has fueled that love affair for all of her 9 years. Most little girls love horses or kittens or teddy bears, but my independent-thinking, devil-may-care girl marches to her own beat (usually loud and heavy-metalish. No Justin Bieber or Miley Cyrus for her). Her love of pigs is so all-encompassing that several friends of mine have presented her with pig trinkets, from pens to tiny flashlights to coffee mugs, that they’ve seen out & about while doing their daily work or running errands, and when they see a pig, they think of Macy. Love that.

David, my art consultant for this little blog, put a lot of thought into the pig’s tattoos. Since he did the heavy lifting, he should get to explain it:

“The angel wings are for Barb (cuz I believe in them), but I also added a MOM heart (cuz you don’t).  The USDA bacteria free logo is to celebrate your being taken off antibiotics.  The breast cancer awareness ribbon is frayed on the ends to represent your struggle.  The barbed wire (also a Barb reference) is just to be a bad-ass.  The slope-intercept formula, I added for sentimental reasons.”

Editor’s note: Barb is my mom’s name, and David knew her before cancer snatched her away from us and so callously extinguished the bright light that she was. Anyone who knew her loved her, and David is no exception. That he chose to honor her makes my sad heart smile a little, because it’s just so stinkin’ unfair that she’s not here with  me, especially now that I’m in the winner’s circle after the brutal battle that was Nancy vs. Breast Cancer, and then because one brutal battle wasn’t enough, Nancy vs. Mycobacterium. One thing my sweet mama loved was a party, and being the consummate hostess-with-the-mostess, I think she would have thrown me one hell of a victory party, with enough homemade coconut cream pie for everyone.

Because I’m feeling generous, and because my mama would want it this way, I’ll share her coconut cream pie recipe. If you want it, let me know. If you can figure out how to make her crust taste like she did, definitely let me know, and I will be at your house with a fork. If you need help with the slope-intercept formula, talk to David. I had a lot of trouble with that one, back in the day.


I hate Mother’s Day

I wasn’t going to blog about this, because I don’t want to sound like a broken record about how much I miss my mom. That’s a worn-out, overplayed, scratchy, non-Top-40 hit, for sure. It’s a sad song about gut-wrenching loss and about life going on despite the hole in my heart. You know that one person you always want to invite to the party, because they can talk to anyone, they bring a light & an energy into the room, and they become the most fun person there, regardless of the guest list?And because they come early to help set up, bring food, and stay late to clean up? That was her.

So I wasn’t going to write about her this year on my most-dreaded holiday. But then I remembered that blogging isn’t exactly a customer-service driven business. At least my little blog isn’t. It’s neither a business nor does it have customers. It’s my blog and I can write what I want to. So there. If I want to bitch & moan about missing my mom and hating Mother’s Day, I can and by golly I will.

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For the first year since my mom died, I wasn’t dreading Mother’s Day as much as I usually do. Usually, I feel a terrible tug between wanting to savor my kids and their homemade, heartfelt gifts yet feeling more inclined toward wishing the day would just end already. I despise the advertising blitz that leads up to Mother’s Day and think genuinely unkind thoughts about the merchants that hawk their wares in an effort to extract the maximum dollar amount from adult children filled with guilt about not doing enough to honor Mom. I’m usually envious of my friends who have to juggle their mom’s wishes for the day with their own. Even thought my day can be whatever I want it to be with no juggling required, I never feel that excitement that comes from being treasured, being pampered. The day always, always, always ends in crushing disappointment.

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But this year, I had resolved to do better. I was going to be better. I read several blogs written by members of the pink-ribbon sisterhood who also lost their sweet mamas to cancer. My blog buddy Lauren’s Mother’s Day entry in particular spoke to me. Her blog has led the way and shed much light for me as she is four years ahead of me in the “cancer journey” and the happily-ever-after life of a survivor with no mom of her own and 2 kids to raise. Reading this first thing on Mother’s Day this year reaffirmed my goal (stupid as it was) to enjoy the day. This line especially made me want to make it a good day:

“I am so thankful that I had her for a mom, however short a time it was. For how she loved and nurtured me to the tips of my toes, and for whose warmth I still feel surround me, especially when it is dark and it seems everyone else is gone.”

Yes, I still feel my mama’s warmth surround me, especially during the really rough times. Thanks, Lauren, for the reality check; you know I needed that, girl.

My decision to make it a good day, despite the hole in my heart, was affirmed by the supremely wonderful and true friends I have who know it’s a shitty day for me that never fails to disappoint. No less than 11 friends texted me Sunday morning, some to say “have a great day, I love you” and some to say “I know this is a hard day and I’m thinking of you,” and a few to remind me how lucky I am to be here, after waging an uncertain battle against not 1 but 2 vicious beasts. And a couple tried to make me cry (which is not easy to do) by telling me that my mom is proud of me and is thanking God, in person, for my triumph over cancer and mycobacterium.

Another blogger friend, also named Nancy, wrote poignantly about spending Mother’s Day without Mother. Like me, she spent last Mother’s Day trying to pretend everything was normal while staring down an uncertain future filled with tests, scans, surgery, and pathology reports. She writes:

“Even now, she would know things to say to make me feel better. She would be calling to see how I am doing. She would feel my pain and understand my fears, even if she had not had breast cancer herself. My mother would have understood about the ache I sometimes felt deep within and about the terror of facing life without breasts, or hair, or worse. She would have understood what it felt like to be a woman living on the edge unable to stop thoughts about dying from simmering during the wee hours of the night. She would have understood why I cried sometimes without even knowing the reason for my tears. She would not have cared if I was irritable, blotchy-faced or just plain unpleasant to be around. She would not have thought such things were even odd. She would have loved me and understood because that’s what mothers do.”

Yes, indeed that is what mothers do.

Marie writes a super-informative blog called Journeying Beyond Breast Cancer. Her mum is still on this Earth, but suffering from dementia, so Marie understands how hard Mother’s Day is. Her beautifully written entryabout the painful topic resonated with me and reminded me that our mums don’t have to be gone to leave us feeling empty. Marie’s quoting of Persian poet Rumi made me smile: “Wake at dawn with a winged heart and give thanks for another day of loving.”

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I’m trying, Rumi, I’m really trying.

Another blog I love, “dear mom can you get letters in heaven?”  is written by a young woman who lost her mom to ovarian cancer. Her take on Mother’s Day is so sweet and so heartfelt that it’s almost painful to read, but her outlook save it from being too sad to bear. Like me, she usually hates every minute of Mother’s Day, but this year came to the realization that her mom is happy, and that sustains her.  Sami writes something that I feel so deeply, and I’m grateful to her for putting it into words. The weird dichotomy of feeling grateful to have had an awesome mom while still feeling so very, very sad that she’s gone:

“It’s just so bittersweet. I feel lucky to have known you, and I always will, but there’s that part of me that will just remain sad. I’m sad that I will never buy you another sappy Mother’s Day card or cheesy gift; I’m sad that I will slowly forget exactly how your voice sounded; I’m sad that you never got the chance to be one of those cool moms on Facebook, or own an iPhone, or watch the season finale of Survivor (and the new season too– you would love it!)”

I too fear that I will forget the sound of my mom’s voice. It’s easy to recall her “sick voice” and the way she sounded while being ravaged by uterine cancer, but I really have to work hard to remember her regular voice. And that’s a shame because she had a great, big laugh that made the world a better place, just by hearing it.  I love but also hate that Sami mourns her mom missing out on Facebook, an iPhone, and Survivor. I could make a long list of similar, everyday things that I hate having my mom miss out on.

One last blog round-up, and this one breaks my  heart into a million pieces. It’s the Carcinista, a blogger I just recently “met” and got to know via our blogs. She was smart and snarky and brutally honest about how she felt going through the ups & downs of ovarian cancer. All the things I aspire to be in my little blog, she was. And I say “was” because smart, snarky, honest Sarah died last week after deciding to stop her treatment.

carcinista.com

She chose quality time with her husband and 2 boys over the certainty of feeling awful and the uncertainty of whether treatment was working, and I admire her for that terribly difficult decision. Even toward the end, when she saw the writing on the wall, she didn’t lose her sense of humor, and she faced the most-unhappy ending with courage and her trademark mission to “wear something cute and make each day count.” She referred to Dana Farber as The Cancer Factory, and I remember laughing out loud at her recounting a terrible visit to TCF in which she was so sick she vomited up her blueberry yogurt, but said  “I’m pleased to notice that I’ve not only managed to keep fuchsia barf off floor and out of hair but also off pristine white tee-shirt. Rockstar.” RIP, Sarah. Your humor and balls-out approach to cancer will be greatly missed.

This year, I tried. I tried to not hate Mother’s Day. I tried to enjoy it, for my sake, my mom’s sake, my kids’ sake. We spent a nice day by the pool with lots of champagne and yummy food, in the presence of 2 of my dearest friends, 2 of my all-time favorite people. I had such high hopes, such great expectations. But in the end, I should have just given up and worn this t-shirt:

cafepress.com


A blow-out end to my cancer-versary

It has been suggested by the author of this little beauty that I orchestrated the death of Osama bin Laden as a bookend to my cancer-versary celebration. He suggested that while I am “a bad-ass bitch” and have kicked cancer to the curb, this may be taking the celebration too far.

Oh, if only I had that kind of power. Oh, the things I could do. And really, who’s to say how much is too much when it comes to celebrating? I was going to write about our trip to the Museum of Fine Arts to see the National Gallery’s Impressionist exhibit yesterday, but this is way more important. Art can wait; the idea of me having that kind of power is intoxicating!

Although I don’t actually have the power to hunt down and kill the mastermind behind our national tragedy, the idea does appeal, and believe me, I have a lot of pent-up energy from my “cancer journey” and would have loved the chance to spew all that on Mr. Pure Evil. Well, it does at least give me an excuse to take a leisurely stroll down memory lane, to the days after September 11, 2001, and the events that changed the world.  I’m glad that President Obama finally has some good news to report.

I can imagine him practically sprinting down this lofty hall of the White House to the press corps, ready to shout the news from the rooftops, but being bound by presidential decorum.

Many things changed when bin Laden brought his personal brand of evil to US shores. The idea that the most powerful nation in the world was not immune to an attack by a crazy man with far-reaching power and an army of jihadists was foreign to us before September 11, 2001. Our sense of security was shaken, and air travel would never be the same.

I imagine everyone has a “where were you on September 11th?” story, much like recollections of where one was when JFK was assassinated. For me, I was chasing a wildly headstrong toddler around and expecting a second bundle of wildness. 

Here I am with Wild Thing #1 in my arms and Wild Thing #2 in my belly at the Sesame Street exhibit at the Houston Children’s Museum. Yes, I notice that the 2-year-old child is almost half as long as me. That 2-year-old is fixin’ to turn 12 and can look me in the eye without a step-stool. But this is what he looked like in the days of the terrorist attack on these United States.

Wild Thing #2 turned out to be even wilder than her predecessor, and has shaken things up to a degree not even I, with my wild imagination, could have predicted. We should have known we were in for a wild ride with her, when she caused some much upheaval from the git-go. Her time in utero was not uneventful, and when she deemed it time to come into this world, she did it with a bit of an explosion. And that’s all I’m going to say about that. With her chubby cheeks and impish grin, she fooled us into thinking we were in control. 

On the day before the terrorist attacks, I had a sonogram to get a glimpse into Macy’s world. She afforded the ultrasound technicians some beautiful pictures of her swimming around in her own private pool. We didn’t want to know her gender before she was born, preferring to be surprised like we were with Payton. There are so few great surprises in life anymore, and to us, the idea of being able to tell our friends, families, and loved ones “IT’S A BOY!” or “IT’S A GIRL!” was pretty special.

We wanted to have that chance again the second time around, and told the technician and the doctor emphatically that we absolutely, positively did not want to know this baby’s gender.

Sure, no problem, they said, and proceeded on with the sonogram, talking in code to describe what they were seeing without giving it all away.

Everything was working beautifully, until they slipped, and ruined the surprise.

I thought this was the worst thing ever! The end of the world! These idiots had ruined my surprise!

I cried my eyes out that afternoon, and while I knew I was fortunate to have a healthy baby growing inside of me, I was inconsolable about having my surprise jerked away from me. The pity party was in full swing, and all the pregnancy hormones associated with Wild Thing #2 raged on through that evening.

I went to bed on September 10th with eyes swollen from crying, and awoke to the news that terrorists had attacked the World Trade Center. My pity party came to a screeching halt.

googleimages.com

googleimages.com

In the days that followed the attacks I was tense and restless. Rumors abounded of more attacks, and of Houston being a target because of its energy industry. I was glued to the news and gobbled up every human interest story that came my way. Three days after the attacks, in the midst of so many thousands of lost lives, we suffered another loss as Big Ed, the patriarch of our close family friends, succumbed to the ravages of pancreatic cancer.

The two events will forever be intertwined in my heart and mind. The images of September 11th are burned into our nation’s collective conscience, and the despair of cancer claiming yet another one of the good guys brought my aching heart even more sorrow. US flags flew from buildings, homes, firetrucks, even baby strollers. Patriotism had a renewed vigor, and our nation pledged to never forget the victims and the heroes of 9/11/02. Our smaller circle raised a toast to Big Ed and vowed to remember him always. If he hadn’t been stopped by cancer, I could imagine him packing all his tools and a thermos of Dunkin Donuts coffee into his pickup truck, and driving from Massachussets to New York City to lend a hand. That’s the kind of guy he was, and like the victims of the terrorist attacks, he is sorely missed, all these years later. 

It took nearly a decade, but the great karma wheel finally caught up with Osama bin Laden. A lot has changed, in the world and in my own little corner of the universe, since the terrorists came to town. My firstborn continued his wildness, but eventually settled down into a quiet, baseball-loving kid. My second child was born, and the chaos that is Macy still ensues. We moved from Sugar Land to Durham, NC, for a 2-year stint. My sweet mama joined Big Ed in becoming yet another victim of the vicious beast we know as cancer. Maddy, the best dog in the world, thumped her old, white tail, winked at me one last time, then left me forever. My own home was dive-bombed by cancer, and my life and that of my family changed forever. While my “cancer journey” has a happier ending than my mom’s and Big Ed’s, it’s left me shaken and uneasy, constantly searching the sky for approaching planes.

I shudder to think at the number of lives lost and the huge amount of money spent on this war on terror, so for today, I will celebrate the triumph of good vs evil.


Wedding day thoughts

I’m not posting any pics of newlyweds William and Kate, because I’m having a little watch party for the recorded royal wedding tomorrow morning. Really, it’s a chance to drink champagne and eat scones, and I never turn down the chance to celebrate.

I’m really not all that into the royal wedding, so I’m a little sheepish about having a watch party; however, if I’m going to do it, I’m gonna do it right, and I don’t want to see any pictures of any of the festivities before my little watch party.

Apparently this requires me to stay inside my house with the blinds drawn and the computer, TV, and radio switched off.

Went to the gym first thing this morning, to un-do some of the damage I’m going to do this weekend (I’m still celebrating my cancer-versary, after all). All the ladies in the gym were talking about royal wedding this and beautiful gown that. I told LeRoy I was having a little watch party and didn’t want to see any of the footage until then. First he grilled me about what I would be eating and drinking at the party, then he said, “Good luck — there are 3 TVs upstairs and you’ll be in front of them, on the elliptical machine, for 20 minutes.”

I reminded him that I’m as stubborn as a wild hog and if I say I’m not going to see any royal wedding footage until tomorrow, then you can take that to the bank. Yes, there are indeed 3 TVs upstairs, and they were tuned to CNN, ESPN, and whatever channel airs Regis & Kelly’s show. Two of the three were showing royal wedding footage (good old reliable “Sports Center” had NFL draft junk and baseball highlights). Thank you, “Sports Center!”

Although, I do have a bone to pick with SC, which plays on a seemingly constant loop at my house, thanks to the 11-year-old boy who resides with me. In this morning’s baseball footage, which I saw once at home and once at the gym, they dutifully covered the Red Sox’s 6-2 pounding of the Orioles, but they lost a golden opportunity and made the pitiful decision to show Adrian Gonzalez instead of  Jacoby Ellsbury.

redsox.com

WTH??

The baseball highlights are brief, and photo opps are precious. Nothing against A-Gon; he’s a stand-up player who’s a lot of fun to watch. But really?? Showing him instead of my boy crush, Ells? Terrible TV journalism.

Ells had a great game and is on a hot streak: last night he had 3 hits, as he had done the night before, and was the hero with a bases-loaded single up the middle to score 2 runs. Ells is 6-for-10 the last two games, and I predict even more great things for him.

Since Ells was robbed–along with the women of America–here’s the Ells shot for the day. I could post more, but I’ll be good.

You’re welcome, ladies.

I’ll be writing a scathing complaint to SC after I finish this post.

Back to the royal wedding.

I managed to not see any footage, a victory that matters to no one, but there it is nonetheless. I did get to thinking, though, about the other royal wedding in my lifetime, that of Charles and Diana

They tied the royal knot in July of 1981, and I had just turned 12. My family had recently traveled to London, and there was quite a lot of hub-bub about the grand event, and being an impressionable young girl, I thought the whole thing was very exciting. My mom and I got up at the crack of dawn to watch it live, London time, and I feel like a bit of loser for having my watch party the day after, but who the hell wants to come over at 3 in the morning? Even for champagne. 

Charles and Diana’s wedding seemed to be a fairy tale, with the grandeur of the monarchy and all the pomp & circumstance that goes along with it. They were elegant and lovely, although my mom couldn’t understand why her wedding dress was so wrinkled! I didn’t notice that, but did wonder if the fashion-forward Di ever looked back and regretted her hairstyle on that momentous day. I know I regretted mine.

Sadly, their fairy tale didn’t have a happy ending. Even though Di carried out her princessy duties with great elan, she never quite fit in with the other royals, including her husband. Her death in a car wreck in August 1997, at the age of 36, was tragic. Just tragic. That she was so young, and was just starting to find some happiness, and that she had two young boys who were the light of her life, is just so very tragic. But as we all know, tragedy knows no bounds and strikes randomly. 

She seemed to be a fun-loving mom who wanted her boys to be noble but also real. Now that I’m a mother, I know how hard it is to raise kids, period, much less royal ones. I’ve known plenty of kids who were royal pains, my own included, but these boys seem to be the real deal. They seem to know how to be serious about their official family duties but also lead full and individualized lives.

Of course, all this got me thinking about William on his wedding day, and how very much he must be missing his mama, despite all the excitement and the festivities. I’ve heard it said that William’s new wife shares some of Diana’s traits, and I hope that her legacy lives on through this young couple.

Marriage is hard, plain and simple. It requires hard work, even when one’s spouse is easy-going and fun-loving, like mine is. Carrying out one’s marriage under the microscope and in the spotlight must be even harder, as the world saw with Charles and Diana. I hope the newlyweds have an easier time, and I hope Kate learned from Diana’s example about how to remain true to yourself while fulfilling your obligations.

I’ll never forget watching Diana’s funeral, and seeing the millions of people lining the streets. Emotions were raw as a nation, and perhaps the entire world, mourned the loss of “the People’s Princess.” 

Watching those teenage boys, one of whom was about my own boy’s age now, walking  along the procession route for their mama’s funeral is one of the saddest things I’ve ever seen. The grace and maturity William and Harry displayed is a testament to the woman who raised them.

They had to have been so shocked, so sad, and so bereft, yet they knew the eyes of the world were upon them, and like their mama had done so many times, they bucked up and got on with it, fulfilling their duty like the princes they are.

The most indelible image of that day, for me, is this one.

The letter from William and Harry inscribed “Mummy” that rode atop the carriage that carried her coffin to Westminster Abbey.

Nosey-Rosey that I am, I would LOVE to know what those sweet boys wrote to their mama. Of course, I wouldn’t really intrude on such a sacred thing as that, but I am curious. I wrote a letter to my mom, to go in her coffin. Don’t recall one thing I said in that letter, but I hope I expressed the huge love, endless gratitude, utter grief, and bottomless loss I felt in that moment. Words are insufficient when it comes to expressing the most delicate yet most cardinal feelings.

And that, my friends, is why we need champagne. Lots and lots of champagne.


A double holiday

It’s Easter, a bittersweet holiday for me. Spring is hard. My parents’ wedding anniversary is in March, my mom’s birthday in April, followed a few days later by my first dog Maddy’s birthday, then Mother’s Day in May. Celebrating these milestones without my mom is hard, to say the least. The advertising blitz leading up to Mother’s Day depresses the hell out of me each year, and somehow the loss of my own mama always intrudes on the celebration with my kids. She made every holiday fun, and subsequent family gatherings are sorely incomplete without her and her cooking. We always did Easter Greek-style, with roast leg of lamb, roasted potatoes or minestra (Greek pasta), pastichio (Greek lasagna), a huge Greek salad, homemade Greek Easter bread, and of course, coconut cream pie and the annual bunny cake. This year we’ll be celebrating at my cousin Susie’s house, Greek-style, and I’ll drink a toast to my sweet mama. I think she’d approve of this year’s bunny cake.

The cake is a tradition dating back to when I was a kid (which was a long time ago). My mom saw the idea in a magazine and made it every year. I’ve started the tradition with my kids, and now Payton has outgrown it enough to only consult on whether the frosting tastes ok. He’s come a long way from the little guy in the striped t-shirt, trying so hard to balance as many eggs as his little mitts could gather. Macy is chief cake decorator now, and has had exclusive creative license over the bunny cake the last few years. The look of the cakes varies slightly over the years as Macy chooses the decorations. The 2009 version was a study in understatment and pastels.

Last year’s cake was a bit more candy-oriented, with Hershey’s kisses for eyes and a licorice nest for a nose. His bowtie was heavily crusted with assorted sprinkles and jimmies, and the creative genius behind this version clearly had to jump in the pool after her decorating was done.

This year’s bunny has a jaunty moustache and thick eyebrows. He’s decidedly less pastel-y and a bit more avante guard with nary a sprinkle to be found. He’s both stylish and delicious.

Today also marks 18 years of wedded bliss. On this day 18 years ago, I said “I do,” and Trevor said “I do, too” and luckily he agreed on the “in sickness and in health part,” because we’ve seen more than our fair share of the former. Hope to have nothing but the latter from here on out.

We marked the momentous occasion by waking to the sounds of the kids tearing apart the cellophane wrapping of their Easter baskets. The Easter Bunny had to break tradition and deliver a pre-pack instead of the usual carefully-chosen assortment of each child’s personal favorites tucked among the fake green stringy grass, along with a few trinkets and treasures. This year, the EB copped out, but I don’t think anyone but me noticed.

In typical form, Trevor had a gift and a card for me, and I had nothing for him to celebrate 18 years together. I’m not the most sentimental, and you wouldn’t have to look hard to find someone more romantic than me, which is a crying shame. Luckily, what I lack in mooshiness, I make up for in pluck and resourcefulness and always have a gift stashed somewhere. Like a rabbit out of a hat, I pulled a new Adidas tennis shirt & shorts out of the gift closet for him, and wrapped it up real quick like as if it was my intention all along. The card must be lost in the mail. Really. Sigh.

In honor of April 24th and 18 years together, here’s a little walk down memory lane. 

No, that’s not the hairstyle Trevor chose for his big day, but the gusty wind blowing his thick and luxurious mop. See, there was a tornado the day of our wedding, and no, Smarty Pants, it wasn’t a sign of things to come. Nice try. Sadly, 7 people were killed and 100 were injured by this storm, and no, it had nothing to do with our union. Strictly coincidence and having absolutely no significance for poor Trevor.

There was a Whataburger next to the church we were married in, and while the girls were primping in the bride’s suite, the boys snuck next door for a bite to eat. The photographer caught them in the act, and we have Trevor’s killer tornado hair on record. Sweet.

Here’s the title page of our wedding album, lovingly inscribed in by #1 neighbor and wedding coordinator Susan Postier. Notice the red and black scribbles? That would be Macy, as a toddler. She had an evil streak that incited her to leave her mark on everything from walls to brand-new furniture to wedding albums. Nothing was safe from the wrath of our pint-sized Pollock. Instead of being mad at her and thinking the album was ruined, I treasure it all the more because it has Macy’s signature on it. She wasn’t at the wedding, of course, and isn’t in any of the photos, but she made herself a part of it by stamping it with her signature scribble.

Here’s a much younger version of me with my parents. At the time, I was wondering how many more photos I had to endure, and was probably wondering when I could get to the reception and get my drink on. Now of course I would give my right arm to have a few more days with my mom here, my family intact. She was so excited about that pale pink dress, and had even taken a Jazzercise class to make sure she would fit into it, which was a big deal for her because my sweet mama didn’t like to sweat.

Trevor and his mom, Jody, who is amazingly artistic and designed and sewed her dress herself. The photo doesn’t do it justice, as the color was more teal-green and the intricate hand-beading (sewn on in the car as they drove to the wedding from Kentucky) was beautiful.

Trevor and his dad clowning around. How ironic that I’m looking at the photo of Preston giving Trevor “bunny ears” on Easter morning 18 years later. You can’t make this stuff up, people!

Trevor and his brothers. Marrying into a family of 4 boys was a bit of a shock for me, having just one sibling myself. I learned about “the Hicks pass” in which one empties the dish of whatever food item the other brother requests one passes at the dinner table, and that if you want more mashed potatoes, you better get ’em on the first go-round.  Trevor and I thought we might like to have 4 kids ourselves…until Macy came along, that is, and we decided 2 was plenty.

My brother and me. The next time we’d be formally dressed and in a pulpit together would be our mom’s funeral, 13 years later. He wanted to speak about her and asked if I’d stand with him. I agreed but said I didn’t think I would speak. He lovingly prepared a speech about what an incredible mom she was, and how he didn’t realize until he became a parent himself just how sacrificing and unconditionally loving she was. He cited examples of homemade treats in his lunchbox, endless rides for him and his teammates to baseball and football games, and the fact that his uniforms were always clean, no matter how many games a week were scheduled. A beautiful tribute to an amazing mother. Yet, he was overcome with emotion when it came time to read it, and I found my voice and pitched in to deliver his words. I think our sweet mama, a former speech & drama teacher, would have been proud of our presentation.

The last photo in the bride’s suite before the we got that show on the road. The photographer wanted to get an artsy shot of my reflection in the mirror as my mom adjusted my veil, and I nearly lost it just before walking down the aisle. If only I’d known then that my time with her would be short and all the more precious.

Anyone who knew my sweet mama can imagine her muttering under her breath as my brother led her down the aisle. She was probably telling him that he was walking too fast or too slow, or maybe she was talking to herself about what so-and-so was wearing, or wondering if she’d made enough baklava to go around at the reception. Her brain was always running full-speed, and it was usually focused on other people and their needs.

Jody had 2 escorts down the aisle, and those young boys did a fine job delivering their mama to her seat. They’re all grown up now, which I guess officially makes me old.

My dad looks mighty serious in this photo, and I vaguely recall him telling me it wasn’t too late to change my mind. I’m sure he was kidding. He led by example for all of my formative years, and when it came time to give his baby girl away, he threw a mighty fine party.

My cousin Susie and her baby, Melissa, who is now a senior in high school. It’s official–I’m old.

Happy Easter, everyone, and happy anniversary, Trevor. Now let’s go cut that bunny cake!


2 small heart attacks

The viewer mail is pouring in about this post and this one, in which I inadvertently gave y’all some reason to think you might be suffering a small heart attack. Many apologies. I didn’t mean to scare anyone or cause anyone to stroke out. I promise to be much more boring and much less dramatic in future.

Yeah, right.

I will get to coverage of Day 2 in Napa, really I will. It’s in the works. The trip was so fantastic, I want to do it justice, and sometimes that means ruminating, and you know I have very little patience.

thank you, AA Milne

As Winnie the Pooh referred to himself as “a bear of very little brain,” I am the blogger of very little patience. Working on it, people, working on it.

Thinking about Winnie the Pooh reminded me of how much I loved that bear as a little girl, and I’m sure somewhere in the deep recesses of my parents’ attic, there are photos of me surrounded by Winnie; my sweet mama never threw anything away. I had the Pooh treehouse with all the little figures: Pooh, Piglet, Rabbit, Christopher Robin, Kanga, and Roo. Oh, and Tigger. Don’t forget him. He’s c-razy! I had some Pooh pajamas that I wore nonstop, although not out in public like my little girl does in her jammies. I had a stuffed pooh, the original AA Milne version before Disney got its hands on him, and that bear went everywhere with me. I loved him so much I even gave him open heart surgery with my mom’s seam ripper from her sewing kit. I must have left the closing to my surgical assistant, because Pooh had a hole in his chest for the rest of time.

google images

Now that I’m all grown up, I appreciate Winnie the Pooh on a whole ‘nother level, and find the depth and meaning contained in his quotes so moving.

We’ve all seen this one, on a greeting card perhaps or a t-shirt: ““If you live to be 100, I hope I live to be 100 minus 1 day, so I never have to live without you.” So endearing when said by a cartoon bear, but if a human said that I’d want to barf. Those of you who know what a non-romantic I am will be shaking your heads right now. Go ahead, it’s all right.

This quote from Pooh’s endless wisdom does not make me want to barf, however:

AA Milne

This one is all right with me. Don’t know why, but I suspect it’s because it reminds me of my sweet mama, and how very much I miss her. It also reminds me of my favorite ee cummings poem “i carry your heart with me,” which I had planned to read at my mom’s funeral but I just couldn’t get the words out. The words are always in my head, though, and I especially like this part:

“i carry your heart with me (i carry it in my heart) i am never without it… you are whatever a moon has always meant and whatever a sun will always sing is you here is the deepest secret nobody knows (here is the root of the root and the bud of the bud and the sky of the sky of a tree called life; which grows higher than soul can hope or mind can hide)and this is the wonder that’s keeping the stars apart i carry your heart (i carry it in my heart)”

I’ve always loved ee cummings’s disregard for capitalization and punctuation. To me it means the words themselves and the ideas they express are way more important than conventions. It’s as if he was in such a hurry to get these thoughts out of his head and his heart and onto the page that he couldn’t be bothered stopping for things that typically  make it easier for the reader to understand what’s been written. None of that mattered. He liked to present new ways to look at reality.

His romantic transcendentalism was not popular, however, and although he was the son of a well-known Cambridge family (his dad taught at Harvard and later was minister of Boston’s Old South Church), he struggled to get his poems published. His mom, Rebecca, had encouraged his love of writing, and lucky for the rest of the world, he persevered. It’s shocking to think that for some 20 years, he had to pay someone to publish his poems.

His poem reminds me to carry my sweet mama in my heart, just like Pooh suggests. But the root of the root and the bud of the bud is that it’s not the same as having her here. And as sweet as the words of cummings and Pooh are, they also lead me to the uncomfortable thought process through which every young cancer patient goes, whether we want to or not. The one in which we wonder about our mortality, as rates of recurrence, treatment pros & cons, and survival statistics tumble through our heads. For every success story we hear, we know there is someone who lost their battle, and we’re acutely aware of the new diagnoses that crash into ordinary people’s well-ordered lives every single day.

Having cancer sucks, but having cancer while you still have young kids at home really sucks. There’s the day-to-day junk that still needs to be dealt with, despite the gravity of disease, treatment, hospital stays, and ongoing drug therapy. I guess it’s not surprising that I find myself not really caring about whether I sign Macy’s daily folder, or wanting to punch the teachers who think another parent-driven school project is in order. Simmer down, teachers; I won’t really punch you but when you assign projects that my child cannot reasonably complete on her own, I do think about it, briefly, because it’s hard to muster the emotional energy needed to guide my child in her education, and I sure don’t want to have to make a trip to Hobby Lobby for supplies.

There’s a never-ending juggling act that comes with the cancer territory when young kids are involved. Like the fact that most of my doctor’s appointments are with surgeons, who tend to do surgery in the mornings and see patients in the afternoon. Sometimes that means I’m cutting it close when seeing the doctor and taking care of business while still making it in time to pick up the kids from school.

Like the fact that I never know when this beast will rear its ugly head again and interfere with our daily life, plans, and schedules. Payton’s Little League season is halfway over, maybe more, and I’ve yet to make it to a single game. For the first time in his Little League “career,” he’s played games for which neither of his parents was in the stands. Not the end of the world, by any stretch, and he’s a pretty resilient kid, but it still bugs me.

Like the fact that sometimes when my kids are venting to me about whatever problem is foremost in their minds, and all I can think is, “It’s not so bad…at least you aren’t dealing with the aftermath of cancer.”

But then I smarten up and realize that yes, they are dealing with the aftermath of cancer. It’s there for them, too, even though they don’t talk about it much or worry about it like I do. It comes out sideways, sometimes, like in Macy’s “getting to know you” questionnaire from the first day of school this year, and her answer to the question “What scares you the most?” Her answer: That my mom will get another infection. Geez, what happened to monsters under the bed? We’ve eclipsed that childhood fear and have sped headlong into unchartered territory here. Like Payton asking us about the annual summer trip to Boston and Salisbury Beach, and wondering if all of us will be going this year. Since I missed it last year, I want to be there even more this year, but part of me hesitates in promising him that, because with this damn disease and this damn infection, I just don’t know. I’m operating under the assumption that the answer is yes, we’re all going this year. But I shy away from promising it.