This may get me in trouble

I’ll probably get in trouble for this. Or at least be on the receiving end of a cacophony of “You shouldn’t have done that” and “Did you have to?” and “That really wasn’t necessary.” But that’s ok; I rather like living my life on the edge. I’ve been known to stir the pot, to not let sleeping dogs lie, and to eschew the leaving of well enough alone.

So here I go.

This post is all about Ed.

He’s going to hate it.

See, Ed is not one for calling a lot of attention to himself. Or any attention, really. But sometimes, like ripping off a Band-Aid, it’s gotta be done.

He deserves it. It’s his birthday, so today it will be all about him.

Ed’s been our best family friend for a long, long time. In fact, it’s been so long, he’s dropped the “friend” and moved right on into “family.” Sometimes family has nothing to do with blood and genes and trees, and everything to do with the contents of one’s hearts and the meshing of like-minded souls. Assuming souls have minds, that is. I don’t think they operate on auto-pilot, do they?

I met Ed while toiling away in the publishing biz many moons ago in Austin. He and Trevor were in grad school at UT (Hook ‘Em!) at the same time, but we didn’t know each other during school; he was reading thick, musty books in the history department while Trevor built up his brain and hung with the geek squad in the computer science world. I hate to think of the years we wasted not knowing each other during that time, but our livers certainly breathe a sigh of relief. There was a fair bit of drinking going on in those days (as opposed to now, when kids’ schedules, middle age, and the threat of recurring cancer tempers my tippling). We did make up for some lost time, though, once we met; happy hours at Trudy’s with multiple Mexican Martinis and extra olives, watermelon margaritas at Maneul’s on South Congress, beers on the roof deck at Waterloo Ice House; and the infamous wine tasting club run by our resident oenophile Anthony King. I hope I never forget the carefree youthful nights spent lifting a glass, enjoying our youth & freedom. None of us will ever forget Trevor puking in the rose bushes at one of the Hess brothers’ houses, then coming back for more. Good times.

But back to work…Ed wrote and I edited. His hair was long back then (mine was too), and he labored over every word, every sentence, every TEKS standard (see how far we go back — long before the TAKS and now the STAR state standardized tests for public schools). I learned real quick that he was smart. Really smart. And he really cared about his work. He had such a high standard for himself that sometimes, just once in a while and not really very often (!), he made me wait for his work. I really don’t like waiting.

See, there was a progression to creation of a textbook, and we were both cogs in the wheel. Schedules were made, which we had to follow. Deadlines were enforced, because if our book wasn’t ready to go to print–back in the day before e-books and widespread Internet use — another publisher would get our spot and the book would be delayed. And we would all be fired. So I learned pretty quick with Ed that some tough love was necessary. I schooled him in the “good enough is good enough” principle that editors must embrace in order to keep the line moving. Oh, how that boy labored over every word, every sentence, every standard. There were days when I was a hair’s breath away from snatching the copy right out of his hands so that I could get my red pen all over it and keep the line moving.

It’s probably no surprise that Ed left publishing and took a rather circuitous route to teaching. A heart-wrenching detour to care for an ailing parent, work for an educational non-profit that trained teachers, a foray into self-employment in the handyman biz, a little time off to determine the color of his parachute (tricky when you’re a little bit color-blind), and finally, he was home.

Ed has a job that not many people would take on: he teaches kids who’ve been sent to the alternative school. Reasons for being sent there vary from fighting to drug use to crimes both petty and serious. The classes are small in number but large in ramifications. Several years ago, when Ed was contemplating whether to enter the teaching profession, I told him that he would be the kind of teacher who made a difference in kids’ lives. It sounds hokey but it’s true: he’s the sort of teacher who kids will remember always, and they’ll look back and say, “Man, Mr C really cared.” It’s true, and he does. He guides kids that a lot of people would cast aside as lost causes. He listens and becomes the sole person who cares. It’s no surprise to me that kids who pass through his class come back to visit, bring him a homemade Christmas treat, and mail him an invitation to their graduation ceremonies.

Those kids are not the only people who benefit from Ed’s unique brand of caring. After enduring the rigors and heartache of watching his dad die of pancreatic cancer, he became my sherpa when my mom got sick. I’ll always remember him telling me that if I thought it was bad now, it was gonna get worse. A lot worse. He was right. It was awful.

My mom knew Ed well, and when she moved in with me after retiring and moving away from Houston, it was Ed — not me — who she wanted as her caregiver for the icky parts of her cancer battle. She wanted him to sit through the class at MD Anderson on how to care for a PICC line, not me. I didn’t know it at the time, but she was trying to shield me from the routine horrors that make up a cancer patient’s life. When she was too frail and weak to step into my deep bathtub, it was Ed she asked for help. She would rather have had him see her in that state, to spare me from the eternal impression of being able to count each rib in her battle-weary, wasted body. It was Ed who she requested, not me. He made many food runs in the maddening game of “What can we get her to eat?” only to see her take 2 bites and be done. So much for that. But he never got frustrated, he never pressured her to eat. It was Ed who bore the brunt of the fallout from her radiated bowels. And that’s all I’m going to say about that.

It takes a special kind of person to volunteer for such service, but that’s just the kind of person he is. My mom knew it, and so do I. Ed’s the kind of guy who sets up the ladder and willingly allows grafitti in his garage. No project is too big, no mess too messy.

He’s the kind of guy who doesn’t freak when a little kid pukes on his brand-new couch, which Macy (right) did just after this photo was taken at Ed’s house in DC.

He’s the kind of guy who gives a little kid his watch to wear while patience runs short and naptime runs on by during sight-seeing in DC. He knows how to make a little kid feel like the most important person in the world. 

He knows how to keep a little kid quiet during a long, boring grad-school graduation ceremony, and he thinks anytime is the right time for a junky snack.

He digs the deepest sand-pit every year at Salisbury Beach every year, even when he’d rather be reading his book, and waves off the old-man critics who pass by and warn of the pit’s collapse and threat of said pit swallowing little kids whole. He knows what he’s doing.

He’s the creator of Halloween costumes too far-out for my brain to imagine.

He knew Maddy, the best dog on Earth. Ever. In the history of dogs. He loved her with his whole heart, and finally gave in to my years-long pestering that he needed a dog of his own. Not once, but twice. And he let my kids name both dogs. Hence, a female chocolate lab named Snoopy, and a wily basenji-mix named Sugar.

We have Ed to thank for the Red Sox fever that exists in our lives. A native Mass-hole, Ed is a Sox fan for life, and he taught Payton the joys and heartbreak that is Red Sox nation. When Payton was four years old, at his first trip to Fenway, Ed showed his devious side when he made Pay think that Nomar Garciaparra hit a foul ball right into Payton’s lap. Eight years later, I think Pay still believes it really happened.

When Macy came along, a new bond was forged, and the strength of that bond sometimes startles and always amazes me. Mrs Dally, Macy’s first-grade teacher, told me in confidence one day that I might want to be careful because Macy told the class, during an exercise about friends, that her best friend is a 42-year-old man. In the case of anyone but Ed, this might raise a few eyebrows. But spend two minutes with him and you get it. In third grade, Macy filled out the “getting to know you” questionnaire from the teacher on the first day of school. For the question about  her best friend’s favorite activity, Macy wrote: landscaping. Those two are tight. 

Happy birthday, Ed. May the day be as fantastic, wonderful, and all-out-awesome as you are.


NFL goes pink

I got this letter from NFL Commissioner Roger Goodell. Not sure what gave him the idea that I’m a football fan, but I won’t fault him too much since he’s trying to do a good thing. Maybe he didn’t get the memo that my heart belongs to the Red Sox (my broken heart, that is). Maybe he did get the memo that I have a big mouth and write a little blog about all things breast cancer. Or maybe it was just a mass mailing that coincidentally landed in my mailbox just as I’m sorting through conflicting feelings about the pinkwashing that occurs every October.

Despite my previous grumpiness about all things pink in the month of October, I must admit I rather like seeing the football players wearing a dash of pink. Not because I think it’s going to change the world or find a cure for this damned disease, but because I enjoy the incongruity of a gigantic linebacker who could crush someone like me between his fingers wearing pink.

I could be super cheesy and say that if one woman decides to go for a mammogram because she saw Tom Brady wearing hot pink gloves, and if that one woman discovers breast cancer that would have otherwise stealthily grown into something that would kill her, then the NFL campaign is a success.

I will say that I’m glad the NFL campaign is about taking specific action to protect yourself from this dreaded disease, instead of trying to use the pink ribbon to sell a product. That sits much better with me. Nothing like a pink-ribbon-bedecked can of dog food to say let’s wipe out breast cancer.

On to Mr Goodell’s letter:

To NFL Fans:

On behalf of the National Football League, please join us in supporting the NFL’s “A Crucial Catch” campaign in October for National Breast Cancer Awareness Month. This is the third season in which NFL teams, coaches, officials and players will wear pink in recognition of the fight against breast cancer.

Just about everyone knows someone who has been affected by breast cancer. That is why the NFL is proud to join thousands of others committed to fighting this terrible disease.

Throughout October, all NFL teams will celebrate survivors, visit patients at hospitals and turn their stadiums pink to show our enduring support. Alongside our partners at the American Cancer Society, we will emphasize the importance of prevention by encouraging all women over the age of 40 to get a yearly mammogram. We know that annual screenings can, and do, save lives.

Thanks to the passion of NFL fans, we have the collective strength as a league to connect with millions of people and make a positive difference. Please support the American Cancer Society’s programs to help people stay well, get well, and find a cure. We can fight back against a disease that has taken far too much from too many for too long.

There are several ways you can participate in “A Crucial Catch.” Visit nfl.com/pink for the resources and tools you can use to get involved.

An annual screening saves lives. Let’s spread the word.

Sincerely,
Roger Goodell



The best photo

I posted tons of photos in yesterday’s post from the Race for the Cure. Many of them were touching, some were funny, a bunch of them were moving, and a few were even tear-inducing. My head is still full of the sights & sounds of the event, and frankly I didn’t expect it to affect me as deeply as it did. I’m still processing the swirling emotions involved in participating in the race as a survivor. Maybe I will sort these feelings out, and maybe I won’t.

One photo I did not post, however, demands to be seen. It was in the Houston paper this morning, and my race buddy texted it to me before I saw it myself. I’ve been thinking about it all day — through 5 sets of tennis & beers at the club, during my shower, while I started laundry, and as I absent-mindedly helped Macy with her career day project for school, then some more as I scrolled through the Chronicle’s online photo gallery of yesterday’s race.

So without further ado, here it is — the best photo from the 2011 Houston Race for the Cure. Photographer Mayra Beltran outdid herself with this shot. 


Race for the Cure, Houston style

My fair city hosts the largest Race for the Cure in the country. Yep, that’s right — everything’s bigger in Texas!! Today’s race was pretty great. They say a picture is worth 1,000 words, so I will simply let the photos speak for themselves. 

Pink porta-potties, of course. (My germophobe self did not use them!)

The best hat award goes to this guy….

The Houston Fire Department was out in full force, walking with these cute shirts. 

These 4 young boys had boobies on their minds! Their shirts were in loving memory of a woman named Kathy. I’m sure she’s very proud of these guys. 

There were lots of signs in celebration of or in memory of someone. Very powerful.

Christy & me at the start of the race. Ready to pound the pavement!

There were several groups sporting mohawks, but this girl won for best hair.

One of the many groups at the race. This one was in honor of Moni, who I’m assuming is a grandma. 

One of several little boys in a pink cape. So sweet!

This gal had the best photos for her “In memory of” and “In celebration of” signs. The photo of her mama made me a bit misty-eyed. And the idea of her gene pool made me fear for her. 

I’m guessing this group raised a lot of money for the cause.

This t-shirt was so sweet and so heart-felt, and a great example of simplicity at its best: no neon colors, no bling, just a powerful message that brought me up short.

This guy was not walking next to a women, which  made me wonder if she was too sick to race. Hopefully she was off in a group of survivor sisters, laughing and celebrating.

One of the many bald girls rocking the race.

Of course this one made me want to bawl.

Best tattoo award goes to this chick. Love the font and the message. 

There were lots of long lists — too many, really. I loved this one that mentioned the best 4th grade teacher. How cute is that?

One of the many fancy carriages we saw. By the end of the race, I wanted to ride in one!

Supergirl cape — I want one!

There were lots of guys in pink, but this one in a tutu was one of my favorites.

The “We miss you so much” part of her sign got me, big time. 

The balloon archway at the starting line was awesome! Not so great for the environment, but cool.

“Walking to defeat breast cancer” shirts had a beautiful look. Love the font and the flowers.

Lucy E. Payton, I hope you knew how much you are loved! I’m sure your family  misses that sweet smile every single day.

Another long list. Love the “me!” at the end.

These shirts in memory of Tina Cullum were sweet. I really like the butterfly, and these shirts prove that you don’t have to have pink to get your point across.

1955-2009 is not nearly long enough of a lifespan.

Some of the nearly 40,000 people on the race course.

Lots of people.

Guess who was pushing this stroller? Nana! In her survivor shirt. Go Nana!

I’m assuming this guy’s mom was racing. He was trying to take my picture as I tried to take his — I won!

Cheerleaders had special cheers for us racers today.

I absolutely LOVE this shirt. Can you imagine a world of stage none???

This darling little girl was riding on her dad’s shoulders. I did not envy him. 

The rules said no dogs allowed, but this guy must have slipped through.

She didn’t have any hair, but she did have tissue expanders in preparation for implants!

Race route sign. The logistics and details of pulling this huge race off are staggering.

Her shirt reminded us to never, ever give up hope.

A new survivor celebrates her good fortune. Hooray!

Cutest bra, and it’s on a dude!

One of many shirts about boobs. Not sure what her business is, but she’s in it.

This wagon was all decked out, but no rider in sight.

How utterly sweet is this?

H

He’s got her back.

Another young boy in a pink cape — fantastic!

Getting close to the finish line, which was crowded with supporters, whooping & hollering!

I cut off the edge of the image, but like the sentiment of his sign nonetheless.

The downside of having the biggest race in the country.

She raised more than $2,000 and got a special bib.

Taxi!

The best part of the race — finishing in the SURVIVORS lane!

Our post-race feast…well deserved.


Living my life

I’ve been quite busy the last few days living my life.

I’m going to say that again — living my life. Those are 3 beautiful little words to someone dealing with cancer. Past or present, once you’ve tangled with the beast, the idea of living, i.e., surviving, is sweet. The idea of living your life, even sweeter because it means that in some way, you are getting back a semblance of  the pre-cancer life.

It’s almost October, which brings a multitude of conflicting emotions and thoughts. National Breast Cancer Awareness Month is confusing for me, and for many other cancerchicks. On one hand, I’m grateful to Komen for destigmatizing what once was a shameful disease. I’m thankful for the research and the advances that have been made, which allow women like me to deal with BC much more easily than my pink ribbon sisters before me. On the other hand, I’m uncomfortable with all the pinkwashing that occurs. At what point can we declare enough with the awareness? Is there really anyone who’s not aware that BC exists and rips people’s lives apart to the tune of 1.3 million worldwide every year? More on that later.

While I’m torn about the Komen issue, I decided last-minute to do the Race for the Cure, which is tomorrow. The Houston version of the race usually attracts nearly 40,000 people so it’s a big deal, literally. I’ll be among the sea of pink tomorrow morning, wishing that the organization putting on the race would focus more on research and metastatic disease and less on putting a pink ribbon on products from fried chicken to dog treats to toilet paper. I’ll proudly wear my hot pink SURVIVOR shirt, basking in the glow of having made it through the plethora of crap cancer threw at me, but I’ll also mourn those who didn’t make it through. 

But that’s tomorrow. Today I’m going to be kicking some butt on the tennis court. It’s the annual member-guest tournament at our club, and Christy and I plan to dominate. She’s a fierce competitor who wants to bring home the hardware. Me too, but I’m also happy to be living my life.


It’s not a gift, people

I ran into a woman at the gym who I hadn’t seen in a while. She didn’t know about my little bout with breast cancer, and when she asked what I’ve been up to, I told her. I told her the truth, that it was a simple cancer that was caught early and is highly treatable. The cancer was pretty simple, but the post-mastectomy infection was very complicated. I’m still dealing with the mess from that damned infection.

She asked a lot of questions, trotting out the usual suspects. I don’t mind the questions, and I don’t begrudge her curiosity. Here’s how the conversation went down: How did you know you had cancer? I didn’t. At my annual well-woman exam my OB-GYN found a lump that I never felt, even when she put my hand right on it. Why didn’t you do a lumpectomy instead of a mastectomy? Because I wanted to slash & burn each and every cancer cell in the area. Do you regret having chosen such a drastic surgery? Nope, not one bit. Turns out there was cancer in the other breast, that didn’t show up in any of the pre-surgery testing. Do you have a family history of breast cancer? Not so muchMy cousin Cheryl had it nearly 20 years ago, but my mom and her sister both died of different cancers. How old was your mom when she died? 67. Way too young, and not a day goes by that my heart doesn’t ache — some days physically but mostly it’s mental — from missing her, and while the grief certainly isn’t as raw after nearly 6 years, I don’t think I’ll ever stop missing her. How did you hide it from your kids? I didn’t try to but instead explained everything and reassured them that my cancer wasn’t going to kill me like YaYa’s killed her. 

It was a perfectly normal conversation — well, perfectly normal now that I’m among the 1 in 8 women who will contract this damned disease — and then she said it: the one thing that sets my teeth on edge, that makes me feel like steam is coming out of my ears, that makes me have to work really, really hard not to punch someone in the brain.

google images

She said, “It sounds like it’s been hard, but it’s so good to see you working hard in the gym. What a gift you’ve been given. Aren’t you so lucky to be so young and strong, and to have come out of this so well?”

I was speechless. I probably looked like a fish on a hook, mouth opening and closing, wondering what the hell just happened.

Of course I realize she was trying to say the right thing, and in all likelihood was even trying to compliment me with the “OMG, you look so healthy for someone who’s battled cancer” business. I know it’s a sticky situation, people, and that it’s hard to find the right thing to say. But really, is it that difficult?

I’m the absolute last person to look at a cancer diagnosis as a gift. It’s not. It’s a diagnosis of a terrible, terrifying disease. If you think cancer is a gift, kindly remove me from your list of people for whom you shop. I’m out. Yes, good things can come from a bad situation: new friendships blossom, existing relationships are strengthened, the depths of one’s character are carefully examined, yadda yadda. But at the end of the day, if someone tells me I’m better off for having had cancer, I call bullshit.

I recently read an interview with Melissa Etheridge about her breast cancer. She joined the pink ribbon club in October 2004, and has been quite outspoken about her “cancer journey.” I like Melissa Etheridge. I like her blatant feminism and her moxie. She displayed some rockin courage when she performed, bald, at the Grammys shortly after being diagnosed.

blogs.citybeat.com

Things like her bald performance are very good for cancer patients, no doubt. Her decision to not wear a wig forces people to see the harsher sides of cancer, and I applaud her courage in putting herself out there, even if seeing her bald head makes some people uncomfortable. Especially if seeing her bald head makes some people uncomfortable.

But she also talks about cancer about something for which she’s grateful. I guess that takes courage, too, but I have a problem with it. She says that when someone tells her they’ve been diagnosed with cancer, her reply is “Wow, great! Your body is telling you that you can’t go on like this and you have to change. You’ll look back on your disease and say ‘I’m glad that happened to me.’ ”

Well, guess what? There was precious little in my life that needed to change pre-cancer. I exercised 6 days a week, ate heathfully, drank lots of water, avoided toxins, and worked hard to have a balanced and healthy life. Cancer got me anyway. I certainly won’t look back on this — assuming it ever ends — and say I’m glad it happened to me. Uh uh. No sir. No way. I can’t imagine looking back on this and saying I’m glad it happened. That its was a gift. Not in a million years.

Listen, Melissa: someone who’s newly diagnosed — and most likely terrified, freaked out, and shocked — does not need to hear someone essentially say, “Oops, I guess you’ve been doing it all wrong and this is your fault.” I don’t care if you are a celebrity and a Grammy winner. Zip it. No one needs to hear that. And no one needs to hear that cancer is a gift, either.

Sheesh. I’m not even going to get into the whole mess of it’s easy for her to say that, she’s a star and has plenty of money/time/resources/help/clout. That’s a post for another day (even though it’s true). Let’s stick to the idea of how wrong it is to imply that the person with cancer is somehow at fault, that he/she did something or didn’t do something that caused their cells to go wonky and create a shitstorm in their body. Wrong, wrong, wrong.

I will never forget my sweet  breast surgeon Dr Dempsey looking me in the eye while holding both my  hands and saying, “This is not your fault. You did not cause this cancer.” Here’s that part of the notes that Boss Lady took for me that day (doesn’t she have nice handwriting?). I’m not a touchy-feely person at all, but Dr Dempsey is, and she did me a huge favor that day by looking me in the eye and telling me that this is not my fault. I’m all for accepting responsibility, but not here, not when it comes to cancer. It’s not my fault, I’m not glad it happened to me, and it’s not a gift.


Welcome to funk-ville, population 1

If you’re looking for a laugh or an inspirational story, you’ve come to the wrong place. I’m in a funk and there’s no amount of lipstick that’ll pretty up this pig (the funk, not me). My thoughts are scattered like leaves falling off a tree (if only that conjured up visions of the russet colors of fall, of leaves parachuting off of trees as they ready themselves for the change of season. That does happen in some parts of the world, but here, in the land of eternal summer, and in this infernal record-breaking, never-ending summer, the only leaves falling from the trees are brown and crackly, dead from the drought. How’s that for a cheery thought?).

I’ve been struggling the last few days. I’m frustrated with the pace of the healing from the latest surgery–yes, I’m a whole lot better, but I want to be done. I’m madder than a wet hen about the effect of the last surgery on my tennis game, and wonder if I’ll ever get my serve back. I’m worn out from the swirling, worrying thoughts of whether I’ll ever have the results I want. I’m both impatient for and dreading the next round of revision. I’m tired of being tired. I’m pissy about the fact that I’m still battered and sore. I’m ready to rip the port right out from under my skin because it catches on my clothes and shoots a sick sensation up my neck that reminds me the damn thing is sewn into my jugular vein. Oh, and it looks weird, too. I’m sick of cancer and all its many fallouts.

Normally, my solution to such a funk is alcohol. Lots of alcohol. Every night is ladies’ night when the funk shows up at my house. But there’s a niggling voice in the back of my head reminding me that alcohol is a major contributor to breast cancer, both initially and in terms of recurrence. And since not a day goes by that I don’t think about recurrence, perhaps I should avoid using alcohol as a balm for my beat-up soul. Dammit. Yet another way cancer has wreaked havoc in my world. If I can’t in good conscience comfort myself with booze, I’m in real trouble. This is no fun.

When I was diagnosed last year, Dr Dempsey gave me a stack of play money. She handed it to me and said it is very important currency. Each “dollar” bill was a free pass to be in a funk. To throw a fit. To have a pity party. As she put it, “to lay in bed watching Lifetime and eating ice cream.” I laughed and thought, pfffft! I won’t need that. I got this. Me and my positive attitude can kick this cancer no sweat. 

While I am happy to report I’ve spent not one day in bed watching Lifetime and eating ice cream since cancer shat upon my head, I’m thinking I may need to pull out one of those dollars. How crazy is that — after all the crap I’ve been through, after seeming like I was finally getting close to the finish line, now I fall into the funk?

Don’t worry, I’ve already run through all the reasons I have to be happy: I’m alive, the worst is behind me, I’m not in the hospital, I have neither drains nor a wound vac attached to me, I’m cleared for exercise, I have great doctors and comprehensive insurance, I have a stellar support network, blah blah blah. Yes, all of that is true, and I know in my heart of hearts that there really is more good than bad  in my life. I know that one day this whole “cancer journey” will be a speck of dust in my rearview mirror as I travel along the grand highway of a happy life. But right now, the funk rules.

Those of you who are within shouting distance have been hearing about it. The frustration, the impatience, the pissy-ness. What you won’t hear, though, is “Why me?” because really, does it matter why? Not so much. What matters is how ya sweep up the mess that’s dumped on ya, and most days I’m armed and ready with the broom & dustpan. But for now, I’m frustrated, impatient, and pissy. And mad. I’m mad, too.

I’m mad that this damned cancer “journey” has to be so hard for so long. I’m all for rolling up my sleeves, gritting my teeth and getting through it. I fully support Winston Churchill’s idea of “If you’re going through hell, keep going.” I believe Eleanor Roosevelt 100 percent when she said “A woman is like a tea bag — you never know how strong she is until she gets in hot water.” I gather strength from Robert Frost telling me “The best way out is always through.” But geez, does it really have to be this arduous? The ways in which cancer robs us are seemingly endless, and breast cancer in particular is a repeat offender, a pathological thief.

I just read this article, “What’s It Really Like to Live Through Breast Cancer?” Today especially, I needed to hear other women’s stories. Valerie, age 52, said that “she needed symmetry. She needed things to be as they should. She needed, after two years of surrendering to the opinions of doctors and the input of the cancer Web, to have an ounce of control over her body.” Yeah, me too.

Renee, age 47, said that “when I had her mastectomy sutures taken out, I asked the surgeon to remove the Sharpie mark she’d made—the black line that went across my ribs like a big smile—and the surgeon asked what line? I pointed. Her eyes got big and she said, ‘That’s your incision, Renee. We opened up your body. We removed a lot of tissue.’ ”

There are lots of Valeries and Renees out there. One in eight women will be diagnosed with this dreaded disease in the United States alone. Worldwide, there are 1.3 million new breast cancer diagnoses a year. That’s more than a million women who will endure this disease. Of them, some 465,000 will die from it. But even those who survive it, like me, will carry the weight of the disease. The physical scars Renee spoke of are nothing compared to the emotional ones. People say we’re lucky that our cancer occurs in a body part that can be removed. True, but it also means that we see evidence of that cancer every day; if I had a kidney removed, I wouldn’t be confronted by the railroad tracks of a long, harrowing journey every time I undress.

Sure, it’s better to be scarred than dead. No question. But being alive doesn’t mean I have to be happy all the time. It doesn’t mean I won’t get in a funk and be frustrated, impatient, pissy, and mad sometimes.

But the funk will pass, hopefully sooner rather than later. Like in Carl Sandburg’s beautiful little poem, the funk, which can come in like a herd of elephants or on “little cat feet,” will overlook my city “on silent haunches,” and then move on outta here.

(thanks to google images for making it so easy to pretty up my blog today)


I buried the lead

In my post yesterday I committed a journalism felony — I buried the lead. See, the lead is the most important part because it gets the reader’s attention. Typically the lead belongs in the first paragraph, to suck the reader in and encourage him/her to read the whole story. The Weekly World News and The National Enquirer have mastered the art of not burying the lead. I learned about that at the Paul Miller School of Journalism & Broadcasting back in the Dark Ages

I didn’t mean to tease you.

I forgot to mention something pretty important yesterday, and I thank the kind readers who expressed concern. I have been fearful of starting my period, but have absolutely no reason to think that will happen. There’s been no, er, physical evidence; nothing but my own cancer-fueled insanity to make me think this fear will materialize. I could imagine this bout of insanity becoming a sleeper sequel to the 2007 Daniel Day Lewis movie. Instead of the story (based on Upton Sinclair’s novel Oil!) of the early oil boom in Southern California, in this story, There Will Be No Blood.

There will, however, be insanity. Plenty of it.

 

 

 


Daymare

What do you call a recurring nightmare that happens while you’re awake? Recurring daymare doesn’t sound right at all. Whatever it’s called, I’ve been having it. Guys, you may want to click on over to espn.com or continue searching for pics of Minka Kelly in a bikini because I’m fixin’ to talk about some lady stuff.

This blog has been my outlet for all things cancer-related: the good, the bad, and the ugly. Sadly, the latter two categories way outweigh the first in this trilogy, but that’s when you grit your teeth and plow right through it. There’s been much discussion on this blog about highly personal things, and lots of talk about boobs (sorry, guys; not the Minka Kelly type of talk). Such discussion is brutally honest and at times of the sort that makes people uncomfortable, but that’s how I roll. I could no more ignore the elephant in the room than root for the Yankees (dang, even the thought of that makes me sick to my stomach). I never learned how to sweep things under the rug or look the other way, and I’m not one bit sorry.

So, with the disclaimer out of the way, it’s on to the recurring daymare. Several times in the last few days I’ve had a moment of sheer panic when I think I’ve started my period. Not sheer panic in the sense of it’s gonna be a gusher and I’m in my white tennis skirt far, far away from any feminine hygiene products. No, this sheer panic is in the form of a stark realization that if I were to start my period again, after 17 months, that would signal the end of my chemically-induced menopause.

And that would be bad. Very bad.

Not that I love menopause, not by a long shot. I especially do not love menopause at the age of 42. Going through the ‘pause a decade early is cruel and unusual on many fronts: it’s yet another reminder of having been diagnosed with a potentially deadly disease while my kids were still in grade school; it sucks to be enduring it years before my peers; and it forces me to face all the unpleasantries of how breast cancer can destroy one’s self-confidence and body image at a time in which one should be living large in the prime of one’s life, to name of few.

But menopause for me means that the hormone suppression — which comes at quite a cost — is working. It means that the hormones that fueled my cancer are gone. There one day, gone the next. Hormone suppression causes me a litany of problems, but it means instant famine for my cancer.

If I were to start my period, it would be a red flag (pun intended) that my ovaries were pumping out the hormones that cause a technically-she-should-still-be-fertile woman to start her cycle. And while I’d love to return to that carefree time in which my ovaries pumped out whatever hormones necessary to keep me from being the withered husk of a woman that cancer tries to make me, it would be very bad news. I’m already on the short list at my doctors’ offices (plural) for being a troublemaker. The last thing I need is to ring my onco-crush, as Trevor calls him, to say, “Guess what? The ‘take one pill daily for five years’ Tamoxifen and the quarterly shots of Lupron aren’t working anymore.” I think that sweet man might have a heart attack. And I’d never hear the end of it from Dr S, who not-so-secretly thinks I invent symptoms to have a reason to go see my onco-crush, all the while shaking his head and muttering about what anyone could possibly see in a young, handsome, fit Peruvian doctor when there’s a much-older, much wiser plastic surgeon to adore.

This latest daymare is a perfect example of the PTSD that cancer patients endure. I imagine there are some cancer patients out there in this big, wide world who finish treatment and declare that chapter of their life closed, never to be stressed over or fretted upon again. I’m clearly not one of them. I hear tell that one day, this nasty cancer business won’t be in my forethoughts all the time but will be demoted to a back-burner status. I’m not there yet, but I’m hopeful. For now, though, the thoughts are there, and the fears are many. Things that used to scare me don’t scare me anymore (namely needles, but having been poked so many times I’m over it. In fact, I gave myself a shot the other day, like it was a normal, everyday event) but things I never knew were scary now scare the fool outta me. If that makes any sense.

The other day I was chatting with a friend in the parking lot in the brutal and ongoing Texas sun, and suddenly I felt something that flipped the switch from “I’m a normal person having a normal, non-cancer-related conversation with a friend” to full-blown panic, just like that. The feeling? Something wet was collecting, not quite pooling but definitely collecting, under my newly constructed right breast, site of the infection of the year that turned an average bilateral mastectomy recovery into a shitstorm, for lack of a better word.

I went on with my normal, not-cancer-related conversation, hopefully as if nothing was wrong, but was seriously panicked inside. Visions of hospital beds filled my head; the hospital smell that I dread more than words can say infiltrated my nose; and I could almost feel the 20-gauge needle puncturing my skin to access my port so the army of big-gun antibiotics could get in and fight the enemy. In my mind, I had been admitted and diagnosed with a recurrence of that damned infection within the span of a couple of heartbeats. In reality, it was a simple bead of sweat.

Ahh, yes, a simple bead of sweat. Such a common character in the land of perpetual sun, magnified a few million times by standing on a blacktop surface. A simple, everyday occurrence in the life of millions of Texans and citizens of other hot (but not as awesome) states in this fine country. One little bead of sweat that most people don’t even notice had the power to instantly transport me back to the hell that is included, free of charge, with a post-mastectomy infection.

Somebody wake me from this daymare.


I’m expecting a big fat “rejected!” notice

Trevor is trying to get life insurance on me. I’m sure that should make me nervous on some level; however, I think he knows that even on my worst day, his life is a bit easier with me in it. Right?? Right??

Here’s what’s funny: I had to fill out a bunch of online forms, knowing I don’t have a snowball’s chance in hell of being accepted. It’s ok, I have really thick skin. I don’t worry too much about rejection.

The online application has a big section on heath issues, conveniently divided up into categories: physical exam; common conditions; skin, hair & nails; musculoskeletal; women’s health; and “other.”

I’m sure I would pass the physical exam, as long as they give partial credit for having partially finalized body parts. The common conditions section included questions on whether one has had problems with things like colds, flu, allergies, as well as kidney stones and appendicitis. Since when did the latter two become common? I hope I never have either.

The skin, hair & nails section sadly had nothing to do with how fastidiously or fashionably maintained one is. I would pass with flying colors on exfoliated, moisturized, and sunblocked skin, as well as highlighted hair and a nice mani-pedi. But no, they want to know about boring stuff like shingles and psoriasis.

Musculoskeltal was a little more interesting with queries about back pain, bone spurs, fractures, and plantar fasciitis. No, yes, yes, and yes. That was easy.

Women’s health dealt with exactly what I’d expect: birth control, menopause, hormone replacement therapy. In other words, some of the most depressing topics on the website. No need for birth control when you’ve been thrown into early menopause. The baby-making department has not only been downsized but is out of business and closed for good. Menopause? Yep, in spades. Every symptom under the ‘pause banner got a big, thick checkmark from me. Hormone replacement therapy? No chance. The damn hormones fed my cancer machine, so there’s no way I’m going to replace them. Not even if they begged me to come back. 

The “other” section inquired about a smorgasboard of topics: concussions, cycts, hernias, and plastic surgery. Hmmm, seems strange to throw the plastic surgery one in there. I can’t wait to tell Dr S that his exalted specialty is lumped in with such ordinary things. 

After checking the boxes and reading the laundry list of symptoms and conditions, I had to give specific detail about any “health concerns.” This is where I’m expecting the giant red “rejection” stamp to hit. The questions:

“#1. During the past three years, have you for any reason consulted a physician(s) or other health care provider(s), or been hospitalized? #2. Have you ever had, or been treated for, any of the following: heart, lung, kidney, liver, nervous system, or mental disorder; high blood pressure; stroke; diabetes; cancer or tumor; drug or alcohol abuse including addiction?”

No amount of creative writing or playing fast & loose with the facts is going to help me here.  During the past three years, I have indeed consulted a physician(s) or other health care provider(s) and been hospitalized. Further, I have indeed been treated for cancer or tumor; the jury is still out on the mental disorder and the drug/alcohol abuse issues. I’m thinking those could go either way.