This may get me in trouble

I’ll probably get in trouble for this. Or at least be on the receiving end of a cacophony of “You shouldn’t have done that” and “Did you have to?” and “That really wasn’t necessary.” But that’s ok; I rather like living my life on the edge. I’ve been known to stir the pot, to not let sleeping dogs lie, and to eschew the leaving of well enough alone.

So here I go.

This post is all about Ed.

He’s going to hate it.

See, Ed is not one for calling a lot of attention to himself. Or any attention, really. But sometimes, like ripping off a Band-Aid, it’s gotta be done.

He deserves it. It’s his birthday, so today it will be all about him.

Ed’s been our best family friend for a long, long time. In fact, it’s been so long, he’s dropped the “friend” and moved right on into “family.” Sometimes family has nothing to do with blood and genes and trees, and everything to do with the contents of one’s hearts and the meshing of like-minded souls. Assuming souls have minds, that is. I don’t think they operate on auto-pilot, do they?

I met Ed while toiling away in the publishing biz many moons ago in Austin. He and Trevor were in grad school at UT (Hook ‘Em!) at the same time, but we didn’t know each other during school; he was reading thick, musty books in the history department while Trevor built up his brain and hung with the geek squad in the computer science world. I hate to think of the years we wasted not knowing each other during that time, but our livers certainly breathe a sigh of relief. There was a fair bit of drinking going on in those days (as opposed to now, when kids’ schedules, middle age, and the threat of recurring cancer tempers my tippling). We did make up for some lost time, though, once we met; happy hours at Trudy’s with multiple Mexican Martinis and extra olives, watermelon margaritas at Maneul’s on South Congress, beers on the roof deck at Waterloo Ice House; and the infamous wine tasting club run by our resident oenophile Anthony King. I hope I never forget the carefree youthful nights spent lifting a glass, enjoying our youth & freedom. None of us will ever forget Trevor puking in the rose bushes at one of the Hess brothers’ houses, then coming back for more. Good times.

But back to work…Ed wrote and I edited. His hair was long back then (mine was too), and he labored over every word, every sentence, every TEKS standard (see how far we go back — long before the TAKS and now the STAR state standardized tests for public schools). I learned real quick that he was smart. Really smart. And he really cared about his work. He had such a high standard for himself that sometimes, just once in a while and not really very often (!), he made me wait for his work. I really don’t like waiting.

See, there was a progression to creation of a textbook, and we were both cogs in the wheel. Schedules were made, which we had to follow. Deadlines were enforced, because if our book wasn’t ready to go to print–back in the day before e-books and widespread Internet use — another publisher would get our spot and the book would be delayed. And we would all be fired. So I learned pretty quick with Ed that some tough love was necessary. I schooled him in the “good enough is good enough” principle that editors must embrace in order to keep the line moving. Oh, how that boy labored over every word, every sentence, every standard. There were days when I was a hair’s breath away from snatching the copy right out of his hands so that I could get my red pen all over it and keep the line moving.

It’s probably no surprise that Ed left publishing and took a rather circuitous route to teaching. A heart-wrenching detour to care for an ailing parent, work for an educational non-profit that trained teachers, a foray into self-employment in the handyman biz, a little time off to determine the color of his parachute (tricky when you’re a little bit color-blind), and finally, he was home.

Ed has a job that not many people would take on: he teaches kids who’ve been sent to the alternative school. Reasons for being sent there vary from fighting to drug use to crimes both petty and serious. The classes are small in number but large in ramifications. Several years ago, when Ed was contemplating whether to enter the teaching profession, I told him that he would be the kind of teacher who made a difference in kids’ lives. It sounds hokey but it’s true: he’s the sort of teacher who kids will remember always, and they’ll look back and say, “Man, Mr C really cared.” It’s true, and he does. He guides kids that a lot of people would cast aside as lost causes. He listens and becomes the sole person who cares. It’s no surprise to me that kids who pass through his class come back to visit, bring him a homemade Christmas treat, and mail him an invitation to their graduation ceremonies.

Those kids are not the only people who benefit from Ed’s unique brand of caring. After enduring the rigors and heartache of watching his dad die of pancreatic cancer, he became my sherpa when my mom got sick. I’ll always remember him telling me that if I thought it was bad now, it was gonna get worse. A lot worse. He was right. It was awful.

My mom knew Ed well, and when she moved in with me after retiring and moving away from Houston, it was Ed — not me — who she wanted as her caregiver for the icky parts of her cancer battle. She wanted him to sit through the class at MD Anderson on how to care for a PICC line, not me. I didn’t know it at the time, but she was trying to shield me from the routine horrors that make up a cancer patient’s life. When she was too frail and weak to step into my deep bathtub, it was Ed she asked for help. She would rather have had him see her in that state, to spare me from the eternal impression of being able to count each rib in her battle-weary, wasted body. It was Ed who she requested, not me. He made many food runs in the maddening game of “What can we get her to eat?” only to see her take 2 bites and be done. So much for that. But he never got frustrated, he never pressured her to eat. It was Ed who bore the brunt of the fallout from her radiated bowels. And that’s all I’m going to say about that.

It takes a special kind of person to volunteer for such service, but that’s just the kind of person he is. My mom knew it, and so do I. Ed’s the kind of guy who sets up the ladder and willingly allows grafitti in his garage. No project is too big, no mess too messy.

He’s the kind of guy who doesn’t freak when a little kid pukes on his brand-new couch, which Macy (right) did just after this photo was taken at Ed’s house in DC.

He’s the kind of guy who gives a little kid his watch to wear while patience runs short and naptime runs on by during sight-seeing in DC. He knows how to make a little kid feel like the most important person in the world. 

He knows how to keep a little kid quiet during a long, boring grad-school graduation ceremony, and he thinks anytime is the right time for a junky snack.

He digs the deepest sand-pit every year at Salisbury Beach every year, even when he’d rather be reading his book, and waves off the old-man critics who pass by and warn of the pit’s collapse and threat of said pit swallowing little kids whole. He knows what he’s doing.

He’s the creator of Halloween costumes too far-out for my brain to imagine.

He knew Maddy, the best dog on Earth. Ever. In the history of dogs. He loved her with his whole heart, and finally gave in to my years-long pestering that he needed a dog of his own. Not once, but twice. And he let my kids name both dogs. Hence, a female chocolate lab named Snoopy, and a wily basenji-mix named Sugar.

We have Ed to thank for the Red Sox fever that exists in our lives. A native Mass-hole, Ed is a Sox fan for life, and he taught Payton the joys and heartbreak that is Red Sox nation. When Payton was four years old, at his first trip to Fenway, Ed showed his devious side when he made Pay think that Nomar Garciaparra hit a foul ball right into Payton’s lap. Eight years later, I think Pay still believes it really happened.

When Macy came along, a new bond was forged, and the strength of that bond sometimes startles and always amazes me. Mrs Dally, Macy’s first-grade teacher, told me in confidence one day that I might want to be careful because Macy told the class, during an exercise about friends, that her best friend is a 42-year-old man. In the case of anyone but Ed, this might raise a few eyebrows. But spend two minutes with him and you get it. In third grade, Macy filled out the “getting to know you” questionnaire from the teacher on the first day of school. For the question about  her best friend’s favorite activity, Macy wrote: landscaping. Those two are tight. 

Happy birthday, Ed. May the day be as fantastic, wonderful, and all-out-awesome as you are.


NFL goes pink

I got this letter from NFL Commissioner Roger Goodell. Not sure what gave him the idea that I’m a football fan, but I won’t fault him too much since he’s trying to do a good thing. Maybe he didn’t get the memo that my heart belongs to the Red Sox (my broken heart, that is). Maybe he did get the memo that I have a big mouth and write a little blog about all things breast cancer. Or maybe it was just a mass mailing that coincidentally landed in my mailbox just as I’m sorting through conflicting feelings about the pinkwashing that occurs every October.

Despite my previous grumpiness about all things pink in the month of October, I must admit I rather like seeing the football players wearing a dash of pink. Not because I think it’s going to change the world or find a cure for this damned disease, but because I enjoy the incongruity of a gigantic linebacker who could crush someone like me between his fingers wearing pink.

I could be super cheesy and say that if one woman decides to go for a mammogram because she saw Tom Brady wearing hot pink gloves, and if that one woman discovers breast cancer that would have otherwise stealthily grown into something that would kill her, then the NFL campaign is a success.

I will say that I’m glad the NFL campaign is about taking specific action to protect yourself from this dreaded disease, instead of trying to use the pink ribbon to sell a product. That sits much better with me. Nothing like a pink-ribbon-bedecked can of dog food to say let’s wipe out breast cancer.

On to Mr Goodell’s letter:

To NFL Fans:

On behalf of the National Football League, please join us in supporting the NFL’s “A Crucial Catch” campaign in October for National Breast Cancer Awareness Month. This is the third season in which NFL teams, coaches, officials and players will wear pink in recognition of the fight against breast cancer.

Just about everyone knows someone who has been affected by breast cancer. That is why the NFL is proud to join thousands of others committed to fighting this terrible disease.

Throughout October, all NFL teams will celebrate survivors, visit patients at hospitals and turn their stadiums pink to show our enduring support. Alongside our partners at the American Cancer Society, we will emphasize the importance of prevention by encouraging all women over the age of 40 to get a yearly mammogram. We know that annual screenings can, and do, save lives.

Thanks to the passion of NFL fans, we have the collective strength as a league to connect with millions of people and make a positive difference. Please support the American Cancer Society’s programs to help people stay well, get well, and find a cure. We can fight back against a disease that has taken far too much from too many for too long.

There are several ways you can participate in “A Crucial Catch.” Visit nfl.com/pink for the resources and tools you can use to get involved.

An annual screening saves lives. Let’s spread the word.

Sincerely,
Roger Goodell



It’s not a gift, people

I ran into a woman at the gym who I hadn’t seen in a while. She didn’t know about my little bout with breast cancer, and when she asked what I’ve been up to, I told her. I told her the truth, that it was a simple cancer that was caught early and is highly treatable. The cancer was pretty simple, but the post-mastectomy infection was very complicated. I’m still dealing with the mess from that damned infection.

She asked a lot of questions, trotting out the usual suspects. I don’t mind the questions, and I don’t begrudge her curiosity. Here’s how the conversation went down: How did you know you had cancer? I didn’t. At my annual well-woman exam my OB-GYN found a lump that I never felt, even when she put my hand right on it. Why didn’t you do a lumpectomy instead of a mastectomy? Because I wanted to slash & burn each and every cancer cell in the area. Do you regret having chosen such a drastic surgery? Nope, not one bit. Turns out there was cancer in the other breast, that didn’t show up in any of the pre-surgery testing. Do you have a family history of breast cancer? Not so muchMy cousin Cheryl had it nearly 20 years ago, but my mom and her sister both died of different cancers. How old was your mom when she died? 67. Way too young, and not a day goes by that my heart doesn’t ache — some days physically but mostly it’s mental — from missing her, and while the grief certainly isn’t as raw after nearly 6 years, I don’t think I’ll ever stop missing her. How did you hide it from your kids? I didn’t try to but instead explained everything and reassured them that my cancer wasn’t going to kill me like YaYa’s killed her. 

It was a perfectly normal conversation — well, perfectly normal now that I’m among the 1 in 8 women who will contract this damned disease — and then she said it: the one thing that sets my teeth on edge, that makes me feel like steam is coming out of my ears, that makes me have to work really, really hard not to punch someone in the brain.

google images

She said, “It sounds like it’s been hard, but it’s so good to see you working hard in the gym. What a gift you’ve been given. Aren’t you so lucky to be so young and strong, and to have come out of this so well?”

I was speechless. I probably looked like a fish on a hook, mouth opening and closing, wondering what the hell just happened.

Of course I realize she was trying to say the right thing, and in all likelihood was even trying to compliment me with the “OMG, you look so healthy for someone who’s battled cancer” business. I know it’s a sticky situation, people, and that it’s hard to find the right thing to say. But really, is it that difficult?

I’m the absolute last person to look at a cancer diagnosis as a gift. It’s not. It’s a diagnosis of a terrible, terrifying disease. If you think cancer is a gift, kindly remove me from your list of people for whom you shop. I’m out. Yes, good things can come from a bad situation: new friendships blossom, existing relationships are strengthened, the depths of one’s character are carefully examined, yadda yadda. But at the end of the day, if someone tells me I’m better off for having had cancer, I call bullshit.

I recently read an interview with Melissa Etheridge about her breast cancer. She joined the pink ribbon club in October 2004, and has been quite outspoken about her “cancer journey.” I like Melissa Etheridge. I like her blatant feminism and her moxie. She displayed some rockin courage when she performed, bald, at the Grammys shortly after being diagnosed.

blogs.citybeat.com

Things like her bald performance are very good for cancer patients, no doubt. Her decision to not wear a wig forces people to see the harsher sides of cancer, and I applaud her courage in putting herself out there, even if seeing her bald head makes some people uncomfortable. Especially if seeing her bald head makes some people uncomfortable.

But she also talks about cancer about something for which she’s grateful. I guess that takes courage, too, but I have a problem with it. She says that when someone tells her they’ve been diagnosed with cancer, her reply is “Wow, great! Your body is telling you that you can’t go on like this and you have to change. You’ll look back on your disease and say ‘I’m glad that happened to me.’ ”

Well, guess what? There was precious little in my life that needed to change pre-cancer. I exercised 6 days a week, ate heathfully, drank lots of water, avoided toxins, and worked hard to have a balanced and healthy life. Cancer got me anyway. I certainly won’t look back on this — assuming it ever ends — and say I’m glad it happened to me. Uh uh. No sir. No way. I can’t imagine looking back on this and saying I’m glad it happened. That its was a gift. Not in a million years.

Listen, Melissa: someone who’s newly diagnosed — and most likely terrified, freaked out, and shocked — does not need to hear someone essentially say, “Oops, I guess you’ve been doing it all wrong and this is your fault.” I don’t care if you are a celebrity and a Grammy winner. Zip it. No one needs to hear that. And no one needs to hear that cancer is a gift, either.

Sheesh. I’m not even going to get into the whole mess of it’s easy for her to say that, she’s a star and has plenty of money/time/resources/help/clout. That’s a post for another day (even though it’s true). Let’s stick to the idea of how wrong it is to imply that the person with cancer is somehow at fault, that he/she did something or didn’t do something that caused their cells to go wonky and create a shitstorm in their body. Wrong, wrong, wrong.

I will never forget my sweet  breast surgeon Dr Dempsey looking me in the eye while holding both my  hands and saying, “This is not your fault. You did not cause this cancer.” Here’s that part of the notes that Boss Lady took for me that day (doesn’t she have nice handwriting?). I’m not a touchy-feely person at all, but Dr Dempsey is, and she did me a huge favor that day by looking me in the eye and telling me that this is not my fault. I’m all for accepting responsibility, but not here, not when it comes to cancer. It’s not my fault, I’m not glad it happened to me, and it’s not a gift.


Welcome to funk-ville, population 1

If you’re looking for a laugh or an inspirational story, you’ve come to the wrong place. I’m in a funk and there’s no amount of lipstick that’ll pretty up this pig (the funk, not me). My thoughts are scattered like leaves falling off a tree (if only that conjured up visions of the russet colors of fall, of leaves parachuting off of trees as they ready themselves for the change of season. That does happen in some parts of the world, but here, in the land of eternal summer, and in this infernal record-breaking, never-ending summer, the only leaves falling from the trees are brown and crackly, dead from the drought. How’s that for a cheery thought?).

I’ve been struggling the last few days. I’m frustrated with the pace of the healing from the latest surgery–yes, I’m a whole lot better, but I want to be done. I’m madder than a wet hen about the effect of the last surgery on my tennis game, and wonder if I’ll ever get my serve back. I’m worn out from the swirling, worrying thoughts of whether I’ll ever have the results I want. I’m both impatient for and dreading the next round of revision. I’m tired of being tired. I’m pissy about the fact that I’m still battered and sore. I’m ready to rip the port right out from under my skin because it catches on my clothes and shoots a sick sensation up my neck that reminds me the damn thing is sewn into my jugular vein. Oh, and it looks weird, too. I’m sick of cancer and all its many fallouts.

Normally, my solution to such a funk is alcohol. Lots of alcohol. Every night is ladies’ night when the funk shows up at my house. But there’s a niggling voice in the back of my head reminding me that alcohol is a major contributor to breast cancer, both initially and in terms of recurrence. And since not a day goes by that I don’t think about recurrence, perhaps I should avoid using alcohol as a balm for my beat-up soul. Dammit. Yet another way cancer has wreaked havoc in my world. If I can’t in good conscience comfort myself with booze, I’m in real trouble. This is no fun.

When I was diagnosed last year, Dr Dempsey gave me a stack of play money. She handed it to me and said it is very important currency. Each “dollar” bill was a free pass to be in a funk. To throw a fit. To have a pity party. As she put it, “to lay in bed watching Lifetime and eating ice cream.” I laughed and thought, pfffft! I won’t need that. I got this. Me and my positive attitude can kick this cancer no sweat. 

While I am happy to report I’ve spent not one day in bed watching Lifetime and eating ice cream since cancer shat upon my head, I’m thinking I may need to pull out one of those dollars. How crazy is that — after all the crap I’ve been through, after seeming like I was finally getting close to the finish line, now I fall into the funk?

Don’t worry, I’ve already run through all the reasons I have to be happy: I’m alive, the worst is behind me, I’m not in the hospital, I have neither drains nor a wound vac attached to me, I’m cleared for exercise, I have great doctors and comprehensive insurance, I have a stellar support network, blah blah blah. Yes, all of that is true, and I know in my heart of hearts that there really is more good than bad  in my life. I know that one day this whole “cancer journey” will be a speck of dust in my rearview mirror as I travel along the grand highway of a happy life. But right now, the funk rules.

Those of you who are within shouting distance have been hearing about it. The frustration, the impatience, the pissy-ness. What you won’t hear, though, is “Why me?” because really, does it matter why? Not so much. What matters is how ya sweep up the mess that’s dumped on ya, and most days I’m armed and ready with the broom & dustpan. But for now, I’m frustrated, impatient, and pissy. And mad. I’m mad, too.

I’m mad that this damned cancer “journey” has to be so hard for so long. I’m all for rolling up my sleeves, gritting my teeth and getting through it. I fully support Winston Churchill’s idea of “If you’re going through hell, keep going.” I believe Eleanor Roosevelt 100 percent when she said “A woman is like a tea bag — you never know how strong she is until she gets in hot water.” I gather strength from Robert Frost telling me “The best way out is always through.” But geez, does it really have to be this arduous? The ways in which cancer robs us are seemingly endless, and breast cancer in particular is a repeat offender, a pathological thief.

I just read this article, “What’s It Really Like to Live Through Breast Cancer?” Today especially, I needed to hear other women’s stories. Valerie, age 52, said that “she needed symmetry. She needed things to be as they should. She needed, after two years of surrendering to the opinions of doctors and the input of the cancer Web, to have an ounce of control over her body.” Yeah, me too.

Renee, age 47, said that “when I had her mastectomy sutures taken out, I asked the surgeon to remove the Sharpie mark she’d made—the black line that went across my ribs like a big smile—and the surgeon asked what line? I pointed. Her eyes got big and she said, ‘That’s your incision, Renee. We opened up your body. We removed a lot of tissue.’ ”

There are lots of Valeries and Renees out there. One in eight women will be diagnosed with this dreaded disease in the United States alone. Worldwide, there are 1.3 million new breast cancer diagnoses a year. That’s more than a million women who will endure this disease. Of them, some 465,000 will die from it. But even those who survive it, like me, will carry the weight of the disease. The physical scars Renee spoke of are nothing compared to the emotional ones. People say we’re lucky that our cancer occurs in a body part that can be removed. True, but it also means that we see evidence of that cancer every day; if I had a kidney removed, I wouldn’t be confronted by the railroad tracks of a long, harrowing journey every time I undress.

Sure, it’s better to be scarred than dead. No question. But being alive doesn’t mean I have to be happy all the time. It doesn’t mean I won’t get in a funk and be frustrated, impatient, pissy, and mad sometimes.

But the funk will pass, hopefully sooner rather than later. Like in Carl Sandburg’s beautiful little poem, the funk, which can come in like a herd of elephants or on “little cat feet,” will overlook my city “on silent haunches,” and then move on outta here.

(thanks to google images for making it so easy to pretty up my blog today)


I buried the lead

In my post yesterday I committed a journalism felony — I buried the lead. See, the lead is the most important part because it gets the reader’s attention. Typically the lead belongs in the first paragraph, to suck the reader in and encourage him/her to read the whole story. The Weekly World News and The National Enquirer have mastered the art of not burying the lead. I learned about that at the Paul Miller School of Journalism & Broadcasting back in the Dark Ages

I didn’t mean to tease you.

I forgot to mention something pretty important yesterday, and I thank the kind readers who expressed concern. I have been fearful of starting my period, but have absolutely no reason to think that will happen. There’s been no, er, physical evidence; nothing but my own cancer-fueled insanity to make me think this fear will materialize. I could imagine this bout of insanity becoming a sleeper sequel to the 2007 Daniel Day Lewis movie. Instead of the story (based on Upton Sinclair’s novel Oil!) of the early oil boom in Southern California, in this story, There Will Be No Blood.

There will, however, be insanity. Plenty of it.

 

 

 


Daymare

What do you call a recurring nightmare that happens while you’re awake? Recurring daymare doesn’t sound right at all. Whatever it’s called, I’ve been having it. Guys, you may want to click on over to espn.com or continue searching for pics of Minka Kelly in a bikini because I’m fixin’ to talk about some lady stuff.

This blog has been my outlet for all things cancer-related: the good, the bad, and the ugly. Sadly, the latter two categories way outweigh the first in this trilogy, but that’s when you grit your teeth and plow right through it. There’s been much discussion on this blog about highly personal things, and lots of talk about boobs (sorry, guys; not the Minka Kelly type of talk). Such discussion is brutally honest and at times of the sort that makes people uncomfortable, but that’s how I roll. I could no more ignore the elephant in the room than root for the Yankees (dang, even the thought of that makes me sick to my stomach). I never learned how to sweep things under the rug or look the other way, and I’m not one bit sorry.

So, with the disclaimer out of the way, it’s on to the recurring daymare. Several times in the last few days I’ve had a moment of sheer panic when I think I’ve started my period. Not sheer panic in the sense of it’s gonna be a gusher and I’m in my white tennis skirt far, far away from any feminine hygiene products. No, this sheer panic is in the form of a stark realization that if I were to start my period again, after 17 months, that would signal the end of my chemically-induced menopause.

And that would be bad. Very bad.

Not that I love menopause, not by a long shot. I especially do not love menopause at the age of 42. Going through the ‘pause a decade early is cruel and unusual on many fronts: it’s yet another reminder of having been diagnosed with a potentially deadly disease while my kids were still in grade school; it sucks to be enduring it years before my peers; and it forces me to face all the unpleasantries of how breast cancer can destroy one’s self-confidence and body image at a time in which one should be living large in the prime of one’s life, to name of few.

But menopause for me means that the hormone suppression — which comes at quite a cost — is working. It means that the hormones that fueled my cancer are gone. There one day, gone the next. Hormone suppression causes me a litany of problems, but it means instant famine for my cancer.

If I were to start my period, it would be a red flag (pun intended) that my ovaries were pumping out the hormones that cause a technically-she-should-still-be-fertile woman to start her cycle. And while I’d love to return to that carefree time in which my ovaries pumped out whatever hormones necessary to keep me from being the withered husk of a woman that cancer tries to make me, it would be very bad news. I’m already on the short list at my doctors’ offices (plural) for being a troublemaker. The last thing I need is to ring my onco-crush, as Trevor calls him, to say, “Guess what? The ‘take one pill daily for five years’ Tamoxifen and the quarterly shots of Lupron aren’t working anymore.” I think that sweet man might have a heart attack. And I’d never hear the end of it from Dr S, who not-so-secretly thinks I invent symptoms to have a reason to go see my onco-crush, all the while shaking his head and muttering about what anyone could possibly see in a young, handsome, fit Peruvian doctor when there’s a much-older, much wiser plastic surgeon to adore.

This latest daymare is a perfect example of the PTSD that cancer patients endure. I imagine there are some cancer patients out there in this big, wide world who finish treatment and declare that chapter of their life closed, never to be stressed over or fretted upon again. I’m clearly not one of them. I hear tell that one day, this nasty cancer business won’t be in my forethoughts all the time but will be demoted to a back-burner status. I’m not there yet, but I’m hopeful. For now, though, the thoughts are there, and the fears are many. Things that used to scare me don’t scare me anymore (namely needles, but having been poked so many times I’m over it. In fact, I gave myself a shot the other day, like it was a normal, everyday event) but things I never knew were scary now scare the fool outta me. If that makes any sense.

The other day I was chatting with a friend in the parking lot in the brutal and ongoing Texas sun, and suddenly I felt something that flipped the switch from “I’m a normal person having a normal, non-cancer-related conversation with a friend” to full-blown panic, just like that. The feeling? Something wet was collecting, not quite pooling but definitely collecting, under my newly constructed right breast, site of the infection of the year that turned an average bilateral mastectomy recovery into a shitstorm, for lack of a better word.

I went on with my normal, not-cancer-related conversation, hopefully as if nothing was wrong, but was seriously panicked inside. Visions of hospital beds filled my head; the hospital smell that I dread more than words can say infiltrated my nose; and I could almost feel the 20-gauge needle puncturing my skin to access my port so the army of big-gun antibiotics could get in and fight the enemy. In my mind, I had been admitted and diagnosed with a recurrence of that damned infection within the span of a couple of heartbeats. In reality, it was a simple bead of sweat.

Ahh, yes, a simple bead of sweat. Such a common character in the land of perpetual sun, magnified a few million times by standing on a blacktop surface. A simple, everyday occurrence in the life of millions of Texans and citizens of other hot (but not as awesome) states in this fine country. One little bead of sweat that most people don’t even notice had the power to instantly transport me back to the hell that is included, free of charge, with a post-mastectomy infection.

Somebody wake me from this daymare.


I’m expecting a big fat “rejected!” notice

Trevor is trying to get life insurance on me. I’m sure that should make me nervous on some level; however, I think he knows that even on my worst day, his life is a bit easier with me in it. Right?? Right??

Here’s what’s funny: I had to fill out a bunch of online forms, knowing I don’t have a snowball’s chance in hell of being accepted. It’s ok, I have really thick skin. I don’t worry too much about rejection.

The online application has a big section on heath issues, conveniently divided up into categories: physical exam; common conditions; skin, hair & nails; musculoskeletal; women’s health; and “other.”

I’m sure I would pass the physical exam, as long as they give partial credit for having partially finalized body parts. The common conditions section included questions on whether one has had problems with things like colds, flu, allergies, as well as kidney stones and appendicitis. Since when did the latter two become common? I hope I never have either.

The skin, hair & nails section sadly had nothing to do with how fastidiously or fashionably maintained one is. I would pass with flying colors on exfoliated, moisturized, and sunblocked skin, as well as highlighted hair and a nice mani-pedi. But no, they want to know about boring stuff like shingles and psoriasis.

Musculoskeltal was a little more interesting with queries about back pain, bone spurs, fractures, and plantar fasciitis. No, yes, yes, and yes. That was easy.

Women’s health dealt with exactly what I’d expect: birth control, menopause, hormone replacement therapy. In other words, some of the most depressing topics on the website. No need for birth control when you’ve been thrown into early menopause. The baby-making department has not only been downsized but is out of business and closed for good. Menopause? Yep, in spades. Every symptom under the ‘pause banner got a big, thick checkmark from me. Hormone replacement therapy? No chance. The damn hormones fed my cancer machine, so there’s no way I’m going to replace them. Not even if they begged me to come back. 

The “other” section inquired about a smorgasboard of topics: concussions, cycts, hernias, and plastic surgery. Hmmm, seems strange to throw the plastic surgery one in there. I can’t wait to tell Dr S that his exalted specialty is lumped in with such ordinary things. 

After checking the boxes and reading the laundry list of symptoms and conditions, I had to give specific detail about any “health concerns.” This is where I’m expecting the giant red “rejection” stamp to hit. The questions:

“#1. During the past three years, have you for any reason consulted a physician(s) or other health care provider(s), or been hospitalized? #2. Have you ever had, or been treated for, any of the following: heart, lung, kidney, liver, nervous system, or mental disorder; high blood pressure; stroke; diabetes; cancer or tumor; drug or alcohol abuse including addiction?”

No amount of creative writing or playing fast & loose with the facts is going to help me here.  During the past three years, I have indeed consulted a physician(s) or other health care provider(s) and been hospitalized. Further, I have indeed been treated for cancer or tumor; the jury is still out on the mental disorder and the drug/alcohol abuse issues. I’m thinking those could go either way. 


Weekend review

So it’s Tuesday, and I’m still recovering from my weekend. Lest you think it’s because of all the wild partying I did, let me set the record straight. My brain has decided it’s time to be back to “normal” after my latest surgical procedure (whatever the hell “normal” is), but my body says it still needs more time. Going about what used to be everyday business for me still wears me out. As much as I try to fight it, it’s true. As much as I want to pretend it’s not so, it really is. And as much as I hate it, it’s reality.

Friday started with me spending 2 hours trying on bras. My brain decided it’s time to start wearing a bra again; to pretend to be “normal” and be like every other girl out there. My body, however, said, “Nah, normal is overrated so we’re gonna fly our freak flag a little longer.” If you think it’s hard to fit a square peg into a round hole, try fitting an elliptical boob into a standard bra cup.

Friday evening was Macy’s mock swim meet, to prepare all the kids who now swim year-round but who have never participated in a swim meet. My little fish knows what to do at a meet, so it was old hat for her, but not for the hordes of screaming masses congregated around the pool. After my looooong, unproductive session in the dressing room, being around tons of hepped up kids wasn’t my idea of fun. As luck would have it, there was a lounge chair at the end of the pool, so I grabbed it and thought longingly of an ice cold Negro Modelo. My “luck” was short-lived, as the area near my chair was where all the swimmers gathered to line up in their heats. No wonder that chair was available. Now I needed two Negro Modelos.

After a very long 2 hours, we were released from one of my personal versions of hell, and we skipped on over to the next neighborhood for some pizza & fellowship with Boss Lady and the Rajah. Good times, and I don’t mean just the bottle of champagne I had to myself.

Saturday morning was my much-anticipated return to the tennis court. I won’t say my game hasn’t suffered in the last several weeks because you loyal readers are much too nice to lie to. Let’s just say that the elliptical boobs wreaked havoc yet again and that my tennis game is all kinds of messed up. Who knew it would be so hard to serve with half a breast in one’s armpit? A good time was had by all nonetheless, and I did manage to rock a few nice passing shots despite my multitude of double-faults.

After tennis we had to skedaddle across town to buy not one but two cars. Ok, we didn’t have to, but we did. We got some rain Saturday for the first time in a coon’s age–about three months, to be exact–and while there are some people who would say something smart-alekey about the odds of Houston finally getting a good deluge on the same day we buy two new cars, I am not one of them. The fact that it hasn’t rained in Houston enough to measure since June 22nd but poured buckets on my new car day didn’t bother me one lick.

After two weeks of driving the adorable red Fiat 500C everywhere I could, I made it legal, and she is now mine, all mine.

Yes, she really is that cute in real life.

The dealership has a 50 club for the first 50 Fiat buyers, and I’m officially in it. I got to sign the canvas on the wall, and I may change my name to 21. If Chad Ochocinco can do it, why not me? If anyone is ready for a fresh start, it’s me.

Our reward for our super busy day was sushi and fantastic cocktails with two of my favorite people, Thad & Yvonne, at a new restaurant. The blood orange martini was sublime, as was the gigantic platter of sushi. 

I still can’t decide which was my favorite, but it may have been the special red snapper sashimi we had before the gigantic platter. If you go there, ask for Sonny for your waiter. He was knowledgeable about the sushi, but more importantly, he recommended we order the martinis without the simple syrup but with extra alcohol. My kind of guy.

Sunday there was more fun to be had, with a trip to the Metropolitan Food & Entertaining Show at Reliant Park. The highlight of the show was seeing Paula Deen in the Celebrity Theater. Listen, y’all: she’s a hoot. I’ve seen her show on Food Network a few times, and I’ve tasted her recipes at potlucks and cocktail parties, but to be honest, I don’t follow her because I’m afraid that if I eat the way she cooks, I won’t be able to fit in my chair to write this blog. Yes, she does love butter, but there’s more to her than fried food.

Namely her outsized personality. She’s funny, warm, and honest. Even though we were surrounded by 2,500 screaming fans, she made it feel like we were sitting around her kitchen table chatting. Her husband, Michael, was with her, as was his brother Hank and a chef. Just offstage was Hollis, who I gather is her bodyguard. He just got some new teeth, and she encouraged the camera to zoom in on him so he could show them off. I got the distinct impression that Hollis isn’t one for a lot of smiling, and Paula likes to poke at him a bit.

Clearly, she and Michael have a great relationship, and the banter was flying between them. During the Q&A session, Michael proved to be as quick-witted as Paula had said he is when an audience member asked Paula if she remembers the very first thing she ever cooked. Before she could answer, Michael said “Dinosaur!”

It was hard to get a good shot of her, even though we had good seats; this will have to do. If you’re a foodie like me and are wondering what she cooked, the answer may surprise you. She didn’t cook anything. The guys did all the cooking so she could visit. They made bacon-wrapped chicken thighs, macaroni & cheese, and apple cake. The food wasn’t the highlight: Paula was. It was like an evening at the Improv, and she had the audience roaring with laughter.

She reiterated that she’s not a classically trained chef, saying, “I ain’t a chef, I’m a cook, baby!” Talking about the food the guys were cooking, she said it was “so good it’ll make your tongue want to slap your brains out.” And she said she loves Texas girls because we have “the biggest hearts, the spirits, and the biggest hair.”

Paula Deen is one smart cookie. And that was one fun, but tiring, weekend.


The phoenix

Yesterday’s visit to the doctor was the usual highlight of my day. We laughed, we sparred, we talked about my new Fiat, and I once again stood buck-naked in front of his omnipotent eyes for my three-week post-op checkup. Here’s where it got interesting: I told him that while I appreciate his valiant efforts in the OR, I’m not happy w the results. Shape, size, asymmetry, bumpiness…. I’m sure I wounded him deeply, but had to get it out there. And of course, it goes without saying that I’m not dissatisfied with his work, quite the opposite, but with the ongoing, multi-step drudge that is reconstruction.

I asked about options if the fat transfer doesn’t yield good results. It’s a relatively new procedure and data is scarce, so it’s hard to predict the final results. But I need options. Can he suck out the fat he’s transferred? Can I go back to being totally flat-chested? Because honestly, I’d rather be flat as a board than have an elliptical uniboob. The cleavage line looks great, but only from a distance, and I’d sacrifice it to get back to the point of being satisfied with my chest.

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I know it’s hard for a plastic surgeon to grasp that a woman in the USA doesn’t want the biggest knockers she can possibly get, but I keep hammering away at the fact that I am indeed that woman. I’m all for a curvy silhouette but do not want big boobs.

To fix the aspects I’m dissatisfied with, we need to inject more fat, which results in a bigger bust. I don’t want that. I’ve said from Day One that I don’t want that. In fact, I think my exact words to the doc in my consultation right after diagnosis were “If I wake up from surgery with DDs I will kick your teeth in.” Direct quote. In fact, I need to get him a little pillow for his office couch with that message needle-pointed on it. That, and my other recurring message to him, also uttered at that first meeting: I know I’m not your only patient, but I’m your most important patient. I have threatened to get that needle-pointed for him, too.


Not quite able to wrap his brain around my crazy-ass request, the doc asked if I’m talking about sucking out the fat transfer part or the entire DIEP flap. I said the latter. If I’m going to go back to being totally flat-chested, I can’t have former-tummy-nee-breasts hanging around. To say he was stunned is the understatement of the day. Probably of the week. Maybe even the year, and perhaps this question would score high on the top 10 list of most shocking things I’ve ever asked for. googleimages.com

I reminded him that I understand that reconstruction — and revisions — can be a process. In my case, a multi-step process. As much as I’d love 1-stop reconstruction, that was not in the cards for me (thanks for nothing, mycobacterium, you wily bastard). Revisions to reconstruction are a process. I get it. Change comes incrementally and require more than 1 surgery. I get it. But being an “I wanted it yesterday” kind of girl, I’m impatient. And being a procedural rather than big-picture kind of girl, it’s hard for me to imagine how this is all going to turn out once the scalpel is laid down, the anesthesia wears off, and the final revision is complete. Whenever the hell that may be.Needless to say, the good doctor wasn’t crazy about my idea of sucking out and throwing away all of his hard work. We discussed the biggest source of unhappiness with my newly created breasts: the shape. Granted, it’s mind-boggling to me that a surgeon can cut a gal open from hip to hip, harvest the skin, fat, and blood vessels from her belly, stretch the remaining skin back together and stitch it up into straight line, replant the blood vessels into the chest wall, and form the skin and fat into any semblance of breasts. That truly boggles my mind. And yet, it happens, every day.
While I understand on an intellectual level how difficult this surgery is, and that the shape of the belly-turned-breasts may need some fine-tuning, and while I have every confidence in the doc’s skill and artistic ability, I still have a hard time believing that what I see today will ever look right. I know i twill, but I just can’t see it right now. I can’t envision how the oval-shaped uniboob will ever evolve into separate but equal, nicely rounded, not-too-big breasts. I just don’t see it. I’m accustomed to the sports-bra-induced uniboob, and I realize that sometimes bad things happen to good boobs, even Oprah’s. 

All this talk we Cancerchicks hear about how lucky we are to get new boobs is utter horseshit. I’m on the record saying that is a humongous load of crap. I was perfectly satisfied with my pre-cancer body, and there’s not one thing I can name that is better now. Ok, except for the absence of the tumors that would have eventually spread and killed me. That part is definitely better. And I’m no longer afraid of needles. Having been poked and shot up more times that I could ever count, and with a boatload of port flushes and blood draws and monthly B12 shots and quarterly Lupron shots and injections for scans ahead of me, I don’t even flinch anymore. Not even the thought of a 20-gauge needle piercing my skin and extracting my lifeblood scares me anymore. But conquering the fear of needles doesn’t really count as a way in which my body is better after my cancer “journey.” 

I’ve never been one to be hung up on body image (thankfully, because that can mess you up bad). I’ve never aspired to be a super model, which is a good thing because I’m pretty sure there’s not much of a market for 5-feet-tall candidates who aren’t stick-thin. I’ve always viewed my body as a workhorse: the vessel that contains the essence of who I am; the engine that drives me in sport and play; the carrier that allows me to complete the mundane tasks of domestic life such as unloading groceries and maintaining my home; and most importantly, as the oven and keeper of 2 precious babies who are growing up to be amazing people, if I do say so myself. 
From Day One of my cancer “journey,” I knew in my heart of hearts that losing my breasts but keeping my life was a trade I was willing to make. I knew beyond a shadow of a doubt that I am more than my breasts. While clothes may make the man, breasts do not define the woman. I certainly wasn’t happy about being diagnosed with breast cancer and undergoing a bilateral mastectomy, but I wasn’t sad about losing my breasts. I looked at them the same way I look at a spot of mold on a hunk of my favorite manchago cheese: cut it off so it doesn’t spoil the rest. 

I will admit, however, that I bought into the whole “new boobs” scam. I thought, well at least I’ll be nice and perky in the old folks’ home. No one tells you, though, that the “new boobs” may never be better than the old ones. Hell, they may never even be equal too, and dammit, they might even be lesser than. This is a closely-guarded secret of the “new boobs” scam, and I’m happy to expose this untruth for all the world to hear. 

Now before you start sending me hate mail or telling me I’m flat-out wrong, I will concede that for a lot of women, reconstructed breasts are better than their saggy, flabby, pre-cancer breasts. I’ve seen plenty of photos on the web from countless plastic surgeons, so I know this much is true. But guess what? I’m not one of those women. Most of those women are 20+ years older than me and 40+ pounds heavier than me. For them, the “tummy tuck” part of DIEP reconstruction is a godsend. For me, not so much. I’d happily go back to having a slight pooch if it meant not having a 17-inch scar across my belly. No question. 

Lest I’m not clear, let me reiterate: I’m thrilled with the fine work that the highly skilled docs did. Going from a concaved chest wall that had endured multiple tissue excisions to an adequately stacked chest was a small miracle, performed by my 2 docs and their professional team. Knowing that there were 4 people conducting the transformation was immensely reassuring as I underwent the DIEP. This talented group made it possible for this beleaguered phoenix rise from the ashes, no doubt.

But this phoenix isn’t happy with reincarnation alone. This phoenix craves the return to what used to be, but what is no more. 




Pink ribbon club, celebrity style

NBC Chief Foreign Affairs Correspondent Andrea Mitchell is the latest public figure to share the dreaded news with the world: she’s been diagnosed with breast cancer. She announced her diagnosis and her “terrific prognosis” on the air last week.

Mitchell no doubt shocked her viewers when she said, “I had planned to be hiking in Wyoming last week, but instead discovered that I am now among the one in eight women in this country–incredibly, one in eight–who have had breast cancer.”

She seemed to stumble a bit on the words “who have had breast cancer,” perhaps because the news is relatively new for her and like most people who receive such a shocking diagnosis, her brain was still working hard to process the reality.

I’m not going to comment on the verbage she chose and my objection to the past-tense idea that she had breast cancer. My Cancerchick blogger friends have covered it more succinctly than I could, and while I think Mitchell is a little kookoo for assuming her cancer “journey” is over so soon after it began, one thing I’ve learned on my own long, involved “journey” is not to judge a fellow Cancerchick. Just as I learned firsthand that no one has a right to tell anyone else how to grieve (and if you try it, I will punch you in the brain), I believe that every Cancerchick has the right to conduct her “journey” however she sees fit.

Some of us are loud & proud with the disease and want everyone to know about every twist, turn, and detour on the “journey.” Some are guardedly private and keep everything quiet. Some go kicking and screaming into the OR, radiation suite, and infusion room. Some arm themselves with all the latest research and become fonts of useful information for other Cancerchicks. It’s very personal, and as varied as cancer’s victims are, so too are their responses to it.

I admit that as much as I hate to hear about one more woman joining the pink ribbon club, part of me feels a little less than compassionate toward Mitchell and her diagnosis. She’s 64 years old — more than 20 years older than I was when diagnosed. As far as I can tell, she has no kids — and if she does, they’re old enough to understand this breast cancer mess. I’m pretty sure she’s not juggling homework and the care & feeding of young kids while also battling the beast.

As for Mitchell’s other plans, to be hiking instead of hearing words that will forever change her life, I have one piece of advice: get used to it. As the sage John Lennon said, “Life is what happens while we’re busing making other plans,” and cancer has a crafty and crappy way of infringing on those plans.

Me, I was busy living an ordinary suburban life, packing lunches, driving carpool, and running my kids to baseball and tennis when I wasn’t on the tennis court myself. I admit I had no aspirations to hike in Wyoming. I’d spent many an hour volunteering at our elementary school and was contemplating other ways to give back to my community. A perfectly ordinary life, some days better than others but most filled with laughter, good friends, and happy times.

Once cancer picked me in the great genetic lottery, much of that perfectly ordinary life changed. All of my brain power was rerouted to disseminating this terrible information, researching options, facing the hard truths, and making a plan to conquer this vicious beast. I started a Caring Bridge journal to keep my friends & family informed, and remember writing this one week after my diagnosis:

“Today the exhaustion has set in, and the strain of keeping up with my regular life and taking on this new job of facing cancer has hit me hard. Nothing a cold bottle of Piper Sonoma can’t fix, but I truly feel like I’ve been hit by a truck. I’m fixin’ to get into my jammies and climb into bed. Today is one week to the day of diagnosis, and it feels like I’ve run a marathon. Maybe two.”

I hope Andrea Mitchell has a good pair of running shoes. Even in her caught-it-early optimism about the battle that is breast cancer, even with “a terrific prognosis,” the race is long. I do hope that Mitchell is correct in her prediction and that she’s able to get rid of her cancer “in one fowl swoop” as my sweet friend Paula’s 12-year-old son Boyd said about my cancer. But I also hope she knows that in this cancer “journey” there are lots of twists & turns along with many, many detours that test one’s patience, zaps one’s strength, exhaust one’s resources, maim one’s body, and stress one to the max.