Blogging is the last thing I should be doing right now…
Posted: October 7, 2011 Filed under: Uncategorized | Tags: body art, Kat Von D, Maria Pace-Wynters, mixed media art, original art, postaday2011 10 CommentsBut in between tennis drill and the next chore on the list, I stopped by the mailbox. Haven’t been all week, and the box was crammed full. There’s the usual overload of flyers and junk mail, then a box from Amazon containing the book Payton has been waiting for, and way in the back of the box, a lovely surprise for me. 
I love getting surprises in the mail. 
I’m especially in love with the “Air Mail” sticker. Something about that “Par avion” seems so exotic and speaks of faraway lands interspersing with the everyday aspects of my home life.
Even the return address sticker is beautiful and exotic.
The package was so pretty I waited a while to open it. And y’all know I hate waiting. 
The “Petit Paquet” label was so cute and charming that it deserved its own photo. Thank you, Maria, for such a lovely surprise in my mailbox.
After a sufficient waiting period (5 minutes or so, which is a long time for someone as impatient as me), I tore into the package. What a cute little box I found inside. 
I would have been perfectly happy to have a “build your own rocking rabbit” but what was inside the cute little box was even better.
It’s the artwork I ordered from Maria Pace-Wynters.
Oh. My.
It’s even more beautiful in person, and her blogsite blows me away every time I look at it.
I had to just stand there and stare at the cellophane-wrapped pieces for a minute.
And then I tore into them.
Couldn’t get them open fast enough, so I could behold their beauty and revel in the explosion of color.
I came across Maria’s artwork randomly, as I searched google images for an adornment for this post, a while back.
I promptly fell in love with her art. The colors. The composition. The little girls. The foliage. The dreamy quality. I could go on and on, but I’m gonna let the art speak for itself.
The smile on this little girl’s face is such a good antidote to the doldrums, the bad days, the things that go bump in the night. I sure wish I’d been gazing upon that face Wednesday after my terrible, horrible, really bad, no-good day (more on that later, once the stink of that day is fully gone and I can write about it without cussing too much).
Macy picked this one out, for her new room. Well, it’s the same room but we are going to re-do it. Give it a makeover because she refers to it as her nursery. Now that she’s all grown up and doesn’t need lilac walls and a lime-green ceiling, she’s trending toward a bolder wall color, like the vibrant blue of the birds in this pieces. She also really loved the “body art” (yes, she used that term, and she knows who Kat Von D is, so I’m scared, really scared). Nothing against Kat or the inked population, just seems a little freaky for my girl to be so well-versed at such a young age. 
I really did have every intention of putting this print on Macy’s wall, once we lose the baby paint and get the big-girl stuff on, but then I noticed how lovely it looks against the goldenrod paint of my dining room.
Oh, and it looks even better against the fireweed paint in my kitchen.
Come to think of it, they all look great in the kitchen.
I love how the girl’s red hair is set off by the red paint.
Oh, hers too!
But wait, they look pretty great against the olive green of my office, too. 
I think I’m gonna need some more artwork.
RIP, Steve
Posted: October 6, 2011 Filed under: cancer fatigue | Tags: Apple, cancer sucks, commencement speech, iPad, iphone, iPod, losing loved ones to cancer, postaday2011, Steve Jobs 9 CommentsThe world has suffered a huge loss today. Not because he was famous, or rich, or any of those externalities. But because he was a game-changer. Steve Jobs set out to change the world, and he did just that. In ways big and small, he did just that.
Not only did he bring to the general public some of the most useful products of my generation (iPhone, iPod, etc), he encouraged a nation of people to be better. At whatever they do. He gave commencement addresses that inspired me, and I’ve never been in his audience. Speaking at Stanford to the class of 2005, he said:
“Your work is going to fill a large part of your life, and the only way to be truly satisfied is to do what you believe is great work. And the only way to do great work is to love what you do. If you haven’t found it yet, keep looking. Don’t settle. As with all matters of the heart, you’ll know when you find it. And, like any great relationship, it just gets better and better as the years roll on. So keep looking until you find it. Don’t settle.”
And don’t sit still — he wasn’t a fan of resting on one’s laurels (and if anyone could have rested, it would be him). But that shows just how special he was, that he wasn’t satisfied with having done enough, he wanted to do more. On the news one night in May 2006 he said, “I think if you do something and it turns out pretty good, then you should go do something else wonderful, not dwell on it for too long. Just figure out what’s next.”
Sadly, there is no “what’s next” for Jobs, but his legacy will live on.
To say that he was a visionary seems trite, insufficient, but it’s true. I love that he knew what the public wanted, in terms of Apple products, so well but wasn’t cocky or full of self-importance. This quote in BusinessWeek in May 1998 sums it up: “It’s really hard to design products by focus groups. A lot of times, people don’t know what they want until you show it to them.” True, so true. If someone had described the iPhone to me before I had one in my hand, I wouldn’t have gotten it.
I’m not a gadget-y person. I don’t like stopping long enough to learn how to use something but prefer to dive in and figure it out as I go about my busy day. I’m not a reader of manuals, but that’s the beauty of the Apple products, and of Jobs’s insight into product design: you don’t have to figure it out because the device figures it out for you. Jobs truly understood how to show us what we want and need, without it being about him, about Apple, about financial success. He seemed to really care about doing great things. Way back in 1993, when I was a newlywed without a cell phone, an iPod, or an iPad, Jobs told the Wall Street Journal: “Being the richest man in the cemetery doesn’t matter to me … Going to bed at night saying we’ve done something wonderful … that’s what matters to me.”
My most favorite thing about Steve Jobs was his attitude toward the innovators all around us. You don’t have to be CEO of one of the most successful companies in the world to be an innovator and affect change in your life, and Jobs spread that message far and wide. I happen to live with a 9-year-old who follows the Jobs model. While I admit I’ve often thought if she were more like other little girls, it sure would make my life easier, but that’s short-sighted and temporary. Yes, buying a Disney Princess costume would be much easier than figuring out how to bring Domo to life, but that’s not her.
And I’m glad. Just like it’s not her to choose a “normal” job to research and present to her class in a career day speech. While the other kids see themselves becoming nurses, MLB players, dancers, and electrical engineers, my little innovator chose the lead singer for KISS. In all seriousness. It never even occurred to her that this is wacky or unusual or “out there” because that’s how she rolls. She wasn’t looking for giggles or shock value; in fact, she probably wouldn’t care if others thought it weird or unusual or shocking that she wants to be the lead singer for KISS. She can’t sing, but that doesn’t stop her from thinking this way. It was hard to keep a straight face as she practiced her speech in her jammies the night before delivering it, as I marveled at her “outside of the box” self.
I think Steve Jobs would have approved. I think he and my girl would have liked each other. I can see them hanging out, talking about crazy stuff like a tiny device that can hold all your music, so you can listen anywhere as you do whatever you want. Like a home computer with a processor half the size of a shoebox but with plenty of computing power. Like a computer application that allows you to make and edit home movies good enough to be shown on the big screen. Like a fully functioning personal computer you can carry in your pocket. Like a Japanese anime character costume that weighed 20 pounds, was covered in industrial-strength carpet, and induced heat strokes in small trick-or-treaters but was so kick-ass, so rockin that it inspired people to hand out extra candy, to give a big handful of the good stuff as a means of awarding extra credit for creativity.
Sadly, my girl will never meet Steve Jobs. Not because he’s rich & famous and we’re ordinary people. Not because he lives all the way across the country. But because he’s dead. Because cancer stole him from us at age 56. I’m so sick of cancer. I’m sick of it in my own life and those of my friends in the blogosphere. I’m sick of it in the lives of the rich & famous whose deaths from it become magnified on TV, on the Web, and in magazines. I’m sick of it in my own family, where it stole my sweet mama and two of my favorite aunts (happy birthday, Thea Sophia; you may be gone but I still remember October 6th. Miss you).
And Steve Jobs, I miss you too. Thanks for changing my world, and for making it ok for people like my little girl to be different. May she follow your lead and change the world in her own way. I will share your quote about the crazy ones with her as she grows up and (hopefully) remains a square peg. RIP, Steve.
“Here’s to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes…the ones who see things differently — they’re not fond of rules. You can quote them, disagree with them, glorify or vilify them, but the only thing you can’t do is ignore them because they change things. They push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.”
This may get me in trouble
Posted: October 4, 2011 Filed under: baseball, breast cancer | Tags: Austin eateries, best friends, cancer battle, Fenway Park, losing a parent to cancer, Nomar Garciaparra, PICC line, postaday2011, Salisbury Beach 11 CommentsI’ll probably get in trouble for this. Or at least be on the receiving end of a cacophony of “You shouldn’t have done that” and “Did you have to?” and “That really wasn’t necessary.” But that’s ok; I rather like living my life on the edge. I’ve been known to stir the pot, to not let sleeping dogs lie, and to eschew the leaving of well enough alone.
So here I go.
He’s going to hate it.
See, Ed is not one for calling a lot of attention to himself. Or any attention, really. But sometimes, like ripping off a Band-Aid, it’s gotta be done.
He deserves it. It’s his birthday, so today it will be all about him.
Ed’s been our best family friend for a long, long time. In fact, it’s been so long, he’s dropped the “friend” and moved right on into “family.” Sometimes family has nothing to do with blood and genes and trees, and everything to do with the contents of one’s hearts and the meshing of like-minded souls. Assuming souls have minds, that is. I don’t think they operate on auto-pilot, do they?
I met Ed while toiling away in the publishing biz many moons ago in Austin. He and Trevor were in grad school at UT (Hook ‘Em!) at the same time, but we didn’t know each other during school; he was reading thick, musty books in the history department while Trevor built up his brain and hung with the geek squad in the computer science world. I hate to think of the years we wasted not knowing each other during that time, but our livers certainly breathe a sigh of relief. There was a fair bit of drinking going on in those days (as opposed to now, when kids’ schedules, middle age, and the threat of recurring cancer tempers my tippling). We did make up for some lost time, though, once we met; happy hours at Trudy’s with multiple Mexican Martinis and extra olives, watermelon margaritas at Maneul’s on South Congress, beers on the roof deck at Waterloo Ice House; and the infamous wine tasting club run by our resident oenophile Anthony King. I hope I never forget the carefree youthful nights spent lifting a glass, enjoying our youth & freedom. None of us will ever forget Trevor puking in the rose bushes at one of the Hess brothers’ houses, then coming back for more. Good times.
But back to work…Ed wrote and I edited. His hair was long back then (mine was too), and he labored over every word, every sentence, every TEKS standard (see how far we go back — long before the TAKS and now the STAR state standardized tests for public schools). I learned real quick that he was smart. Really smart. And he really cared about his work. He had such a high standard for himself that sometimes, just once in a while and not really very often (!), he made me wait for his work. I really don’t like waiting.
See, there was a progression to creation of a textbook, and we were both cogs in the wheel. Schedules were made, which we had to follow. Deadlines were enforced, because if our book wasn’t ready to go to print–back in the day before e-books and widespread Internet use — another publisher would get our spot and the book would be delayed. And we would all be fired. So I learned pretty quick with Ed that some tough love was necessary. I schooled him in the “good enough is good enough” principle that editors must embrace in order to keep the line moving. Oh, how that boy labored over every word, every sentence, every standard. There were days when I was a hair’s breath away from snatching the copy right out of his hands so that I could get my red pen all over it and keep the line moving.
It’s probably no surprise that Ed left publishing and took a rather circuitous route to teaching. A heart-wrenching detour to care for an ailing parent, work for an educational non-profit that trained teachers, a foray into self-employment in the handyman biz, a little time off to determine the color of his parachute (tricky when you’re a little bit color-blind), and finally, he was home.
Ed has a job that not many people would take on: he teaches kids who’ve been sent to the alternative school. Reasons for being sent there vary from fighting to drug use to crimes both petty and serious. The classes are small in number but large in ramifications. Several years ago, when Ed was contemplating whether to enter the teaching profession, I told him that he would be the kind of teacher who made a difference in kids’ lives. It sounds hokey but it’s true: he’s the sort of teacher who kids will remember always, and they’ll look back and say, “Man, Mr C really cared.” It’s true, and he does. He guides kids that a lot of people would cast aside as lost causes. He listens and becomes the sole person who cares. It’s no surprise to me that kids who pass through his class come back to visit, bring him a homemade Christmas treat, and mail him an invitation to their graduation ceremonies.
Those kids are not the only people who benefit from Ed’s unique brand of caring. After enduring the rigors and heartache of watching his dad die of pancreatic cancer, he became my sherpa when my mom got sick. I’ll always remember him telling me that if I thought it was bad now, it was gonna get worse. A lot worse. He was right. It was awful.
My mom knew Ed well, and when she moved in with me after retiring and moving away from Houston, it was Ed — not me — who she wanted as her caregiver for the icky parts of her cancer battle. She wanted him to sit through the class at MD Anderson on how to care for a PICC line, not me. I didn’t know it at the time, but she was trying to shield me from the routine horrors that make up a cancer patient’s life. When she was too frail and weak to step into my deep bathtub, it was Ed she asked for help. She would rather have had him see her in that state, to spare me from the eternal impression of being able to count each rib in her battle-weary, wasted body. It was Ed who she requested, not me. He made many food runs in the maddening game of “What can we get her to eat?” only to see her take 2 bites and be done. So much for that. But he never got frustrated, he never pressured her to eat. It was Ed who bore the brunt of the fallout from her radiated bowels. And that’s all I’m going to say about that.
It takes a special kind of person to volunteer for such service, but that’s just the kind of person he is. My mom knew it, and so do I. Ed’s the kind of guy who sets up the ladder and willingly allows grafitti in his garage. No project is too big, no mess too messy.
He’s the kind of guy who doesn’t freak when a little kid pukes on his brand-new couch, which Macy (right) did just after this photo was taken at Ed’s house in DC.
He’s the kind of guy who gives a little kid his watch to wear while patience runs short and naptime runs on by during sight-seeing in DC. He knows how to make a little kid feel like the most important person in the world. 
He knows how to keep a little kid quiet during a long, boring grad-school graduation ceremony, and he thinks anytime is the right time for a junky snack.
He digs the deepest sand-pit every year at Salisbury Beach every year, even when he’d rather be reading his book, and waves off the old-man critics who pass by and warn of the pit’s collapse and threat of said pit swallowing little kids whole. He knows what he’s doing.
He’s the creator of Halloween costumes too far-out for my brain to imagine.
He knew Maddy, the best dog on Earth. Ever. In the history of dogs.
He loved her with his whole heart, and finally gave in to my years-long pestering that he needed a dog of his own. Not once, but twice. And he let my kids name both dogs. Hence, a female chocolate lab named Snoopy, and a wily basenji-mix named Sugar.
We have Ed to thank for the Red Sox fever that exists in our lives. A native Mass-hole, Ed is a Sox fan for life, and he taught Payton the joys and heartbreak that is Red Sox nation. When Payton was four years old, at his first trip to Fenway, Ed showed his devious side when he made Pay think that Nomar Garciaparra hit a foul ball right into Payton’s lap. Eight years later, I think Pay still believes it really happened.


When Macy came along, a new bond was forged, and the strength of that bond sometimes startles and always amazes me. Mrs Dally, Macy’s first-grade teacher, told me in confidence one day that I might want to be careful because Macy told the class, during an exercise about friends, that her best friend is a 42-year-old man. In the case of anyone but Ed, this might raise a few eyebrows. But spend two minutes with him and you get it. In third grade, Macy filled out the “getting to know you” questionnaire from the teacher on the first day of school. For the question about her best friend’s favorite activity, Macy wrote: landscaping. Those two are tight. 

Happy birthday, Ed. May the day be as fantastic, wonderful, and all-out-awesome as you are.
NFL goes pink
Posted: October 3, 2011 Filed under: breast cancer | Tags: breast cancer awareness, NFL A Crucial Catch, NFL goes pink, pinktober, postaday2011, Roger Goodell 8 Comments
I got this letter from NFL Commissioner Roger Goodell. Not sure what gave him the idea that I’m a football fan, but I won’t fault him too much since he’s trying to do a good thing. Maybe he didn’t get the memo that my heart belongs to the Red Sox (my broken heart, that is). Maybe he did get the memo that I have a big mouth and write a little blog about all things breast cancer. Or maybe it was just a mass mailing that coincidentally landed in my mailbox just as I’m sorting through conflicting feelings about the pinkwashing that occurs every October.
Despite my previous grumpiness about all things pink in the month of October, I must admit I rather like seeing the football players wearing a dash of pink. Not because I think it’s going to change the world or find a cure for this damned disease, but because I enjoy the incongruity of a gigantic linebacker who could crush someone like me between his fingers wearing pink.
I could be super cheesy and say that if one woman decides to go for a mammogram because she saw Tom Brady wearing hot pink gloves, and if that one woman discovers breast cancer that would have otherwise stealthily grown into something that would kill her, then the NFL campaign is a success.
I will say that I’m glad the NFL campaign is about taking specific action to protect yourself from this dreaded disease, instead of trying to use the pink ribbon to sell a product. That sits much better with me. Nothing like a pink-ribbon-bedecked can of dog food to say let’s wipe out breast cancer.
To NFL Fans:
On behalf of the National Football League, please join us in supporting the NFL’s “A Crucial Catch” campaign in October for National Breast Cancer Awareness Month. This is the third season in which NFL teams, coaches, officials and players will wear pink in recognition of the fight against breast cancer.
Just about everyone knows someone who has been affected by breast cancer. That is why the NFL is proud to join thousands of others committed to fighting this terrible disease.
Throughout October, all NFL teams will celebrate survivors, visit patients at hospitals and turn their stadiums pink to show our enduring support. Alongside our partners at the American Cancer Society, we will emphasize the importance of prevention by encouraging all women over the age of 40 to get a yearly mammogram. We know that annual screenings can, and do, save lives.
Thanks to the passion of NFL fans, we have the collective strength as a league to connect with millions of people and make a positive difference. Please support the American Cancer Society’s programs to help people stay well, get well, and find a cure. We can fight back against a disease that has taken far too much from too many for too long.
There are several ways you can participate in “A Crucial Catch.” Visit nfl.com/pink for the resources and tools you can use to get involved.
An annual screening saves lives. Let’s spread the word.
Sincerely,
Roger Goodell
The best photo
Posted: October 2, 2011 Filed under: Uncategorized | Tags: breast cancer awareness month, cancer patients, Houston Chronicle, Houston Race for the Cure, postaday2011, psychological effects of breast cancer 2 CommentsI posted tons of photos in yesterday’s post from the Race for the Cure. Many of them were touching, some were funny, a bunch of them were moving, and a few were even tear-inducing. My head is still full of the sights & sounds of the event, and frankly I didn’t expect it to affect me as deeply as it did. I’m still processing the swirling emotions involved in participating in the race as a survivor. Maybe I will sort these feelings out, and maybe I won’t.
One photo I did not post, however, demands to be seen. It was in the Houston paper this morning, and my race buddy texted it to me before I saw it myself. I’ve been thinking about it all day — through 5 sets of tennis & beers at the club, during my shower, while I started laundry, and as I absent-mindedly helped Macy with her career day project for school, then some more as I scrolled through the Chronicle’s online photo gallery of yesterday’s race.
So without further ado, here it is — the best photo from the 2011 Houston Race for the Cure. Photographer Mayra Beltran outdid herself with this shot. 
Race for the Cure, Houston style
Posted: October 1, 2011 Filed under: Uncategorized | Tags: Houston, Houston Komen, pink ribbons, postaday2011, Race for the Cure, surviving breast cancer 12 CommentsMy fair city hosts the largest Race for the Cure in the country. Yep, that’s right — everything’s bigger in Texas!! Today’s race was pretty great. They say a picture is worth 1,000 words, so I will simply let the photos speak for themselves. 
Pink porta-potties, of course. (My germophobe self did not use them!)
The best hat award goes to this guy….
The Houston Fire Department was out in full force, walking with these cute shirts. 
These 4 young boys had boobies on their minds! Their shirts were in loving memory of a woman named Kathy. I’m sure she’s very proud of these guys. 
There were lots of signs in celebration of or in memory of someone. Very powerful.
Christy & me at the start of the race. Ready to pound the pavement!
There were several groups sporting mohawks, but this girl won for best hair.
One of the many groups at the race. This one was in honor of Moni, who I’m assuming is a grandma. 
One of several little boys in a pink cape. So sweet!
This gal had the best photos for her “In memory of” and “In celebration of” signs. The photo of her mama made me a bit misty-eyed. And the idea of her gene pool made me fear for her. 
I’m guessing this group raised a lot of money for the cause.
This t-shirt was so sweet and so heart-felt, and a great example of simplicity at its best: no neon colors, no bling, just a powerful message that brought me up short.
This guy was not walking next to a women, which made me wonder if she was too sick to race. Hopefully she was off in a group of survivor sisters, laughing and celebrating.
One of the many bald girls rocking the race.
Of course this one made me want to bawl.
Best tattoo award goes to this chick. Love the font and the message. 
There were lots of long lists — too many, really. I loved this one that mentioned the best 4th grade teacher. How cute is that?
One of the many fancy carriages we saw. By the end of the race, I wanted to ride in one!
There were lots of guys in pink, but this one in a tutu was one of my favorites.
The “We miss you so much” part of her sign got me, big time. 
The balloon archway at the starting line was awesome! Not so great for the environment, but cool.
“Walking to defeat breast cancer” shirts had a beautiful look. Love the font and the flowers.
Lucy E. Payton, I hope you knew how much you are loved! I’m sure your family misses that sweet smile every single day.
Another long list. Love the “me!” at the end.
These shirts in memory of Tina Cullum were sweet. I really like the butterfly, and these shirts prove that you don’t have to have pink to get your point across.
1955-2009 is not nearly long enough of a lifespan.
Some of the nearly 40,000 people on the race course.
Guess who was pushing this stroller? Nana! In her survivor shirt. Go Nana!
I’m assuming this guy’s mom was racing. He was trying to take my picture as I tried to take his — I won!
Cheerleaders had special cheers for us racers today.
I absolutely LOVE this shirt. Can you imagine a world of stage none???
This darling little girl was riding on her dad’s shoulders. I did not envy him. 
The rules said no dogs allowed, but this guy must have slipped through.
She didn’t have any hair, but she did have tissue expanders in preparation for implants!
Race route sign. The logistics and details of pulling this huge race off are staggering.
Her shirt reminded us to never, ever give up hope.
A new survivor celebrates her good fortune. Hooray!
Cutest bra, and it’s on a dude!
One of many shirts about boobs. Not sure what her business is, but she’s in it.
This wagon was all decked out, but no rider in sight.
How utterly sweet is this?
Another young boy in a pink cape — fantastic!
Getting close to the finish line, which was crowded with supporters, whooping & hollering!
I cut off the edge of the image, but like the sentiment of his sign nonetheless.
The downside of having the biggest race in the country.
She raised more than $2,000 and got a special bib.
Taxi!
The best part of the race — finishing in the SURVIVORS lane!
Our post-race feast…well deserved.
Living my life
Posted: September 30, 2011 Filed under: Uncategorized | Tags: Houston, life after breast cancer, National Breast Cancer Awareness Month, pinkwashing, Race for the Cure, Susan G Komen, Sweetwater Country Club 9 CommentsI’ve been quite busy the last few days living my life.
I’m going to say that again — living my life. Those are 3 beautiful little words to someone dealing with cancer. Past or present, once you’ve tangled with the beast, the idea of living, i.e., surviving, is sweet. The idea of living your life, even sweeter because it means that in some way, you are getting back a semblance of the pre-cancer life.
It’s almost October, which brings a multitude of conflicting emotions and thoughts. National Breast Cancer Awareness Month is confusing for me, and for many other cancerchicks. On one hand, I’m grateful to Komen for destigmatizing what once was a shameful disease. I’m thankful for the research and the advances that have been made, which allow women like me to deal with BC much more easily than my pink ribbon sisters before me. On the other hand, I’m uncomfortable with all the pinkwashing that occurs. At what point can we declare enough with the awareness? Is there really anyone who’s not aware that BC exists and rips people’s lives apart to the tune of 1.3 million worldwide every year? More on that later.
While I’m torn about the Komen issue, I decided last-minute to do the Race for the Cure, which is tomorrow. The Houston version of the race usually attracts nearly 40,000 people so it’s a big deal, literally. I’ll be among the sea of pink tomorrow morning, wishing that the organization putting on the race would focus more on research and metastatic disease and less on putting a pink ribbon on products from fried chicken to dog treats to toilet paper. I’ll proudly wear my hot pink SURVIVOR shirt, basking in the glow of having made it through the plethora of crap cancer threw at me, but I’ll also mourn those who didn’t make it through. 
But that’s tomorrow. Today I’m going to be kicking some butt on the tennis court. It’s the annual member-guest tournament at our club, and Christy and I plan to dominate. She’s a fierce competitor who wants to bring home the hardware. Me too, but I’m also happy to be living my life.
It’s not a gift, people
Posted: September 28, 2011 Filed under: breast cancer | Tags: celebrities with breast cancer, Kelly Dempsey, Melissa Etheridge, mycobacterium fortuitum, post-mastectomy infection, psychological effects of breast cancer, what to say to cancer patient, young women with breast cancer 13 CommentsI ran into a woman at the gym who I hadn’t seen in a while. She didn’t know about my little bout with breast cancer, and when she asked what I’ve been up to, I told her. I told her the truth, that it was a simple cancer that was caught early and is highly treatable. The cancer was pretty simple, but the post-mastectomy infection was very complicated. I’m still dealing with the mess from that damned infection.
She asked a lot of questions, trotting out the usual suspects. I don’t mind the questions, and I don’t begrudge her curiosity. Here’s how the conversation went down: How did you know you had cancer? I didn’t. At my annual well-woman exam my OB-GYN found a lump that I never felt, even when she put my hand right on it. Why didn’t you do a lumpectomy instead of a mastectomy? Because I wanted to slash & burn each and every cancer cell in the area. Do you regret having chosen such a drastic surgery? Nope, not one bit. Turns out there was cancer in the other breast, that didn’t show up in any of the pre-surgery testing. Do you have a family history of breast cancer? Not so much. My cousin Cheryl had it nearly 20 years ago, but my mom and her sister both died of different cancers. How old was your mom when she died? 67. Way too young, and not a day goes by that my heart doesn’t ache — some days physically but mostly it’s mental — from missing her, and while the grief certainly isn’t as raw after nearly 6 years, I don’t think I’ll ever stop missing her. How did you hide it from your kids? I didn’t try to but instead explained everything and reassured them that my cancer wasn’t going to kill me like YaYa’s killed her.
It was a perfectly normal conversation — well, perfectly normal now that I’m among the 1 in 8 women who will contract this damned disease — and then she said it: the one thing that sets my teeth on edge, that makes me feel like steam is coming out of my ears, that makes me have to work really, really hard not to punch someone in the brain.
She said, “It sounds like it’s been hard, but it’s so good to see you working hard in the gym. What a gift you’ve been given. Aren’t you so lucky to be so young and strong, and to have come out of this so well?”
I was speechless. I probably looked like a fish on a hook, mouth opening and closing, wondering what the hell just happened.
Of course I realize she was trying to say the right thing, and in all likelihood was even trying to compliment me with the “OMG, you look so healthy for someone who’s battled cancer” business. I know it’s a sticky situation, people, and that it’s hard to find the right thing to say. But really, is it that difficult?
I’m the absolute last person to look at a cancer diagnosis as a gift. It’s not. It’s a diagnosis of a terrible, terrifying disease. If you think cancer is a gift, kindly remove me from your list of people for whom you shop. I’m out. Yes, good things can come from a bad situation: new friendships blossom, existing relationships are strengthened, the depths of one’s character are carefully examined, yadda yadda. But at the end of the day, if someone tells me I’m better off for having had cancer, I call bullshit.
I recently read an interview with Melissa Etheridge about her breast cancer. She joined the pink ribbon club in October 2004, and has been quite outspoken about her “cancer journey.” I like Melissa Etheridge. I like her blatant feminism and her moxie. She displayed some rockin courage when she performed, bald, at the Grammys shortly after being diagnosed.
Things like her bald performance are very good for cancer patients, no doubt. Her decision to not wear a wig forces people to see the harsher sides of cancer, and I applaud her courage in putting herself out there, even if seeing her bald head makes some people uncomfortable. Especially if seeing her bald head makes some people uncomfortable.
But she also talks about cancer about something for which she’s grateful. I guess that takes courage, too, but I have a problem with it. She says that when someone tells her they’ve been diagnosed with cancer, her reply is “Wow, great! Your body is telling you that you can’t go on like this and you have to change. You’ll look back on your disease and say ‘I’m glad that happened to me.’ ”
Well, guess what? There was precious little in my life that needed to change pre-cancer. I exercised 6 days a week, ate heathfully, drank lots of water, avoided toxins, and worked hard to have a balanced and healthy life. Cancer got me anyway. I certainly won’t look back on this — assuming it ever ends — and say I’m glad it happened to me. Uh uh. No sir. No way. I can’t imagine looking back on this and saying I’m glad it happened. That its was a gift. Not in a million years.
Listen, Melissa: someone who’s newly diagnosed — and most likely terrified, freaked out, and shocked — does not need to hear someone essentially say, “Oops, I guess you’ve been doing it all wrong and this is your fault.” I don’t care if you are a celebrity and a Grammy winner. Zip it. No one needs to hear that. And no one needs to hear that cancer is a gift, either.
Sheesh. I’m not even going to get into the whole mess of it’s easy for her to say that, she’s a star and has plenty of money/time/resources/help/clout. That’s a post for another day (even though it’s true). Let’s stick to the idea of how wrong it is to imply that the person with cancer is somehow at fault, that he/she did something or didn’t do something that caused their cells to go wonky and create a shitstorm in their body. Wrong, wrong, wrong.
I will never forget my sweet breast surgeon Dr Dempsey looking me in the eye while holding both my hands and saying, “This is not your fault. You did not cause this cancer.”
Here’s that part of the notes that Boss Lady took for me that day (doesn’t she have nice handwriting?). I’m not a touchy-feely person at all, but Dr Dempsey is, and she did me a huge favor that day by looking me in the eye and telling me that this is not my fault. I’m all for accepting responsibility, but not here, not when it comes to cancer. It’s not my fault, I’m not glad it happened to me, and it’s not a gift.
Welcome to funk-ville, population 1
Posted: September 27, 2011 Filed under: breast cancer, cancer fatigue | Tags: breast cancer statistics, cancer battle, cancer diagnosis, Carl Sandburg, Eleanor Roosevelt, mastectomy, psychological effects of breast cancer, Robert Frost, Winston Churchill 10 Comments
If you’re looking for a laugh or an inspirational story, you’ve come to the wrong place. I’m in a funk and there’s no amount of lipstick that’ll pretty up this pig (the funk, not me). My thoughts are scattered like leaves falling off a tree (if only that conjured up visions of the russet colors of fall, of leaves parachuting off of trees as they ready themselves for the change of season. That does happen in some parts of the world, but here, in the land of eternal summer, and in this infernal record-breaking, never-ending summer, the only leaves falling from the trees are brown and crackly, dead from the drought. How’s that for a cheery thought?).
I’ve been struggling the last few days. I’m frustrated with the pace of the healing from the latest surgery–yes, I’m a whole lot better, but I want to be done. I’m madder than a wet hen about the effect of the last surgery on my tennis game, and wonder if I’ll ever get my serve back. I’m worn out from the swirling, worrying thoughts of whether I’ll ever have the results I want. I’m both impatient for and dreading the next round of revision. I’m tired of being tired. I’m pissy about the fact that I’m still battered and sore. I’m ready to rip the port right out from under my skin because it catches on my clothes and shoots a sick sensation up my neck that reminds me the damn thing is sewn into my jugular vein. Oh, and it looks weird, too. I’m sick of cancer and all its many fallouts.
Normally, my solution to such a funk is alcohol. Lots of alcohol. Every night is ladies’ night when the funk shows up at my house. But there’s a niggling voice in the back of my head reminding me that alcohol is a major contributor to breast cancer, both initially and in terms of recurrence. And since not a day goes by that I don’t think about recurrence, perhaps I should avoid using alcohol as a balm for my beat-up soul. Dammit. Yet another way cancer has wreaked havoc in my world. If I can’t in good conscience comfort myself with booze, I’m in real trouble. This is no fun.
When I was diagnosed last year, Dr Dempsey gave me a stack of play money. She handed it to me and said it is very important currency. Each “dollar” bill was a free pass to be in a funk. To throw a fit. To have a pity party. As she put it, “to lay in bed watching Lifetime and eating ice cream.” I laughed and thought, pfffft! I won’t need that. I got this. Me and my positive attitude can kick this cancer no sweat. 
While I am happy to report I’ve spent not one day in bed watching Lifetime and eating ice cream since cancer shat upon my head, I’m thinking I may need to pull out one of those dollars. How crazy is that — after all the crap I’ve been through, after seeming like I was finally getting close to the finish line, now I fall into the funk?
Don’t worry, I’ve already run through all the reasons I have to be happy: I’m alive, the worst is behind me, I’m not in the hospital, I have neither drains nor a wound vac attached to me, I’m cleared for exercise, I have great doctors and comprehensive insurance, I have a stellar support network, blah blah blah. Yes, all of that is true, and I know in my heart of hearts that there really is more good than bad in my life. I know that one day this whole “cancer journey” will be a speck of dust in my rearview mirror as I travel along the grand highway of a happy life. But right now, the funk rules.
Those of you who are within shouting distance have been hearing about it. The frustration, the impatience, the pissy-ness. What you won’t hear, though, is “Why me?” because really, does it matter why? Not so much. What matters is how ya sweep up the mess that’s dumped on ya, and most days I’m armed and ready with the broom & dustpan. But for now, I’m frustrated, impatient, and pissy. And mad. I’m mad, too.
I’m mad that this damned cancer “journey” has to be so hard for so long. I’m all for rolling up my sleeves, gritting my teeth and getting through it. I fully support Winston Churchill’s idea of “If you’re going through hell, keep going.” I believe Eleanor Roosevelt 100 percent when she said “A woman is like a tea bag — you never know how strong she is until she gets in hot water.” I gather strength from Robert Frost telling me “The best way out is always through.” But geez, does it really have to be this arduous? The ways in which cancer robs us are seemingly endless, and breast cancer in particular is a repeat offender, a pathological thief.
I just read this article, “What’s It Really Like to Live Through Breast Cancer?” Today especially, I needed to hear other women’s stories. Valerie, age 52, said that “she needed symmetry. She needed things to be as they should. She needed, after two years of surrendering to the opinions of doctors and the input of the cancer Web, to have an ounce of control over her body.” Yeah, me too.
Renee, age 47, said that “when I had her mastectomy sutures taken out, I asked the surgeon to remove the Sharpie mark she’d made—the black line that went across my ribs like a big smile—and the surgeon asked what line? I pointed. Her eyes got big and she said, ‘That’s your incision, Renee. We opened up your body. We removed a lot of tissue.’ ”
There are lots of Valeries and Renees out there. One in eight women will be diagnosed with this dreaded disease in the United States alone. Worldwide, there are 1.3 million new breast cancer diagnoses a year. That’s more than a million women who will endure this disease. Of them, some 465,000 will die from it. But even those who survive it, like me, will carry the weight of the disease. The physical scars Renee spoke of are nothing compared to the emotional ones. People say we’re lucky that our cancer occurs in a body part that can be removed. True, but it also means that we see evidence of that cancer every day; if I had a kidney removed, I wouldn’t be confronted by the railroad tracks of a long, harrowing journey every time I undress.
Sure, it’s better to be scarred than dead. No question. But being alive doesn’t mean I have to be happy all the time. It doesn’t mean I won’t get in a funk and be frustrated, impatient, pissy, and mad sometimes.
But the funk will pass, hopefully sooner rather than later. Like in Carl Sandburg’s beautiful little poem, the funk, which can come in like a herd of elephants or on “little cat feet,” will overlook my city “on silent haunches,” and then move on outta here.
(thanks to google images for making it so easy to pretty up my blog today)























