1 week ago today…
Posted: March 9, 2011 Filed under: breast cancer, drugs, food, infection, Surgery | Tags: breast cancer, cancer battle, DIEP, hospital, Houston, ICU, infection, margaritas, mastectomy, Methodist Hospital, microsurgery, morphine, new boobs, plastic surgery, reconstruction, recovery, surgery, Texas, Texas Medical Center, Vera Bradley 11 CommentsI was out cold in the OR, having unspeakably nasty things done to my body to restore the damage wreaked by the post-mastectomy infection. Whew!
The first couple of days of week 1 are pretty hazy, thanks to my BFF morphine. Love that stuff. But my BFF knows its proper place, and we have short but infrequent get-togethers. This time around, my BFF gave me a terrible headache, which was quite rude, so I bid adieu to the pain pump as fast as I could.
Let’s start from the beginning. Or as much of it as I can remember. Readers, feel free to chime in when you notice I’ve left something out. We got to the Medical Center on time (6 a.m.) and I got right into my pre-surgery room. My beautiful gown and compression stockings were waiting for me, but I waited until the very last minute to don them. After some precursory steps, like accessing my port for the administration of the really gooood drugs, a gaggle of white coats entered the room.
Dr Spiegel led the way, with her PA Jenn next, followed by their resident, Dr McNight, then my favorite plastic surgeon. He was the only guy in the room. Yahoo, girl power! He had a cool wooden box in his hand and when I asked if it was a present for me he gave me one of his looks. Someday he’ll appreciate my humor. Inside the box was not a present, but his loupes, which sadly he didn’t offer to model. I’d love to see him in a pair of goofy glasses.
Dr Spiegel and Jenn started marking my belly and I’m so mad I didn’t think to take a photo because it was cool. They used a blue sharpie for arteries, a red sharpie for blood vessels, and a black sharpie for incision lines. Lots of arrows and lines later, there was a roadmap of sorts. Very cool. At one point, Dr Spiegel wasn’t happy with an incision mark so she had Dr McNight scrub it off my belly with alcohol and re-do it with the black marker.
After that it was time to head to the OR, and they must have given me a cocktail in the pre-surgery room, because I don’t recall anything after the sharpie party. When I woke up, some 8 hours later, I felt pretty good…but it was because I was wrapped in the loving embrace of some big-time anesthesia. Dr Ashmore, my hand-picked anesthesiologist, did a fantastic job of putting me to sleep, and more importantly, waking me back up. It was good and restful.
I’m not too sure about whether I was in a recovery room or went straight to the ICU, but once I got to ICU I recall that it was HOT. And I’m a Texas girl, so I know about some heat. The docs had warned me that the room would be warm, to help my newly transplanted blood vessels learn to regulate themselves in their new northern home. But wow, was it hot. Between the high temp, the two heaters, and the squeezing of the compression hose, I was roasting. I tried to be nice about it, and I think I only lost it once, when I begged one of the ICU nurses, probably Carol, to please please please just crack the door and let some AC in. Just for a second. She declined my request.
I spent the night in ICU, but thankfully the flaps, aka former belly skin & fat that were magically transformed into breasts, behaved and there was no drama (other than me begging Carol to crack the door, turn down one heater, turn up the thermostat or bring me a gallon-sized frozen margarita). The flaps had to be checked every hour, yes every hour, with a hand-held doppler. There were (until yesterday) some wires stitched on top of my chest that somehow transmitted audible sound of the blood rushing through my newly transplanted blood vessels through the doppler. It sounded a lot like a fetal heart monitor. And we heard it a lot. My flaps were cooperative, and the nurses were able to hear the blood rushing almost instantly after putting the doppler onto my chest. One nurse told me that sometimes it took 20 minutes to find the sound. I started to panic after a few seconds of not hearing it, so can’t imagine the size margarita I would need if it took 20 minutes to register.
The ICU room had a wall of windows with mini blinds, and the nurse was right outside the door at a desk looking into my room if not attending to her one other patient. Some people might think that would make you feel very safe and catered to, but it made it hard to sneak anything by her because she was always watching. If she wasn’t watching, somebody else was walking by. It was a constant parade of doctors, residents, nurses, PCAs and other people peeping into my room.
I got released from ICU after some really delicious jello and a contraband peanut butter
& jelly sandwich (liquid diet…pffft) into a regular room on the 8th floor of Dunn Tower. Lovely view out the window of the heart of the Texas Medical Center, and more importantly, no heaters. It wasn’t exactly chilly in the new room, but so much better than the ICU room. Nevertheless, I did beg to have the tight, scratchy, hot compression stockings removed. Those nurses were not swayed by my shameless begging.
Apparently the docs were pretty pleased with their handiwork, and if you missed Trevor’s and Amy’s guest blogs while I was too loopy to post, go back and take a peek. Long story short, the flaps were cooperating, the morphine headache abated, some regular food arrived, and life rolled on. At some point they moved the flap checks to every two hours instead of hourly, which was mighty nice. It’s amazing how your perspective changes in a situation like that. After umpteen hours with no food, a simple PB&J was a delicacy. After being awake most of the night, a short cat-nap seemed a decadent luxury.
I’m sure I said some goofy stuff and probably offended someone at some point with my off-color humor. Apparently I channeled my mom, too, telling my friend Laura who works at Methodist and who visited me several times a day, “Thanks for dropping by.” Every time she came by. I was just being mannerly and didn’t realize I’d seen her a few hours previous.
There are conflicting reports on how the turf war between the Drs S played out. All parties are being quite cagey on the details of who did what part of the surgery, and like a good murder mystery, we may never know who real killer was. I have my suspicion, but even asking point-blank hasn’t garnered an answer, so we may have to label that information “permanently classified.”
I did get to skate out of the hospital a few days ahead of schedule, and even though I received impeccable care, I couldn’t wait to get out of there. Coming home is always sweet, but never as sweet as when I’m leaving a hospital room.
I have more mobility than I did after the mastectomy, but not as much as I’d like. The first few times I had to get up without using my arms but relying on my legs and abs, the hip-to-hip incision on my tummy protested mightily. But it got better every time, and now I do it almost without thinking about it. Almost. I still can’t walk completely upright because the incision is still very tight, but I’m not quite the Quasimodo I was in the hospital. I get a bit straighter every day.
I came home with 6 JP drains this time, and had to upgrade my VB sling bag to a bigger
VB bag that could accommodate the drain party. I knew from last time around that 4 drains fit nicely, with a little extra room for my Blistex, some folding money, and a teeny ziplock bag of pills, should they be necessary. Six drains would have burst my handy little bag right open. Wonder how many drains this lady is toting in her VB bags?
I had my first real shower today, not counting the seated variety the hospital offers. Again, it’s the little things we take for granted. I’m down to just 2 drains and back to my sling bag, thanks to Jenn removing the 4 drains up top yesterday. She gave me a good report; everything looks good and is healing nicely. 
While I feel a whole lot better and am ready to get back to normal, my handlers think one week post-op is a bit premature to jump right back into the day-in, day-out routine. I am trying to take it easy. I’m resigned to the fact that I’m back to one outing a day for a while, and sadly, a doctor’s appointment counts as an outing. Yesterday I had a small entourage escort me to see Jenn, and we had a bite of lunch (sans margaritas) beforehand.
The handlers insisted on snapping a photo of this maiden voyage, and there was some talk of me earning a margarita for every device I had removed at the subsequent appointment. Between the two doppler wires and the 4 JP drains, somebody owes me 6 margaritas. No salt.
Although I complain about going to the med center, there’s always something interesting to see along the way. Getting out of the suburbs is a good thing, and there’s a whole ‘nother way of life in this big city of ours. Last time I was at the med center for some testing, I saw this car and had to take a picture, to show Macy. I knew this car would appeal to her:
She loved the polka dots and said she’d like to have that car, then she saw the back and said forget it. Fickle.
Yesterday on the way home from the med center, I saw this:
and had to snap a picture. Yes, it is a zebra car, complete with a long tail. Gotta love the big city.
Seriously???
Posted: March 7, 2011 Filed under: breast cancer, Surgery | Tags: blog, breast cancer, cancer battle, cancer diagnosis, DIEP, Doogie Howser, hospital, Houston, mammogram, mastectomy, Methodist Hospital, new boobs, oncologist, pain pills, plastic surgery, post-mastectomy, reconstruction, recovery, Texas, well-woman exam 4 CommentsGot this letter in the mail while I was in the hospital for the Big Dig, aka reconstruction. I don’t even know what to say.
And that doesn’t happen very often.
As you lovely readers know, I usually have a lot to say, about a variety of topics, and one of my favorite things about blogging is being able to blab away about whatever tickles my fancy at the moment. Sometimes silly, sometimes ticked off royally, sometimes serious, but rarely speechless.
When I saw yet another envelope from the Methodist Hospital, I didn’t think much about it because I get a lot of mail from that fine place. Between the bilateral mastectomy and the post-mastectomy infection, I’ve spent a lot of time at Methodist, both in Sugar Land and at the Medical Center. Getting mail from Methodist is nothing unusual. (If you click on the Sugar Land link above, you’ll see a pic of several doctors on the Methodist SL home page. The dark-headed one on the far right is my oncologist, Doogie Howser. Yes, he is that young, and yes he is that cute in real life.)
But this letter is definitely unusual.
Now I’m not dogging Methodist. I’ve had most excellent care there on all of my visits, and I don’t for one second take for granted the supreme luxury of having such esteemed medical care right around the corner (Sugar Land) and a short hop down the toll road (Med Center). I know that people come from far and wide to seek care at the places that are easy drives for me. So let’s be clear that I’m not dogging Methodist.
One of my favorite things about Methodist SL is this:
Love that. Hell yes, I should get special parking, right up front, at the breast center. Even though until just a few days ago I had no breasts, I still liked the special treatment that Methodist SL affords its breast care patients. Wish the grocery stores and Target would follow suit.
But back to the letter.
I know, I know it’s a terrible picture. The iPhone camera stinks, but it’s convenient, and let’s remember, people, that I am 5 days post-op here, with 6 JP drains sprouting from my body, and today was my first day without any pain pills, so keep your comments about the shoddy photography to yourself. This is not a photography blog, after all. I probably shouldn’t even be typing yet, but I’m dedicated to bringing severe belly laughs to you, my lovely readers, so you’re welcome. 
Since it’s such a shoddy photograph, let me reiterate the juicy parts: The Methodist Sugar Land Hospital Breast Center’s records indicate that based on my US mammo f/U uni performed on March 22, 2010, it is time to schedule a routine screening mammogram.
Oh, you mean the mammogram last March that set off the chain of events, preceded by my annual well-woman exam, that led to me being diagnosed with breast cancer at age 40? That mammogram?
The letter goes on to tell me that I need to be aware that many breast cancers do not produce symptoms. That “early detection requires a combination of monthly breast self-exams, yearly physical exams, and periodic mammography according to your age and physician’s recommendations.”
And that I should contact Methodist Sugar Land Hospital Breast Center at 1-800-HOW-STUPID-IS-THIS to make an appointment, and they thank me for my cooperation.
Wow.
The irony is stifling.
On one hand, it’s nice that the MSLHBC is so on top of things as to remind its patients that it’s time to come in for the good old smoosh & squeeze. Lots of women need reminders, and the hospital certainly should not be tasked with knowing I don’t happen to be one of those women.
On the other hand, it’s pretty hilarious and utterly ridiculous. And scary, too; don’t forget scary: the idea of anyone touching my newly sculpted chest, much less putting it through the greatest flat iron ever, makes me very, very afraid.
Thank you, Methodist, for the reminder. I will get right on it.
Recovery
Posted: March 3, 2011 Filed under: breast cancer, Surgery | Tags: breast cancer, cancer battle, cancer diagnosis, DIEP, hospital, Houston, ICU, Methodist Hospital, microsurgery, new boobs, plastic surgery, recovery, surgery, Vancomycin 3 CommentsI arrived back at the ICU this morning with Amy Hoover who will be staying the night with Nancy tonight. Let me pause to thank Amy and Christy Burrmann for lunch yesterday and to Staci Martinez for sitting with me all day. That’s a lot to put up with.
Nancy is very alert today and in a very good mood. Her pain is under control and she is eating well. The nurses here have been terrific, Cindy and Carol have both been very attentive and helpful – they don’t mind applying chapstick. And David the PCA even fetched coffee for me and Amy. Overall this is the best care she has had during her hospital stays and it’s generally been pretty good.
They checked on her every hour last night so she didn’t get too much sleep though. They have ordered a room for her but they won’t let her out of ICU until she sits up in a chair for an hour. They just wheeled it in, this is gonna hurt.
Update 3
Posted: March 2, 2011 Filed under: breast cancer, Surgery | Tags: breast cancer, DIEP, hospital, Houston, Methodist Hospital, microsurgery, new boobs, plastic surgery, reconstruction Leave a commentAs of about 2 pm central, they have finished one side and starting the other. I’m guessing another 2 to 3 hours to finish.
A month of soup
Posted: February 5, 2011 Filed under: food | Tags: breast cancer, broccoli soup, chicken noodle soup, comfort food, cookbooks, Houston, kids, memorieshomemade soup, Mom, plastic surgery, reconstruction, soup 13 CommentsWith it being so bitter cold in my neck of the woods, I want soup. And a can of Campbells just won’t do.
I was raised on homemade soup, and when the weather turns or a nasty cold invades my system or a surgery is imminent, homemade soup is what I crave. I toyed with the idea of making a different soup every day for a month, but that may be the cold weather talking (seriously, 27 degrees in Houston?? Egads). Then I realized that I don’t even have a month between now and my reconstruction, and once I have the surgery, it’ll be quite a while before I’m able to cook again.
When I am able to cook again, I’ll be making soup. The weather will have warmed up by then; in fact, we may even be trending toward summer. But I’ll still want homemade soup. It must be genetic. My mom made soup. Well, actually she made everything, but soup for sure. She had many specialities, but her broccoli soup was my favorite. I’m not a big fan of broccoli (I eat it because it’s good for me and packed with important things like cartenoids, vitamin C, calcium, beta-carotene, lutein, and phytochemicals); but I love my mom’s broccoli soup. She knew the recipe by heart, but I have to look it up. Luckily for me, the cookbook falls open to the broccoli soup page every time. 
When I was a kid, my mom helped run a cooking school with a friend of hers, Mary Gubser. Mary is a bread and soup guru. She wrote a few cookbooks and taught cooking classes out of her home for suburban women who wanted to learn how to put a yummy and nutritious meal on the table.
I remember one time I was probably younger than Macy, and I was sick on a cooking school day. My mom bundled me up with a bag full of activities (no PSPs or iTouches back then) and took me with her. I settled on Miss Mary’s couch and listened to the women chattering as they went through the lesson: herbed vegetable soup and meunster cheese bread. My mom brought me a piece of baguette, warm from the oven, with real butter, and it remains to this day one of the best things I’ve ever tasted.
Maybe that’s why I love food so much: because memories of meals are so interwoven with memories of my mom. Food is such a powerful force, and it does way more than provide fuel for our bodies and sustain us through the day.
Soup has always been comfort food for me. You can have your mashed potatoes & gravy, your mac & cheese, your pot roast. I’ll take soup. But it’s gotta be homemade.
I got the love of soup from my mom, and Payton & Macy got it from me. In fact, Macy takes a thermos of homemade chicken noodle soup in her lunch every day. She’s vegetarian, but some things, like my chicken noodle soup and PF Chang’s honey-seared chicken, don’t count as meat in her mind.
Every week, I make a big pot of chicken noodle soup. For me, there is security in routine. Making soup for my kids every week is a ritual, and when chopping onions, celery, and carrots, I fall into an easy rhythm. Sauteeing the veggies in glistening green olive oil and with a few garlic cloves fills the kitchen with a smell of innate goodness that fills me up. Anyone can open a can of Campbells, but making what I consider real soup is a different thing entirely. It’s a labor of love, which I hope fuels and sustains my kids and weaves a delicate yet tangible ribbon of connection between them and me.
Thank goodness for tile
Posted: January 31, 2011 Filed under: breast cancer, pets | Tags: birthday, cascarones, dogs, Houston, IBS, medical center, pools, swimming, tennis, Whole Foods 8 Comments
I guess Harry was worried about me today. While I was at the medical center (all day!) taking care of some pre-op business, he had a BIG accident that wasn’t quite solidified.
Suffice to say, I came home to an atrocious smell and found a gigantic pile of mess in the dining room.
Thank goodness the entire downstairs is tile. Otherwise, I’d be ripping up carpet and throwing it on the front lawn instead of typing this right now.
Gross.
After a long day at the hospital, this wasn’t what I would have liked to find.
Poor Harry. He’s always had a nervous stomach. His tummy gurgles a lot, and he’s had some issues with his backside off and on.
Some sort of doggie IBS, I guess. He’s high-strung and can be quite grouchy, and the retired neighbors who walk up and down the sidewalk in front of our house multiple times a day really set him off. Maybe he needs more time lounging on the couch. That’s relaxing.
He’s famous for stealing food when no one is home. He has a big appetite. 
I found this when I came home one day a couple of weeks ago. Harry had gone into the pantry in my absence to look for a snack. He lucked out, and found about 2 dozen rice krispie treats within reach. Score!
He picked the wrappers clean. There wasn’t a speck of krispie to be found in all that mess.
He was full, but ashamed. He wouldn’t even look at me.
He knew he’d been bad, but he just couldn’t help it.
His sweet tooth is a powerful force.
Curiously, he never gets sick after his thieving.
He’s eaten an entire loaf of whole grain seedy bread from Whole Foods more than once. I’ll never forget the infamous Christmas cookie incident, in which he unwrapped and consumed 2 platters of homemade cookies that were intended to be gifts.
When we adopted him from the SPCA four years ago, we had no idea that he’s psycho. They don’t seem to advertise that at the SPCA. But he is psycho.
He loves the water. The day we brought him home from the SPCA he jumped right into the kiddie pool.
He was so happy when we built him a real pool, and he swims a lot.
He swims alone, with the kids, and with his friends.
No matter the weather, he will swim. If there’s a leaf in the pool, he won’t rest until he fishes it out. Same goes for bugs.
He and Snoopy spend a lot of time in the pool together.
Good times.
Harry has a major oral fixation. He has to have something in his mouth all the time. Preferably a tennis ball. We have about 100 tennis balls in the house and in the yard on any given day. That boy is crazy for tennis balls. If we throw two balls in the pool at the same time, he’ll put them both in his mouth. At once.
I told you he was psycho.
He loved this jolly ball so much we ended up having to hide it from him. It was hard plastic, and just big enough that if he held it in the right spot, he couldn’t see where he was going with it in his mouth. He crashed into a lot of walls, and people, before we hid the jolly ball.
He loves to carry his collar in his mouth, and shake it like a small animal destined to die a slow death at his hands. He usually ends up whacking himself with the metal ID tags, but he’s gonna kill that collar.
Sometimes he can’t find his collar or a tennis ball, so he’ll grab whatever is handy.
The bath mat will do. And if he can’t find something to put in his mouth when we get home, he will go crazy looking for something, anything. Scraps of paper, dirty socks, kitchen towels. Nothing is off limits for Harry.
He’s also really lucky that Macy loves him so much. She picked him out, and he is definitely her dog. He sleeps in her room, and no one commands his attention like her. Well, except for maybe a tennis ball.
He loves her a lot in return.
Here she is showing him a cascarone (Mexican confetti egg).
She organizes a birthday party for him every year, and sometimes there’s entertainment, like the cascarones. He wasn’t too interested in the confetti inside, but he did eat the eggshell.
His nickname is Mr. Chin, because he will rest his chin on anything. The windowsill is a favorite spot for Mr. Chin. 
Sometimes he looks like he’s going to dislocate his neck, with some of the positions he settles in, but he always manages to go to sleep, even if his head is twisted.
He’s crazy, but we love him. Even when he leaves a huge pile of nastiness on the floor.
GG in Houston
Posted: January 22, 2011 Filed under: breast cancer, kids | Tags: Christina-Taylor Green, GIffords, girl power, grief, gunshots, Houston, Little League, Susan Hileman, TIRR, Tucson 5 Comments
Rep. Gabrielle Giffords (D-AZ) left the University Medical Center in Tucson to come to our fair city. Welcome, Gabby! She checked into the esteemed TIRR (The Institute for Rehabilitation and Research) Memorial Hermann Rehabilitation Hospital in Houston’s Medical Center.
I say this like I know her or anything beyond what’s being reported in the mainstream media, and I do not. So don’t go asking me for personal details or to get you an autograph or anything. After my trip down there Thursday, I don’t have any plans to trek to the med center again, and besides that poor woman needs some privacy. She’s likely to be very tired after her trip from AZ to TX.
In the photo above, which was kindly provided by Giffords’s office, her husband, Mark Kelly, is by her side as she enjoys the beautiful scenery of the Santa Catalina Mountains while on an outdoor deck at the Tucson hospital on Thursday. Not that I’m complaining, but no one ever wheeled me outside in my bed in my multiple hospital stays this summer. But that’s ok, because really, who wants to be outside in Houston in the summer? And there aren’t any mountains to gaze upon anyway. After the terrible ordeal she went through, I’m glad Giffords got to go outside, after more than 2 weeks in a hospital room. She earned that trip, plus a whole lot more.
In case you’ve been living under a rock and haven’t heard, Giffords was critically injured at an event she was holding in Tucson on January 8th. She was going about her business, doing her job as a public servant and was shot by an idiot-jerk-birdbrain-fool-imbecile-jackass-whackjob whose name I won’t mention because he and his ilk don’t deserve one more second in the spotlight.
That idiot-jerk-birdbrain-fool-imbecile-jackass-whackjob killed 6 people and injured another 13, including Giffords. The fact that one of the 6 people killed was a 9-year-old girl named Christina-Taylor Green makes me so mad I can’t even express the right words here. My fingers are flying across the keyboard, yet nothing of sense materializes, because how can we make sense of something so horrendous, so tragic, and so unnecessary?
This darling girl, who is the same age as my own darling girl, sounds like she was a fantastic addition to the human race. She had recently been elected to her 3rd-grade student council, and was at the “Congress on Your Corner”event at the local grocery store in Tucson, hoping to get up close & personal with her congresswoman.
Her mama says she can’t even put into words the depths of their grief, and the horror of “being robbed of our beautiful little princess.”
Christina-Taylor was the only girl on her Little League baseball team. We’ve had a girl on Payton’s baseball team a few times, and it really livens up the game. I’m a big fan of girl power in any form, and seeing a girl on a team with all boys does my heart proud. Little League and the world in general suffers a big loss with Christina-Taylor’s death.
She came from a baseball-loving family. Her grandpa, Dallas Green, managed the Phillies. Her daddy John supervises the group that scouts new talent for the Dodgers. I bet that little girl was fun to watch on the field. And I just hate that she’ll never again don her uniform and step up to the plate.
What a waste.
While this post started out as a welcome to Giffords to Houston, it’s taken another form and morphed into a memorial, if you will, to Christina-Taylor. She sounds like someone Macy would hang with, who I would enjoy having in our home.
I’m going to make y’all suffer through the wrenching story told by Christina-Taylor’s friend and neighbor, Susan Hileman, who took Christina-Taylor to the event that ended her young life.
This 58-year-old didn’t have any grandchildren yet and befriended Christina-Taylor. They hung out, played Pickup Sticks, and did the kind of things that my cousins do with my daughter. (Christina-Taylor cheated at Pickup Sticks, by the way, according to Hileman, which is another touching yet heartbreaking insight into this multi-faceted little girl.) They went to the zoo together, and if there was a movie Hileman wanted to see, she’d ask Christina-Taylor, “If I buy the popcorn, will you keep me company?” Sounds like what my dad says to Macy as they plan their movie dates.
As Hileman picked Christina-Taylor up for the “Congress on Your Corner” event, she asked Christina-Taylor’s mom, “Does she really want to do this with me? Is there something else she would rather be doing?” Roxanna Green replied, “Any place she goes with you, she’s happy.”
As they drove to the event, the two friends talked about what they might ask Giffords. Once they arrived and parked, Christina-Taylor asked Hileman if she had the keys. Apparently that was her job, because Hileman sometimes forgot and left her keys in the car.
Hileman had planned to take Christina-Taylor to lunch and to get their nails done after meeting Giffords, and would have her home in 3 or 4 hours. But that plan changed drastically and irrevocably.
I’m struck by how many times I’ve turned my children over to a friend or relative for an outing, much anticipated by both parties. I send them off without a second thought on my part or a backward glance on theirs. These connections, these events, these outings are what join us together as friends & family, and what weaves together the warm & fuzzy fabric of our existence.
Instead of an enjoyable and enlightening outing, Hileman and her young companion entered Hell. They were next in line to meet Giffords, and Hileman was telling Christina-Taylor that she could be the next Gabrielle Giffords, when gunshots rang out.
Hileman instinctively threw her body in front of Christina-Taylor’s to shield her from danger and was shot in the thigh, belly, and chest. She remembers seeing a hole in her new skinny jeans, but can’t remember any pain.
She does remember falling to the ground with Christina-Taylor, looking into the wounded girl’s eyes. Hileman had been shot and was bleeding, but was only concerned for Christina-Taylor. “Don’t you leave me, Christina-Taylor. Don’t you die on me,” she said as the two friends clung to each other. A woman who arrived on the scene to help reportedly applied pressure to Christina-Taylor’s wound and asked, “Who was with this girl? Who is this girl?” Hileman answered, “She is my responsibility.”
Nine-year-olds don’t carry ID. So nobody but Hileman knew who Christina-Taylor was, and in the chaos of the crime scene, imagine the frantic moments before Hileman spoke up and claimed Christina-Taylor. That sweet girl was Hileman’s responsibility, and a big part of her world.
And now the rest of the world does indeed know who Christina-Taylor Green was. Sadly, it’s too late.
This caught my eye
Posted: January 17, 2011 Filed under: breast cancer | Tags: breast cancer, champagne, crystal light, fountain, Houston, infection, lemonade, Mom, real world, reconstruction, recovery, yellow sundress 3 CommentsI was flipping through a magazine at my Aunt Sophia’s house last night and an ad for Crystal Light caught my eye. I like Crystal Light, especially the orange and the pink lemonade. I don’t drink a lot of it, though, because I’ve always assumed that it’s full of chemicals, and someone in my shoes needs to avoid all those multi-syllabic chemical compounds found on ingredients lists.
But if I am going to splurge on something chemical-y, Crystal Light is top of my list. Even more so now that I saw this ad. 
What first caught my eye was the communicated bliss of the woman drinking from the lemonade fountain, and my first thought was how much I’d love to have a champagne fountain like that. Mmmmm.
My bliss would be endless. Limitless. Bottomless, as all good champagne fountains should be.
I also noticed the woman’s dress. I never really liked yellow, but it was my mom’s favorite color, and now that she’s gone, yellow reminds me of her. Very fitting, as she was a sunny, warm kind of person.
So this ad is pleasing to me for several reasons, but the most important one is something you may not have even noticed. Or maybe you did. It took me a sec, but once I noticed it I had to look closer to see if what I thought I was seeing was really there.
Or not there, as the case may be. Look closer: 
Notice anything about her chest? Like the fact that it’s flat? Really flat.
I like this gal, a lot.
And I really like a company that is bold enough to feature an ad showing a woman with a flat chest. A really flat chest. Like mine.
I’m guessing the woman in the ad didn’t come by her flat chest in the same manner I did, i.e., I bet she didn’t have a double mastectomy. Mainly because mastectomied women aren’t in real high demand for ad campaigns. But maybe Crystal Light is changing that. Slowly but surely chipping away at societal ideals of what a model looks like.
Real-life women come in all shapes & sizes. It sure was nice to see a woman in an ad who does, too. I think I’ll go whip up a big pitcher of Crystal Light.
Dear Santa,
Posted: December 22, 2010 Filed under: breast cancer, cancer fatigue, drugs, food, infection, kids | Tags: Bactrim, baseball, Biaxin, bloodwork, bone scan, BRAC, breast cancer, cancer diagnosis, Cefapime, champagne, Christmas, Christmas list, Cipro, collection agency, CT scan, dogs, ER positive, flat chest, genomic testing, good girl, health insurance, HER2 negative, home health, hospital, Houston, infection, infectious disease, injections, IV antibiotics, kids, L-Dex, lymph nodes, mastectomy, minocycline, MRI, PET scan, plastic surgery, post-mastectomy, PR positive, Santa, survivor, tamoxifen, Vancomycin, wound care, wound vac, x-ray, Zyvox 4 Comments
I’ve been a pretty good girl this year. I’ve smiled at fussy babies in checkout lines at HEB. I did my time at the grade-school class parties (not my scene, to say the least). I called the collection agency back — yes, I really did — when they left me a message saying I owed money on a past-due hospital bill that my insurance company says has been paid. I donated nearly-new clothes & home goods to charities multiple times. I helped out with the school fundraiser, even though I really, really, didn’t want to. I’ve said please and thank you and bring my own bags. I was a big girl and good sport about all the trips and baseball games I missed this past summer.
And while we’re on the topic of this past summer, dear Santa, do ya remember all the hell I went through? It all started on April 27, 2010, when I was diagnosed with breast cancer. Talk about an “aha” moment. The timeline quickly unfolded like this: the rest of April and first part of May were consumed with tests, tests, and more tests: BRAC analysis, CT scans, x-rays, PET scan, bone scans and MRI. In case that’s not enough acronyms for ya, there was also the L-Dex and then the genomic typing of ER/PR positive and HER2 negative. More injections and blood draws than my poor left arm’s veins could keep up with (literally; there’s a permanent knot in the big vein). Countless appointments with the breast surgeon (Dr Dempsey, who is on the “nice” list) and plastic surgeon (Dr S, who may be on the naughty list), and 3 different oncologists.
Meanwhile, there was research to be done and crushing decisions to be made as I prepared for surgery. The phrase “life and death” took on a whole new meaning, sweet Santa. There’s a strange juxtaposition between packing school lunches and signing field trip permission slips while also filling out my medical directive and living will. I learned pretty fast how to act normal when everything around me had been turned upside down. I think, dear Santa, I also did a pretty good job of adjusting and adapting to the new normal. I think, fat man, I’m still doing a damn fine job of that. One quick look at my profile tells you that there most definitely is a new normal around here.
Santa baby, I was a good girl after the double mastectomy and the lymph node removal that left me battle-scarred and weary. I was an especially good girl in the face of the plethora of prescription drugs I could have used & abused. I was a diligent girl when it came to choosing green drink over Diet Coke, all-natural hormone-free yogurt over Blue Bell.
Santa, I was a brave and good girl when the nasty infection set up shop in my still-raw chest wall. I endured the 103-degree fevers, 22 days in the hospital, multiple tissue excisions and untold poking & prodding without much complaint. I missed the comforts of home, my dogs & my kids more than words can say, but I only cried twice. And even then, it was when no one else was around to see.
We don’t even need to recount the 18 days during which I was attached to the wound vac 24-7. I would really like, dear Santa, to permanently erase that memory from my grey matter, por favor. But I would like to remind you that I was a trouper during the home health days, and all those hours that were consumed with wound care and the administration of IV antibiotics. And while I’m at it, can I get a little shout-out for not killing Dr S, even though he probably deserved it?
Oh Santa, I do crave some credit for all the antibiotics I’ve endured — and continue to endure. From the Vancomycin to Cefapim, from the Cipro to the Zyvox, from the Biaxin to the Bactrim and Minocycline. Those last two will be part of my daily routine for a few months yet, but I’m already looking forward to the day in which I don’t have them on my kitchen counter anymore.
So Santa, how about we make a deal? I’ll set out all the milk & cookies you want in exchange for one little thing. All I want for Christmas is to have it easy for awhile.







