It’s that time of year again

Posted: June 16, 2011 | Author: | Filed under: baseball, breast cancer | Tags: , , , , , , , , , , , , , , , , , , , , , , | 4 Comments

Summer in Texas means a few things: happy kids, hot & humid days, and baseball All Stars.

Texas is a baseball powerhouse in general, and our neck of the woods is no different. We’re right down the highway from Pearland, whose Boys of Summer blazed a trail from Texas to Williamsport, Pennsylvania, last summer to go nearly all the way in the prestigious Little League World Series.

houston.culturemap.com

This truckload of Pearland boys could be from any Little League in Texas; hopefully in a couple of years it will be my kid’s First Colony team. We watched every game last summer, cheering for those boys in blue and hoping they would prevail. We laughed at the way the media zeroed in on the Pearland moms and their blinged-out team shirts. I guess not everyone “does” baseball that way, but around here, it’s de rigueur for baseball moms to have glitzy shirts, often with their kid’s number emblazoned in rhinestones. Writer Ken Hoffman said the Pearland team “tore through Texas tournaments and blew into Williamsport with tape-measure home runs, speeding- ticket-worthy fastballs and bedazzling mothers that the Little League World Series won’t forget.”

chron.com

All Stars is an exciting time. Grueling, too, with practice 7 days a week until the games start. We plan our vacations around the All Stars schedule, and schedule our daily activities around practice. The first tournament begins Tuesday, and I sure hope the Big Red Machine blows through District and Sectionals the way they did last summer, blazing a trail straight for the State Championship in Tyler, TX.

Since I missed pretty much all of it last summer, I didn’t realize that our district, Texas East Little League, “stretches from the Sabine River in the East to I-20 in the North to I-35 on the West to San Antonio and from there to the Gulf of Mexico and back to the Sabine River,” according to the Texas East website. 

We’re that little strip of green in the middle, District 16. Texas is a big state, the second-biggest in the country in both population and area, and baseball is serious business around here. I don’t know how many Little Leagues there are in Texas, but considering that this great state is 773 miles wide and 790 miles long and populated by some 25 million people (thank you, Wikipedia), I’d say there are a bunch.

I’ve written a lot about having missed so many of Payton’s games last summer. Don’t worry, I’m not going to re-hash it today. Suffice to say that if it had just been the bilateral mastectomy in mid-May, I would have been in fine shape for the All Star summer schedule. But no, the post-mastectomy infection had to surface, and the resulting hospital stays and surgeries meant there would be no trip to Tyler for me. From the moment that infection reared its ugly head, my life became one complication after another, and I began to live the famous Winston Churchill quote of “If you’re going through hell, keep going.” Just do it without being able to watch your kid play the best baseball of his life. From mastectomy to infection, to nearly 30 days in the hospital, to multiple tissue excisions, to saying good-bye to the tissue expanders, to a shaky recovery involving all manner of antibiotics and home health, to slowly very slowly getting a semblance of a normal life back to finally getting around to reconstruction, to the long recovery process after The Big Dig. Quite a circuitous route I took, with very little baseball.

So this summer, I’m going to soak it all up. Every scorching minute of it. Since Texas is in a major, seemingly unending drought, we probably won’t have to worry about getting rained out, like we did a few times last summer. I’ll be in my blinged-out shirt, cheering hard for the boys in red, and reflecting back on how much I missed last summer at the ballpark.

A victory for all the bald girls out there

Posted: June 15, 2011 | Author: | Filed under: breast cancer | Tags: , , , , , , , | 6 Comments

nbc.com

If you watch The Voice, you’re familiar with Beverly and Frenchie, the two members of Christina Aguillara’s team who are still alive in the competition. If you’re not familiar with the show, click on the link and get to know more about it. It’s entertaining.

Basic premise is similar to American Idol but the judges don’t get to see the contestants and have to choose them based solely on their voice. 

CeeLo Green, Christina, Adam, and Blake Shelton are the judges, and they each have a team of singers. They coach their singers and have a lot of fun while honing their voices. My little girl loves this show, and I have no trouble watching it with her simply because of the presence of Adam Levine. After seeing him and Maroon 5 live in October, I love him even more than I did before. And that’s all I’m going to say about that. 

Yvonne, I sure hope you’re reading this right now. Adam is the cure for all the problems in the world.

And he’s on TV every week.

How sweet is that??

Ok, back to Frenchie and Beverly.

There’s something unusual and cool about them. Yes, they both have great singing voices and stage presence (Frenchie, especially), and they seem to possess a wisdom and maturity that the other contestants do not. I happen to love the fact that Beverly lives an alternative lifestyle and is embraced nonetheless; makes me think and hope that progress has been made in the acceptance department.

The fact that two mature (read: older) women who don’t have conventional looks won out over the two younger, more traditionally attractive girls fills my heart with happiness.

Here’s the team Christina started with:

nbc.com

 

And here’s who’s left:

As far as I know, neither Frenchie nor Beverly has cancer or has endured chemo. My assumption is that they eschew hair on purpose, and for all my cancerchick friends out there in blogland, I’m calling this a victory for bald girls everywhere.

 

As if the tornado wasn’t bad enough…

Posted: June 14, 2011 | Author: | Filed under: breast cancer, infection | Tags: , , , , , , , , , , , , , , , , , , | 1 Comment

I feel a weird dichotomy of emotion when a friend hears about a rare and hard-to-treat infection and thinks of me. On one hand, it’s nice that my friends are the sort of people who know what’s going on in my life (I guess being a blabbermouth and having a blog help). On the other hand, it’s a weird feeling to be the one associated with the rare and hard-to-treat infection.

No matter, the horse is out of the barn, and the fact of the matter is that I did indeed have a rare and hard-to-treat infection, I am a blabbermouth, I do have a blog, and my friends rock.

So when the news broke that several people in the wake of last month’s giant killer tornado in Joplin, Missouri, have contracted a rare and hard-to-treat infection, my name came to mind. Perhaps this provides a bit of perspective for me. On many levels. It reminds me that while I’ve been through a lot, I also have a lot for which to be grateful. Namely things like this: #1, I wasn’t involved in the devastation of that giant killer tornado. #2, my rare infection was hard to diagnose but not especially hard to treat; just a giant pain in the ass. #3, my rare infection wasn’t deadly, as the one in Joplin is. #4, my rare infection is gone, baby gone. And, because I like odd numbers in lists, #5, I’m done with the 267-day course of oral antibiotics needed to treat my rare, pain-in-the-ass infection. Oh, if only I got paid extra for using hyphens in my modifiers.

cbsnews.com

The giant tornado last month in Joplin stirred up a lot of soil in its destructive path, and it uncovered mucormycosis, a deadly fungus among us. Like most bacteria and fungus, mucormycosis is all around us but only affects people who are already limping along with weakened immunity. The proverbial kicking a man who’s already down. It seems to prey upon people with diabetes, leukemia, lymphoma, and AIDS as well as those who have had an organ transplant and those who engage in chronic steroid use (Alex Rodriguez, you better be careful).

I must digress here for a moment about the mighty A-Rod. We don’t like him much in our house (understatement of the year, right there). Not just because we are die-hard, hard-core Red Sox fans and he’s on that other AL East team. You know, the one that wears those gawd-awful pinstripes. Ick. Well, A-Rod, in our opinion, typifies everything that’s wrong with pro sports: the drugs, the attitude, the disdain for the very fans who provide him job security. Imagine our surprise and delight when we found this yesterday:

An A-Rod baseball card, chewed to bits by our little dog Pedey. I love it! It’s even funnier because that little dog is named for Payton’s favorite Red Sox player, Dustin Pedroia. The idea of Pedey going after A-Rod fills my heart with pride. I’ve said before that Pedey is not much like his namesake: he’s lazy and clumsy with a ball, but in this case, Pedroia would be proud of this little dog for pouncing on A-Rod and tearing him to bits!

As long as we’re digressing for baseball-related ramblings, I might as well post a pic of my boy-crush, Jacoby Ellsbury. It’s been a while, and I know my loyal readers have missed him. Here ya go.

You’re welcome.

Ok, back to the Joplin tornado and its unwelcome sidekick. The tornado was a big one. An EF-5 to be precise. The EF scale refers to the Enhanced Fujita scale, which was developed at the Wind Science and Engineering Research Center at Texas Tech University. Yay Red Raiders. I don’t know much about the tornado scale, being a bit more familiar in this neck of the woods with the Saffir-Simpson Hurricane scale, but a quick peek on Wikipedia tells me that an EF-5 tornado means the storm has winds in excess of 200 mph. A bad-ass, scary storm, to be precise.

The May 22nd tornado cut the city of Joplin roughly in half with an estimated 7-mile-long by 1-mile-wide swath. It moved slowly and stayed on the ground rather than touching down and moving back up. All of these factors combined equal untold destruction, a death toll of 151 people, and the unleashing of a nasty fungus.

Eight tornado victims have contracted the mucormycosis, although public health officials won’t make an official link between the fungus and the tornado. Four of the people who tested positive for mucormycosis have died. It’s a nasty bug that spreads fast and can invade the blood supply of its victims, who typically have injuries and secondary wound infections. Sound familiar? Ugh. The rush of feelings and memories this topic evokes roars in my head much like a tornado. I think my PTSD is showing.

The mycormycosis fungus is usually found in soil and wood and enters the body either through a puncture wound or when a person breathes in mold spores. The dirt or vegetation becomes embedded under the skin, and mold is actually found in the wounds of people who have this bug. In some cases, wounds that had been stitched up after the tornado had to be reopened to clean out the contamination. Again, sound familiar? The incubation period is a little shorter on the fungus compared to the mycobacterium, and hopefully the fungus presents itself faster than the myco; both times I’ve been tested for that damn myco it took 6 weeks to present itself.

People with weakened immune systems who come into contact with this fungus have a mortality rate as high as 90 percent. Yes, you read that right: 90 percent.

wikipedia.com

It’s strange how the spores of this fungus look almost artistic under the microscope, yet can wreak unimaginable havoc on the human body. Compare that to my bacteria’s photo and you can see how vastly different these bugs appear under the microscope and why I have enormous respect for my sweet infectious disease doc. You rock, Dr Grimes! 

Because the mucormycosis fungus is so rare, medical research is limited, and treatment is simple but fraught with complications. Treating it sounds eerily familiar to me: confirm the bug, excise the affected tissue via surgery, and administer long-term and powerful antibiotics. Same plan I followed for the mycobacterium.

The Centers for Disease Control and Prevention said Friday that it is conducting tests to help investigate the infections, which are so uncommon that even the nation’s largest hospitals might see only one or two cases a year. In fact, Dr Ewe Schmidt, infectious disease specialist at Joplin’s Freeman Hospital, said that in 30 years of practice, he’s seen 2 cases of mucormycosis, both of which occurred in patients who had untreated diabetes.

“To my knowledge, a cluster like this [several cases of the fungus] has not been reported before,” said Dr. Benjamin Park, head of the CDC team that investigates fungal diseases. “This is a very rare fungus. And for people who do get the disease, it can be extremely severe.”

I’m so glad my rare infection wasn’t this deadly fungus. I’m even more glad that my rare infection is gone. And I’m so glad this guy and his dog survived the storm and the deadly fungus.

cbsnews.com

The battle of the K tape

Posted: June 10, 2011 | Author: | Filed under: breast cancer, tennis | Tags: , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 12 Comments

In addition to battling cancer and a nosocomial infection, I’ve also been busy battling plantar fasciitis.

mayoclinic.com

The PF preceded the BC, and while not as nasty–and certainly not life-threatening in any way–it’s a major drag. My feet hurt all the time. All. The. Time.  Maintaining my busy-body active lifestyle is pretty tricky with feet that hurt All. The. Time. It also severely limits my footwear. Cute shoes are pretty much out, as is going barefoot. I haven’t resorted to orthopedic shoes, but I’m not out of the woods yet, either. I have custom orthotics that go in my tennis shoes (don’t be jealous), and if I’m not wearing my tennies, I’m in my very dear Cole Haan flip flops or my not-s0-cute but cushy crocs flip flops. Thank goodness I don’t work in an office that requires closed-toe, pinchy shoes. I’d have to quit or get fired. Probably option #2.

I’ve seen a foot doctor, I’ve tried herbal remedies, I’ve taken copious amounts of RX anti-inflammatories, I’ve iced and elevated and slept in a splint. I had high hopes that while recovering from The Big Dig and taking several months off from tennis and most of my daily activities beyond laying in bed bemoaning my pitiful state would provide some respite from the foot problems that plague me. Alas, it did not. In fact, having foot pain while lying in bed doing none of the active things I want to do gave me more about which to bemoan. 

My tennis buddy and dog-spoiler extraordinaire Christy had the answer to my problems. Dr Scott Kelly of the Airrosti Clinic. I need another doctor in my life about as much as Lindsey Lohan needs another bad-influence friend. The thought of adding yet another doctor my circle of docs did not appeal to me one little bit, but desperate times….

The Airrosti Clinic uses an intense treatment model that involves some serious hands-on time with the doc. And when I say hands-on, I mean he’s gonna put his hands on your tenderest injured spot and mangle the hell out of it. For real.

airrosti.com

See, fascia is connective tissue that covers most of our body. It covers the different muscles, blood vessels and nerves “much like plastic wrap holds the contents of a sandwich together,” as it was explained to me. Problem with fascia is it’s everywhere, so your chance of injuring it is great, and it has little or no blood supply, so your chance of healing said injury is not great.

That’s where the laying of hands comes in. Dr Kelly gets his long, strong, mean hands into the damaged fascia and starts kneading it like bread. Then stretching it like taffy. Then punching it like a speed bag. All the while laughing maniacally at the moans, cries, screams and curse words coming from the patient. (Ok, he doesn’t really laugh maniacally but he does seem to enjoy his work very much, and when I showed him the line of bruises on my calf after his first hands-on treatment he smiled with obvious pride and said that’s his signature, and if he could sign his name in bruises, he would. That’s one autograph I don’t really need but apparently am gonna get. Repeatedly.)

When I met him last week, he grabbed ahold of my foot and said he could diagnose me in 30 seconds. I said I didn’t realize this was like speed-dating. He rolled his eyes, then told me that he could cure my PF in 3 treatments. I asked if he could also name that tune in one note. Why oh why don’t any of these doctors get my humor??

As skeptical as I was, I have to say that after the mangling, kneading, stretching, punching, and cussing, I could tell a difference. It took a while for the shock and trauma to subside, but once it did, I could tell that we were getting somewhere. The day after my first treatment, I got out of bed and walked barefoot on the tile without pain — something I hadn’t done in at least a year.

There’s homework, of course, that involves standing on a golf ball and rolling the ball all over the bottom of my feet, paying special attention to and lingering on the really tender spots. There are also a couple of exercises involving a 36-inch by 6-inch foam roller.

And then there’s the K tape. 

Kinesio tape. In every color of the rainbow, according to the image on ktape.com. The website is pretty glowing about this product:

“It’s designed for Professional athletes, Olympians, and active people world-wide who take health & fitness seriously and who refuse to stop training, playing, or living life active and free. The design is minimalist, the results are magic.”

That’s me: I refuse to stop training playing, or living life active and free. Bring on the magic!

I’d had K tape before, when I was treating my PF myself, and again when I started seeing my lovely lymphedema specialist, Tammy. She’s a certified K tape master. She’s been using K tape on my post-mastectomy chest and now on my post-reconstruction belly. I’m a believer in the magic of K tape. As part of the scar-tissue-management on my 17-inch-long incision on my belly, Tammy puts a couple of strips of K tape and we wait for the magic happen.

So when Dr Kelly wanted to tape my feet after my first treatment and asked if I’d ever heard of it, I said as a matter of fact, I have some on my belly right now. We hadn’t been through the whole song & dance about the BC business; I was hoping to keep the BC beast out of the sports medicine arena. Well, the elephant was certainly in the room when I mentioned I had K tape on my belly. In for a penny, in for a pound, and I had to explain. 

Yes, those are bruises just above the shorter piece of tape. If you’re fluent in the language of torture, you can probably tell that that’s how Dr K signs his name.

Dr Kelly seems to be a bit competitive, and wanted to tape me up real nice so that Tammy, the other K tape master, would approve. She did. And then she took it a step further. I guess she’s a bit competitive, too.

Instead of just using a couple of strips on the scar tissue on my belly, Tammy used a new technique she’d just learned at a K tape workshop. Could this be Turf Wars part deux? 

I can’t wait to show this to Dr Kelly. The battle of the K tape is on!

I hope neither he nor Tammy sees this K tape image and gets any big ideas:

googleimages.com

I’m ok with the crazy blue racing stripes on my legs & feet, and with the Frankenstein pink on my belly and over my new belly button, but I’m drawing the line at a pink ribbon made from K tape. No thanks!

Insomnia

Posted: June 10, 2011 | Author: | Filed under: breast cancer, food | Tags: , , , , , , , | 4 Comments

So it’s 1:00 in the morning and I’m wide awake. You’d think an impromptu dinner party with the hens in which we put away 5 bottles of Piper and 2 bottles of wine would give me the impetus for a hasty nighty-night, but no, my brain is whirring & churning instead of sending vibes of lullabies.

I have no idea how all those bottles got emptied, but I do know that I will be worthless at my early-morning tennis drill. I’m not a night owl, and no matter how late I stay up, I tend to wake up with the roosters, so I’m already thinking about the piquant smell of the coffee beans being ground and am hearing the sound of the jet-engine-like grinder as it pulvarizes the coffee beans into a fine enough powder that combined with hot water elicits an energizing brew.

Girlfriends old and new gathered around my dinner table is a tonic for the soul, for sure. Grilled teriyaki tuna steaks, ginger rice pilaf with snow peas, roasted broccoli, and a most delicious salad of mixed greens, goat cheese, strawberries, blueberries and candied pecans filled my belly and my soul with happiness. Throw in a sinfully complex chocolate mousse cake and you’ve got the recipe for bliss.

I’ve promised Payton & Macy a trip to see Kung Fu Panda 2 tomorrow, followed by a belated graduation dinner for my cousin Melissa. I may be napping through the movie and longing for my bed early tomorrow, but will not begrudge the laughter and fellowship of the late-night hens’ dinner party. As Po would say, “You guys see that? It’s called being awesome.” And as we all learned from the original Kung Fu Panda, there’s no charge for the awesomeness.

kungfupanda.wiki.com

Summertime

Posted: June 8, 2011 | Author: | Filed under: breast cancer | Tags: , , , , , , , , , , , , , , , , , , , , , , , , , | 10 Comments

Summertime, and the living is easy. Sam Cooke said it, well, sang it actually, a long time ago. The fish were jumpin’ and the cotton was high. The girl he was singing to had a daddy who was rich and a mama who was good-looking. All was right in Sam’s world.

Well, the living is easy all right. No alarms waking me up before I’m ready, no lunches to pack. Payton’s lunch is easy: sandwich, bag of baked chips, string cheese, Rice Krispie treat, and a drink. No lunch box, no ice pack — he’s too cool for that. Macy, on the other hand, is quite particular about her lunch, requiring 5 different things, some of which must be washed & chopped and placed into small tupperware. She does at least take the same thing every single day, much like her mama did as a schoolgirl. I had a homemade egg salad sandwich on wheat bread every day of my schoolgirl life, and didn’t care one lick that the other kids thought the egg salad looked gross and the brown bread looked weird. They could have their stick-to-the-roof-of-your-mouth Wonder bread PB&J any day. I was perfectly happy with my gross-looking egg salad on weird-looking bread.

So no lunches to pack, yea. No mountain of school paperwork to wade through, only to find that other than glancing at the grades at the top of the completed work, there’s not a single thing in that mountain that really matters. No racing the clock to get out of bed, gobble down breakfast, get dressed, and get out the door. No meanie mom enforcing a highly unpopular bedtime so the little darlings don’t act like feral hogs in the a.m. Last but not least, no school projects. Oh, how I despise the projects. After 18 years of living with the original slacker student, who did minimal work and gasp! even skipped school projects altogether yet made good grades and somehow managed to become a contributing & successful member of society, my opinion on school projects has definitely changed. Changed to hatred, that is. They’re messy, time-consuming, inane, and require ME to go to Hobby Lobby AND help with said project when I could be playing tennis.

Ok, rant is over.

I certainly hope I didn’t offend any teachers out there. If I did, please direct your hate mail to my husband, the original slacker student. It may take him a few days to reply, because he’s busy running a software company. I’m not sure he could have risen to such heights and attained 2 graduate degrees without that pivotal diorama he made in 3rd grade at Jenks Elementary.

Ok, now my rant is over.

So we are blessedly free of the strict schedule imposed by the Fort Bend Independent School District, and most thankfully free of the blasted school projects. We can go where we want to go when we want to go there, stay up late, and eat lunch when we please. All that sounds great, right?

Except for one tiny detail: I don’t do well with unstructured time. Remember me, the busy-body? I don’t blossom with a lot of downtime. It’s day 3 of summer, and I’m already feeling a little itchy, a little twitchy. As much as I dislike the hustle & bustle of the imposed school schedule, it does keep us on track. And I like that. I need that. I would have been great in the army.

Lots of people enjoy their downtime and get into being lazy. For me, laziness makes me feel icky. I really like having a to-do list every day and relish the feeling of being productive. Some people were laughing at me that on the first day of summer, I cleaned out the garage, did 4 loads of laundry, vacuumed the entire downstairs, and bagged up discarded clothes for donation. Before lunchtime.

Now that my kids are a little older and a bit more independent, summer isn’t as stressful because I can still get my stuff done without having to watch them every second. The ever-present possibility of a toddler finger in a light switch cramps my style and interferes with me crossing things off my to-do list. With the luxury of semi-independent children, I’m trying to relax more this summer. That, and the burning desire to suck every drop of summer this year, since last summer was such a bust.

Last summer, I was not only recovering from a bilateral mastectomy but also playing hostess with the mostess to a nasty, long-staying bacteria that exploded into a messy, hard-t0-diagnose-and-even-harder-to-eradicate infection. I spent some extra time in the hospital, multiple times and multiple hospitals, and had a few extra surgeries. I weathered the ups & downs of being an impatient patient, and learned the hard, hard lesson that no matter how nicely I treat my body, it can and will betray me. As my sweet mama would have said, “That is rude, crude, and socially unacceptable.”

Last summer I missed out on a lot, thanks to Mr. Mycobacterium. This summer is going to be different. I’m going to spend some idle time, and hopefully learn to like it. I’m going to float in the pool with my kids and my crazy dog, and not worry about the laundry piling up or the dishwasher needing to be emptied. I’m going to teach my kids to cook, and not stress over the messy kitchen. I’m going to drag them away from the TV and computer games and into the museum district, and not get discouraged when they complain about how boring it is.

This summer, I’m going to relish being home instead of in a hospital, staring at this: 

I’m going to delight in the fact that I don’t have any of these attached to me:

I’m going to do a little dance about the fact that my sling bag isn’t carrying any of those icky things that are no longer attached to me:

and that I no longer need a collection of these to catch the collection of gunk that accumulates in those things to which I’m not longer tethered:

I’m going to breathe a sigh of relief that I don’t have any of these stuck to me:

I’m going to offer up a special nod to the fates that I won’t be going here:

to get more of this:

However unstructured this summer is, it’s gonna be great. Summertime and the living is easy.

My other life

Posted: June 6, 2011 | Author: | Filed under: breast cancer, literature | Tags: , , , , , , , , , , , , , , , , | 5 Comments

One of the many blogs I read is a fine one published by a lovely woman named Marie in Ireland. It’s called Journeying Beyond Breast Cancer, and Marie’s goal via her blog is to provide some guidance on how to navigate the “post-treatment limbo” that cancer survivors find themselves in once “it” is all “over.” There’s plenty of information out there for those who’ve recently been diagnosed and for those who are actively in treatment, but not much out there for the “what next?” portion of the “cancer journey.” I was honored to be a guest blogger on Marie’s site in February, and I always come away from Marie’s blog feeling enlightened and empowered. (And really, I’m not just sucking up because she’s giving away a copy of Sheryl Crow’s new cookbook, which I really, really, really want. I mean it. Marie’s blog is fantastic.)

Marie posed a challenge to her blog community to write a post about our “other” lives, about who we are when we’re not fighting cancer. We cancer-chicks who blog tend to know a lot of intimate details about each other, as is the nature of the beast we all have in common, but we don’t always know a lot about each other besides the beast.

Never one to back away from a challenge, I ruminated on my B.C. (before cancer) life. It took me awhile to remember, so wrapped up have I been in the cancer-vixen lifestyle. I racked my brain to recall what it was that I used to do with myself absent multiple doctor’s visits, endless testing, countless trips to the pharmacy, and hours of feeling yucky.

It was a perfectly ordinary life. I’m not one for a lot of drama; I’ve been to high school, and don’t have any desire to replay it. I have no patience for grown-up “mean girls” and so have a tight circle of true friends. We live an ordinary suburban life, most of us at home during the day, having forgone careers to raise kids, although several of my besties do work outside the home and do amazing things like crude trading and nursing. Ok, I’d better clarify: one friend trades crude oil, and another is a nurse. Since this blog is usually about all things boob-related, I don’t want to give the impression that I’m talking about crude nursing, as in off-color breastfeeding.

So my life was pretty ordinary, pre-cancer.  Ordinary, but good.

I left my editing job 12 years ago, when Payton was born, to become a full-time mommy, and after Macy joined the herd my workload doubled but so did my heart. As my kids got older and started school, my life took on the pattern of theirs and I volunteered at their school a lot while also spending some time doing my own thing. I walked that fine line between being a full-time mom but still being my own person. Like millions of other moms at home raising young kids, I packed my kids’ lunches while doing laundry and tried in vain to keep up with the household chores. I stole some time from the domestic hustle & bustle every day to go to the gym or play tennis, and made my to-do list while waiting in the carpool line.

My pre-cancer schedule was pretty full of ordinary things: kids’ dentist appointments, play-dates, sports, lessons, and parties. I served on the PTA board, was a tenured room mom, and worked the school book fair every year. Shortly after my mom died I was at the book fair, surrounded by books and overcome with loss. I missed my mom so much; she was an avid reader and we always talked about the latest stack of books on our nightstands. I met another mom who was volunteering that day. Jenny was new to our school, having recently relocated to Sugar Land. We chatted about books, and she shared with me that her dad had recently died, and she was swamped by grief, too. I decided then and there to start a book club, and to invite her to join me. Instead of allowing my sadness to rule, I wanted to find a way to diffuse it.

I had no idea at that time that Jenny was a breast cancer survivor and would become my mentor and tour guide through the “cancer journey.”

Meeting Jenny was an extraordinary event in my ordinary, pre-cancer life. Along with my Runnin’ Buddy and our nurse practitioner friend Laura, Jenny and I comprise a quartet of book-lovers who meet once a month and discuss the book we’ve read. Five years later, we’re still going strong. We’ve read some amazing books as well as a few clunkers, and are constantly on the look-out for the next great read.

When I first started running the book club, I would research book group discussion questions and print out a list for each of us. Over time, I’ve gotten lazy and now just highlight an interesting passage, a particularly pivotal plot point, or a bit of prose that speaks to me for whatever reason. This is the basis for our book club’s discussions nowadays.

I’ve always loved books, for their ability to transport us to other worlds. The written word is precious to me, and I suppose it’s in my genes; my mom was an English teacher, after all. I chose my college major (journalism) based on the right ratio of the least amount of math & science and the maximum amount of literature. My career in publishing and editing surprised no one, and I continued to read copiously after leaving the industries for motherhood. True, most of what I read was written for the preschool crowd with a heavy emphasis on pictures, but I started building my kids’ libraries long before they could read. I suppose it was perfectly natural for me to start a book club.

Just in case you’re wondering if I sit around and read all day when I’m not fighting cancer, the answer is no. I spend as much time as humanly possible playing tennis, then I sit around and read for what’s left of the day.

Ha!

National Cancer Survivors Day

Posted: June 5, 2011 | Author: | Filed under: Uncategorized | Tags: , , , , , , , , , , , , , , , , , | 9 Comments

Well, we have Mother’s Day and Father’s Day, Grandparents’ Day, and even Bosses’ Day for pete’s sake, so why not Cancer Survivors Day? Makes perfect sense, as there are millions of us around the world. I do wonder, though, why there’s no apostrophe in the title. I double-checked it on the NCSD website and sure enough, no apostrophe.

It’s today, by the way — I feel like I should wear a shirt that says “Kiss Me, I Survived Cancer” but I’m not really the kissy type. I guess I could wear my “cupcakes” t-shirt, which I love, but then it seems like my “cupcakes” get the credit for kicking cancer to the curb when really, they were the culprit in the first place. Without them, I never would have had breast cancer, so I’m not giving them the credit for having survived it. I will wear it to the gym, though, because I love the look on people’s faces as they read it, then do a not-so-subtle double-take at my chest.

So what is National Cancer Survivors Day all about, anyway? Probably something a little more meaningful than wearing a snarky t-shirt and giggling to myself as the shockwaves from said shirt ripple through the gym. According to the NCSD website,

“National Cancer Survivors Day® is an annual, treasured worldwide Celebration of Life that is held in hundreds of communities throughout the United States, Canada, and other participating countries. Participants unite in a symbolic event to show the world that life after a cancer diagnosis can be meaningful and productive.”

Well, I’m certainly proud to be part of an annual, treasured worldwide celebration of life. Although I think I missed the parade. Considering how many people are affected by cancer, you’d think this day would get a bit more press. There’s probably a Lifetime for Women movie about it and I missed that too.

As usual, I have lots of questions about this annual, treasured worldwide celebration of life. Who qualifies as a survivor? And when does survivorship begin? What time was the parade? The National Cancer Survivors Day Foundation defines a “survivor” as anyone living with a history of cancer – from the moment of diagnosis through the remainder of life. I think it’s perhaps a bit more personal than that. I also think it’s more than just surviving cancer. I also survived a nasty infection and a nearly  year-long regime of some pretty bad-ass antibiotics. I survived a complicated and intense reconstruction process, and I survived yet another long, hard recovery.

I considered myself a survivor as soon as my mastectomy was over. Surgically removing the tumors, and thereby the cancer, from my body was when my status changed from “regular person” to “survivor.” So for me, I became a survivor in the late afternoon of May 13, 2010. Although I certainly didn’t feel like much of a survivor at the time, bandaged and battered, stitched up and sore. Moving my body at all was a seemingly unattainable feat, and raising my arms high enough to put chap stick on my lips was definitely unattainable. I wasn’t able to slick my own lips for a day or so.

At the time, I had no concept of what a double mastectomy truly meant or looked like. So focused was I on ridding the cancer that I gave zero thought to the aftereffects of the surgery. Even now, in the hazy afterglow of just one year’s time, I struggle to remember exactly what I looked like after that first surgery. In fact, when Trevor gave me The SCAR Project book for my birthday a few days ago, I looked at the portraits of mastectomied women and asked, were my scars vertical or horizontal? For a brief moment, I couldn’t remember. (They were vertical, BTW.)

Deborah Lattimore

That’s why I’m so grateful for things like The SCAR Project and for women like Deborah Lattimore. Like the women who were photographed for The SCAR Project, Deborah Lattimore didn’t want to forget what she looked like after being mastectomied. This defines a survivor, IMHO: facing a shitty situation with not just courage but with moxie. Reading Deborah’s blog, I’m so impressed and moved and in awe of her take-no-prisoners attitude. I immediately felt a kinship with her as I read what she wrote about her post-cancer silhouette soon after her bilateral mastectomy: “my body is still ‘re-architecturalizing’ and will for the coming year. eventually my chest will be completely flat and the scars will be an even line. i really love my skinny small body!” Cheers to Deborah on this annual, treasured worldwide celebration of life. Wish I could tell her happy National Cancer Survivors Day to her face, and to bask in the supreme power of a strong, confident, self-assured woman who tells cancer to bugger off then shows the world the true face of a survivor. No padded bras, no prostheses here. Not that there’s anything wrong with padded bras or cutlets. How we face the world post-mastectomy is an immensely personal decision, and I in no way want to imply judgement on how any woman makes that decision. For me personally, I applaud women like Deborah who celebrate their mastectomied bodies and view them as a badge of honor. In our breast-obsessed culture, this is no easy thing.

So happy National Cancer Survivors to everyone. I’m thinking we should all have cake. What kind of cake is appropriate for NCSD? Something festive, for sure (you know how I love celebrations). This one is nice:

Love the colors, but the pink butterfly kinda creeps me out.

Maybe this one, then:

Nah, I’m not much of a cat person, and it’s not a birthday cake I’m after, although I do love the idea of the cat eating a fish-shaped cake. Maybe we survivors should eat a tumor-shaped cake. Ewww, gross. Never mind.

Ok, so something breast-cancer related:

Or not. Definitely not.

This one is pretty, and the lemon filling looks yummy:

This one is hilarious, although not appropriate for the annual, treasured worldwide celebration of life:

Maybe something from this bakery:

Surely they’d have just the right kind of cake for the annual, treasured worldwide celebration of life. Something like this, perhaps?

It’s nice to be important

Posted: June 4, 2011 | Author: | Filed under: Uncategorized | Tags: , , , , , , , , , , , , , , , | 3 Comments

Yes, I’m still celebrating my birthday. When I showed up for my scar-tissue-management appointment to see Tammy, my favorite lymphedema specialist, she and Janice had decorated the office for me! I saw the Happy Birthday banner on the front door and wondered if my timing  was out of whack, because Janice had her birthday in February and Tammy’s is at the end of the summer. Imagine my surprise when the decorations were for me!

Confetti on the massage bed! Balloons and streamers! Even some strategically-placed decorations on the shelf above the bed, so that as I’m lying down for treatment, I see festiveness. 

Tammy insisted she get a picture of me lying on the confetti. I love that you can see her, in her white top, in the mirror behind me. She’s something else.

Tammy, me, Janice

One of the pleasant things to come from this “cancer journey” is the relationships formed with health-care providers. Tammy & Janice fall into the category. Hell, they define this category. When I first met them post-mastectomy, minus some lymph nodes and worried about how their absence would affect my tennis game, these two ladies took me under their wing and provided the balm to my battered soul that comes from pure human kindness. We’ve gotten to know each other very well over the last year, and they’ve become not only providers but also friends. So yes, the birthday celebration continues, and I will continue to ride the b-day train as long as humanly possible. Once my liver says “uncle,” I’m out. But until then, rock on.

Even with all the birthday revelry, I didn’t want to get too far away from my latest visit to Dr S. I’ve been so busy celebrating my birthday that I almost forgot to report on my visit to my all-time favorite surgeon in the Entire World. I saw him the day before the celebrating began, so I’d better tell ya about it now before the details become entirely too fuzzy to relate.

Well, the details of the visit aren’t as important as the fact that he and I have made some major, major break-through progress. As you loyal readers know, Dr S & I have gone round & round on a few things in the past, and we’ve had some pretty good arguments. The Turf Wars continue to amuse me.  But at the end of the appointment, with the exception of one hellacious visit last summer involving Sucky during which he almost saw me cry, we part on friendly terms and hold a lot of fondness for each other in our hearts.

So what was the progress, you may ask? When he told me to pull my pants down, so he could look at my belly scar, he said please.

Yes, you read that right:  he said please. All of his own volition. Without being prompted. Without the Mexican stand-off that usually occurs when he wants me to comply but I refuse until he shows me some manners. A little wining & dining before we get down to it, if you will.

That is some major progress. You may remember the time in which I asked him to say please and he replied that he doesn’t have to say please because he is the doctor (cue the fanfare music here). I pretty much laughed in his face and said he may be the doctor, but I am the patient (cue the even louder fanfare music here) and I will not do what he’s asked until he asks nicely.

I reminded him of one of the tenets of my growing-up years: It’s nice to be important, but it’s important to be nice. 

I’m pretty sure he really liked that one, a lot.

Next stop for the birthday train: happy hour — my favorite time of day.

cheers!

A gathering of dear friends, some yummy food, and a well-stocked ice bucket makes for one happy birthday girl. Thad & Yvonne always throw a great party, and last night was no exception. We toasted with a Mumm rose, and broke out the beautiful orange box so the Widow could join the party. She’s always the star of the show.

Luckily, she plays well with others, and it’s not a one-woman show. There’s the Mumm and the ubiquitous Piper, along with the Prisoner. 

Quite a nice grouping for the birthday happy hour. The food was delish, as it always is at Chez McLemore. Yvonne’s tableside guacamole would be at home at any of the finer Mexican restaurants in our neck of the woods. Keith & Jill’s deconstructed Greek salad crostini made my heart happy and made my tummy say “thank you!” The hand-made tortillas and grilled shrimp added the last dash of supreme bliss that enveloped our patio happy hour. The fruit crostada was bursting with blueberries and anchored with peaches, all the while surrounded by a buttery, flakey, turbinado-sugared crust. 

But the very best part of an overall-exceptional evening was this: being surrounded by friends who make every meal a feast.

The day after

Posted: June 2, 2011 | Author: | Filed under: Uncategorized | Tags: , , , , , , , , , , | 7 Comments

The day after one’s birthday can be a let-down, but I’ve got enough festive spirit to carry me right on through. Needless to say, yesterday was one of the best days ever. Big kudos to Trevor for orchestrating a fantastic day. This one is going down in the record-books as the most festive birthday celebration ever.

Yes, I wore a tiara, and yes, that’s a glass in one hand and a bottle of Veuve Clicquot in the other. At the nail salon. What of it? Doesn’t everyone do that on their birthday?

Having that beautiful orange box make an appearance at my party not once but twice was pretty great. Happy birthday to me!

I’m laughing so hard here because the first cork that popped hit the ceiling and scared the nail techs. I guess they don’t have a lot of champagne corks being popped as they prepare to buff & polish clients’  nails.

I’m sad to say that not one photo was taken at my birthday lunch, but picture this: a group of smiling, laughing ladies gathered around a festive table while pitchers (plural) of frozen margaritas are passed. Glasses clink, some with salt and some without, in a toast to great friends, good food, and enduring health.

Meanwhile, a kind senorita whips up a batch of fresh guacamole tableside, adding just the right amount of cilantro, jalapenos, lime juice and kosher salt (but no onions–don’t like em). Custom-made, tableside guac is one of the finer things in life. A big thank you to Mr Reyes, GM at Escalante’s, for the complimentary guac and queso for my party. Abundio knows how to treat the ladies!

Handmade Mexican food just kept coming as the conversation (and margaritas) flowed. Get a group of women together to eat, drink, talk & laugh and you know it’s going to get a little wild. We kept it in check but certainly had a stellar time.

Meanwhile, on the penultimate day of school, Macy received the classroom award for “Most Helpful,” which doesn’t surprise me one bit. School’s out today, which means my kids are now 4th and 7th graders. Let the summer fun begin!

thanks, Carla, for the photo!

← Older Entries
Newer Entries →