At the ballpark, again

Posted: June 22, 2011 | Author: | Filed under: baseball, breast cancer | Tags: , , , , , , , , , , , , , , , , , | 5 Comments

Last summer was pretty bad for me and my family. It started innocently enough, with a bilateral mastectomy at age 40 on May 13th, and while I healed quickly and nicely from that, it all went downhill fast.

Just after my 41st birthday, I got a nasty post-surgery infection. No one saw it coming, and to say it took us all by surprise would be a gross understatement. The odds of contracting a nosocomial infection are not small, but my infection is somewhat rare, quite wily, and super slow to treat. In the scope of inconvenient infections, I won the lottery.

Last night was the first game of the All Star tournament for Payton’s team–something I missed entirely last summer. Being present last night to watch my boy do what he does best with his team of like-minded and uber-talented buddies was one of the simplest yet deepest thrills of all time. We take a lot of things for granted in this life of ours, and being able to sit on metal bleachers in the Texas heat in June to watch youth baseball is one of those things. I’ve sat through thousands of games for my little ball player, and hardly thought twice about it beyond the random, mundane thoughts associated with this endeavor: who are we “versing” (as our catcher, #10 Carl says)? Where is Payton in the line-up? Are we on the shady side of the field? Did I remember my stadium seat? How many times will Macy hit the concession stand? How many pieces of bubble gum does Pay have in his mouth at once?

Those are the thoughts that traverse my brain during a game, along with the usual baseball stuff: What’s the run rule in this tournament?; How did we fare against this team last time we met? If the ball hits the bat then hits the batter, he’s out, right? Rules and regulations course through my head as I follow the many games my boy has played.

Last night was different, though. As I was ready to walk out the door, our bestie Ed reminded me that I’ve come a long way since this time last year. Several of the parents on our team remarked at the park that it’s nice to have me there this year. A couple of the coaches said something about having missed me and my big mouth last summer; once a cheerleader, always a cheerleader.

I have come a long way since last summer, and watching my kid play ball is something to be savored, something to most definitely not take for granted. The metal bleachers, the roar of the crowd, the (gross) smell of hot dogs, the infield dirt blowing in my eyes…every bit of it is special to me on a whole ‘nother level.

Last night also marked the first time a newspaper reporter has covered the game, and seeing my boy’s name in print in association with his rock-star team’s blowout and his personal success is something I’ll be savoring for a while. Before cancer came into my life, I would have enjoyed reading the article, and likely would have forwarded it to our nearest & dearest, but this time, I’m carrying the feeling of that article along with me, inside my heart, in that little space where the gratitude lies.

I was flipping through my old Caring Bridge blog, and happened upon this entry, which seems even more prescient a year later. I wrote this on the morning of my mastectomy, before leaving for the hospital. No doubt I was antsy, preoccupied, and ready to get the show on the road that morning. It seems appropriate to reprint it today, in light of the theme of today’s blog.

I realize that when cancer comes into one’s life it disrupts everything and changes “the normal” forever. Dr Dempsey, my superstar breast surgeon, told me you  no longer schedule cancer around your life, you schedule your life around your cancer. Life takes a backseat to war. 

 With cancer, I join a club that I never signed up for and for which I never wanted to become a member. 

No matter, I now have a new normal. The new normal is all about taking care of what’s most important. We hear this all the time, but when you really put it into play in your own life, you know exactly what it means. For me, it means facing this beast head on and telling the bastard repeatedly that it doesn’t stand a chance. It means never once, not even once, considering that this cancer will win. It’s not even in the game. 

It also  means all the pithy stuff you hear about, like savor every day, make the most our of whatever you’ve got. That’s also true. For me it means truly embracing and enjoying my kids and my family, and letting my friends into my life — warts & all — on a whole new level. Y’all may well see my house a mess, which doesn’t happen much. You may see me in a grumpy mood (ok, you’ve seen that, esp on the tennis court!). You  may see me just a teensy bit vulnerable, but only for a short time so don’t expect a repeat performance. No matter what, there is a new normal, and I’m all over it.

Uncle Tom

Posted: June 21, 2011 | Author: | Filed under: breast cancer, food | Tags: , , , , , , , , | 7 Comments

Just had a major blast from the past — no, I wasn’t listening to the best of the 80s station on my satellite radio; some things are best left in the past.

I was driving down the street, minding my own business, when I saw this:

A Tom’s truck.

Yes, I pulled over to take pictures. If I’d had more time, I would have accosted the driver and told him my story. That guy lucked out today. Talk about dodging a bullet.

Don’t know Tom’s? Let me tell you about it. Not the shoes, either; the snacks.

When I was a kid, my Uncle Wilford drove a Tom’s truck. He was my mom’s older brother, and I adored him. Some jackass drunk driver blew through a stop sign going 105 mph on his way to a Tejano beer fest and killed him a few summers ago.

But the Tom’s live on.

Uncle Wilford was sweet and generous and mild-mannered. My mom used to say that the only thing she could find wrong with him was that he was a Yellow-Dog democrat (not that there’s anything wrong with that). She loved her brother despite their differing political views.

Occasionally Uncle Wilford would be working near us, even though he lived an hour and a half away. I have no idea why he drove his Tom’s truck our way; it never occurred to me to ask. I was just happy to see him. And his truck.

See, Uncle Wilford would park his Tom’s truck in our driveway, open up the back doors, and let all the neighborhood kids climb in and eat to their hearts’ content. I always got to go first, of course, and I always chose a bag of Hot Fries. In my day, the bag had a picture of Andy Capp on them. Apparently this is what they look like now. 

Tom’s had a much bigger product line back in the day, with not just chips but candy, too. My mom was a bit of a stickler when it came to junk food, being the queen of all things homemade, so we didn’t have a lot of crunchy, salty snacks that came out of a bag. Nowadays, with the prevalence of snack foods, this seems weird but it was how I was raised, and it made it that much more special to have free reign in the back of a snack-foods truck.

This is what the back of the truck looks like now:

Maybe my  memory is faulty, but it seems like there were a lot fewer boxes back then. I don’t recall Uncle Wilford every having to open a box to let my friends and me get our mitts on the goods. As I remember, the snacks were neatly organized but not boxed up; ready for the taking, as a snack should be.

Imagine the scene with a dozen or so kids turned loose in the back of a truck full of snacks and being told “Have at it.” I can remember some kids seeing that truck pull onto our street and running full-speed to our house. Barefoot and breathless, and ready for a snack.

Here’s what’s funny: I guess none of the kids bothered to learn my uncle’s name, and they called him “Uncle Tom.” Or maybe they knew his name but conflated him with the Tom’s snacks. (That’s one of the many things I wish I could ask my mom about today — how sweet it would be to have seen the Tom’s truck today, and dialed my mom right up to say, remember when we were kids, and Uncle Wilford parked his Tom’s truck in the driveway, and all the kids called him Uncle Tom?)

Of course at the time, none of us kids knew of the Harriet Beecher Stowe novel Uncle Tom’s Cabin. I bet my mom and my uncle snickered behind their hands when they heard the innocent children’s voices hollering, “UNCLE TOM IS HERE!!” I know I would be. 

 

Cruel, cruel world

Posted: June 20, 2011 | Author: | Filed under: breast cancer | Tags: , , , , , , , , , , , | 16 Comments

“Every death is a wakeup call to live more fully, more completely and more presently.” — Oprah

How ironic that I came across this quote today, the same day that I came across this on my patio (Julie A, stop reading now because here comes the icky part; Christy and all my tender-hearted animal-loving friends, I apologize in advance for the graphic nature of this post and the photos:

I consulted the Houston Audubon Society website and it appears to be American Crow. It’s smaller than a Grackle, which are very common around here, especially on the patios of Mexican restaurants where they beg for chips.

Payton and I came home from the gym but didn’t notice the crow on the ground. He went back into the garage to carry in the loot from Academy, and as he walked up to the back door I heard him say, “Ewwww, gross!” I asked what was gross and he said there’s a dead bird on the patio, and before I could get out there, Harry had the bird in his mouth (he is a retriever, after all).

I don’t think Harry killed the bird — he barks a good game, but when push came to shove, I think he’d be too squeamish. He prefers to do his hunting on the kitchen counters when he’s all alone, and no one can see him scarf down a loaf of bread. If Payton and I had happened upon a downed loaf of bread, I would convict Harry in a heartbeat. 

Is this face of a bird killer? I think not.

True, Harry has little patience for birds and barks his fool head off at them. He especially gets rattled by the ones that perch on the peak of our roof. They pause there to rest a minute or sing a little song, and he goes bonkers. If we say “bird” to Harry, he’ll start barking, lifting his two front paws off the ground for emphasis. However, I don’t think he’s a cold-blooded killer.

I think that unfortunate crow hit one of the plate-glass windows that line the family room and overlook the backyard. This has happened once before, and the bird was stunned and knocked for a loop, but eventually recovered enough to fly away and hopefully live a long, happy, song-filled life. That time, I heard the thump of bird body colliding with glass. This time, I did not.

Nevertheless, I left the crow when he was for a while, hoping the fluttering of his tail feathers meant he was coming to and rallying. Alas, it was not to be. There would be no rally for that crow.

Sad, sad, sad.

And also troubling, because with 2 dogs in residence and others who visit regularly, that dead bird could easily become a mess of feathers and innards if left too long. It might also scare the tar out of Pedey the Weasel Dog, who is regularly frightened by his own shadow. If left too long in the intense Houston heat, it would start to stink to high heaven sooner rather than later. And, last but not least, I did not want Macy to see that dead bird. My little zookeeper has a heart as big as Texas, and her love of animals is legendary. In fact, she is at this moment at the Houston Humane Society’s Companion Camp, where she is no doubt loving on every animal in the building.

So how to dispose of the dead bird on my patio? It seemed somehow wrong and not befitting to just pick it up in a plastic bag and dump it in the trash. Wrong and smelly, too, since the trashmen don’t come for another couple of days. I can imagine that a dead bird inside a black trash barrel in the 90+ degree heat would be plenty nasty come trash day. I think the trashmen would have to take the whole barrel.

Enter “The Scoop.”

Anyone who has a dog knows what “The Scoop” is for, and those of you unfortunate souls who don’t have a dog can probably figure it out quite easily. Our Scoop gets plenty of use in our yard, and I’m kinda nutsy about cleaning it real carefully after each use, so I figured this was the best option. 

Poor little crow. He fit quite nicely in “The Scoop” and as much as I tried to avoid looking right at him, I couldn’t help but notice how delicate yet sturdy his feet were. 

He looks like he’s just sleeping in “The Scoop,” right?

The Houston Audubon Society says the American Crow is “highly intelligent” and leads a “complex life.” They hang together, forming large communities, and don’t breed until they are 4 or 5 years old. They have strong family ties and tend to stay together.

Great, I can now picture a crow family worried sick about their relative who hasn’t returned to the nest. They may be doing a fly-over right now, fanning out across the neighborhood searching for their lost guy.

Now I’m really glad I didn’t just dump him in the trash barrel. I carried him, in “The Scoop,” across the street and laid him in the shady grassy area next to the lake. It’s under a big tree, so maybe the search party will spot him, and their worry can morph into sorrow.

Or maybe the vultures will get to him before then. Fish gotta swim, birds gotta fly, and vultures gotta eat. Circle of life, I suppose, but it still makes me sad. I won’t go so far as to say that this crow’s death is a wake-up call that makes me want to live more fully, more completely, and more presently, as Oprah advises. No, I have cancer to thank for that. But having been through the “cancer journey” myself and having watched my sweet mama go through it, my heart is just a little more tender. Just a teensy bit broken. While joyful about survival and proud of having triumphed, going through such an immense experience produces little fissures, tiny cracks.

Yet, as Harold Duante-Bernardt so poetically pointed out, “We are all broken and wounded in this world. Some choose to grow strong at the broken places.”

So while I keep peeking out the front windows to the shady spot across the street, under the big tree by the lake, watching for a crow family in mourning or a gaggle of hungry vultures, I will resolve to grow stronger at the broken places.

 

Dad’s Day

Posted: June 19, 2011 | Author: | Filed under: baseball, breast cancer, kids | Tags: , , , , , , | 8 Comments

I write a lot in this space about my sweet mama, and how much I miss her since cancer snatched her away in October 2006. I don’t write as much about my dad, and today, on Father’s Day, it’s high time I remedied that inequity.

My dad and I are a lot alike: opinionated, confident, and possessing a strong sense of right & wrong. He was the originator of the “it’s just what you do” idea. He lived it and preached it. One of his many sayings is “Good things happen to people who get up and go to work every day.” He instilled a rock-solid work ethic in my brother and me, and that is one of the many things for which I’m grateful to him.

It all started, I guess, when my dad’s dad, Elias “Louis” Katapodis, was born on July 20, 1893 in the village of Haradiatika, on the island of Levkas, in western Greece off the Ionian Sea. Life was hard, and Louie wanted more.

At age 21, Louie emigrated from Greece to the United States in pursuit of a better life. He and his brother John (for whom my brother is named) departed the port of Patras, Greece, on the passenger ship Patris and arrived at Ellis Island April 5, 1914. I have copies of their ship’s passenger list as well as Louie’s Petition for U.S. Citizenship, dated January 19, 1925. After landing at Ellis Island, Louie and Uncle John traveled to Iowa to work on the railroad, and Louie ended up in Sapulpa, Oklahoma, where he met Mona Mae. He married her and they and had 3 boys. My dad, Leon, was the middle child, on the far right.Louie was immensely proud of his U.S. citizenship, and apparently hung the framed document in his bedroom. He had just enough formal education to read the newspaper and pass the citizenship test, but  he could never read cursive writing, and neither he nor Mona Mae ever learned to drive a car. Louie learned enough math to work a cash register, and worked hard. He had a reputation as a prankster and was always smiling.

Sadly, Louis died before I was born so I never met him but I’ve heard about what a great man he was. He came to the Unites States speaking little English and with very little money, but with hard work and determination–the typical immigrant story–he prospered. He raised his boys to love their family and their country, and he instilled the value of a good education. He taught my dad how important it is “to keep your nose clean” and he wasn’t talking about hygiene. My dad passed that lesson on to my brother and me, and I distinctly remember him talking about how his greatest fear as a child was that he would disappoint his dad. Me, too.

One of my great regrets is that circumstances never allowed me to meet Louie, my Papou, but I’ve been told my entire life that he would have loved me, and I’m sure the feeling would have been mutual.

My dad was a star athlete, excelling in both baseball and football. He passed that trait on to his grandkids, no doubt. In fact, my dad taught Payton to hit a pitched ball at age 2, and perhaps started Pay’s lifelong baseball love affair. Thanks to my dad’s genes and tutelage, Payton looked like this on the ball field, even at a young age. 

My dad not only passed on the baseball legacy but also loves watching Payton’s games. He thinks nothing of traveling 525 miles one way to be in the stands for Pay’s Little League games and for Pay’s year-round team’s many tournaments. Last year, Dad traveled to watch Pay’s All Star team in the State Championship in Tyler, TX, cheering them on while I was stuck in yet another hospital room.

Watching Payton play baseball is one of my dad’s favorite things, followed closely by hanging out with his grandkids. He’s been there from Day One in each of his 4 grandkids’ lives, and in fact, on the day that Payton was born, Dad was visiting my nephew Andrew in Kansas. When he got the word that Pay was making his appearance into this world a few weeks early, he jumped in the car and high-tailed it across 3 states to meet his second grandson. When Macy was born, he kept Payton for us and when the coast was clear and she was safely delivered into the world, Dad brought Pay up to the hospital. I will never forget watching him standing over her incubator with a tear of joy rolling down his cheek.  Wish I had a photo of that!

He never got tired of holding his grandbabies, and he’s logged a lot of hours chasing them around playgrounds, taking them to the zoo, and relishing their company.

I love how you can see Dad just over Andrew’s shoulder in the left corner of this photo. Three cousins having a snack while their Papou watches over them is pretty good stuff.

My parents loved their grandparent role immensely, and I know my dad is as sad as I am that YaYa didn’t get to see her grandkids grow up.

Dad has spent a lot of time hanging with my kids in the pool,

and he’s been around for the first day of school. 

He was proud to be a featured guest for kindergarten read-aloud, and Macy was so happy to have him there. 

Holidays are a special time for my dad, and he loves to have everyone gathered around a table laden with good food. That first Thanksgiving after my mom died was brutal, but even though it had only been a few weeks since he lost his beloved Bride, he insisted that the show must go on and he proudly presided from the head of the table. My mom would have liked that.

Every Christmas, the biggest and best gift comes from Papou, and he’s always there to gather up the trash, insert batteries into new toys, and open the wine and carve the roast beast. 

My dad has taught me a lot of things over the years, from looking both ways before crossing the street to the satisfaction of a job well done. He’s been a guiding influence for my brother and me in how we raise our families. He set the example we follow in parenting: love your kids, teach them well, call them out on their wrongdoings, and have lots of fun. He used to give me his chewed piece of Juicy Fruit gum every evening when he got home from work. The germ-o-phobe I grew up to become would never chew someone else’s already-chewed gum, but as a kid I didn’t think twice about it, and it seemed like a special ritual between the two of us, one of many special things we shared. He sang “You Are My Sunshine” to me every night before bed as he tucked me in.

When my mom was diagnosed with cancer, he was by her side every step of the way. When it became evident that her cancer battle was one she would not win, he faced that cruel truth head-on; a great and important lesson for me and one that I would employ just a handful of years after her death. If it freaked out my dad to learn that his little girl also had cancer, he never let on. He simply told me that he had every confidence that I would map out a plan to deal with it and execute that plan. He has supported and encouraged me, never missing an opportunity to tell me how proud he is of how I’ve waged my battle, and reminding me that my mama would be proud, too.

While I no longer need my nightly song and tuck-in, I still love my daddy and feel so grateful to have him in my life.

Happy Father’s Day to all the daddies out there.

It’s that time of year again

Posted: June 16, 2011 | Author: | Filed under: baseball, breast cancer | Tags: , , , , , , , , , , , , , , , , , , , , , , | 4 Comments

Summer in Texas means a few things: happy kids, hot & humid days, and baseball All Stars.

Texas is a baseball powerhouse in general, and our neck of the woods is no different. We’re right down the highway from Pearland, whose Boys of Summer blazed a trail from Texas to Williamsport, Pennsylvania, last summer to go nearly all the way in the prestigious Little League World Series.

houston.culturemap.com

This truckload of Pearland boys could be from any Little League in Texas; hopefully in a couple of years it will be my kid’s First Colony team. We watched every game last summer, cheering for those boys in blue and hoping they would prevail. We laughed at the way the media zeroed in on the Pearland moms and their blinged-out team shirts. I guess not everyone “does” baseball that way, but around here, it’s de rigueur for baseball moms to have glitzy shirts, often with their kid’s number emblazoned in rhinestones. Writer Ken Hoffman said the Pearland team “tore through Texas tournaments and blew into Williamsport with tape-measure home runs, speeding- ticket-worthy fastballs and bedazzling mothers that the Little League World Series won’t forget.”

chron.com

All Stars is an exciting time. Grueling, too, with practice 7 days a week until the games start. We plan our vacations around the All Stars schedule, and schedule our daily activities around practice. The first tournament begins Tuesday, and I sure hope the Big Red Machine blows through District and Sectionals the way they did last summer, blazing a trail straight for the State Championship in Tyler, TX.

Since I missed pretty much all of it last summer, I didn’t realize that our district, Texas East Little League, “stretches from the Sabine River in the East to I-20 in the North to I-35 on the West to San Antonio and from there to the Gulf of Mexico and back to the Sabine River,” according to the Texas East website. 

We’re that little strip of green in the middle, District 16. Texas is a big state, the second-biggest in the country in both population and area, and baseball is serious business around here. I don’t know how many Little Leagues there are in Texas, but considering that this great state is 773 miles wide and 790 miles long and populated by some 25 million people (thank you, Wikipedia), I’d say there are a bunch.

I’ve written a lot about having missed so many of Payton’s games last summer. Don’t worry, I’m not going to re-hash it today. Suffice to say that if it had just been the bilateral mastectomy in mid-May, I would have been in fine shape for the All Star summer schedule. But no, the post-mastectomy infection had to surface, and the resulting hospital stays and surgeries meant there would be no trip to Tyler for me. From the moment that infection reared its ugly head, my life became one complication after another, and I began to live the famous Winston Churchill quote of “If you’re going through hell, keep going.” Just do it without being able to watch your kid play the best baseball of his life. From mastectomy to infection, to nearly 30 days in the hospital, to multiple tissue excisions, to saying good-bye to the tissue expanders, to a shaky recovery involving all manner of antibiotics and home health, to slowly very slowly getting a semblance of a normal life back to finally getting around to reconstruction, to the long recovery process after The Big Dig. Quite a circuitous route I took, with very little baseball.

So this summer, I’m going to soak it all up. Every scorching minute of it. Since Texas is in a major, seemingly unending drought, we probably won’t have to worry about getting rained out, like we did a few times last summer. I’ll be in my blinged-out shirt, cheering hard for the boys in red, and reflecting back on how much I missed last summer at the ballpark.

A victory for all the bald girls out there

Posted: June 15, 2011 | Author: | Filed under: breast cancer | Tags: , , , , , , , | 6 Comments

nbc.com

If you watch The Voice, you’re familiar with Beverly and Frenchie, the two members of Christina Aguillara’s team who are still alive in the competition. If you’re not familiar with the show, click on the link and get to know more about it. It’s entertaining.

Basic premise is similar to American Idol but the judges don’t get to see the contestants and have to choose them based solely on their voice. 

CeeLo Green, Christina, Adam, and Blake Shelton are the judges, and they each have a team of singers. They coach their singers and have a lot of fun while honing their voices. My little girl loves this show, and I have no trouble watching it with her simply because of the presence of Adam Levine. After seeing him and Maroon 5 live in October, I love him even more than I did before. And that’s all I’m going to say about that. 

Yvonne, I sure hope you’re reading this right now. Adam is the cure for all the problems in the world.

And he’s on TV every week.

How sweet is that??

Ok, back to Frenchie and Beverly.

There’s something unusual and cool about them. Yes, they both have great singing voices and stage presence (Frenchie, especially), and they seem to possess a wisdom and maturity that the other contestants do not. I happen to love the fact that Beverly lives an alternative lifestyle and is embraced nonetheless; makes me think and hope that progress has been made in the acceptance department.

The fact that two mature (read: older) women who don’t have conventional looks won out over the two younger, more traditionally attractive girls fills my heart with happiness.

Here’s the team Christina started with:

nbc.com

 

And here’s who’s left:

As far as I know, neither Frenchie nor Beverly has cancer or has endured chemo. My assumption is that they eschew hair on purpose, and for all my cancerchick friends out there in blogland, I’m calling this a victory for bald girls everywhere.

 

As if the tornado wasn’t bad enough…

Posted: June 14, 2011 | Author: | Filed under: breast cancer, infection | Tags: , , , , , , , , , , , , , , , , , , | 1 Comment

I feel a weird dichotomy of emotion when a friend hears about a rare and hard-to-treat infection and thinks of me. On one hand, it’s nice that my friends are the sort of people who know what’s going on in my life (I guess being a blabbermouth and having a blog help). On the other hand, it’s a weird feeling to be the one associated with the rare and hard-to-treat infection.

No matter, the horse is out of the barn, and the fact of the matter is that I did indeed have a rare and hard-to-treat infection, I am a blabbermouth, I do have a blog, and my friends rock.

So when the news broke that several people in the wake of last month’s giant killer tornado in Joplin, Missouri, have contracted a rare and hard-to-treat infection, my name came to mind. Perhaps this provides a bit of perspective for me. On many levels. It reminds me that while I’ve been through a lot, I also have a lot for which to be grateful. Namely things like this: #1, I wasn’t involved in the devastation of that giant killer tornado. #2, my rare infection was hard to diagnose but not especially hard to treat; just a giant pain in the ass. #3, my rare infection wasn’t deadly, as the one in Joplin is. #4, my rare infection is gone, baby gone. And, because I like odd numbers in lists, #5, I’m done with the 267-day course of oral antibiotics needed to treat my rare, pain-in-the-ass infection. Oh, if only I got paid extra for using hyphens in my modifiers.

cbsnews.com

The giant tornado last month in Joplin stirred up a lot of soil in its destructive path, and it uncovered mucormycosis, a deadly fungus among us. Like most bacteria and fungus, mucormycosis is all around us but only affects people who are already limping along with weakened immunity. The proverbial kicking a man who’s already down. It seems to prey upon people with diabetes, leukemia, lymphoma, and AIDS as well as those who have had an organ transplant and those who engage in chronic steroid use (Alex Rodriguez, you better be careful).

I must digress here for a moment about the mighty A-Rod. We don’t like him much in our house (understatement of the year, right there). Not just because we are die-hard, hard-core Red Sox fans and he’s on that other AL East team. You know, the one that wears those gawd-awful pinstripes. Ick. Well, A-Rod, in our opinion, typifies everything that’s wrong with pro sports: the drugs, the attitude, the disdain for the very fans who provide him job security. Imagine our surprise and delight when we found this yesterday:

An A-Rod baseball card, chewed to bits by our little dog Pedey. I love it! It’s even funnier because that little dog is named for Payton’s favorite Red Sox player, Dustin Pedroia. The idea of Pedey going after A-Rod fills my heart with pride. I’ve said before that Pedey is not much like his namesake: he’s lazy and clumsy with a ball, but in this case, Pedroia would be proud of this little dog for pouncing on A-Rod and tearing him to bits!

As long as we’re digressing for baseball-related ramblings, I might as well post a pic of my boy-crush, Jacoby Ellsbury. It’s been a while, and I know my loyal readers have missed him. Here ya go.

You’re welcome.

Ok, back to the Joplin tornado and its unwelcome sidekick. The tornado was a big one. An EF-5 to be precise. The EF scale refers to the Enhanced Fujita scale, which was developed at the Wind Science and Engineering Research Center at Texas Tech University. Yay Red Raiders. I don’t know much about the tornado scale, being a bit more familiar in this neck of the woods with the Saffir-Simpson Hurricane scale, but a quick peek on Wikipedia tells me that an EF-5 tornado means the storm has winds in excess of 200 mph. A bad-ass, scary storm, to be precise.

The May 22nd tornado cut the city of Joplin roughly in half with an estimated 7-mile-long by 1-mile-wide swath. It moved slowly and stayed on the ground rather than touching down and moving back up. All of these factors combined equal untold destruction, a death toll of 151 people, and the unleashing of a nasty fungus.

Eight tornado victims have contracted the mucormycosis, although public health officials won’t make an official link between the fungus and the tornado. Four of the people who tested positive for mucormycosis have died. It’s a nasty bug that spreads fast and can invade the blood supply of its victims, who typically have injuries and secondary wound infections. Sound familiar? Ugh. The rush of feelings and memories this topic evokes roars in my head much like a tornado. I think my PTSD is showing.

The mycormycosis fungus is usually found in soil and wood and enters the body either through a puncture wound or when a person breathes in mold spores. The dirt or vegetation becomes embedded under the skin, and mold is actually found in the wounds of people who have this bug. In some cases, wounds that had been stitched up after the tornado had to be reopened to clean out the contamination. Again, sound familiar? The incubation period is a little shorter on the fungus compared to the mycobacterium, and hopefully the fungus presents itself faster than the myco; both times I’ve been tested for that damn myco it took 6 weeks to present itself.

People with weakened immune systems who come into contact with this fungus have a mortality rate as high as 90 percent. Yes, you read that right: 90 percent.

wikipedia.com

It’s strange how the spores of this fungus look almost artistic under the microscope, yet can wreak unimaginable havoc on the human body. Compare that to my bacteria’s photo and you can see how vastly different these bugs appear under the microscope and why I have enormous respect for my sweet infectious disease doc. You rock, Dr Grimes! 

Because the mucormycosis fungus is so rare, medical research is limited, and treatment is simple but fraught with complications. Treating it sounds eerily familiar to me: confirm the bug, excise the affected tissue via surgery, and administer long-term and powerful antibiotics. Same plan I followed for the mycobacterium.

The Centers for Disease Control and Prevention said Friday that it is conducting tests to help investigate the infections, which are so uncommon that even the nation’s largest hospitals might see only one or two cases a year. In fact, Dr Ewe Schmidt, infectious disease specialist at Joplin’s Freeman Hospital, said that in 30 years of practice, he’s seen 2 cases of mucormycosis, both of which occurred in patients who had untreated diabetes.

“To my knowledge, a cluster like this [several cases of the fungus] has not been reported before,” said Dr. Benjamin Park, head of the CDC team that investigates fungal diseases. “This is a very rare fungus. And for people who do get the disease, it can be extremely severe.”

I’m so glad my rare infection wasn’t this deadly fungus. I’m even more glad that my rare infection is gone. And I’m so glad this guy and his dog survived the storm and the deadly fungus.

cbsnews.com

The battle of the K tape

Posted: June 10, 2011 | Author: | Filed under: breast cancer, tennis | Tags: , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 12 Comments

In addition to battling cancer and a nosocomial infection, I’ve also been busy battling plantar fasciitis.

mayoclinic.com

The PF preceded the BC, and while not as nasty–and certainly not life-threatening in any way–it’s a major drag. My feet hurt all the time. All. The. Time.  Maintaining my busy-body active lifestyle is pretty tricky with feet that hurt All. The. Time. It also severely limits my footwear. Cute shoes are pretty much out, as is going barefoot. I haven’t resorted to orthopedic shoes, but I’m not out of the woods yet, either. I have custom orthotics that go in my tennis shoes (don’t be jealous), and if I’m not wearing my tennies, I’m in my very dear Cole Haan flip flops or my not-s0-cute but cushy crocs flip flops. Thank goodness I don’t work in an office that requires closed-toe, pinchy shoes. I’d have to quit or get fired. Probably option #2.

I’ve seen a foot doctor, I’ve tried herbal remedies, I’ve taken copious amounts of RX anti-inflammatories, I’ve iced and elevated and slept in a splint. I had high hopes that while recovering from The Big Dig and taking several months off from tennis and most of my daily activities beyond laying in bed bemoaning my pitiful state would provide some respite from the foot problems that plague me. Alas, it did not. In fact, having foot pain while lying in bed doing none of the active things I want to do gave me more about which to bemoan. 

My tennis buddy and dog-spoiler extraordinaire Christy had the answer to my problems. Dr Scott Kelly of the Airrosti Clinic. I need another doctor in my life about as much as Lindsey Lohan needs another bad-influence friend. The thought of adding yet another doctor my circle of docs did not appeal to me one little bit, but desperate times….

The Airrosti Clinic uses an intense treatment model that involves some serious hands-on time with the doc. And when I say hands-on, I mean he’s gonna put his hands on your tenderest injured spot and mangle the hell out of it. For real.

airrosti.com

See, fascia is connective tissue that covers most of our body. It covers the different muscles, blood vessels and nerves “much like plastic wrap holds the contents of a sandwich together,” as it was explained to me. Problem with fascia is it’s everywhere, so your chance of injuring it is great, and it has little or no blood supply, so your chance of healing said injury is not great.

That’s where the laying of hands comes in. Dr Kelly gets his long, strong, mean hands into the damaged fascia and starts kneading it like bread. Then stretching it like taffy. Then punching it like a speed bag. All the while laughing maniacally at the moans, cries, screams and curse words coming from the patient. (Ok, he doesn’t really laugh maniacally but he does seem to enjoy his work very much, and when I showed him the line of bruises on my calf after his first hands-on treatment he smiled with obvious pride and said that’s his signature, and if he could sign his name in bruises, he would. That’s one autograph I don’t really need but apparently am gonna get. Repeatedly.)

When I met him last week, he grabbed ahold of my foot and said he could diagnose me in 30 seconds. I said I didn’t realize this was like speed-dating. He rolled his eyes, then told me that he could cure my PF in 3 treatments. I asked if he could also name that tune in one note. Why oh why don’t any of these doctors get my humor??

As skeptical as I was, I have to say that after the mangling, kneading, stretching, punching, and cussing, I could tell a difference. It took a while for the shock and trauma to subside, but once it did, I could tell that we were getting somewhere. The day after my first treatment, I got out of bed and walked barefoot on the tile without pain — something I hadn’t done in at least a year.

There’s homework, of course, that involves standing on a golf ball and rolling the ball all over the bottom of my feet, paying special attention to and lingering on the really tender spots. There are also a couple of exercises involving a 36-inch by 6-inch foam roller.

And then there’s the K tape. 

Kinesio tape. In every color of the rainbow, according to the image on ktape.com. The website is pretty glowing about this product:

“It’s designed for Professional athletes, Olympians, and active people world-wide who take health & fitness seriously and who refuse to stop training, playing, or living life active and free. The design is minimalist, the results are magic.”

That’s me: I refuse to stop training playing, or living life active and free. Bring on the magic!

I’d had K tape before, when I was treating my PF myself, and again when I started seeing my lovely lymphedema specialist, Tammy. She’s a certified K tape master. She’s been using K tape on my post-mastectomy chest and now on my post-reconstruction belly. I’m a believer in the magic of K tape. As part of the scar-tissue-management on my 17-inch-long incision on my belly, Tammy puts a couple of strips of K tape and we wait for the magic happen.

So when Dr Kelly wanted to tape my feet after my first treatment and asked if I’d ever heard of it, I said as a matter of fact, I have some on my belly right now. We hadn’t been through the whole song & dance about the BC business; I was hoping to keep the BC beast out of the sports medicine arena. Well, the elephant was certainly in the room when I mentioned I had K tape on my belly. In for a penny, in for a pound, and I had to explain. 

Yes, those are bruises just above the shorter piece of tape. If you’re fluent in the language of torture, you can probably tell that that’s how Dr K signs his name.

Dr Kelly seems to be a bit competitive, and wanted to tape me up real nice so that Tammy, the other K tape master, would approve. She did. And then she took it a step further. I guess she’s a bit competitive, too.

Instead of just using a couple of strips on the scar tissue on my belly, Tammy used a new technique she’d just learned at a K tape workshop. Could this be Turf Wars part deux? 

I can’t wait to show this to Dr Kelly. The battle of the K tape is on!

I hope neither he nor Tammy sees this K tape image and gets any big ideas:

googleimages.com

I’m ok with the crazy blue racing stripes on my legs & feet, and with the Frankenstein pink on my belly and over my new belly button, but I’m drawing the line at a pink ribbon made from K tape. No thanks!

Insomnia

Posted: June 10, 2011 | Author: | Filed under: breast cancer, food | Tags: , , , , , , , | 4 Comments

So it’s 1:00 in the morning and I’m wide awake. You’d think an impromptu dinner party with the hens in which we put away 5 bottles of Piper and 2 bottles of wine would give me the impetus for a hasty nighty-night, but no, my brain is whirring & churning instead of sending vibes of lullabies.

I have no idea how all those bottles got emptied, but I do know that I will be worthless at my early-morning tennis drill. I’m not a night owl, and no matter how late I stay up, I tend to wake up with the roosters, so I’m already thinking about the piquant smell of the coffee beans being ground and am hearing the sound of the jet-engine-like grinder as it pulvarizes the coffee beans into a fine enough powder that combined with hot water elicits an energizing brew.

Girlfriends old and new gathered around my dinner table is a tonic for the soul, for sure. Grilled teriyaki tuna steaks, ginger rice pilaf with snow peas, roasted broccoli, and a most delicious salad of mixed greens, goat cheese, strawberries, blueberries and candied pecans filled my belly and my soul with happiness. Throw in a sinfully complex chocolate mousse cake and you’ve got the recipe for bliss.

I’ve promised Payton & Macy a trip to see Kung Fu Panda 2 tomorrow, followed by a belated graduation dinner for my cousin Melissa. I may be napping through the movie and longing for my bed early tomorrow, but will not begrudge the laughter and fellowship of the late-night hens’ dinner party. As Po would say, “You guys see that? It’s called being awesome.” And as we all learned from the original Kung Fu Panda, there’s no charge for the awesomeness.

kungfupanda.wiki.com

Summertime

Posted: June 8, 2011 | Author: | Filed under: breast cancer | Tags: , , , , , , , , , , , , , , , , , , , , , , , , , | 10 Comments

Summertime, and the living is easy. Sam Cooke said it, well, sang it actually, a long time ago. The fish were jumpin’ and the cotton was high. The girl he was singing to had a daddy who was rich and a mama who was good-looking. All was right in Sam’s world.

Well, the living is easy all right. No alarms waking me up before I’m ready, no lunches to pack. Payton’s lunch is easy: sandwich, bag of baked chips, string cheese, Rice Krispie treat, and a drink. No lunch box, no ice pack — he’s too cool for that. Macy, on the other hand, is quite particular about her lunch, requiring 5 different things, some of which must be washed & chopped and placed into small tupperware. She does at least take the same thing every single day, much like her mama did as a schoolgirl. I had a homemade egg salad sandwich on wheat bread every day of my schoolgirl life, and didn’t care one lick that the other kids thought the egg salad looked gross and the brown bread looked weird. They could have their stick-to-the-roof-of-your-mouth Wonder bread PB&J any day. I was perfectly happy with my gross-looking egg salad on weird-looking bread.

So no lunches to pack, yea. No mountain of school paperwork to wade through, only to find that other than glancing at the grades at the top of the completed work, there’s not a single thing in that mountain that really matters. No racing the clock to get out of bed, gobble down breakfast, get dressed, and get out the door. No meanie mom enforcing a highly unpopular bedtime so the little darlings don’t act like feral hogs in the a.m. Last but not least, no school projects. Oh, how I despise the projects. After 18 years of living with the original slacker student, who did minimal work and gasp! even skipped school projects altogether yet made good grades and somehow managed to become a contributing & successful member of society, my opinion on school projects has definitely changed. Changed to hatred, that is. They’re messy, time-consuming, inane, and require ME to go to Hobby Lobby AND help with said project when I could be playing tennis.

Ok, rant is over.

I certainly hope I didn’t offend any teachers out there. If I did, please direct your hate mail to my husband, the original slacker student. It may take him a few days to reply, because he’s busy running a software company. I’m not sure he could have risen to such heights and attained 2 graduate degrees without that pivotal diorama he made in 3rd grade at Jenks Elementary.

Ok, now my rant is over.

So we are blessedly free of the strict schedule imposed by the Fort Bend Independent School District, and most thankfully free of the blasted school projects. We can go where we want to go when we want to go there, stay up late, and eat lunch when we please. All that sounds great, right?

Except for one tiny detail: I don’t do well with unstructured time. Remember me, the busy-body? I don’t blossom with a lot of downtime. It’s day 3 of summer, and I’m already feeling a little itchy, a little twitchy. As much as I dislike the hustle & bustle of the imposed school schedule, it does keep us on track. And I like that. I need that. I would have been great in the army.

Lots of people enjoy their downtime and get into being lazy. For me, laziness makes me feel icky. I really like having a to-do list every day and relish the feeling of being productive. Some people were laughing at me that on the first day of summer, I cleaned out the garage, did 4 loads of laundry, vacuumed the entire downstairs, and bagged up discarded clothes for donation. Before lunchtime.

Now that my kids are a little older and a bit more independent, summer isn’t as stressful because I can still get my stuff done without having to watch them every second. The ever-present possibility of a toddler finger in a light switch cramps my style and interferes with me crossing things off my to-do list. With the luxury of semi-independent children, I’m trying to relax more this summer. That, and the burning desire to suck every drop of summer this year, since last summer was such a bust.

Last summer, I was not only recovering from a bilateral mastectomy but also playing hostess with the mostess to a nasty, long-staying bacteria that exploded into a messy, hard-t0-diagnose-and-even-harder-to-eradicate infection. I spent some extra time in the hospital, multiple times and multiple hospitals, and had a few extra surgeries. I weathered the ups & downs of being an impatient patient, and learned the hard, hard lesson that no matter how nicely I treat my body, it can and will betray me. As my sweet mama would have said, “That is rude, crude, and socially unacceptable.”

Last summer I missed out on a lot, thanks to Mr. Mycobacterium. This summer is going to be different. I’m going to spend some idle time, and hopefully learn to like it. I’m going to float in the pool with my kids and my crazy dog, and not worry about the laundry piling up or the dishwasher needing to be emptied. I’m going to teach my kids to cook, and not stress over the messy kitchen. I’m going to drag them away from the TV and computer games and into the museum district, and not get discouraged when they complain about how boring it is.

This summer, I’m going to relish being home instead of in a hospital, staring at this: 

I’m going to delight in the fact that I don’t have any of these attached to me:

I’m going to do a little dance about the fact that my sling bag isn’t carrying any of those icky things that are no longer attached to me:

and that I no longer need a collection of these to catch the collection of gunk that accumulates in those things to which I’m not longer tethered:

I’m going to breathe a sigh of relief that I don’t have any of these stuck to me:

I’m going to offer up a special nod to the fates that I won’t be going here:

to get more of this:

However unstructured this summer is, it’s gonna be great. Summertime and the living is easy.

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